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Suzanne,

I am sorry to hear your tests came back showing

Elbonist virus. Look on the bright side, atleast they

have found something wrong. Some times my energy goes

down to level zero, but I just keep moving. Do not

stop or you may not be able get going again. I would

encourage you to finish the test. This might result

in a cure for some of your problems.

I know how you feel about your boyfriend getting

frustrated. I boyfriend did not understand at all.

Now that we have broken up, I am relieved. We are all

here for you.

Take care,

--- SUZANNE L MAYBELL wrote:

<HR>

<!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " >

<HTML>

<HEAD>

<META content=text/html;charset=iso-8859-1

http-equiv=Content-Type>

<META content=' " MSHTML 4.72.3110.7 " ' name=GENERATOR>

</HEAD>

<BODY bgColor=#ffffff>

<DIV><FONT color=#000000 size=2>Hello

everyone,</FONT></DIV>

<DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV>

<DIV><FONT color=#000000 size=2>Well I got my lab

results back...The doctor says

I have the Elbonist Bar Virus Chronically. & nbsp; It is

the virus that causes

Mono, apparently. & nbsp; He said I don't have Mono, but

the virus is what is

making me so tired all of the time. & nbsp; A couple of

my other tests came back

borderline so I have to go give more damn blood and do

them over. & nbsp; I am so

tired of tests. & nbsp; I am exhausted all of the

time. & nbsp; I want my life

back. & nbsp; Vulvodynia is enough pain, now I have this

exhaustion all the

time. & nbsp; I work at Osco (drug store, how convient

huh? =) & nbsp; and the

pharmacist said that the virus is in everyone that has

had chicken pox. & nbsp; I

guess it is the same thing. & nbsp; I don't know the

doctor said we will talk

about it after the results from my next set of tests

come back. & nbsp; When will

it end. & nbsp; I am only 21 years old. & nbsp; I can't

live the rest of my life

like this. & nbsp; It is all starting to get to my b/f

too. & nbsp; & nbsp; He has

stuck by my side the past 3 years, but I can tell he

is beyond frustrated. & nbsp;

I don't know what to do. & nbsp; These tests aren't

cheap either. & nbsp; My

insurance doesn't cover lab very well. & nbsp; I think I

would be better off not

having any testing done, but I have to get my energy

back soon or I won't be

able to go to work. & nbsp; Anyway....I gotta go give

another 8

viles....</FONT></DIV>

<DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV>

<DIV><FONT color=#000000 size=2>Thanks for

listening,</FONT></DIV>

<DIV><FONT color=#000000

size=2>Suzanne</FONT></DIV></BODY></HTML>

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  • 9 years later...

I'm SO sorry Jena!!!

My thoughts and prayers are w/you.

Are you giving up or filing an appeal? W/a different lawyer..

Remember, we're here for you.

Deta

>

>

> well I am good and depressed after waiting almost 3 years and 8 months

> after my hearing I found out today that my disability was denied. I just

> can't believe it. but my lawyer had told me I would not have to say anything

> except for what the judge as me. and then when we got in the hearing. after

> waiting about 2 hours and I was good and nervous. my lawyer drilled me like

> crazy. I was so nervous my tongue was stuck to the top of my mouth and I

> could not hardly get it to move. I have pretty much known the hearing went

> bad. but I was hoping that would go to my favor. so those of you going to a

> hearing and taking a lawyer. you better tell him he better make up his mind

> what he is going to do and stick to and not change it when you walk through

> the door. :(

>

>

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Thank you Deta, my lawyer told me in the beginning that I had a good case and he

would stick with me until I had it. so for now I guess that is what I will go. I

am plainly going to tell him he had better not pull anymore tricks on me. I

don't know about any of your ours that have fibro. but the further you push me

in a corner the more I am like a scared kitten. and he will know this just as

soon as I can talk to him but of course he is out of the office today. :(

Jena

Re: depressed

I'm SO sorry Jena!!!

My thoughts and prayers are w/you.

Are you giving up or filing an appeal? W/a different lawyer..

Remember, we're here for you.

Deta

>

>

> well I am good and depressed after waiting almost 3 years and 8 months

> after my hearing I found out today that my disability was denied. I just

> can't believe it. but my lawyer had told me I would not have to say anything

> except for what the judge as me. and then when we got in the hearing. after

> waiting about 2 hours and I was good and nervous. my lawyer drilled me like

> crazy. I was so nervous my tongue was stuck to the top of my mouth and I

> could not hardly get it to move. I have pretty much known the hearing went

> bad. but I was hoping that would go to my favor. so those of you going to a

> hearing and taking a lawyer. you better tell him he better make up his mind

> what he is going to do and stick to and not change it when you walk through

> the door. :(

>

>

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I still haven't gotten my letter. I called Atlanta and they told me they were

not allowed to tell me that information. and that I should have my letter by

middle of next week. it seems everyone I have talked to has told me something

different.

Yes, I did tell my lawyer that I did NOT feel the hearing went well as I was not

prepared for what he threw at me. he had told me one thing and done another. and

he told me at the last minute he felt it would be better to go in that

directions. ha! He also told me not to worry on that day that I had a case and

we would get it and he would stick with me till we did. this is a out standing

law firm and they do not take just any case. if they do not fill you have a

chance at winning they will not even talk to you. so at this point I am not 100%

that I didn't get it. I haven't seen it in writing. just what that 1 person

said. " it looked like I might not have gotten it " . everyone else has said I am

not allowed to tell you anything. so I don't know what to believe. I am just

going to try my very best not to think about it over the weekend. and maybe by

Tuesday I will know something.

Jena

Re: depressed

I'm SO sorry Jena!!!

My thoughts and prayers are w/you.

Are you giving up or filing an appeal? W/a different lawyer..

Remember, we're here for you.

Deta

>

>

> well I am good and depressed after waiting almost 3 years and 8 months

> after my hearing I found out today that my disability was denied. I just

> can't believe it. but my lawyer had told me I would not have to say anything

> except for what the judge as me. and then when we got in the hearing. after

> waiting about 2 hours and I was good and nervous. my lawyer drilled me like

> crazy. I was so nervous my tongue was stuck to the top of my mouth and I

> could not hardly get it to move. I have pretty much known the hearing went

> bad. but I was hoping that would go to my favor. so those of you going to a

> hearing and taking a lawyer. you better tell him he better make up his mind

> what he is going to do and stick to and not change it when you walk through

> the door. :(

>

>

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