Walter and Connie Payton

[Guest guest]

and others,

I'm currently helping Walter and Connie Payton (W.P.'s wife) get through

the turmoil he is currently experiencing with PSC. As you are well aware he

is being barraged by media requests, people hounding him, giving him all

kinds of " advice " and has even been discussed within the ranks of our small

forum as well as the Autoimmune Liver Support Group. Walter and Connie are

seeking the kind of honest, open discussion and information only we as

PSC'ers can provide each other.

I have learned a great deal from you and appreciate your sincerity,

intelligence, compassion and support as they will. As you've probably

guessed by now the reason I'm writing this is to alert you to the fact that

Walter and Connie may be joining us and I felt you may appreciate knowing

in advance. Maybe I'm feeling a little protective at the same time. I

experienced a little of what Walter is going through in my part of the

country and can identify with him as an athlete and visible person in the

community that people want to know the details on. As a result I've been

rather reclusive when it comes to sharing information to others about my

PSC. I'll tell my story later so you'll better understand.

This group has helped me and I'll allow the media do a story on me when

I'm ready. They've been bugging me and having this disease in common with

Walter has made me feel a bit more comfortable discussing it with people.

Maybe it's a guy thing too, I don't know, but we need healthy livers from

donors and I feel obligated to get more active.

I also want to ask exactly how to tell Walter and Connie to get on

board. Do they simply send an e-mail to " egroups " and

request to be placed in the group and you will take care of the rest? I'm

not quite sure how to go about placing an outsider with PSC in our group.

As you can tell I'm not an e-mail whiz so any help will be appreciated.

Thank You,

Norm

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