Re: Confused Even More...

[Guest guest]

Hi

I'm so sorry to year of the horrible problems you are having Hugs! The first

thing I would do is throw that AF Doc away! He is one who believes in mind over

matter and you won't get him to believe otherwise unfortunately. I hate when

docs do this. lol Everyone's mind is different and not everyone can perform the

mind over matter effectively! And the ones who claim they can, I seriously

question them. lol

Did you tell your Neuro that the patches did this to you? If not, you truly need

to, ASAP. Obviously you cannot take them and need some other form of medication.

I personally, do not have RSD, but as you know there are several here who do.

I'm interested in what they have to say.

Secondly , I would get a lawyer and go after the surgeon who did " surgery " on

your knee. I would sue the crap out of him/her. Perhaps you wouldn't be going

through ANY of this had he/she performed the surgery he/she was suppose to be

doing? You mean the surgeon cut your knee opened and everything and did nothing?

This is just terrible to say the least. I am just appalled that he/she did this.

WOW. I know there are crooked docs out there, so really I shouldn't be

surprised. I do know as far as meds go, Neurontin helps some RSD patients a bit,

not totally, they still have to take something else, but it does help some. And

they also have mentioned taking Percocet I believe and maybe Morphine. You might

consider seeing a Pain Management Specialist too. AND someone who will operate

on your knee and fix it. Don't let them run you through the mill like this.

Fight them, they DO work for you ya know?

The AF Doc wanting you to do PT to strengthen the muscles around the knee? I can

see this, as he is trying to strengthen muscles to relieve work load on the

knee. This helps in some cases, but I'm not so sure it would help yours, since

the surgery wasn't performed and repairs made. I would think NOT!

I know this probably hasn't helped you too much, but I did get to vent about

what they have done to you with you! Thank you I would seriously consider the

PM Doc, new Ortho doc and communicating the patch problems with the Neuro.

Perhaps he could get you some form of relief while you are waiting to get into

the PM doc? Ask him about the Neurontin and Percocet. You can go up to like

3200mg's per day of Neurontin, but he will start you on a very low dose of like

100mg 3x's a day to start with. Or that is about what he should start you at.

Neurontin is an anti seizure med, in case you didn't know, but it has been

proven to help with nerve pain, e.i. RSD. It does help my Neuropathy.

Good Luck to you and please by all means, keep us posted on what happens?

Gentle hugs,

Tommie

Good Morning To All,

Wow...Where on earth did that Lucy come from anyway? Just read she is

leaving the group for some silly rumors? Wow...she must have some

severe problems!

I need to vent guys..and I need good ears...so for you that are

reading this, I thank you!

Brief history..hurt in July 2005..work accident. Diagnosed with RSD

over a year ago but worker's comp would not hear of it. It has been a

slow process here in Florida getting medical attention. There are not

many doctors here that will touch you if you are worker's comp or work

related.

Anyway...injured left knee July, 2005. Surgery September 29th, 2005.

Intense PT for 5 months with no gain. Released me from

care...orthopedic doctor..January 2006.

Cannot walk...only around the house with furniture or things near me.

2 MRI's later...there were signs of severe problems. Dr. McCarthy

orthopedic...NON worker's comp...looks at MRI's to compare injury and

post-op surgery. He see's nothing was done in surgery. All looks the

same as before accident.

Refer's me now to USF in Tampa~Appointment December 27th, 2006 with

Dr. Honnan.

Here is where I am confused and I need everyone's imput if I may. Dr.

Honnan states and confirms YES you have RSD (DUH) Here is the

kicker..despite the injuries still in my knee, he claims I should

exersize the left leg to build up the muscle tone that was lost

through neglect of worker's comp. He CANNOT and WILL NOT perform any

surgery on my leg and knee to fix anything more. He states I need to

re-train my mind to forget about the pain. My question is this...I

could completely understand if the pain was only RSD (not only but I

think you know where I am coming from)but with the knee still being

injuried, torn and really messed up...how in the world am I suppose to

learn to forget pain...and learn to walk normal on this leg?

I didn't expect this answer when I left that appointment on the 27th

of this month...and I have been having a hard time trying to come to

terms with what I was told. Anyone have any advise here?

Also...I have only been working with a neurologist for pain meds...and

that has been a nightmare in itself with trying to get the correct

amount to keep my pain under control.

I feel it is all to much with having the RSD pain...not to mention the

knee is racked up, and torn pain. Can those of you with RSD please

drop me a line and tell me the medications you are taking? If I need

to I am going to print this out and take this to my appointment to

show this doctor...I need HELP! The pain drives me crazy..and I do

not feel any human needs to be put through this! At this point the

only pain relief he gave me this month..is a Fentenal Patch which

makes me sick to my stomach..and everything takes horrible. That

means I am not eating well.

I would sincerely appreciate any and all imput on this...thank you all

so much for reading my book!

