Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Thanks So much for the info!!!! The first part is the Trial on Dec. 8. If things go well I will go back into surgery on the 22nd and have the unit and battery pack implanted more permanently.> > > What will the bladder stim do for you? Do you cath and if so, will it make it so you don't have to anymore? If so, what will the benefit beyond not cathing do for you? > > Kathy Well, right now I am not taking any bladder meds.. so I am leaking, not making it to the bathroom in time and (how embarassinig) wetting the bed like an infant. I was potty trained at 18 months old -- and all that has gone out the window now! I have both urge issues (I wake 8-9 times a night to dribble) and retention problems. When my NSG checked my bladder during my last detethering in March, he said my bladder was " boggy and unresponsive " . The good news is that it has been doing better than his grim prediction. My urologist feels the stim will help eliminate my need to self-cath a night and in the morning and to reduce the bladder spasms. Anything else I may get from this will be gravy. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 , are thet doing a trial first?? An external lead?? Tommi --- DK Moulton wrote: > Hey > > A bit more so you know what's what ... I was put to > sleep while they implanted the battery pack, then > woken while they placed the leads (wires.) I'm not > familiar with the bladder stim and if they have to > put leads in, but I'm sure they'll put you to sleep > while they place the battery pack, or whatever they > call it for a bladder stim. However, I have learned > that what others experience is not always what > others go through - so make certain you'll be as > comfortable as possible, when you'll be put to sleep > and when they'll wake you and what part you'll be > awake for (usually they have to wake you to make > sure the wires/leads are placed correctly and will > do what they're supposed to.) > > What will the bladder stim do for you? Do you cath > and if so, will it make it so you don't have to > anymore? If so, what will the benefit beyond not > cathing do for you? > > Kathy > Re: TCS and Dystonia > > > > was found muttering these words: > > IMHO, the spinal cord stim trial and surgery is > nothing. A tiny bit > uncomfortable and the worst part is that you have > to be awake for most of > the surgery, but they do give you some > sleepy/silly meds to help. > > Thanks for this information! My doctor mumbled > something about not being > 'completely' out when she places the trial stim > for my bladder next week. > She did not elaborate as you have done for me so I > didn't know what to > expect. Now I do :-) > > Thats why I love this list! > > M. > > > > > > [Non-text portions of this message have been > removed] > > Tommi 's Mom Chicago, IL. USA ________________________________________________________________________________\ ____ Any questions? Get answers on any topic at www.Answers.yahoo.com. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 I'll be thinking of you all day on the 8th . This stuff, no matter how small compared to our untetherings, is still major and scary. (Especially when they tell you in an off the cuff way you'll be awake for part of the procedure.) I had a lipoma removed from my ribcage without anesthesia. The Novocain injections in that area were extremely painful, and the digging and pulling to get the lipoma excised was very painful. I've had a myelogram (sp) of my neck with no Novocain and a small lipoma removal from my neck removed with just a tiny dose of Novocain. Sometimes I wonder if these doctors have ever had procedures done on themselves. Look to Rick for inspiration with the stim. He's having great fortune with his baclofen pump. I know if I can ever get an appt. for the pain pump, he'll be my inspiration when they start. Kathy Re: Stim placements- Thanks So much for the info!!!! The first part is the Trial on Dec. 8. If things go well I will go back into surgery on the 22nd and have the unit and battery pack implanted more permanently.> > > What will the bladder stim do for you? Do you cath and if so, will it make it so you don't have to anymore? If so, what will the benefit beyond not cathing do for you? > > Kathy Well, right now I am not taking any bladder meds.. so I am leaking, not making it to the bathroom in time and (how embarassinig) wetting the bed like an infant. I was potty trained at 18 months old -- and all that has gone out the window now! I have both urge issues (I wake 8-9 times a night to dribble) and retention problems. When my NSG checked my bladder during my last detethering in March, he said my bladder was " boggy and unresponsive " . The good news is that it has been doing better than his grim prediction. My urologist feels the stim will help eliminate my need to self-cath a night and in the morning and to reduce the bladder spasms. Anything else I may get from this will be gravy. M. Quote Link to comment Share on other sites More sharing options...
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