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my 6 year old had detethering done on the 9th of august. she came home for 4

days and started having severe headaches accompanied with vomiting. I called

the ns and took her back in to the hospital. they did a spinal tap and stated

that the headaches must be due to excess blood in the spinal fluid. After 6

more days in the hospital she can only get up and be somewhat active for about 2

hours anything over that and she stays in bed the rest of the day. Is this

" normal " ? She gets tired sooooo easy. Her headaches have somewhat subsided but

still come and go.

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  • 3 weeks later...

>I had pretty frequent Spinal Headaches for atleast a month

> after my last Detethering. I still get one every once in awhile. Nobody

> ever mentioned anything about blood being in the CSF to me.

>

> I know what it's like, I feel for her.

>

> Me :)

> Nebraska, USA

> mymocha@...

>

>

>

> home for 4 days and started having severe headaches accompanied with

> vomiting. I called the ns and took her back in to the hospital.

> they did a spinal tap and stated that the headaches must be due to

> excess blood in the spinal fluid. After 6 more days in the hospital

> she can only get up and be somewhat active for about 2 hours anything

> over that and she stays in bed the rest of the day. Is

> this " normal " ? She gets tired sooooo easy. Her headaches have

> somewhat subsided but still come and go.

>

>

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