Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Hi- I'm new to the group and have been lurking for a few weeks. I just had my first Remicade treatment on Monday(I have RA and fibro)and haven't been responsive in a consistent way to any of the drugs I've taken (MTX, plaqunil,(sp) predinisone,(sp) etc)....and I'm wondering what to expect. I guess I naivelly believed that I would wake up this morning feeling like my old self. I've been so sad because nothing feels different yet. My dr. didn't tell me what to expect and I've done some reading on the web all of which suggest that things will get better - if I respond to the medicine...but none talk about the journey towards improvement. So, I quess I wanted to know what the journey has been like for others on these types of drugs. What can I expect. (I know everyone is different but I want to get a sense about the range of possiblities.) Any information would be helpful. Thanks! in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Welcome . I'm not on Remicade so I can't give you any personal experience. We have many members on it, all with different experiences. Sometimes it takes a few infusions to feel improvement. Everyone is different. Hopefully you will respond and feel better soon. a On Wed, 09 Mar 2005 04:15:47 -0000, IndyMochaMom <kcrawfords@...> wrote: > > > Hi- > > I'm new to the group and have been lurking for a few weeks. I just > had my first Remicade treatment on Monday(I have RA and fibro)and > haven't been responsive in a consistent way to any of the drugs I've > taken (MTX, plaqunil,(sp) predinisone,(sp) etc)....and I'm wondering > what to expect. I guess I naivelly believed that I would wake up this > morning feeling like my old self. I've been so sad because nothing > feels different yet. My dr. didn't tell me what to expect and I've > done some reading on the web all of which suggest that things will > get better - if I respond to the medicine...but none talk about the > journey towards improvement. So, I quess I wanted to know what the > journey has been like for others on these types of drugs. What can I > expect. (I know everyone is different but I want to get a sense about > the range of possiblities.) > > Any information would be helpful. > > Thanks! > > in IL > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Welcome . I'm not on Remicade so I can't give you any personal experience. We have many members on it, all with different experiences. Sometimes it takes a few infusions to feel improvement. Everyone is different. Hopefully you will respond and feel better soon. a On Wed, 09 Mar 2005 04:15:47 -0000, IndyMochaMom <kcrawfords@...> wrote: > > > Hi- > > I'm new to the group and have been lurking for a few weeks. I just > had my first Remicade treatment on Monday(I have RA and fibro)and > haven't been responsive in a consistent way to any of the drugs I've > taken (MTX, plaqunil,(sp) predinisone,(sp) etc)....and I'm wondering > what to expect. I guess I naivelly believed that I would wake up this > morning feeling like my old self. I've been so sad because nothing > feels different yet. My dr. didn't tell me what to expect and I've > done some reading on the web all of which suggest that things will > get better - if I respond to the medicine...but none talk about the > journey towards improvement. So, I quess I wanted to know what the > journey has been like for others on these types of drugs. What can I > expect. (I know everyone is different but I want to get a sense about > the range of possiblities.) > > Any information would be helpful. > > Thanks! > > in IL > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi, !! Welcome to the group! I was on Remicade for about 10 months before I was switched to Enbrel. Well, what can I tell you...hmm. For one thing, make sure you take either Zyrtec, Benadryl or what ever your rheumy may have told you as well as some Tylenol. They want you to have this in your system to help decrease the side effects. Personally, I did not take the allergy meds because I was getting enough protection from the prednisone, but follow what ever you were told to do. It is given over about 2 hours by infusion. They will check your vital signs periodically during the infusion to make sure your temp, blood pressure, and heart rate are ok. If you start to feel anything, let the nurse know. I would occasionally feel flushed (like a hot flash) and a little light headed. I always to a book and my gameboy to kill time. They had a TV in there, but I always went late morning so they always watched Dr. Phil--I went through a lot of books and got really good at the gameboy!! Anyway, you may want to have someone drive you in the first time, and if you live far away, for all your infusions. Reason being, most people I have talked to, myself included, gets very tired afterwards. For me it usually kicked in with in an hour. I would go home and just sleep most of the day away. I tried to go to work once after an infusion and chose not to do that ever again!! One other tip, you may want to eat a little something before the infusion as well. It does help. If you have any specific questions, feel free to email me...Take care...Marina --- In , " IndyMochaMom " <kcrawfords@s...> wrote: > > > Hi- > > I'm new to the group and have been lurking for a few weeks. I just > had my first Remicade treatment on Monday(I have RA and fibro)and > haven't been responsive in a consistent way to any of the drugs I've > taken (MTX, plaqunil,(sp) predinisone,(sp) etc)....and I'm wondering > what to expect. I guess I naivelly believed that I would wake up this > morning feeling like my old self. I've been so sad because nothing > feels different yet. My dr. didn't tell me what to expect and I've > done some reading on the web all of which suggest that things will > get better - if I respond to the medicine...but none talk about the > journey towards improvement. So, I quess I wanted to know what the > journey has been like for others on these types of drugs. What can I > expect. (I know everyone is different but I want to get a sense about > the range of possiblities.) > > Any information would be helpful. > > Thanks! > > in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi, !! Welcome to the group! I was on Remicade for about 10 months before I was switched to Enbrel. Well, what can I tell you...hmm. For one thing, make sure you take either Zyrtec, Benadryl or what ever your rheumy may have told you as well as some Tylenol. They want you to have this in your system to help decrease the side effects. Personally, I did not take the allergy meds because I was getting enough protection from the prednisone, but follow what ever you were told to do. It is given over about 2 hours by infusion. They will check your vital signs periodically during the infusion to make sure your temp, blood pressure, and heart rate are ok. If you start to feel anything, let the nurse know. I would occasionally feel flushed (like a hot flash) and a little light headed. I always to a book and my gameboy to kill time. They had a TV in there, but I always went late morning so they always watched Dr. Phil--I went through a lot of books and got really good at the gameboy!! Anyway, you may want to have someone drive you in the first time, and if you live far away, for all your infusions. Reason being, most people I have talked to, myself included, gets very tired afterwards. For me it usually kicked in with in an hour. I would go home and just sleep most of the day away. I tried to go to work once after an infusion and chose not to do that ever again!! One other tip, you may want to eat a little something before the infusion as well. It does help. If you have any specific questions, feel free to email me...Take care...Marina > > > Hi- > > I'm new to the group and have been lurking for a few weeks. I just > had my first Remicade treatment on Monday(I have RA and fibro)and > haven't been responsive in a consistent way to any of the drugs I've > taken (MTX, plaqunil,(sp) predinisone,(sp) etc)....and I'm wondering > what to expect. I guess I naivelly believed that I would wake up this > morning feeling like my old self. I've been so sad because nothing > feels different yet. My dr. didn't tell me what to expect and I've > done some reading on the web all of which suggest that things will > get better - if I respond to the medicine...but none talk about the > journey towards improvement. So, I quess I wanted to know what the > journey has been like for others on these types of drugs. What can I > expect. (I know everyone is different but I want to get a sense about > the range of possiblities.) > > Any information would be helpful. > > Thanks! > > in IL Quote Link to comment Share on other sites More sharing options...
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