Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Hi Meg. I'm so glad you are feeling better and your RA is now under control. I've flown with Enbrel and have no problem with it in my carry on. In fact, it is advised to always keep your meds in your carry on and never to check them in your luggage just in case your luggage gets lost. I hope your flight is hassle free and you have a good time. Try not to worry about travel problems. a On Mon, 7 Mar 2005 21:08:37 EST, MaccaJ6565@... <MaccaJ6565@...> wrote: > Hi everyone, > > I've been a champion lurker on this list, for which I apologize - I'm very > bad at keeping up with my email! Hopefully someday soon I'll feel a little > less > frazzled and will be able to participate more actively here. > > For now, a few questions for the seasoned veterans. I'm flying across the > country to Los Angeles in a few days for a brief stay with friends. My > rheumy > says my RA is now " stable " and I feel pretty good - not as good as I did > pre-RA, > but I've come to terms with the fact that I'll probably never get back to > that > point (I was in pretty bad shape by the time I got in to the rheumy and got > a > real diagnosis, about 7 months ago). I'm as ready for this trip as I'll > ever > be. > > That said, I haven't flown anywhere since before 9/11, and haven't flown > unaccompanied since 1998 (I use a wheelchair due to cerebral palsy, so > flying has > always been an... *interesting* experience). I'm nervous about being on a > 5+ > hour flight, being pretty much non-ambulatory, traveling with all of my RA > drugs, traveling with RA in general. I have a note from my rheumy listing > all of > my meds and saying that I am authorized to travel with them, and all of my > meds > are in their original, most current bottles. Is there anything else I need > to > be prepared for vis-a-vis traveling with RA, in general? I'm on injectable > mtx and enbrel, am I correct in assuming that my mtx syringes need to go in > my > checked luggage? Has anyone ever had any problems with getting their enbrel > through security? I'm on the 25mg 2x a week dosage, and I'm wondering if I > need > to go ahead and open the packages so I can stow the needles in my luggage > and > the actual meds in my carry-on. And yes, I realize I'm probably > overthinking > this whole thing, but air travel has always been a huge hassle for me and I > have > no end of horror stories related to traveling with a disability, so I > *never* > run out of things to stress over... > > The friends I'm staying with in LA are in wheelchairs and/or are very good > at > dealing with disability/accessibility issues, so I'm not really worried > about > anything cropping up once I'm there - I'll be well looked after! It's just > the air travel that's stressing me out. > > Any hints/tips/experience/etc welcome. > > Thanks! > > Meg > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Hi Meg. I'm so glad you are feeling better and your RA is now under control. I've flown with Enbrel and have no problem with it in my carry on. In fact, it is advised to always keep your meds in your carry on and never to check them in your luggage just in case your luggage gets lost. I hope your flight is hassle free and you have a good time. Try not to worry about travel problems. a On Mon, 7 Mar 2005 21:08:37 EST, MaccaJ6565@... <MaccaJ6565@...> wrote: > Hi everyone, > > I've been a champion lurker on this list, for which I apologize - I'm very > bad at keeping up with my email! Hopefully someday soon I'll feel a little > less > frazzled and will be able to participate more actively here. > > For now, a few questions for the seasoned veterans. I'm flying across the > country to Los Angeles in a few days for a brief stay with friends. My > rheumy > says my RA is now " stable " and I feel pretty good - not as good as I did > pre-RA, > but I've come to terms with the fact that I'll probably never get back to > that > point (I was in pretty bad shape by the time I got in to the rheumy and got > a > real diagnosis, about 7 months ago). I'm as ready for this trip as I'll > ever > be. > > That said, I haven't flown anywhere since before 9/11, and haven't flown > unaccompanied since 1998 (I use a wheelchair due to cerebral palsy, so > flying has > always been an... *interesting* experience). I'm nervous about being on a > 5+ > hour flight, being pretty much non-ambulatory, traveling with all of my RA > drugs, traveling with RA in general. I have a note from my rheumy listing > all of > my meds and saying that I am authorized to travel with them, and all of my > meds > are in their original, most current bottles. Is there anything else I need > to > be prepared for vis-a-vis traveling with RA, in general? I'm on injectable > mtx and enbrel, am I correct in assuming that my mtx syringes need to go in > my > checked luggage? Has anyone ever had any problems with getting their enbrel > through security? I'm on the 25mg 2x a week dosage, and I'm wondering if I > need > to go ahead and open the packages so I can stow the needles in my luggage > and > the actual meds in my carry-on. And yes, I realize I'm probably > overthinking > this whole thing, but air travel has always been a huge hassle for me and I > have > no end of horror stories related to traveling with a disability, so I > *never* > run out of things to stress over... > > The friends I'm staying with in LA are in wheelchairs and/or are very good > at > dealing with disability/accessibility issues, so I'm not really worried > about > anything cropping up once I'm there - I'll be well looked after! It's