Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Hi ,You are all so very precious to me and if I can give you a smile then I am happy. many hugs Lee" L." wrote: thank you so much lee........you are so thoughtful,with all that you have to cope with at home, you takethe time to make us feel special..............itworks!with lovejennifersoft ocean breezes__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 , How do you take the Quercetin? The Propolis Tincture? In a nebulizer? Very interesting concept! I have not been able to access your web site and can't figure out why. You may have answered these questions there. Thanks, Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Hi Lee, The Quercitin comes as a tablet called Quercitone. At least one a day but have heard of folks taking 6. Propolis is a really BAD tasting liquid. I use an eye dropper and put it into my mouth and wash it down with water quickly.. I just checked my website, it is working but I just realised I need to pay the bill for the next 12 months, better do it now !! Cheers . > > , > > How do you take the Quercetin? The Propolis Tincture? In a nebulizer? > Very interesting concept! > > I have not been able to access your web site and can't figure out why. > You may have answered these questions there. > > Thanks, > Lee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 Hi I have also been diagnosed in the last 18 months - I am a regular reader of this group, but don't get a lot of time to post. Could you please tell me the benefits of taking Quercitone & Propolis? Thanks, Kerri -----Original Message-----From: bronchiectasis [mailto:bronchiectasis ]On Behalf Of MustonSent: Monday, 20 March 2006 3:54 PMTo: bronchiectasis Subject: Re: for Hi Lee, The Quercitin comes as a tablet called Quercitone. At least one a daybut have heard of folks taking 6.Propolis is a really BAD tasting liquid. I use an eye dropper and putit into my mouth and wash it down with water quickly..I just checked my website, it is working but I just realised I need topay the bill for the next 12 months, better do it now !!Cheers.>> ,> > How do you take the Quercetin? The Propolis Tincture? In a nebulizer?> Very interesting concept!> > I have not been able to access your web site and can't figure out why.> You may have answered these questions there.> > Thanks,> Lee> DEACONS - Confidential CommunicationThis email (which includes any attachments) is confidential and may be subject to legal professional privilege. If this email has been sent to you by mistake please inform us by reply email and then delete the email, destroy any printed copy and do not disclose or use the information in it. There is no warranty that this email is error or virus free. If this is a private communication it does not represent the views of Deacons. This email is copyright. Deacons is not liable if an attachment is altered without its written consent. If, for any reason, we suspect that an incoming email may be virus-infected, it will be quarantined and may not reach its intended recipient. If you are concerned that your email may not reach the intended recipient at Deacons, please request confirmation of receipt within the body of your email and resend the email if the confirmation is not received within a reasonable time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Thanks. I'll try some. I think your web site may be okay, but the problem is on my end. Go figure! Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 To My Love.And here you are!the echo of bygone times repeated so oft I dare not recallnot just in my minds eyebut rattling in my dreams you weredancing ahead of every stepand now you lay in my bed aboveas i sit and ponder your everpresent.Forbid! I cannot say we may not have metwe have never been apart!No! you linger within and nowyou emerge without, and continue to tauntrattle me in my day-dreams and in my night fall.I love you woman, I always have.SF. That lovely poem shot through my heart and hit a star which gently whispered: Not really you but for his lovely anima! ao Love n a big cyberhug! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Hi Totally off topic, but I hope you escaped unscathed from the tornadoes and storms that hit Memphis Let me know.... Regards Nina Bristol, UK -- > Thank you for the info. Is stenosis a major issues or is just > something that comes with TC?? I really don't know all of these > medical terms yet so please don't think I am crazy for asking.. > What is a lipoma?? The C1 issue really scares me I just really > don't know what to think about all of this at this point. Thanks > again for the info and I hope I can get to know everyone out here > and be able to help others in time as well as get info.. I am sorry > for the late reply but I work alot of hours and don't have alot of > computer time.. > > .. > > >> >> Hi , >> >> I'm not a doctor, but I've been around for a while and was a > medical >> social worker. >> >> So here's what I see: the spinal cord is low and tuck in a lipoma > at >> the end. There is a lot of cervical stenosis, especially around >> C3,4. >> >> I'm not sure exactly what they said about C1, but it is apparently >> unstable - and that's a really imporatant vertebra since your head >> is sitting on it! >> >> V >> >> >> >> > Tethered cord ends at L3/ L4 and its pulled back with a fatty >> growth. The cervical spine has alot of narrowing to it and is > small >> at C3 and C4, C1 the top of spine is not put together right and > is >> not in one solid piece. He may need surgery as well for the C1 >> issues but wont know until May the