Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Hi my name is and I am 36 years old and was diagnosed at the age of 14 with RA but by that time Dr. says that I had probably have had it for years I might have even been born with it well I had no idea what it was and my parents were going through a divorce at the time so after leaving the Dr. office not only did I not get treatment but not much was said about it at home except when I started getting picked on in school because I walked with a limp or because I couldn't run the laps in P.E. oh or getting in trouble for being late to school because my hands hurt so bad that it took forever to get dressed, brush my hair, brush my teeth and walk to school about 2 to 3 miles in the cold that’s when I decided to drop out and with dad gone and mom working no one put up a fuss I even think that it might have been convenient I mean 's home there's no reason why dinner wont be done and the house clean it wasn't until I had my first child at the age of 16 and moved in with her father that I finally realized that there had to be something that I can do for the pain besides Tylenol so at the age of 17/18 I don't remember for sure I found the man who at this time is still my Dr. so he started me on prednisone and a bunch of other goodies and I was on my way well I'm sure that if I had gotten the treatment I needed when first diagnosed then it might have made life so much easier don't get me wrong I'm not complaining I truly believe that every thing that happens to us in life is for a reason you know people ask me how I do it and I all I say is one day at a time that's all we can do. 22 years later 2 very intelligent, loving and beautiful children one ex husband and friend one hip replacement one ankle fussed, down to only 1mg. of prednisone a day and of coarse the wonderful 50mg. of Enbrel a week and last but not least my life partner, friend, supporter my rock I can say that I am blessed truly blessed. RA and all I wouldn't trade it for the world my advise to you is that if you find out for sure that you have RA don't waste any time get treated and take your meds. and very important ask about good and bad foods because no matter what people say there are many foods that cause inflammation not only for us but anyone and one last peace of advise try I mean really try to stay active because I truly in my heart believe that if I had known what was in store for me as far as my RA I would have kept doing my laps instead of quitting. Your Friend suz1147 <suz1147@...> wrote: I’ve been off work for the last 8 weeks, my hands and feet are really swollen and I have restricted movement of every joint. docs seem to think that I have rheumatoid arthritis. yesterday i couldnt get out of bed and it was really frightening, i had to get the doctor around to give me some steroids. because ive been off work my financial situation is not funny and because i cant move most of the time i can feel myself getting more and more down, my friends come and see me but its not the same. I've been told that everytime i move i could be doing irrepairable damage to the lining of my joints. i just need to know that there are other people of my age that are like me i guess. and how long it will be before it goes away! thanks for listening xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Hi my name is and I am 36 years old and was diagnosed at the age of 14 with RA but by that time Dr. says that I had probably have had it for years I might have even been born with it well I had no idea what it was and my parents were going through a divorce at the time so after leaving the Dr. office not only did I not get treatment but not much was said about it at home except when I started getting picked on in school because I walked with a limp or because I couldn't run the laps in P.E. oh or getting in trouble for being late to school because my hands hurt so bad that it took forever to get dressed, brush my hair, brush my teeth and walk to school about 2 to 3 miles in the cold that’s when I decided to drop out and with dad gone and mom working no one put up a fuss I even think that it might have been convenient I mean 's home there's no reason why dinner wont be done and the house clean it wasn't until I had my first child at the age of 16 and moved in with her father that I finally realized that there had to be something that I can do for the pain besides Tylenol so at the age of 17/18 I don't remember for sure I found the man who at this time is still my Dr. so he started me on prednisone and a bunch of other goodies and I was on my way well I'm sure that if I had gotten the treatment I needed when first diagnosed then it might have made life so much easier don't get me wrong I'm not complaining I truly believe that every thing that happens to us in life is for a reason you know people ask me how I do it and I all I say is one day at a time that's all we can do. 22 years later 2 very intelligent, loving and beautiful children one ex husband and friend one hip replacement one ankle fussed, down to only 1mg. of prednisone a day and of coarse the wonderful 50mg. of Enbrel a week and last but not least my life partner, friend, supporter my rock I can say that I am blessed truly blessed. RA and all I wouldn't trade it for the world my advise to you is that if you find out for sure that you have RA don't waste any time get treated and take your meds. and very important ask about good and bad foods because no matter what people say there are many foods that cause inflammation not only for us but anyone and one last peace of advise try I mean really try to stay active because I truly in my heart believe that if I had known what was in store for me as far as my RA I would have kept doing my laps instead of quitting. Your Friend suz1147 <suz1147@...