Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Are you sure some of you do not have an underlying "Cause" for brochiectasis? My 15 year old daughter and I just got back from St.Louis Children's hospital, which is involved with a research project called PCD. (Primary Ciliary Dyskinesia). Even though she was tested for and subsequently found not to have Immotile Cilia Syndrome, about 20% of subjects don't test positive for this disease, unless you do other testing. There are (4) centers in the United States that are being given government grants for this testing. The University of Washington,University of North Carolina @ Chapel Hill, The University of Colorado, and Washington University School of Medicine in St. Louis Missouri.About 6,000 people have been confirmed to have this disease, but they believe many more have been diagnosed with other diseases that are actually this disease. Please visit their website @ www.pcdfoundation.org or Genetic diseases of Mucolociliary Clearance @ http:/rdcrn.epi.usf.edu/ There are also websites available for the UK as well as Canada. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Dear , Have you been tested for cystic fibrosis? I cannot use picc-lines due to poor veins, but love my port-a-cath, especially when it works well! ) Home care arranges for me to use a CADD prizm pump, so its possible to get out of the house on less humid days, supposed to doing the IVs the old fashion way. Do you also use a portable system? Some of my CF friends like the IV balls; they work well and run on gravity, but are not available where I live. Needle-less system is excellent. Congratulations on gaining 7 pound! That is excellent. I like to make homemade Blizzards and crumble cookies and candy into them (like the kind of Blizzards available at Diary Queen). Chocolate sauce can be added and so on. I also enjoy homemade milk shakes when trying to gain weight, but also sometimes have ensure or boost. Gatorade is a must in the hot weather. I find when my energy is down due to the heat Gatorade can be helpful. IV antibiotics canmake us feel more draggy than the norm. Pacing ourselves becomes important. I guess we are both IV buddies. My three weeks of IVs end on Saturday, and my family are visiting, so I am having a great time with the wee ones. Hope you are feeling much better each day! Well, my brother and his family have arrived. Time to go! Best Wishes, Hugs:0) Liz in Nova Scotia, Canada e-mail:maryholt12@... or lungsformary@... Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you!:0) carepages.com name:maryelizabethholt ) " Miracles happen with love..... " ..... Please support your local children's hospital.... and " Give with all your might! " http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) " I don't give in, I don't give up, and I don't take no for an answer. " ~Doris ~ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi everyone, I (nne) joined this group a couple of weeks ago and I have learned so much from all of you. It is amazing what some of you are going through. I will be seeing my doctor next week for a follow up. I was interested in finding out more about using my nebulizer with the saline solution. Is the saline solution presciption or over the counter? It sounds like a great way to clear out the lungs without using drugs. nne, Olathe, Kansas Ricker wrote: --quiet is when I take my cochlear implant hardware and hearing aid off my head, before going to bed. THAT's quiet.Well, so far we won't have my sputum volume to kick around any more; I am at about 120mL a day, tops, though it's still dark. Finished IV Amikacin this past week; about 10 days more of Meropenem, though lung doc says he wants to leave the PICC line in, so IVs may continue. I am an "old hand" at infusing myself already--needle-less, it's pretty simple; my only slip-ups are when I change tubing every 3 days. I tend to let too much out while getting air bubbles out of the line. Dribble, dribble.Still waiting to hear when I can see the infectious disease doctor. Lung doc said to increase my