doctor said the Nero surgeon > has >> to get more xrays to find out how stable C1 is. . We also found > out >> he has a mild from of spina bifida. >> > >> > I know I am new here but want to thank everyone in advance for >> any info. >> > >> > mom to 11yrs. >> > >> > >> > --------------------------------- >> > Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously >> low rates. >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Which bk of mine? And to all: "Always keep an open mind and a good crap detector!" Sayings of Gezeebius. Perhaps my new bk wh is about the collective evolution of consciousness thru the astrological/astronomical Ages will be more convincing. cover:THE HEAVENS DECLARE Mebbe it wld help to think of the Solar System as a hologram. I myself do not believe that the planets cause.....as in A influencing B, rather that A n A' are only divided by the ego's perception [dualistic]. I use the analogy of a fish swimming in a bubble in the ocean. The water inside n out are the same, but the fish thinks it's separate. As Jung says: Some things are 'just so' n astrology comes w/the territory. The word, label, has acquired such a bad connotation that many prefer to call it Cosmic Science. Astrol got kicked out during the Age of Reason n was rejected by both science n religion. Science by Newtonian materialism n religion for the power it gave to indiduals. Communism ikewise. However, bec of this religion lost its proofs n science, its sense of the sacred! The dichotomy of the passing Age of Pisces= Faith/reason or Pisces/Virgo. Read on, continue to question! nuff for now love ao Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Re: For Which bk of mine? JUNGIAN SYMBOLISM IN ASTROLOGY which you recommended I reread on March 30th. And to all: "Always keep an open mind and a good crap detector!" Sayings of Gezeebius. Perhaps my new bk wh is about the collective evolution of consciousness thru the astrological/astronomical Ages will be more convincing. cover:THE HEAVENS DECLARE Mebbe it wld help to think of the Solar System as a hologram. I myself do not believe that the planets cause.....as in A influencing B, rather that A n A' are only divided by the ego's perception [dualistic]. I use the analogy of a fish swimming in a bubble in the ocean. The water inside n out are the same, but the fish thinks it's separate. N: As 'outside, so inside'? Perhaps . . . At the moment I'm inclined toward the notion that people accept what seems valid for themselves and tend to reject or (in my case) suspend judgment on the rest. By that I mean those who can actually see themselves in their chart accept astrology; those who can actually see themselves in the Myers-Briggs typology test (or others) accept Jungian typology. As Jung says: Some things are 'just so' n astrology comes w/the territory. The word, label, has acquired such a bad connotation that many prefer to call it Cosmic Science. Astrol got kicked out during the Age of Reason n was rejected by both science n religion. Science by Newtonian materialism n religion for the power it gave to indiduals. Communism ikewise. However, bec of this religion lost its proofs n science, its sense of the sacred! The dichotomy of the passing Age of Pisces= Faith/reason or Pisces/Virgo. N: I'm of course aware of the 'bad rap' astrology has fallen heir to, but don't think my influences me. Read on, continue to question! N: Just wishing I could see some basis to it beyond the individual synchonisticy that of each system it may fit some, but not others. I don't 'reject my chart'; I just find that there is too little perceptable 'fit' to depend on it as laden with insight. I don't expect it to 'forecast' anything except as you've said what may pertain to my natural was of organizing data. Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 , I work at a water treatment plant and know quite a lot about water. I would suggest that you never put tap water in your lungs because it has minerals, metals, disinfectants, disinfection by-products and other things that could really do more harm than good to your lungs. If you’re going to put it in your nebulizer, I would use only distilled water which has been filtered and distilled to remove all the things that are in tap water. The distillation process also removes bacteria and viruses that could be very harmful to you. In the US, there are very strict regulations on drinking water so no matter where you live, your drinking water should be safe to drink, but putting in your lungs is a different story. Personally, I would only use a sterile saline solution with a known percentage of salt because too much salt can be harmful to your lungs. Good luck with your health management. Ginger From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of eladutko@... Sent: Wednesday, April 19, 2006 6:37 PM To: bronchiectasis Subject: Re: Re: my surgery experience Hi, I have a question. I was wondering if I'm doing something wrong. I boil water on the stove and put in 1/2 tsp of non iodized salt and breathe into my lungs and my sinus. It works wonders for me, but after reading all your posts, I'm wondering if that's OK. Any comments? -------------- Original message from " Carole " : -------------- > Hi Barb, I have recently started nebulising Hypertonic saline..7% > solution I think that is. > I think what your Doctor is worried about is that SOME people may get > a spasm in the airways, especially if they have asthma (I Don't) and I > guess this can be dangerous. > Usually the first time you try it you would use a puffer, ie ventolin > to relax(?) the airways