> wrote: I’ve been off work for the last 8 weeks, my hands and feet are really swollen and I have restricted movement of every joint. docs seem to think that I have rheumatoid arthritis. yesterday i couldnt get out of bed and it was really frightening, i had to get the doctor around to give me some steroids. because ive been off work my financial situation is not funny and because i cant move most of the time i can feel myself getting more and more down, my friends come and see me but its not the same. I've been told that everytime i move i could be doing irrepairable damage to the lining of my joints. i just need to know that there are other people of my age that are like me i guess. and how long it will be before it goes away! thanks for listening xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 I completely agree with . My parents also didn't take the disease as seriously as I wish they had (and were also very busy separating and divorcing). My hands were already terribly disfigured when I was 16 because I wasn't being properly medicated. I've learned that a good Rheumatologist knows to start aggressive treatment immediately, and it sounds like you need a GOOD doctor. Why are your docs waiting? I strongly suggest you call your local chapter of the Arthritis Foundation and ask for help. I just went to their website http://www.arthritis.org/ and they have a local doctor locater right on the homepage. But also call someone immediately. You need help right away! If you're in the UK, I'm sure there is a similar organiztion. Whoever is telling you moving is dangerous should be HELPING you. , it's wonderful that you have peace of mind about all of this. I too am in need of an ankle fusion, but with kids going on 2 and 4 I don't know how I would ever be off my feet afterwards. Still, I can barely walk when not wearing my brace, and tire very easily, not good for a mom with kidlets. Any advice? Is it best to get the surgery over with, whatever the cost? Sharon > > I've been off work for the last 8 weeks, my hands and feet are really > swollen and I have restricted movement of every joint. docs seem to > think that I have rheumatoid arthritis. yesterday i couldnt get out > of bed and it was really frightening, i had to get the doctor around > to give me some steroids. because ive been off work my financial > situation is not funny and because i cant move most of the time i can > feel myself getting more and more down, my friends come and see me > but its not the same. I've been told that everytime i move i could be > doing irrepairable damage to the lining of my joints. i just need to > know that there are other people of my age that are like me i guess. > and how long it will be before it goes away! > thanks for listening xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 I completely agree with . My parents also didn't take the disease as seriously as I wish they had (and were also very busy separating and divorcing). My hands were already terribly disfigured when I was 16 because I wasn't being properly medicated. I've learned that a good Rheumatologist knows to start aggressive treatment immediately, and it sounds like you need a GOOD doctor. Why are your docs waiting? I strongly suggest you call your local chapter of the Arthritis Foundation and ask for help. I just went to their website http://www.arthritis.org/ and they have a local doctor locater right on the homepage. But also call someone immediately. You need help right away! If you're in the UK, I'm sure there is a similar organiztion. Whoever is telling you moving is dangerous should be HELPING you. , it's wonderful that you have peace of mind about all of this. I too am in need of an ankle fusion, but with kids going on 2 and 4 I don't know how I would ever be off my feet afterwards. Still, I can barely walk when not wearing my brace, and tire very easily, not good for a mom with kidlets. Any advice? Is it best to get the surgery over with, whatever the cost? Sharon > > I've been off work for the last 8 weeks, my hands and feet are really > swollen and I have restricted movement of every joint. docs seem to > think that I have rheumatoid arthritis. yesterday i couldnt get out > of bed and it was really frightening, i had to get the doctor around > to give me some steroids. because ive been off work my financial > situation is not funny and because i cant move most of the time i can > feel myself getting more and more down, my friends come and see me > but its not the same. I've been told that everytime i move i could be > doing irrepairable damage to the lining of my joints. i just need to > know that there are other people of my age that are like me i guess. > and how long it will be before it goes away! > thanks for listening xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 When I had my ankle fused my kids were already teens, so it made my recovery much easier. But even though I remember saying to myself if I had to do it again there would be no way but of coarse that was the pain talking. Just like giving birth, when were laying in labor we swore that we will never have another. I guess my advice to you would be go for it, if you can get help with the lil one's because you will need it. In fact your going to need help for yourself as well ,it will seem like hell at first but the pain does not compare to having to depend on someone he with your personal needs. It took me about a total of three months or less to completely recover, but the end result is 100% worth it. I have no pain what so ever in that ankle, in fact I can even walk a lil faster.Before surgery I had to walk with a cane and use a wheelchair for long runs. I hope that I was able help and if ever you need anything I'm only a key board away. Good Luck sharonmacd <omoshiroi@...