I hope you are all having a better day than I....

in Florida

[Guest guest]

Wow! i got behind on reading my e mails until just now and I guess wackos

are everywhere Just try to remember most people are o k and try not to let

one person get you down Don

>

> Hi

>

> I'm so sorry to year of the horrible problems you are having Hugs! The

> first thing I would do is throw that AF Doc away! He is one who believes in

> mind over matter and you won't get him to believe otherwise unfortunately. I

> hate when docs do this. lol Everyone's mind is different and not everyone

> can perform the mind over matter effectively! And the ones who claim they

> can, I seriously question them. lol

> Did you tell your Neuro that the patches did this to you? If not, you

> truly need to, ASAP. Obviously you cannot take them and need some other form

> of medication. I personally, do not have RSD, but as you know there are

> several here who do. I'm interested in what they have to say.

> Secondly , I would get a lawyer and go after the surgeon who did " surgery "

> on your knee. I would sue the crap out of him/her. Perhaps you wouldn't be

> going through ANY of this had he/she performed the surgery he/she was

> suppose to be doing? You mean the surgeon cut your knee opened and

> everything and did nothing? This is just terrible to say the least. I am

> just appalled that he/she did this. WOW. I know there are crooked docs out

> there, so really I shouldn't be surprised. I do know as far as meds go,

> Neurontin helps some RSD patients a bit, not totally, they still have to

> take something else, but it does help some. And they also have mentioned

> taking Percocet I believe and maybe Morphine. You might consider seeing a

> Pain Management Specialist too. AND someone who will operate on your knee

> and fix it. Don't let them run you through the mill like this. Fight them,

> they DO work for you ya know?

> The AF Doc wanting you to do PT to strengthen the muscles around the knee?

> I can see this, as he is trying to strengthen muscles to relieve work load

> on the knee. This helps in some cases, but I'm not so sure it would help

> yours, since the surgery wasn't performed and repairs made. I would think

> NOT!

>

> I know this probably hasn't helped you too much, but I did get to vent

> about what they have done to you with you! Thank you I would seriously

> consider the PM Doc, new Ortho doc and communicating the patch problems with

> the Neuro. Perhaps he could get you some form of relief while you are

> waiting to get into the PM doc? Ask him about the Neurontin and Percocet.

> You can go up to like 3200mg's per day of Neurontin, but he will start you

> on a very low dose of like 100mg 3x's a day to start with. Or that is about

> what he should start you at. Neurontin is an anti seizure med, in case you

> didn't know, but it has been proven to help with nerve pain, e.i. RSD. It

> does help my Neuropathy.

>

> Good Luck to you and please by all means, keep us posted on what

> happens?

>

> Gentle hugs,

> Tommie

>

> Good Morning To All,

> Wow...Where on earth did that Lucy come from anyway? Just read she is

> leaving the group for some silly rumors? Wow...she must have some

> severe problems!

> I need to vent guys..and I need good ears...so for you that are

> reading this, I thank you!

> Brief history..hurt in July 2005..work accident. Diagnosed with RSD

> over a year ago but worker's comp would not hear of it. It has been a

> slow process here in Florida getting medical attention. There are not

> many doctors here that will touch you if you are worker's comp or work

> related.

> Anyway...injured left knee July, 2005. Surgery September 29th, 2005.

> Intense PT for 5 months with no gain. Released me from

> care...orthopedic doctor..January 2006.

> Cannot walk...only around the house with furniture or things near me.

> 2 MRI's later...there were signs of severe problems. Dr. McCarthy

> orthopedic...NON worker's comp...looks at MRI's to compare injury and

> post-op surgery. He see's nothing was done in surgery. All looks the

> same as before accident.

> Refer's me now to USF in Tampa~Appointment December 27th, 2006 with

> Dr. Honnan.

> Here is where I am confused and I need everyone's imput if I may. Dr.

> Honnan states and confirms YES you have RSD (DUH) Here is the

> kicker..despite the injuries still in my knee, he claims I should

> exersize the left leg to build up the muscle tone that was lost

> through neglect of worker's comp. He CANNOT and WILL NOT perform any

> surgery on my leg and knee to fix anything more. He states I need to

> re-train my mind to forget about the pain. My question is this...I

> could completely understand if the pain was only RSD (not only but I

> think you know where I am coming from)but with the knee still being

> injuried, torn and really messed up...how in the world am I suppose to

> learn to forget pain...and learn to walk normal on this leg?

> I didn't expect this answer when I left that appointment on the 27th

> of this month...and I have been having a hard time trying to come to

> terms with what I was told. Anyone have any advise here?

> Also...I have only been working with a neurologist for pain meds...and

> that has been a nightmare in itself with trying to get the correct

> amount to keep my pain under control.

> I feel it is all to much with having the RSD pain...not to mention the

> knee is racked up, and torn pain. Can those of you with RSD please

> drop me a line and tell me the medications you are taking? If I need

> to I am going to print this out and take this to my appointment to

> show this doctor...I need HELP! The pain drives me crazy..and I do

> not feel any human needs to be put through this! At this point the

> only pain relief he gave me this month..is a Fentenal Patch which

> makes me sick to my stomach..and everything takes horrible. That

> means I am not eating well.

> I would sincerely appreciate any and all imput on this...thank you all

> so much for reading my book!

>

> I hope you are all having a better day than I....

>

> in Florida

>

>