[Fwd: Fw: tethered cord]

[Guest guest]

Hi Lynn,

Welcome to our list.

You need to send your email to the list rather than the owners.

The address is tetheredspinalcord I will forward these

for you.

Rick

Co-moderator

---* tethered cord

Hello,

I am wondering if you can help me out with some questions i have?

*****How many symptoms/ how severe symptoms would indicate tethered cord?

****Would there always need to be bladder / bowel disfunction to

indicate this?

***Would a child's reluctance/ inability to walk a very short distance

without sitting for a rest possibly an indicater of tethered cord?

***What about severe leg pains when growing?

****Could tethered cord cause severe pain in a quite localised are-----

from knee to ankle?

*** how is tethered cord proven/ disproven?

**** if several generations in the same family had almost exactly same

sypmtoms, would this more likely indicate a inherited tethered cord problem?

((((( leg weakness in walking

severe leg pain in area from knee to ankle

severe headaches

Do you know of a Doctor / specialist in tethered cord that we could send

MRIs to for a preilminary assessment ( i assume this is a main technique

of diagnosis)

thank you for your help

Lynn Kading

lynnann@...

!DSPAM:232,446db16f278188055210974!

[Guest guest]

I can try to answer some of your questions, based on my research

over the years...

>** Could severe nasuea, which has gone on for months, and is

>completely unresponsive to anti nausea meds ( even prescription) be

> symptom of tethered cord which has worsened in a teen

Not likely, unless the tether is up high on the spinal nerves that

affects the stomach.

> *****How many symptoms/ how severe symptoms would indicate

tethered cord?

Leg/foot/ankle pain and weakness. Children are less likely to have

pain than adults. Muscle spascity. Bowel and bladder incontinence.

Developing hammer toes and high arched feet. These are a few of

them. The list would vary slightly for each of us, and the strength

of symptoms varies too I probably forget a few, it's late.

>

> ****Would there always need to be bladder / bowel disfunction to

> indicate this?

Usually there is, not necessarily

> ***Would a child's reluctance/ inability to walk a very short

distance

> without sitting for a rest possibly an indicater of tethered cord?

Yes

> ***What about severe leg pains when growing?

Yes

> ****Could tethered cord cause severe pain in a quite localised are-

> from knee to ankle?

Yes I started out with just knee pain.

> *** how is tethered cord proven/ disproven?

By observing symptoms, MRI, usually a low lying conus

> **** if several generations in the same family had almost exactly

same

> sypmtoms, would this more likely indicate a inherited tethered

cord problem?

Tethered cord, spina bifida, and other neural tube issues do run in

families, indicating a genetic link. Most studies report that

neural tube defects can be caused by both genetic and environmental

factors. They have identified genes connected with SB.

V