Re: pulse oxymeter

[Guest guest]

john,

here are some sites that we looked up for some pulsox machines,,

our insurance covered 80%,,and some have said that their insurance

paid for all of one... we got a nice hand held one, i use it when i

am on my treadmill, and when i am at work and go up stairs to see how

my 02 levels are,,, check with your ins. all we needed was a

perscription from our dr. stating i needed one,, then it was no

problem, also the sites on line, you can buy from and you dont need

to be anyone special.. just a person :-) good luck.. there are

more sites then these,, just do a search with the subject pulseox

machines... there should be more.. Jon ipf 5-06

http://www.turnermedical.com/GE_Healthcare_pulse_oximeters.htm

(this is the one that our ins. paid for)

http://www.medical-monitors.com/digitCOMP.html

http://dhmedical.com/puox55fipuox.html

http://www.portablenebs.com/nonin9500.htm

http://www.semedicalsupply.com/pulse_oximeters.htm

[Guest guest]

Hi ,

I bought mine on the Internet. It is a

Nonin Onyx same ones they use in my doctors office. There are a bunch on Ebay

also.

in Englewood Florida.

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Tyner

Sent: Friday, October 27, 2006

7:01 PM

To: Breathe-Support

Subject: pulse

oxymeter

Does anyone know where I can buy a pulse oxymeter. I

have been told you

can not buy one unless you are are medical prof.

Thanks

[Guest guest]

,

You do not need to be a medical professional to buy a pulse oximeter. My doctor wanted me to have one so he wrote a prescription for me and my insurance paid for it. However I had done research and there are lots of places online where you can buy them. Here is one source but if you "Google" pulse oximeter you will find lots more. http://www.turnermedical.com/Finger_Oximeters.htm The BCI Digit 3420 is th fingertip model that my respiratory therpist recommended.

They provide an added measure of safety to those of us who can desat unexpectedly and quickly. Hope that helps! Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good.

pulse oxymeter

Does anyone know where I can buy a pulse oxymeter. I have been told you can not buy one unless you are are medical prof.Thanks

[Guest guest]

I'm at work and don't have my pulse ox with me. I bought the $189 off the computer...I checked the accuracy yesterday at doc office, and it was right on with their new one. Joy 3/6 Holloway wrote: Hi , I bought mine on the Internet. It is a Nonin Onyx same ones they use in my doctors office. There are a bunch on Ebay also. in Englewood Florida. From:

Breathe-Support [mailto:Breathe-Support ] On Behalf Of TynerSent: Friday, October 27, 2006 7:01 PMTo: Breathe-Support Subject: pulse oxymeter Does anyone know where I can buy a pulse oxymeter. I have been told you can not buy one unless you are are medical prof.Thanks Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

[Guest guest]

My dad bought one on ebay for $230. brand new free shipping. It is great!Let me know if you would like the brand etc.Cyndi (DAD PF 12/05) Tyner wrote: Does anyone know where I can buy a pulse oxymeter. I have been told you can not buy one unless you are are medical prof. Thanks

[Guest guest]

, I have two. The spo checkmate (orange). It is always three points higher than the Nonin 9500. I am not sure but I think the 9500 is accurate because with the spo checkmate I always felt the need for more O2. I stay in the middle 90's. I don't know how we can test them.. P. ?? I do think everyone should have one. God Bless.

Love and Prayers, Peggy 9/04 ipf

,

You do not need to be a medical professional to buy a pulse oximeter. My doctor wanted me to have one so he wrote a prescription for me and my insurance paid for it. However I had done research and there are lots of places online where you can buy them. Here is one source but if you " Google " pulse oximeter you will find lots more. http://www.turnermedical.com/Finger_Oximeters.htm The BCI Digit 3420 is th fingertip model that my respiratory therpist recommended.

They provide an added measure of safety to those of us who can desat unexpectedly and quickly. Hope that helps!

Beth (Fibrotic NSIP 06/06)

Draw close. Hold hands. Life is short. God is good.

pulse oxymeter

Does anyone know where I can buy a pulse oxymeter. I have been told you

can not buy one unless you are are medical prof.

Thanks

[Guest guest]

HEY, What is this JON ?? Teri are you trickin us?? I thought your puter was on the pufffff. gone capoot.. AND if this is JON, Where have you been all this time?? do we all need to change our names to something masculine to get you on the computer?? HUH.. busted.

