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Barb,

I was referred to an infectious disease specialist when I cultured

pseudomonas (a bacteria) and aspergillus (a fungus). My pulmonologist

wanted a second opinion regarding treatment. I have osteopenia which is

the stage before osteoporosis.

Barb in Waukesha

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Hi Barb,

I know a number of bronch people who consult both pulmologist and infectious disease

doctor for advice on infection and antibiotics. However, I only see my pulmologist

and he handles everything.

We are prone to other illnesses, like arthritis, fibromyalgia, etc, with our suppressed

immune systems. I have arthralgia (joint pain) but it has not progressed any further.

I recently had a severe herpes zoster virus, with the flu and lung infection. I believe

shingles is similar to herpes, and breaks out when you are stressed, with illness or

whatever.

I was wondering if the doctors have ever linked the Crohns disease with your bronch?

I hope the surgeries were successful, and you are doing much better now.

Take care.

Bunny

----------------------------------------------

I know in past emails I have read that some peoplewith Bronc also see an "infectious disease doctor." Iwas wondering if it is because our immune systems arenot as they should be?I also wanted to know if anyone else with bronc haveother illnesses. I was also diagnosed with Crohn'sdisease about 24 years ago. I have had two bowelreconstruction surgeries. I get shingles on my back,always in the same spots. I usually get shingles whenI have been under stress. And I have mild scoliosis. I was wondering if anyone know if people with bronctend to have other illnesses.Barb in Houston

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Dear Barb,

My infections can be tricky to treat. Having an ID

specialist on my team has been extremely helpful. My

immune system is normal, but some persons with

bronchiectasis do have immune problems. The doctor

treating my infections, Dr. Haase has helped

others with CF. He has done research in the area of

cystic fibrosis lung infections. This research is also

helpful to those with similar lung conditions. Dr.

Haase is an awesome person. He has done more to help

me than most respirologists. I am not sure what my GP

and I would do without his expertise.

Hugs:0)

:o) " Miracles happen with love..... " ..... Please support your local children's

hospital.... and " Give with all your might! "

http://iwkfoundation.org/

:o)Visit.... Children's Miracle Network.... http://www.cmn.org/ :o)

Pre-Lung Transplant Journey

http://www2.caringbridge.org/canada/maryelizabeth/

" I don't give in, I don't give up, and I don't take no for an answer. "

~Doris ~

__________________________________________________________

Find your next car at http://autos.yahoo.ca

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