> wrote: I completely agree with . My parents also didn't take the disease as seriously as I wish they had (and were also very busy separating and divorcing). My hands were already terribly disfigured when I was 16 because I wasn't being properly medicated. I've learned that a good Rheumatologist knows to start aggressive treatment immediately, and it sounds like you need a GOOD doctor. Why are your docs waiting? I strongly suggest you call your local chapter of the Arthritis Foundation and ask for help. I just went to their website http://www.arthritis.org/ and they have a local doctor locater right on the homepage. But also call someone immediately. You need help right away! If you're in the UK, I'm sure there is a similar organiztion. Whoever is telling you moving is dangerous should be HELPING you. , it's wonderful that you have peace of mind about all of this. I too am in need of an ankle fusion, but with kids going on 2 and 4 I don't know how I would ever be off my feet afterwards. Still, I can barely walk when not wearing my brace, and tire very easily, not good for a mom with kidlets. Any advice? Is it best to get the surgery over with, whatever the cost? Sharon > > I've been off work for the last 8 weeks, my hands and feet are really > swollen and I have restricted movement of every joint. docs seem to > think that I have rheumatoid arthritis. yesterday i couldnt get out > of bed and it was really frightening, i had to get the doctor around > to give me some steroids. because ive been off work my financial > situation is not funny and because i cant move most of the time i can > feel myself getting more and more down, my friends come and see me > but its not the same. I've been told that everytime i move i could be > doing irrepairable damage to the lining of my joints. i just need to > know that there are other people of my age that are like me i guess. > and how long it will be before it goes away! > thanks for listening xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 When I had my ankle fused my kids were already teens, so it made my recovery much easier. But even though I remember saying to myself if I had to do it again there would be no way but of coarse that was the pain talking. Just like giving birth, when were laying in labor we swore that we will never have another. I guess my advice to you would be go for it, if you can get help with the lil one's because you will need it. In fact your going to need help for yourself as well ,it will seem like hell at first but the pain does not compare to having to depend on someone he with your personal needs. It took me about a total of three months or less to completely recover, but the end result is 100% worth it. I have no pain what so ever in that ankle, in fact I can even walk a lil faster.Before surgery I had to walk with a cane and use a wheelchair for long runs. I hope that I was able help and if ever you need anything I'm only a key board away. Good Luck sharonmacd <omoshiroi@...> wrote: I completely agree with . My parents also didn't take the disease as seriously as I wish they had (and were also very busy separating and divorcing). My hands were already terribly disfigured when I was 16 because I wasn't being properly medicated. I've learned that a good Rheumatologist knows to start aggressive treatment immediately, and it sounds like you need a GOOD doctor. Why are your docs waiting? I strongly suggest you call your local chapter of the Arthritis Foundation and ask for help. I just went to their website http://www.arthritis.org/ and they have a local doctor locater right on the homepage. But also call someone immediately. You need help right away! If you're in the UK, I'm sure there is a similar organiztion. Whoever is telling you moving is dangerous should be HELPING you. , it's wonderful that you have peace of mind about all of this. I too am in need of an ankle fusion, but with kids going on 2 and 4 I don't know how I would ever be off my feet afterwards. Still, I can barely walk when not wearing my brace, and tire very easily, not good for a mom with kidlets. Any advice? Is it best to get the surgery over with, whatever the cost? Sharon > > I've been off work for the last 8 weeks, my hands and feet are really > swollen and I have restricted movement of every joint. docs seem to > think that I have rheumatoid arthritis. yesterday i couldnt get out > of bed and it was really frightening, i had to get the doctor around > to give me some steroids. because ive been off work my financial > situation is not funny and because i cant move most of the time i can > feel myself getting more and more