and then try, if the Doctor is seriously > worried you should do it in his office. > This is what I was told, I am not an expert. I have dispensed with the > ventolin, it gives me the shakes and I don't think it helps me much > . The solution I neb. is made up for me by my pharmacist..46 grammes > of non-iodised salt to 1 litre of purified (distilled) water...even > boiled water will do. I keep this in the refrigerator. My chest > physician told me about this, cheaper than buying single dose and easier. > I really find it loosens the gunk in your lungs and even though I am > normally very productive it helps- > Lots of people use this stuff and I guess if it were really dangerous > warnings would be all over the bronch and CF sites ..maybe I am just > an optimist. Cheers, Carole-- In bronchiectasis , > Chau wrote: > > > > Hi , > > > > My surgery was done for similar reason to Barb. Started with > asthma and pneumonia in my early 20s, which resulted in some scarring > of tissue, followed by recurring infections on ever shorter time > spans, then development of absess and aspergillosis (don't know which > came first). > > > > I hear its rare to g et aspergillosis in all but immuno-suppressed > patients. Thank prednisone for that. Ironically, prednisone is a > treatment and a potential cause for this if taken for long period. In > any case, my doc recommended the surgery due to the recurring > infections (29 yo). In hindsight it was probably the right thing to > do, though it created some new problems as well (spread of > bronchiectasis and hyperallergy). > > > > BTW, has anyone had experience inhaling 7% or 3% saline solutions? > My doctor advises against 7% solution due to potential convultions > (?), but sounds like from many that it may help. Also, does tea > tree/eucalyptus oil really help keep down infections? How is it taken? > > > > Thanks all, > > Will from 'frisco > > > > > > Barb Erdmann wrote: > > Hi , > > > > My lobectomy was done almost four years ago. After I started culturing > > Pseudomonas and Aspergillus and nothing seemed to control them, three > > different doctors recommended removing the damaged lobe. The third > > doctor, an infectious disease specialist, said neither the Pseudomonas > > nor the Aspergillus could be eradicated and that removing the infected > > lobe was the only way to control the infections. It took me six months > > to agree to have it done, but I am glad that I finally did it. > > > > As for postural drainage and percussion therapy, it's done to keep > > secretions from sitting in the damaged areas of our lungs and causing > > infections and more damage. If you have bronchiectasis, you have > > damaged areas. The clearer you can keep your lungs, the better off > > you'll be in the long run. The purpose of postural drainage is to allow > > th e secretions to move out of the airways so that they can be coughed > > out. Sometimes percussion therapy is done at the same time (having your > > back, side, and chest clapped or pounded) to loosen up the junk and help > > move it up and out of the airways. > > > > Hope this helps. The more we understand, the better we are at making > > decisions regarding our health. > > > > Barb (in Wisconsin) > > > > > > > > > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group " bronchiectasis " on the web. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Ginger, thank you so much for your informative reply. I never gave those issues a thought. I'm learning a great deal from this group -------------- Original message from "TWU-Skipper, Ginger" : -------------- , I work at a water treatment plant and know quite a lot about water. I would suggest that you never put tap water in your lungs because it has minerals, metals, disinfectants, disinfection by-products and other things that could really do more harm than good to your lungs. If you’re going to put it in your nebulizer, I would use only distilled water which has been filtered and distilled to remove all the things that are in tap water. The distillation process also removes bacteria and viruses that could be very harmful to you. In the US, there are very strict regulations on drinking water so no matter where you live, your drinking water should be safe to drink, but putting in your lungs is a different story. Personally, I would only use a sterile saline solution with a known percentage of salt because too much salt can be harmful to your lungs. Good luck with your health management. Ginger From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of eladutko@...Sent: Wednesday, April 19, 2006 6:37 PMTo: bronchiectasis Subject: Re: Re: my surgery experience Hi, I have a question. I was wondering if I'm doing something wrong. I boil water on the stove and put in 1/2 tsp of non iodized salt and breathe into my lungs and my sinus. It works wonders for me, but after reading all your posts, I'm wondering if that's OK. Any comments? -------------- Original message from "Carole" : -------------- > Hi Barb, I have recently started nebulising Hypertonic saline..7% > solution I think that is. > I think what your Doctor is worried about is that SOME people may get > a spasm in the airways, especially if they have asthma (I Don't) and I > guess this can be dangerous. > Usually the first time you try it you would use a puffer, ie ventolin > to relax(?) the airways and then try, if the Doctor is seriously > worried you should do it in his office. > This is what I was told, I am not an expert. I have dispensed with the > ventolin, it gives me the shakes and I don't think it helps me much > . The solution