just > the air travel that's stressing me out. > > Any hints/tips/experience/etc welcome. > > Thanks! > > Meg > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 No, please do it on the list, as I am also interested. I will be flying cross country in a few months, and it will be my first flight. Sue On Monday, March 7, 2005, at 09:55 PM, Aguilar wrote: > > Hi my name is and I have RA I'm also on Enbrel 25mg. twice a > week. I might be able to help you if you would like to chat privately > you can e-mail me at fortyslpz@... Good luck and God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 No, please do it on the list, as I am also interested. I will be flying cross country in a few months, and it will be my first flight. Sue On Monday, March 7, 2005, at 09:55 PM, Aguilar wrote: > > Hi my name is and I have RA I'm also on Enbrel 25mg. twice a > week. I might be able to help you if you would like to chat privately > you can e-mail me at fortyslpz@... Good luck and God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Meg, No, don't put your syringes in your checked luggage. As long as your doctor says you need to have syringes with you, it will be fine. I'm diabetic and always carry a good supply of syringes in my carry-on along with all of my meds. I don't want to take a chance on any of my meds, syringes, etc. getting lost in checked luggage. In my opinion, travelling in a wheelchair has made air travel much easier since 9/11. I always have a skycap (or whatever they call them) push me and I get to go to the head of all lines along with whoever I'm travelling with. I get to pre-board and get settled before the crowds descend. People are always offering to help --- other travelers as well as airline personnel. Don't worry or fret about your trip. Plan well before you go, and then just sit back and enjoy your trip. My experiences travelling by air as a handicapped person since 9/11 have all been very positive. Good luck to you. Elaine > Hi everyone, > > I've been a champion lurker on this list, for which I apologize - I'm very > bad at keeping up with my email! Hopefully someday soon I'll feel a little less > frazzled and will be able to participate more actively here. > > For now, a few questions for the seasoned veterans. I'm flying across the > country to Los Angeles in a few days for a brief stay with friends. My rheumy > says my RA is now " stable " and I feel pretty good - not as good as I did pre-RA, > but I've come to terms with the fact that I'll probably never get back to that > point (I was in pretty bad shape by the time I got in to the rheumy and got a > real diagnosis, about 7 months ago). I'm as ready for this trip as I'll ever > be. > > That said, I haven't flown anywhere since before 9/11, and haven't flown > unaccompanied since 1998 (I use a wheelchair due to cerebral palsy, so flying has > always been an... *interesting* experience). I'm nervous about being on a 5+ > hour flight, being pretty much non-ambulatory, traveling with all of my RA > drugs, traveling with RA in general. I have a note from my rheumy listing all of > my meds and saying that I am authorized to travel with them, and all of my meds > are in their original, most current bottles. Is there anything else I need to > be prepared for vis-a-vis traveling with RA, in general? I'm on injectable > mtx and enbrel, am I correct in assuming that my mtx syringes need to go in my > checked luggage? Has anyone ever had any problems with getting their enbrel > through security? I'm on the 25mg 2x a week dosage, and I'm wondering if I need > to go ahead and open the packages so I can stow the needles in my luggage and > the actual meds in my carry-on. And yes, I realize I'm probably overthinking > this whole thing, but air travel has always been a huge hassle for me and I have > no end of horror stories related to traveling with a disability, so I *never* > run out of things to stress over... > > The friends I'm staying with in LA are in wheelchairs and/or are very good at > dealing with disability/accessibility issues, so I'm not really worried about > anything cropping up once I'm there - I'll be well looked after! It's just > the air travel that's stressing me out. > > Any hints/tips/experience/etc welcome. > > Thanks! > > Meg > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Meg, No, don't put your syringes in your checked luggage. As long as your doctor says you need to have syringes with you, it will be fine. I'm diabetic and always carry a good supply of syringes in my carry-on along with all of my meds. I don't want to take a chance on any of my meds, syringes, etc. getting lost in checked luggage. In my opinion, travelling in a wheelchair has made air travel much easier since 9/11. I always have a skycap (or whatever they call them) push me and I get to go to the head of all lines along with whoever I'm travelling with. I get to pre-board and get settled before the crowds descend. People are always offering to help --- other travelers as well as airline personnel. Don't worry or fret about your trip. Plan well before you go, and then just sit back and enjoy your trip. My experiences travelling by air as a handicapped person since 9/11 have all been very positive. Good luck to you. Elaine > Hi everyone, > > I've been a champion lurker on this list, for which I apologize - I'm very > bad at keeping up with my email! Hopefully someday soon I'll feel a little less > frazzled and will be able to participate more actively here. > > For now, a few questions for the seasoned veterans. I'm flying across the > country to Los