Re: New and happy to be here

[Guest guest]

Hi Kirsten,

It's easy to get discouraged, but just as things can get awful in

the course of RA, they can (and often do) get better. Be patient, and

continue doing all the things that you think will help. Feel free to

use this list to vent your frustrations and to ask for ideas. We

understand and care!

Sierra (also from Minnesota)

>

> Good morning--

> It took me awhile to find a group like this, but I'm ready now to

hear

> anything and everything, and am hopeful about finding support and

being able to

> offer some.

>

> Briefly-- I was diagnosed with RA just over a year ago, after pain

in my

> feet got so bad I finally sought an answer. Three years ago I had

severe Lymes

> Disease, and I thought it was back. Shortly after the RA diagnosis,

my hands

> became affected, and I have pain throughout my body at this time.

Started

> methotrexate, then added enbrel (no improvement) then

methotrexate/humira, then

> just humira. All the meds make me suseptible to cold and

bronchitis, so I

> frankly hate them! I take painkillers to get through my days, and

have stopped

> working at my traditional job for the time being (I also have a

farm). I've seen

> a nutritionist and implemented her ideas, have gone to PT and am

at the pool

> three times a week, my husband built me a sauna, and I am so

focused on

> feeling better! Nothing, yet, though-- and I'm at a point of

desperation. My

> lupus tests are now positive, and the second opinion

rheumatologist says I also

> have fibromyalgia. ???????? My sleep is very poor unless I am very

drugged up,

> which bothers me too. I have three daughters, an alpaca farm, and

I teach

> spinning and weaving classes, so remaining physical is important

to me!

>

> That's about it-- I'm looking for ideas, suggestions, what's worked

for

> others, and general support. I look forward to getting to know you

folks.

>

> Sincerely,

>

> Kirsten

> Minnesota

>

>

>

[Guest guest]

Hi Kirsten,

It's easy to get discouraged, but just as things can get awful in

the course of RA, they can (and often do) get better. Be patient, and

continue doing all the things that you think will help. Feel free to

use this list to vent your frustrations and to ask for ideas. We

understand and care!

Sierra (also from Minnesota)

>

> Good morning--

> It took me awhile to find a group like this, but I'm ready now to

hear

> anything and everything, and am hopeful about finding support and

being able to

> offer some.

>

> Briefly-- I was diagnosed with RA just over a year ago, after pain

in my

> feet got so bad I finally sought an answer. Three years ago I had

severe Lymes

> Disease, and I thought it was back. Shortly after the RA diagnosis,

my hands

> became affected, and I have pain throughout my body at this time.

Started

> methotrexate, then added enbrel (no improvement) then

methotrexate/humira, then

> just humira. All the meds make me suseptible to cold and

bronchitis, so I

> frankly hate them! I take painkillers to get through my days, and

have stopped

> working at my traditional job for the time being (I also have a

farm). I've seen

> a nutritionist and implemented her ideas, have gone to PT and am

at the pool

> three times a week, my husband built me a sauna, and I am so

focused on

> feeling better! Nothing, yet, though-- and I'm at a point of

desperation. My

> lupus tests are now positive, and the second opinion

rheumatologist says I also

> have fibromyalgia. ???????? My sleep is very poor unless I am very

drugged up,

> which bothers me too. I have three daughters, an alpaca farm, and

I teach

> spinning and weaving classes, so remaining physical is important

to me!

>

> That's about it-- I'm looking for ideas, suggestions, what's worked

for

> others, and general support. I look forward to getting to know you

folks.

>

> Sincerely,

>

> Kirsten

> Minnesota

>

>

>

[Guest guest]

Welcome Kirsten!

What a great place to live, but you know that:) I'm glad you found

the group, we have great support here. You will find so many great

people here, it's just amazing.

I'm sorry about your dx, but glad that your getting some good

treatment. I'm also on Humira, with the MTX, and it's helping some.

It sounds like your doing good, that is great hubby built you a sauna.

You just hang in there, and always know were here for you.

RA sis,

Tawny

>

> Good morning--

> It took me awhile to find a group like this, but I'm ready now to

hear

> anything and everything, and am hopeful about finding support and

being able to

> offer some.

>

> Briefly-- I was diagnosed with RA just over a year ago, after pain

in my

> feet got so bad I finally sought an answer. Three years ago I had

severe Lymes

> Disease, and I thought it was back. Shortly after the RA diagnosis,

my hands

> became affected, and I have pain throughout my body at this time.

Started

> methotrexate, then added enbrel (no improvement) then

methotrexate/humira, then

> just humira. All the meds make me suseptible to cold and

bronchitis, so I

> frankly hate them! I take painkillers to get through my days, and

have stopped

> working at my traditional job for the time being (I also have a

farm). I've seen

> a nutritionist and implemented her ideas, have gone to PT and am

at the pool

> three times a week, my husband built me a sauna, and I am so

focused on

> feeling better! Nothing, yet, though-- and I'm at a point of

desperation. My

> lupus tests are now positive, and the second opinion

rheumatologist says I also

> have fibromyalgia. ???????? My sleep is very poor unless I am very

drugged up,

> which bothers me too. I have three daughters, an alpaca farm, and

I teach

> spinning and weaving classes, so remaining physical is important

to me!

>

> That's about it-- I'm looking for ideas, suggestions, what's worked

for

> others, and general support. I look forward to getting to know you

folks.

>

> Sincerely,

>

> Kirsten

> Minnesota

>

>

>

[Guest guest]

Welcome Kirsten!

What a great place to live, but you know that:) I'm glad you found

the group, we have great support here. You will find so many great

people here, it's just amazing.

I'm sorry about your dx, but glad that your getting some good

treatment. I'm also on Humira, with the MTX, and it's helping some.

It sounds like your doing good, that is great hubby built you a sauna.

You just hang in there, and always know were here for you.

RA sis,

Tawny

>

> Good morning--

> It took me awhile to find a group like this, but I'm ready now to

hear

> anything and everything, and am hopeful about finding support and

being able to

> offer some.

>

> Briefly-- I was diagnosed with RA just over a year ago, after pain

in my

> feet got so bad I finally sought an answer. Three years ago I had

severe Lymes

> Disease, and I thought it was back. Shortly after the RA diagnosis,

my hands

> became affected, and I have pain throughout my body at this time.

Started

> methotrexate, then added enbrel (no improvement) then

methotrexate/humira, then

> just humira. All the meds make me suseptible to cold and

bronchitis, so I

> frankly hate them! I take painkillers to get through my days, and

have stopped

> working at my traditional job for the time being (I also have a

farm). I've seen

> a nutritionist and implemented her ideas, have gone to PT and am

at the pool

> three times a week, my husband built me a sauna, and I am so

focused on

> feeling better! Nothing, yet, though-- and I'm at a point of

desperation. My

> lupus tests are now positive, and the second opinion

rheumatologist says I also

> have fibromyalgia. ???????? My sleep is very poor unless I am very

drugged up,

> which bothers me too. I have three daughters, an alpaca farm, and

I teach

> spinning and weaving classes, so remaining physical is important

to me!

>

> That's about it-- I'm looking for ideas, suggestions, what's worked

for

> others, and general support. I look forward to getting to know you

folks.

>

> Sincerely,

>

> Kirsten

> Minnesota

>

>

>