I neb. is made up for me by my pharmacist..46 grammes > of non-iodised salt to 1 litre of purified (distilled) water...even > boiled water will do. I keep this in the refrigerator. My chest > physician told me about this, cheaper than buying single dose and easier. > I really find it loosens the gunk in your lungs and even though I am > normally very productive it helps- > Lots of people use this stuff and I guess if it were really dangerous > warnings would be all over the bronch and CF sites ..maybe I am just > an optimist. Cheers, Carole-- In bronchiectasis , > Chau wrote: > > > > Hi , > > > > My surgery was done for similar reason to Barb. Started with > asthma and pneumonia in my early 20s, which resulted in some scarring > of tissue, followed by recurring infections on ever shorter time > spans, then development of absess and aspergillosis (don't know which gt; came first). > > > > I hear its rare to g et aspergillosis in all but immuno-suppressed > patients. Thank prednisone for that. Ironically, prednisone is a > treatment and a potential cause for this if taken for long period. In > any case, my doc recommended the surgery due to the recurring > infections (29 yo). In hindsight it was probably the right thing to > do, though it created some new problems as well (spread of > bronchiectasis and hyperallergy). > > > > BTW, has anyone had experience inhaling 7% or 3% saline solutions? > My doctor advises against 7% solution due to potential convultions > (?), but sounds like from many that it may help. Also, does tea > tree/eucalyptus oil really help keep down infections? How is it taken? > > > > Thanks all, > > Will from 'frisco > > > > > > Barb Erdmann wrote: > > Hi , > > > > My lobectomy was done almost four years ago. After I started culturing > > Pseudomonas and Aspergillus and nothing seemed to control them, three > > different doctors recommended removing the damaged lobe. The third > > doctor, an infectious disease specialist, said neither the Pseudomonas > > nor the Aspergillus could be eradicated and that removing the infected > > lobe was the only way to control the infections. It took me six months > > to agree to have it done, but I am glad that I finally did it. > > > > As for postural drainage and percussion therapy, it's done to keep > > secretions from sitting in the damaged areas of our lungs and causing > > infections and more damage. If you have bronchiectasis, you have > > damaged areas. The clearer you can keep your lungs, the better off > > you'll be in the long run. The purpose of postural drainage is to allow > > th e secretions to move out of the airways so that they can be coughed > > out. Sometimes percussion therapy is done at the same time (having your > > back, side, and chest clapped or pounded) to loosen up the junk and help > > move it up and out of the airways. > > > > Hope this helps. The more we understand, the better we are at making > > decisions regarding our health. > > > > Barb (in Wisconsin) > > > > > > > > > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group "bronchiectasis" on the web. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Rob! I got an Omron NE - U22V nebuliser, the V standing for vibrating mesh technology. The Internet didn't have a NE - U22, so I assumed that the one I got was a more recent model than the one you recommended. I haven't solved the saline/abuterol problem yet, but tomorrow I have an appointment with the doctor who diagnosed my bronch (I've had it for over 30 years and he is the first guy to be interested enough to give a good diagnosis) I plan to ask him for some help with prescriptions etc. Hopefully he will listen. He did before. The TTO is fabulous! I find I need to use it once a day and every day. In steam. The exercise is also fabulous. Couldn't make it without it. I have discontinued all my other meds and don't miss them. In fact, my brain actually works again. Thanks for asking! Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hello Lee, I am so pleased you are doing so well. I am enjoying life so much more now. On Sunday I went climbing in the Glassouse Mountains, so nice to get to the top first for a change. I still dance 4 or 5 times a week, that keeps me aerobically fit, then there is the bike, so nice to be beside the ocean. (http://www.sunweb.com.au/places/glassmtns.html) I have the same Nebuliser, you will find the TTO can clog it up. If you get it clogged you can rinse the screen under the hot tap and it clears it easily. To avoid that I have been wiping a drop inside the soft mouthpiece so that I inhale the vapours with the saline etc. Stay well, Rob > > Hi Rob! > > I got an Omron NE - U22V nebuliser, the V standing for vibrating mesh > technology. > The Internet didn't have a NE - U22, so I assumed that the one I got was a > more > recent model than the one you recommended. > > I haven't solved the saline/abuterol problem yet, but tomorrow I have an > appointment > with the doctor who diagnosed my bronch (I've had it for over 30 years and > he is the > first guy to be interested enough to give a good diagnosis) I plan to ask him > for some > help with prescriptions etc. Hopefully he will listen. He did before. > > The TTO is fabulous! I find I need to use it once a day and every day. In > steam. > The exercise is also fabulous. Couldn't make it without it. I have > discontinued all > my other meds and don't miss them. In fact, my brain actually works again. > > Thanks for asking! > > Lee > Quote Link to comment Share on other sites More sharing options...
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