down, my friends come and see me > but its not the same. I've been told that everytime i move i could be > doing irrepairable damage to the lining of my joints. i just need to > know that there are other people of my age that are like me i guess. > and how long it will be before it goes away! > thanks for listening xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Not moving your joints will cause them to loose the range of motion and you'll loose strength and muscle tone. Exercise is very important for arthritics. When you are in a flare, gentle range of motion is all that is suggested. People with RA need a good balance between rest and exercise, with more rest when the disease is active and more exercise when it is not. Your doctor should advise you about exercise. Did you doctor tell you that every time you move you're doing irreparable damage to the lining of your joint? Exercise Benefits Rheumatoid Arthritis Sufferers http://www.hon.ch/News/HSN/515241.html Heavy Exercise Aids Rheumatoid Arthritis http://my.webmd.com/content/Article/73/88953.htm a On Mar 25, 2005, at 1:13 PM, suz1147 wrote: > > > Ive been off work for the last 8 weeks, my hands and feet are really > swollen and i have restricted movement of every joint. docs seem to > think that i have rheumatoid arthritis. yesterday i couldnt get out > of bed and it was really frightening, i had to get the doctor around > to give me some steroids. because ive been off work my financial > situation is not funny and because i cant move most of the time i can > feel myself getting more and more down, my friends come and see me > but its not the same. I've been told that everytime i move i could be > doing irrepairable damage to the lining of my joints. i just need to > know that there are other people of my age that are like me i guess. > and how long it will be before it goes away! > thanks for listening xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Not moving your joints will cause them to loose the range of motion and you'll loose strength and muscle tone. Exercise is very important for arthritics. When you are in a flare, gentle range of motion is all that is suggested. People with RA need a good balance between rest and exercise, with more rest when the disease is active and more exercise when it is not. Your doctor should advise you about exercise. Did you doctor tell you that every time you move you're doing irreparable damage to the lining of your joint? Exercise Benefits Rheumatoid Arthritis Sufferers http://www.hon.ch/News/HSN/515241.html Heavy Exercise Aids Rheumatoid Arthritis http://my.webmd.com/content/Article/73/88953.htm a On Mar 25, 2005, at 1:13 PM, suz1147 wrote: > > > Ive been off work for the last 8 weeks, my hands and feet are really > swollen and i have restricted movement of every joint. docs seem to > think that i have rheumatoid arthritis. yesterday i couldnt get out > of bed and it was really frightening, i had to get the doctor around > to give me some steroids. because ive been off work my financial > situation is not funny and because i cant move most of the time i can > feel myself getting more and more down, my friends come and see me > but its not the same. I've been told that everytime i move i could be > doing irrepairable damage to the lining of my joints. i just need to > know that there are other people of my age that are like me i guess. > and how long it will be before it goes away! > thanks for listening xx > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 Hi a, I'm not 21 but I am 27 and I know what you're talking about and going through. I've been suffering from joint problems every since high school. It's been officially classified as Rheumatoid in my body since last year. I really don't have any words of encouragement for you because I have to find them for myself at times. But I just wanted to let you know that you're not the only young person with this illness out there. I haven't worked in over a year, and it's very frustrating because I want to work. I don't exercise much because I simply can't. Sometimes when I do feel that maybe I can go for a short walk I don't because I'm afraid of the after effects on my body. Just pray. I know that it's hard. > > > > > > > Ive been off work for the last 8 weeks, my hands and feet are really > > swollen and i have restricted movement of every joint. docs seem to > > think that i have rheumatoid arthritis. yesterday i couldnt get out > > of bed and it was really frightening, i had to get the doctor around > > to give me some steroids. because ive been off work my financial > > situation is not funny and because i cant move most of the time i can > > feel myself getting more and more down, my friends come and see me > > but its not the same. I've been told that everytime i move i could be > > doing irrepairable damage to the lining of my joints. i just need to > > know that there are other people of my age that are like me i guess. > > and how long it will be before it goes away! > > thanks for listening xx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 Hi a, I'm not 21 but I am 27 and I know what you're talking about and going through. I've been suffering from joint problems every since high school. It's been officially classified as Rheumatoid in my body since last year. I really don't have any words of encouragement for you because I have to find them for myself at times. But I