activity, but don't go out in our 115-degree heat. I am still dragging, without much energy. With canned supplements, I've gained back the 7 lbs. I lost, plus one. I take my dog out at sunrise and sunset and throw his stuffed toy for him.55, Phoenix AZ, bronchiectasis 20 years or more __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Clauda, I do not know where you live however, there are websites in Canada, as well as the UK for PCD. Please press on with this, my daughter has had (3) sweat chlorides, (97) panel and a now awaiting a 1400 panel screening for Cystic Fibrosis. The first (4) tests have come back negative. I just feel after reading about PCD and there are a lot of people out there who are not getting the proper diagnosis. Call Chapel Hill North Carolina which the number and email is located on the PCD website and ask who you could go visit and would be an expert on this disease. When you do all the tests with the (4) centers associated with the study, the testing is free. They not only do the test you mentioned, but other biopsies and cultures. I hope this helps. Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 My respirologist is currently working to get the ball rolling for testing for the cilia disease mentioned. first they do a nitric oxide test and depending on that result, send a blood sample down to the states for the genetic test. unfortunately, the hospital for sick kids, which were the ones who originally did the nitric oxide test, says they will no longer do the test on adults. so i have to wait until my resp either convinces them otherwise, or finds another source for the test. but i'm keeping my fingers crossed. i have already been tested for all 1100 cystic fibrosis genetic mutations and have come up with nothing. my resp also says she's got other genetic tests and maybe other types coming up. so i'm excited about that. i'd love to know why i have bronch. claudia See the all-new, redesigned Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Dear nne, Welcome to the group!) In Nova Scotia, pharmacies sell saline over the counter. Best Wishes:0) Liz in Nova Scotia, Canada ... Home of the Bluenoser e-mail:maryholt12@... or lungsformary@... Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you!:0) carepages.com name:maryelizabethholt ) " Miracles happen with love..... " ..... Please support your local children's hospital.... and " Give with all your might! " http://iwkfoundation.org/ )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) " I don't give in, I don't give up, and I don't take no for an answer. " ~Doris ~ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi , I too am just coming off the IV's at home with a cadd pump and my porta cath worked, YAY.May it ever do so! You were saying you had to have a fibrin sheath removed from the implant, how did that go? Hugs Carole. > > Dear , > > Have you been tested for cystic fibrosis? > > I cannot use picc-lines due to poor veins, but love my > port-a-cath, especially when it works well! ) Home > care arranges for me to use a CADD prizm pump, so its > possible to get out of the house on less humid days, > supposed to doing the IVs the old fashion way. Do you > also use a portable system? Some of my CF friends like > the IV balls; they work well and run on gravity, but > are not available where I live. > > Needle-less system is excellent. > > Congratulations on gaining 7 pound! That is excellent. > I like to make homemade Blizzards and crumble cookies > and candy into them (like the kind of Blizzards > available at Diary Queen). Chocolate sauce can be > added and so on. I also enjoy homemade milk shakes > when trying to gain weight, but also sometimes have > ensure or boost. > > Gatorade is a must in the hot weather. I find when my > energy is down due to the heat Gatorade can be > helpful. IV antibiotics canmake us feel more draggy > than the norm. Pacing ourselves becomes important. > > I guess we are both IV buddies. My three weeks of IVs > end on Saturday, and my family are visiting, so I am > having a great time with the wee