Fibromyalgia question

[Guest guest]

Hi all!

I am thankful for this site.

I can read all your pain, comesserate and empathize with you on

your problems with drs. and trying to find a cure or balance in

medication to help relieve the pain....

A bit of my health background: [sorry if this sounds like I'm whining

please read to the end for my question.]

When my GP couldn't figure out what was wrong with me why I was

having blinding migraines after trying to put me on antidepressants,

(his answer for everything); he sent me to a neurologist to try

heavier-duty pain meds. When that didn't work and even the

emergency room dr. threw up his hands saying there wasn't

anymore that they could do, I went to Mayo in sdale, AZ who

asked me which symptom that I was having did I want cured the

most.....They decided that my thyroid might be messing up but

couldn't find anything wrong..... Couldn't explain the edema and

pain. I thought if Mayos (the world famous medical facility in the

world) had given up with me, then I was resigned to the fact that I

was not helpable.

But for me, continuing to live a life in pain was not an option either, I

had two sons to raise! So I started researching on the internet trying

to piece all the symptoms I was having to take back to my GP dr.

and see if there was something he would listen to..... only to find out

that he was mad at me for going to Mayos..... (ego trip). So I would

only go to him now as a last resort, would rather go to the InstaCare

clinic for colds etc.

The research on the internet paid off, in that typing in a search for:

" What to do when your dr. gives up on you " brought up a dr. in

ColoradoSprings (a 12 hour drive away!) who has been my life line

to return to life. He has walked me thru, listened, and if you have a

question on anything health related he has this drawer in his desk

that he pulls out the latest information and tells you all he knows.

The reasons for the migraines, I'm a insulin-resistant Type 2

Diabetic, that unless you do the several hour long blood sugar test

you won't find it.....

The frustrating thing after find out that was that my eye dr. had

written a letter to my GP dr. asking him to run that test but because

the regulary CBC " blood tests " had come back " normal " he didn't

see any reason to put me thru the several hour long blood draw.....

Once my Dr. in Colorado Springs helped get my diet under control

and with Glucophage to help with the insulin-resistance, the swelling

and pain in the legs and feet subsided, the daily migraines became

almost non-exsistant. Now its if a weather system is coming thru a

migraine warns me that I'm headed for a fibro-flare too, and I can

brace myself until the worse is over.

Two years ago he did finally pin-point the diagnoses for

Fibromyalgia and so we have been working together on that. The

main goal is to get my body to sleep at a deeper level so that the

signal in the brain will switch to let my body heal its self. The

problem with me and Fibro is that on my own I couldn't stay asleep

long enough or deep enough for my brain to do that. I'd wake up

every hour or two hours, not able to get enough rest. Sleep

deprivation is not a good thing.

I would encourage you all not to give up on finding a Dr. that will

work with you. If I could clone my dr. in Colorado Springs and get

him to move here I would, as it is I'd go Bangladesh if I had to see

him.

With this last Fibro Flare that I'm in, my lower arms and wrists are

swelling, and my hands feel like they are swollen, my joints feel like

they are on fire and pin prickly like when your hand has fallen

asleep. Gripping a steering wheel on the way to work is a challenge

and I keep dropping stuff. Walking down the stairs this morning

was interesting in that my knees didn't want to work, like someone

had put crunchy rocksalt in them.

Pain meds for the last two days hasn't helped. the only thing that

feels good is wrapping my wrists around my coffee mug for that

heat effect, since I can't bring my heating pad to work.

Anyway, my question for you all is: does any of this description of

pain feel like anything that any of you with RA are having?

Thanks for listening,

Kim in Wyoming (the sun is shining, we are supposed to get up to

the 40's today. pain should be going away but it isn't.)