just wanted to let you know that you're not the only young person with this illness out there. I haven't worked in over a year, and it's very frustrating because I want to work. I don't exercise much because I simply can't. Sometimes when I do feel that maybe I can go for a short walk I don't because I'm afraid of the after effects on my body. Just pray. I know that it's hard. > > > > > > > Ive been off work for the last 8 weeks, my hands and feet are really > > swollen and i have restricted movement of every joint. docs seem to > > think that i have rheumatoid arthritis. yesterday i couldnt get out > > of bed and it was really frightening, i had to get the doctor around > > to give me some steroids. because ive been off work my financial > > situation is not funny and because i cant move most of the time i can > > feel myself getting more and more down, my friends come and see me > > but its not the same. I've been told that everytime i move i could be > > doing irrepairable damage to the lining of my joints. i just need to > > know that there are other people of my age that are like me i guess. > > and how long it will be before it goes away! > > thanks for listening xx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 I WISH I was 21 again LOL! The message I wrote was in response to suz1147, who is 21. I'm 50 and have had RA since my early 20's. I know it isn't easy to exercise, but it is necessary to keep your mobility. Do you have a pool near you? Water exercising is one of the best exercises for arthritics because it is gentle. Have you talked to your doctor about it? a On Mar 27, 2005, at 2:31 PM, Kelli wrote: > > > Hi a, > > I'm not 21 but I am 27 and I know what you're talking about and going > through. I've been suffering from joint problems every since high > school. It's been officially classified as Rheumatoid in my body > since last year. I really don't have any words of encouragement for > you because I have to find them for myself at times. But I just > wanted to let you know that you're not the only young person with > this illness out there. I haven't worked in over a year, and it's > very frustrating because I want to work. I don't exercise much > because I simply can't. Sometimes when I do feel that maybe I can go > for a short walk I don't because I'm afraid of the after effects on > my body. Just pray. I know that it's hard.--- In RA- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 I WISH I was 21 again LOL! The message I wrote was in response to suz1147, who is 21. I'm 50 and have had RA since my early 20's. I know it isn't easy to exercise, but it is necessary to keep your mobility. Do you have a pool near you? Water exercising is one of the best exercises for arthritics because it is gentle. Have you talked to your doctor about it? a On Mar 27, 2005, at 2:31 PM, Kelli wrote: > > > Hi a, > > I'm not 21 but I am 27 and I know what you're talking about and going > through. I've been suffering from joint problems every since high > school. It's been officially classified as Rheumatoid in my body > since last year. I really don't have any words of encouragement for > you because I have to find them for myself at times. But I just > wanted to let you know that you're not the only young person with > this illness out there. I haven't worked in over a year, and it's > very frustrating because I want to work. I don't exercise much > because I simply can't. Sometimes when I do feel that maybe I can go > for a short walk I don't because I'm afraid of the after effects on > my body. Just pray. I know that it's hard.--- In RA- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 It can be so difficult to be young and have RA overtake like an unwelcome house guest. I'm 31 with 4 kids a housewife and I home-school our 4 kids. I used to be so vibrant and doing everything. My life has changed so much. There are days I have laid in bed and thought will I ever be able to get up. I really should journal my days so that on those days I think I can no longer go on I can remember there are days that are good or fair also. there are 2 things that work for me 1. my faith in a God who is always with me and even though in the beginning I asked for healing I now ask for joy in all circumstances and contentment in my life. You know my husband and other friends and family have told me how much I have changed since all of this. That I am more loving and compassionate to others that I have grown into a better person. Its like when you refine gold. You have to turn up the heat to get the impurities out. Thats how I look at my life now. I must admit there have been days I let my RA make me angry and bitter and I would look in the mirror and hate what this has done to me, my attitude my joy and happiness gone. I think God is more concerned about my heart and attitude over my physical comfort. I still pray for healing and I know it will happen someday and if not on earth than in heaven. I try to allow the joy in dwell in me and accept it. So that I can be there for my family. I dont want to be a woman who tears down her house but builds it up with love and joy. Its very hard though. The 2nd thing that keeps me going is the attitude to NEVER GIVE UP. I'm a fighter. There are days I tell my hubby I quit I cant do this. He prays for me and I ask God to give me the desire to fight. Fight for the sake of my hubby, kids, family, kids and the people who I can help and influence if I keep going. I may be in bed dying of pain, not able to get up and look pretty worthless to onlookers but inside I fight. We may feel like 91 but we can fight like we are in our terrible 2's. Dont give up on hope. Reach deep within and ask the Almighty to give you power and strength even if you dont feel like it. Make the step. Praying for all of you who are new to this disease and its damage on our bodies I know fear can over take you it did to me. I try to let this RA change me for the better.DONT LET FEAR PARALYZE you. FIGHT--FIGHT-- FIGHT--- WE are all here to cheer you on. We do understand. Latisha Kelli <highestexaulted@...