ones. > > Hope you are feeling much better each day! > > Well, my brother and his family have arrived. Time to > go! > > Best Wishes, > > Hugs:0) > Liz in Nova Scotia, Canada > > > > > > e-mail:maryholt12@... or lungsformary@... > > Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you!:0) > carepages.com name:maryelizabethholt > > ) " Miracles happen with love..... " ..... Please support your local children's hospital.... and " Give with all your might! " > http://iwkfoundation.org/ > )Visit.... Children's Miracle Network.... http://www.cmn.org/ ) > > " I don't give in, I don't give up, and I don't take no for an answer. " > ~Doris ~ > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hey , interested to read about your hearing probs. I have otosclerosis and they can't do the simple op. to fix it because I am so " Buggy " . But you had a cochlear implant????Like you I have hearing aids and the one thing positive about them is as you said you can sleep esp. in hospital. Unfortunately I have tinnitus from all the gentamicin and it sounds like an orchestra tuning up in my head...Oh well you can't have everything lol! I have just come off the meropenem two days ago and I am back to " Chartreuse " gunk, nice colour but not welcome.Hope you get sme cooler weather, we have had two weeks of rain here in OZ.Cheers Carole > > --quiet is when I take my cochlear implant hardware and hearing aid off > my head, before going to bed. THAT's quiet. > > Well, so far we won't have my sputum volume to kick around any more; I > am at about 120mL a day, tops, though it's still dark. Finished IV > Amikacin this past week; about 10 days more of Meropenem, though lung > doc says he wants to leave the PICC line in, so IVs may continue. I am > an " old hand " at infusing myself already--needle-less, it's pretty > simple; my only slip-ups are when I change tubing every 3 days. I tend > to let too much out while getting air bubbles out of the line. Dribble, > dribble. > > Still waiting to hear when I can see the infectious disease doctor. > Lung doc said to increase my activity, but don't go out in our > 115-degree heat. I am still dragging, without much energy. With canned > supplements, I've gained back the 7 lbs. I lost, plus one. I take my > dog out at sunrise and sunset and throw his stuffed toy for him. > > > 55, Phoenix AZ, bronchiectasis 20 years or more > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Dear nne,I use 9 percent saline with one drop of Tea Tree Oil 2Xs a day in my nebulizer. I am on vacation in Panama so I can´t give you the exact name of my nebulizer, however it is made by Omron (V22 think, but not sure) and it is the new vibrating mesh technology which is portable, small and very quiet. It can take batteries and has an A/C adapter. I love it. I did come down with Aspergillus while using the Saline, but I will continue to use it as it may take time for it to be effective. In addition, I use my prescribe meds first then a saline treatment. You can go to Omron´s homepage and read up on their nebulizers, just do a Google search. If you have difficulty, I´ll try to get it for you when I get home as I´m returning to FL today. All the best, Eileen-FL -- marianne noll wrote:Return-Path: <sentto-4056817-13250-1153506752-ecbauer954=juno.com@...>Received: from mx29.lax.untd.com (mx29.lax.untd.com [10.130.24.89])by maildeliver08.nyc.untd.com with SMTP id AABCNCJVJAZQ5HDAfor (sender <sentto-4056817-13250-1153506752-ecbauer954=juno.com@...>);Fri, 21 Jul 2006 11:52:24 -0700 (PDT)Received: from outbound20-2.nyc.untd.com (localhost [127.0.0.1])by mx29.lax.untd.com with SMTP id AABCNCJVJAHENV9Jfor (sender <sentto-4056817-13250-1153506752-ecbauer954=juno.com@...>);Fri, 21 Jul 2006 11:52:24 -0700 (PDT)Received: from n27.bullet.scd.yahoo.com (n27.bullet.scd.yahoo.com [66.94.237.56])by mx29.lax.untd.com with SMTP id AABCNCHQBAUCDPQJfor (sender <sentto-4056817-13250-1153506752-ecbauer954=juno.com@...