what's the worst case scenario?

[Guest guest]

Hello everyone,

I haven't been diagnosed yet but I'm certain that I have a tight filum

terminale. I consider myself fortunate that I don't have traditional

spina bifida or tethered cord. But, lately (esp since the birth of my

son) my symptoms are worsening.

I've had constant head/neck pain since I was 28 (I'm 35 now).

I've always had a little strange pinched feeling in my lower

back...and a fatty lump. I won't go into the other reasons I know I

have tight filum terminale...just humor me and assume I do.

Since having my son, my lower back pain has become very bothersome -

to the point of waking me up at night. I'm also noticing very tight

calves. And achiness in my legs...esp anteriorly just above my

knees. Also, keep in mind that I've been on narcotics for (head) pain

relief for 2 years now...and I suspect that this is masking my leg/hip

pain somewhat.

Can a tight filum terminale put your in a wheelchair if it goes

untreated? My worst fear is that my doctors won't be able to identify

that I have it. I've had the flip flop mri and, even to me, it

doesn't look like tethered cord. But, mark my words, I KNOW I have it.

So, what I really want to know is, what's going to happen to me if

this is never treated? Give it to me straight...

in land