> wrote: Hi a, I'm not 21 but I am 27 and I know what you're talking about and going through. I've been suffering from joint problems every since high school. It's been officially classified as Rheumatoid in my body since last year. I really don't have any words of encouragement for you because I have to find them for myself at times. But I just wanted to let you know that you're not the only young person with this illness out there. I haven't worked in over a year, and it's very frustrating because I want to work. I don't exercise much because I simply can't. Sometimes when I do feel that maybe I can go for a short walk I don't because I'm afraid of the after effects on my body. Just pray. I know that it's hard. > > > > > > > Ive been off work for the last 8 weeks, my hands and feet are really > > swollen and i have restricted movement of every joint. docs seem to > > think that i have rheumatoid arthritis. yesterday i couldnt get out > > of bed and it was really frightening, i had to get the doctor around > > to give me some steroids. because ive been off work my financial > > situation is not funny and because i cant move most of the time i can > > feel myself getting more and more down, my friends come and see me > > but its not the same. I've been told that everytime i move i could be > > doing irrepairable damage to the lining of my joints. i just need to > > know that there are other people of my age that are like me i guess. > > and how long it will be before it goes away! > > thanks for listening xx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 It can be so difficult to be young and have RA overtake like an unwelcome house guest. I'm 31 with 4 kids a housewife and I home-school our 4 kids. I used to be so vibrant and doing everything. My life has changed so much. There are days I have laid in bed and thought will I ever be able to get up. I really should journal my days so that on those days I think I can no longer go on I can remember there are days that are good or fair also. there are 2 things that work for me 1. my faith in a God who is always with me and even though in the beginning I asked for healing I now ask for joy in all circumstances and contentment in my life. You know my husband and other friends and family have told me how much I have changed since all of this. That I am more loving and compassionate to others that I have grown into a better person. Its like when you refine gold. You have to turn up the heat to get the impurities out. Thats how I look at my life now. I must admit there have been days I let my RA make me angry and bitter and I would look in the mirror and hate what this has done to me, my attitude my joy and happiness gone. I think God is more concerned about my heart and attitude over my physical comfort. I still pray for healing and I know it will happen someday and if not on earth than in heaven. I try to allow the joy in dwell in me and accept it. So that I can be there for my family. I dont want to be a woman who tears down her house but builds it up with love and joy. Its very hard though. The 2nd thing that keeps me going is the attitude to NEVER GIVE UP. I'm a fighter. There are days I tell my hubby I quit I cant do this. He prays for me and I ask God to give me the desire to fight. Fight for the sake of my hubby, kids, family, kids and the people who I can help and influence if I keep going. I may be in bed dying of pain, not able to get up and look pretty worthless to onlookers but inside I fight. We may feel like 91 but we can fight like we are in our terrible 2's. Dont give up on hope. Reach deep within and ask the Almighty to give you power and strength even if you dont feel like it. Make the step. Praying for all of you who are new to this disease and its damage on our bodies I know fear can over take you it did to me. I try to let this RA change me for the better.DONT LET FEAR PARALYZE you. FIGHT--FIGHT-- FIGHT--- WE are all here to cheer you on. We do understand. Latisha Kelli <highestexaulted@...