>);Fri, 21 Jul 2006 11:32:33 -0700 (PDT)Comment: DomainKeys? See http://antispam.yahoo.com/domainkeysDomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; d=yahoogroups.com;b=Qwjw7B7x/hZtKyAtVZRyGSAN73q79gRvqAY6RfeQTTjipJmG+ZtMSSFUpC1EQmuS3DEmDvEmXjgRzdOpx00+e1COo2zYDnPbTLWO6J0efQz50P9eWDGF1m3a91Usk32e;Received: from [66.218.66.59] by n27.bullet.scd.yahoo.com with NNFMP; 21 Jul 2006 18:32:33 -0000Received: from [66.218.66.61] by t8.bullet.scd.yahoo.com with NNFMP; 21 Jul 2006 18:32:33 -0000X-Yahoo-Newman-Property: groups-emailX-Yahoo-Newman-Id: 4056817-m13250X-Sender: mariannenoll@...X-Apparently-To: bronchiectasis Received: (qmail 19975 invoked from network); 21 Jul 2006 18:30:46 -0000Received: from unknown (66.218.66.217) by m35.grp.scd.yahoo.com with QMQP; 21 Jul 2006 18:30:46 -0000Received: from unknown (HELO web55803.mail.re3.yahoo.com) (216.252.110.49) by mta2.grp.scd.yahoo.com with SMTP; 21 Jul 2006 18:30:45 -0000Received: (qmail 69182 invoked by uid 60001); 21 Jul 2006 18:30:43 -0000Message-ID: Received: from [69.152.171.184] by web55803.mail.re3.yahoo.com via HTTP; Fri, 21 Jul 2006 11:30:43 PDTTo: bronchiectasis , Bronchiectasis_support Cc: bronchiectasis In-Reply-To: X-Originating-IP: 216.252.110.49X-eGroups-Msg-Info: 1:0:0:0X-Yahoo-Profile: mariannenollSender: bronchiectasis MIME-Version: 1.0Mailing-List: list bronchiectasis ; contact bronchiectasis-owner Delivered-To: mailing list bronchiectasis List-Id: <bronchiectasis.yahoogroups.com>Precedence: bulkList-Unsubscribe: <mailto:bronchiectasis-unsubscribe >Date: Fri, 21 Jul 2006 11:30:43 -0700 (PDT)Subject: Re: This isn't quiet--Reply-To: bronchiectasis Content-Type: multipart/alternative; boundary="0-425603046-1153506643=:66722"X-ContentStamp: 5:2:1221723152X-MAIL-INFO: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-UNTD-Peer-Info: 66.94.237.56|n27.bullet.scd.yahoo.com|n27.bullet.scd.yahoo.com|sentto-4056817-13250-1153506752-ecbauer954=juno.com@...X-UNTD-UBE:-1 Hi everyone, I (nne) joined this group a couple of weeks ago and I have learned so much from all of you. It is amazing what some of you are going through. I will be seeing my doctor next week for a follow up. I was interested in finding out more about using my nebulizer with the saline solution. Is the saline solution presciption or over the counter? It sounds like a great way to clear out the lungs without using drugs. nne, Olathe, Kansas Ricker wrote: --quiet is when I take my cochlear implant hardware and hearing aid off my head, before going to bed. THAT's quiet.Well, so far we won't have my sputum volume to kick around any more; I am at about 120mL a day, tops, though it's still dark. Finished IV Amikacin this past week; about 10 days more of Meropenem, though lung doc says he wants to leave the PICC line in, so IVs may continue. I am an "old hand" at infusing myself already--needle-less, it's pretty simple; my only slip-ups are when I change tubing every 3 days. I tend to let too much out while getting air bubbles out of the line. Dribble, dribble.Still waiting to hear when I can see the infectious disease doctor. Lung doc said to increase my activity, but don't go out in our 115-degree heat. I am still dragging, without much energy. With canned supplements, I've gained back the 7 lbs. I lost, plus one. I take my dog out at sunrise and sunset and throw his stuffed toy for him.55, Phoenix AZ, bronchiectasis 20 years or more __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Eileen Normal saline is 0.9%. A concentration of 9% is 10 times stronger. It is the difference between 9gm per 100ml and 9gm per 1000ml - stronger is not always better! Hypertonic saline is given for specific purposes but I don't know if this is one of them. Tony Re: This isn't quiet--Reply-To: bronchiectasis Content-Type: multipart/alternative; boundary="0-425603046-1153506643=:66722"X-ContentStamp: 5:2:1221723152X-MAIL-INFO: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-UNTD-Peer-Info: 66.94.237.56|n27.bullet.scd.yahoo.com|n27.bullet.scd.yahoo.com|sentto-4056817-13250-1153506752-ecbauer954=juno.com@...X-UNTD-UBE:-1 Hi everyone, I (nne) joined this group a couple of weeks ago and I have learned so much from all of you. It is amazing what