Angeles in a few days for a brief stay with friends. My rheumy > says my RA is now " stable " and I feel pretty good - not as good as I did pre-RA, > but I've come to terms with the fact that I'll probably never get back to that > point (I was in pretty bad shape by the time I got in to the rheumy and got a > real diagnosis, about 7 months ago). I'm as ready for this trip as I'll ever > be. > > That said, I haven't flown anywhere since before 9/11, and haven't flown > unaccompanied since 1998 (I use a wheelchair due to cerebral palsy, so flying has > always been an... *interesting* experience). I'm nervous about being on a 5+ > hour flight, being pretty much non-ambulatory, traveling with all of my RA > drugs, traveling with RA in general. I have a note from my rheumy listing all of > my meds and saying that I am authorized to travel with them, and all of my meds > are in their original, most current bottles. Is there anything else I need to > be prepared for vis-a-vis traveling with RA, in general? I'm on injectable > mtx and enbrel, am I correct in assuming that my mtx syringes need to go in my > checked luggage? Has anyone ever had any problems with getting their enbrel > through security? I'm on the 25mg 2x a week dosage, and I'm wondering if I need > to go ahead and open the packages so I can stow the needles in my luggage and > the actual meds in my carry-on. And yes, I realize I'm probably overthinking > this whole thing, but air travel has always been a huge hassle for me and I have > no end of horror stories related to traveling with a disability, so I *never* > run out of things to stress over... > > The friends I'm staying with in LA are in wheelchairs and/or are very good at > dealing with disability/accessibility issues, so I'm not really worried about > anything cropping up once I'm there - I'll be well looked after! It's just > the air travel that's stressing me out. > > Any hints/tips/experience/etc welcome. > > Thanks! > > Meg > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 My daughter recently flew home from San Francisco to DC. Her checked luggage didn't fly with her, unfortunately. She had put her keys in that suitcase. Therefore, her car left at the airport was useless to her, so she had to take a taxi home. There was a house key on the outside of her house, left by the cat sitter, so she could get into her house. But she did have to do without her car for a few days. Sue On Tuesday, March 8, 2005, at 12:03 AM, elainho wrote: > > No, don't put your syringes in your checked luggage. As long as your > doctor says you need to have syringes with you, it will be fine. I'm > diabetic and always carry a good supply of syringes in my carry-on > along with all of my meds. I don't want to take a chance on any of my > meds, syringes, etc. getting lost in checked luggage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 My daughter recently flew home from San Francisco to DC. Her checked luggage didn't fly with her, unfortunately. She had put her keys in that suitcase. Therefore, her car left at the airport was useless to her, so she had to take a taxi home. There was a house key on the outside of her house, left by the cat sitter, so she could get into her house. But she did have to do without her car for a few days. Sue On Tuesday, March 8, 2005, at 12:03 AM, elainho wrote: > > No, don't put your syringes in your checked luggage. As long as your > doctor says you need to have syringes with you, it will be fine. I'm > diabetic and always carry a good supply of syringes in my carry-on > along with all of my meds. I don't want to take a chance on any of my > meds, syringes, etc. getting lost in checked luggage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 How are you going to keep your Enbrel cold during the flight? Sue On Monday, March 7, 2005, at 09:08 PM, MaccaJ6565@... wrote: > Has anyone ever had any problems with getting their enbrel > through security? I'm on the 25mg 2x a week dosage, and I'm wondering > if I need > to go ahead and open the packages so I can stow the needles in my > luggage and > the actual meds in my carry-on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 How are you going to keep your Enbrel cold during the flight? Sue On Monday, March 7, 2005, at 09:08 PM, MaccaJ6565@... wrote: > Has anyone ever had any problems with getting their enbrel > through security? I'm on the 25mg 2x a week dosage, and I'm wondering > if I need > to go ahead and open the packages so I can stow the needles in my > luggage and > the actual meds in my carry-on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 I put mine in the cooler bag that Innumex sent me along with the freezer pack that came with it. Anyone taking Enbrel can join the Enliven service: http://www.enbrel.com/enliven/enbrel-enliven.jsp They also will supply sharps containers as well as help with insurance issues. a On Tue, 8 Mar 2005 21:46:09 -0500, Sue <marysue@...> wrote: > How are you going to keep your Enbrel cold during the flight? Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 I put mine in the cooler bag that Innumex sent me along with the freezer pack that came with it. Anyone taking Enbrel can join the Enliven service: http://www.enbrel.com/enliven/enbrel-enliven.jsp They also will supply sharps containers as well as help with insurance issues. a On Tue, 8 Mar 2005 21:46:09 -0500, Sue <marysue@...> wrote: > How are you going to keep your Enbrel cold during the flight? Sue > Quote Link to comment Share on other sites More sharing options...
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