> wrote: Hi a, I'm not 21 but I am 27 and I know what you're talking about and going through. I've been suffering from joint problems every since high school. It's been officially classified as Rheumatoid in my body since last year. I really don't have any words of encouragement for you because I have to find them for myself at times. But I just wanted to let you know that you're not the only young person with this illness out there. I haven't worked in over a year, and it's very frustrating because I want to work. I don't exercise much because I simply can't. Sometimes when I do feel that maybe I can go for a short walk I don't because I'm afraid of the after effects on my body. Just pray. I know that it's hard. > > > > > > > Ive been off work for the last 8 weeks, my hands and feet are really > > swollen and i have restricted movement of every joint. docs seem to > > think that i have rheumatoid arthritis. yesterday i couldnt get out > > of bed and it was really frightening, i had to get the doctor around > > to give me some steroids. because ive been off work my financial > > situation is not funny and because i cant move most of the time i can > > feel myself getting more and more down, my friends come and see me > > but its not the same. I've been told that everytime i move i could be > > doing irrepairable damage to the lining of my joints. i just need to > > know that there are other people of my age that are like me i guess. > > and how long it will be before it goes away! > > thanks for listening xx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Thanks Latisha, that was very encouraging. I'm having one of those days where I'm not feeling very good about myself, so that helped. I'm a born again Christian, but boy sometimes, sometimes.... I'll just leave that at that. lol... I'm reading Job right now, and I suppose there is some light at the end of all out tunnels. The hardest part sometimes is trying to go back in my head and try to figure out did I do something in the past that has caused this attack on my body. I don't think the worse things I could have possibly done would bring this on, I'm not a bad person. But anyway, like I said thanks for the encouraging words. I'll keep you and all others in my prayers. > > > > > > > > > > > Ive been off work for the last 8 weeks, my hands and feet are > really > > > swollen and i have restricted movement of every joint. docs seem > to > > > think that i have rheumatoid arthritis. yesterday i couldnt get > out > > > of bed and it was really frightening, i had to get the doctor > around > > > to give me some steroids. because ive been off work my financial > > > situation is not funny and because i cant move most of the time > i can > > > feel myself getting more and more down, my friends come and see > me > > > but its not the same. I've been told that everytime i move i > could be > > > doing irrepairable damage to the lining of my joints. i just > need to > > > know that there are other people of my age that are like me i > guess. > > > and how long it will be before it goes away! > > > thanks for listening xx > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Thanks Latisha, that was very encouraging. I'm having one of those days where I'm not feeling very good about myself, so that helped. I'm a born again Christian, but boy sometimes, sometimes.... I'll just leave that at that. lol... I'm reading Job right now, and I suppose there is some light at the end of all out tunnels. The hardest part sometimes is trying to go back in my head and try to figure out did I do something in the past that has caused this attack on my body. I don't think the worse things I could have possibly done would bring this on, I'm not a bad person. But anyway, like I said thanks for the encouraging words. I'll keep you and all others in my prayers. > > > > > > > > > > > Ive been off work for the last 8 weeks, my hands and feet are > really > > > swollen and i have restricted movement of every joint. docs seem > to > > > think that i have rheumatoid arthritis. yesterday i couldnt get > out > > > of bed and it was really frightening, i had to get the doctor > around > > > to give me some steroids. because ive been off work my financial > > > situation is not funny and because i cant move most of the time > i can > > > feel myself getting more and more down, my friends come and see > me > > > but its not the same. I've been told that everytime i move i > could be > > > doing irrepairable damage to the lining of my joints. i just > need to > > > know that there are other people of my age that are like me i > guess. > > > and how long it will be before it goes away! > > > thanks for listening xx > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Hi there: How are you doing? It sounds like you need to find a Rheumatologist and soon. If you have RA it will not go away. However, there are medicines to take which can help it and help you to feel better. That is why you need to see a Doctor who specializes in this illness. I have had it for 8 years and I am doing pretty good. I can do most things and I am not in very much pain. However, I have other problems, (not related to the RA) and that is why I can't work. I was a RN for many years. I had to stop though because of a bad back and breathing disorder. Well, keep in touch and find a Doctor. Sincerely, Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Hi there: How are you doing? It sounds like you need to find a Rheumatologist and soon. If you have RA it will not go away. However, there are medicines to take which can help it and help you to feel better. That is why you need to see a Doctor who specializes in this illness. I have had it for 8 years and I am doing pretty good. I can do most things and I am not in very much pain. However, I have other problems, (not related to the RA) and that is why I can't work. I was a RN for many years. I had to stop though because of a bad back and breathing disorder. Well, keep in touch and find a Doctor. Sincerely, Anjillah@... Quote Link to comment Share on other sites More sharing options...
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