some of you are going through. I will be seeing my doctor next week for a follow up. I was interested in finding out more about using my nebulizer with the saline solution. Is the saline solution presciption or over the counter? It sounds like a great way to clear out the lungs without using drugs. nne, Olathe, Kansas Ricker wrote: --quiet is when I take my cochlear implant hardware and hearing aid off my head, before going to bed. THAT's quiet.Well, so far we won't have my sputum volume to kick around any more; I am at about 120mL a day, tops, though it's still dark. Finished IV Amikacin this past week; about 10 days more of Meropenem, though lung doc says he wants to leave the PICC line in, so IVs may continue. I am an "old hand" at infusing myself already--needle-less, it's pretty simple; my only slip-ups are when I change tubing every 3 days. I tend to let too much out while getting air bubbles out of the line. Dribble, dribble.Still waiting to hear when I can see the infectious disease doctor. Lung doc said to increase my activity, but don't go out in our 115-degree heat. I am still dragging, without much energy. With canned supplements, I've gained back the 7 lbs. I lost, plus one. I take my dog out at sunrise and sunset and throw his stuffed toy for him.55, Phoenix AZ, bronchiectasis 20 years or more __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Thanks Toni, .09% is what I am using.Eileen-FL -- "Tony Lundy" wrote:Return-Path: <sentto-4056817-13280-1153735352-ecbauer954=juno.com@...>Received: from mx03.lax.untd.com (mx03.lax.untd.com [10.130.24.63])by maildeliver12.nyc.untd.com with SMTP id AABCNKGX8AKGDCKSfor (sender <sentto-4056817-13280-1153735352-ecbauer954=juno.com@...>);Mon, 24 Jul 2006 03:02:38 -0700 (PDT)Received: from n32.bullet.scd.yahoo.com (n32.bullet.scd.yahoo.com [66.94.237.26])by mx03.lax.untd.com with SMTP id AABCNKGX7AYCREY2for (sender <sentto-4056817-13280-1153735352-ecbauer954=juno.com@...>);Mon, 24 Jul 2006 03:02:37 -0700 (PDT)Comment: DomainKeys? See http://antispam.yahoo.com/domainkeysDomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; d=yahoogroups.com;b=oLmwYntDF3FZVk9TzaxZ7gTQEO3uIzmI+9r1JlsjfoXwq6vlvZkbtfQ0fk3oPc6VbjKJoOHpcYQznB+KLerQWbcTGUMe8/Q4OtMcKQJ2Lyq9jNSYI5ntt6h5cQldi3VL;Received: from [66.218.69.6] by n32.bullet.scd.yahoo.com with NNFMP; 24 Jul 2006 10:02:37 -0000Received: from [66.218.66.36] by t6.bullet.scd.yahoo.com with NNFMP; 24 Jul 2006 10:02:37 -0000X-Yahoo-Newman-Property: groups-emailX-Yahoo-Newman-Id: 4056817-m13280X-Sender: tonymlundy@...X-Apparently-To: bronchiectasis Received: (qmail 50953 invoked from network); 24 Jul 2006 09:58:43 -0000Received: from unknown (66.218.66.218) by m30.grp.scd.yahoo.com with QMQP; 24 Jul 2006 09:58:43 -0000Received: from unknown (HELO relay1.mail.uk.clara.net) (80.168.70.141) by mta3.grp.scd.yahoo.com with SMTP; 24 Jul 2006 09:58:42 -0000Received: from du-046-0146.access.clara.net ([217.158.117.146] helo=xp207a7dd52ef8)by relay1.mail.uk.clara.net with smtp (Exim 4.46)id 1G4xBe-000JGn-IBfor bronchiectasis ; Mon, 24 Jul 2006 10:57:25 +0100Message-ID: <00a801c6af07$8cc17b80$92759ed9@xp207a7dd52ef8>To: <bronchiectasis >References: X-Priority: 3X-MSMail-Priority: NormalX-Mailer: Microsoft Outlook Express 6.00.2900.2869X-MimeOLE: Produced By Microsoft MimeOLE V6.00.2900.2869X-Originating-IP: 80.168.70.141X-eGroups-Msg-Info: 1:0:0:0Sender: bronchiectasis MIME-Version: 1.0Mailing-List: list bronchiectasis ; contact bronchiectasis-owner Delivered-To: mailing list bronchiectasis List-Id: <bronchiectasis.yahoogroups.com>Precedence: bulkList-Unsubscribe: <mailto:bronchiectasis-unsubscribe >Date: Mon, 24 Jul 2006 10:57:04 +0100Subject: Re: This isn't quiet--Reply-To: bronchiectasis Content-Type: multipart/alternative; boundary="----=_NextPart_000_00A5_01C6AF0F.E6260760"X-ContentStamp: 28:14:2698965248X-MAIL-INFO: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-UNTD-Peer-Info: 66.94.237.26|n32.bullet.scd.yahoo.com|n32.bullet.scd.yahoo.com|sentto-4056817-13280-1153735352-ecbauer954=juno.com@...X-UNTD-UBE:-1 Eileen Normal saline is 0.9%. A concentration of 9% is 10 times stronger. It is the difference between 9gm per 100ml and 9gm per 1000ml - stronger is not always better! Hypertonic saline is given for specific purposes but I don't know if this is one of them. Tony Re: This isn't quiet--Reply-To: bronchiectasis Content-Type: multipart/alternative; boundary="0-425603046-1153506643=:66722"X-ContentStamp: 5:2:1221723152X-MAIL-INFO:074d09cd09cd293d29e92029e5adddb5411174ad051974d9010034a1b91050c9f1a9a9fd612465c9a4fd804d096424c0091020e59429e4e16db091f1a92d5d55c47d7d853085b5551134115950993154b45479897531d46dd96540d16054991d5d64943441d1e079cd3921390438392580a1b555bd39701125a90d3484b961f51414c94d1009e9a10d35e505a0813d701d6470a0b0a0cd0090cddd70a0e4b18dd0c961a050c094f08d5151f1f45004317550ed35992480f431d4b4990d5540947429104d848491a591ad10e920e9c438c171b914b9e1091171a1607004f50549b9c18029b4d9204405f4e199908190e464902990f0ed10f1a021e9e015502024f119a9595939513175358d50016d61dd24d02180b421dd41dd99ed9499d521dd40b57d343919dd3889d9457d858530bd38e47111380d01c179b0bd71a114c15010f5d9e565315124241dfd1d543135d4354d64c000f159f1d175e9008d4921e4a9615df1c0b0651470d42d61bdd1c194b19440b4942dc46d05995584ed35f4cd38d479309515c4c490857111017d38f06019d5c13481b01481d544d5c10dd9c1c981d5f5ad84209095d56409703d849191a5f9644000e96450f0c0e141f9008d59c03831a9706d0471857979802580b97101a10151b489ed30c430051135ed7d5d8140151929308941045921a17419f905c0d9b5d9f514d9a560494914b9a9d001bd9964a1e1a5a4cd4d4d949100e9f08464454995c9b020b14159b1c92dc9c05070c039b1c9a95424d494a4c9b47521d0241d1dfd55b4f5ed35b4384589d14455ed7dc4896471152160e40091e1e1b0e0b0f100f08df08514090da54da561e9010d8429b1f5cd9565a50944e4c4818de59555618970ad70a95970e1702d2d597049d0f0f9c1b48dd1fd9d995151d91ded354524b43d5da43955d4b544c4b53974398938218990b53915b979a1d99d3914118134798080251014a90d0114643d09052d100d844d09b400cd814940ed1dd1d141f44130ed457d4591597550fd51fd1935f0502465b5a999a404fd752d404db17d6da410190921542115c42155743038c17d309d4555c0147d0525a0c1858570800d013d7914d0299d9090a1ad2d4dad90e5900964810994ad90cdf1e18d70a09059e9b120e1b0b0e031591550f059b4d0756174315024517514ed99b15df50d80050544bd44a50d3d843d1dc41138258525950145387904ad15c19de42560b9d5bdf079090d0d146005a1b9cdb96481e9c0351d65d15499546dd11df4ed84e97091f9ddd0205961a930c075c915a9d06124b535c935a4d445e5e9c92dedd1d1a4546d1d3555351989384db519b5258925457938301961bd553414d92560b9d5bdd5f0710df5X-UNTD-Peer-Info: 66.94.237.56|n27.bullet.scd.yahoo.com|n27.bullet.scd.yahoo.com|sentto-4056817-13250-1153506752-ecbauer954=juno.com@...X-UNTD-UBE:-1 Hi everyone, I (nne) joined this group a couple of weeks ago and I have learned so much from all of you. It is amazing what some of you are going through. I will be seeing my doctor next week for a follow up. I was interested in finding out more about using my nebulizer with the saline solution. Is the saline solution presciption or over the counter? It sounds like a great way to clear out the lungs without using drugs. nne, Olathe, Kansas Ricker wrote: --quiet is when I take my cochlear implant hardware and hearing aid off my head, before going to bed. THAT's quiet.Well, so far we won't have my sputum volume to kick around any more; I am at about 120mL a day, tops, though it's still dark. Finished IV Amikacin this past week; about 10 days more of Meropenem, though lung doc says he wants to leave the PICC line in, so IVs may continue. I am an "old hand" at infusing myself already--needle-less, it's pretty simple; my only slip-ups are when I change tubing every 3 days. I tend to let too much out while getting air bubbles out of the line. Dribble, dribble.Still waiting to hear when I can see the infectious disease doctor. Lung doc said to increase my activity, but don't go out in our 115-degree heat. I am still dragging, without much energy. With canned supplements, I've gained back the 7 lbs. I lost, plus one. I take my dog out at sunrise and sunset and throw his stuffed toy for him.55, Phoenix AZ, bronchiectasis 20 years or more __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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