Love and Prayers, Peggy 9/04 ipf

john,

here are some sites that we looked up for some pulsox machines,,

our insurance covered 80%,,and some have said that their insurance

paid for all of one... we got a nice hand held one, i use it when i

am on my treadmill, and when i am at work and go up stairs to see how

my 02 levels are,,, check with your ins. all we needed was a

perscription from our dr. stating i needed one,, then it was no

problem, also the sites on line, you can buy from and you dont need

to be anyone special.. just a person :-) good luck.. there are

more sites then these,, just do a search with the subject pulseox

machines... there should be more.. Jon ipf 5-06

http://www.turnermedical.com/GE_Healthcare_pulse_oximeters.htm

(this is the one that our ins. paid for)

http://www.medical-monitors.com/digitCOMP.html

http://dhmedical.com/puox55fipuox.html

http://www.portablenebs.com/nonin9500.htm

http://www.semedicalsupply.com/pulse_oximeters.htm

[Guest guest]

Ginger,

Doesn't that make you mad??? Why should he assume that you are so dumb that you don't understand how to use the oximeter correctly. Aaaargh! You are so much a hypochondriac that you wouldn't use it properly! Please!! I believe doctors neglect to prescribe things like this because it cuts into thier bonus from the insurance company. O.K. I am a little paranoid!

Hugs, Joyce PF 1997>> My new Pul. Dr. would not perscrbe an oxymeter for me. He said he has seen > way too many that allow that to completely take over the patients life. He > said on patient did not do anything without checking the oxymeter, and even > while doing the activity. He said the oxymeter became more important than life. > I know I can still get one online. He ccommented on someome who cheked their > stats while eating corn flakes. Not sure I would be that extreme...lol.> kiss kiss,> Ginger> 9/04 ipf>

[Guest guest]

Ginger,

I have missed you so!

i think your dr is insane. lol mine was all to happy to give me the

oximeter. i do not monitor constantly but i do monitor daily. they

gave me one before putting me on O2. they wanted me to monitor like

5 times a day and keep a record of what i was doing when i

monitored. whether i was at rest, sweeping, watering my plants

dressing, bathing etc.

i did that randomly for 3 weeks. after i turned in my findings is

when they decided i needed O2 for exertion. the sleep study

determined i needed it for sleeping.........which i do not always

do. i do it more when chuck is working nights, i am still not

extremely comfotable wearing the O2 around him, even if it doesn't

bother him one bit.

give me a call girly and cvatch me up on everything. i don't have a

new contact number for your new location. i miss our talks.

love ya bunches!

EG

> >

> > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

he has

> seen

> > way too many that allow that to completely take over the patients

> life. He

> > said on patient did not do anything without checking the

oxymeter, and

> even

> > while doing the activity. He said the oxymeter became more

important

> than life.

> > I know I can still get one online. He ccommented on someome who

cheked

> their

> > stats while eating corn flakes. Not sure I would be that

> extreme...lol.

> > kiss kiss,

> > Ginger

> > 9/04 ipf

> >

>

[Guest guest]

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said > he has> > seen> > > way too many that allow that to completely take over the patients> > life. He> > > said on patient did not do anything without checking the > oxymeter, and> > even> > > while doing the activity. He said the oxymeter became more > important> > than life.> > > I know I can still get one online. He ccommented on someome who > cheked> > their> > > stats while eating corn flakes. Not sure I would be that> > extreme...lol.> > > kiss kiss,> > > Ginger> > > 9/04 ipf> > >> >> > > > > > > ---------------------------------> Want to start your own business? Learn how on Yahoo! Small Business.>

[Guest guest]

It's when I hear stuff like this that I thank God for my wonderful pulmonologist! I've been so blessed and he was the one who just happened to be "on call" last Memorial Day when I was in the ER. Some would say it was "luck of the draw", I know Someone was looking out for me!

Anything I've ever asked for, he's gotten it for me....hmmmm maybe I should ask for a million dollars! LOL

Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said > he has> > seen> > > way too many that allow that to completely

take over the patients> > life. He> > > said on patient did not do anything without checking the > oxymeter, and> > even> > > while doing the activity. He said the oxymeter became more > important> > than life.> > > I know I can still get one online. He ccommented on someome who > cheked> > their> > > stats while eating corn flakes. Not sure I would be that> > extreme...lol.> > > kiss kiss,> > > Ginger> > > 9/04 ipf> > >> >> > > > > > > ------------ --------- --------- ---> Want to start your own business? Learn how on Yahoo! Small Business.>

[Guest guest]

,

So funny! "A fellow was telling me his troubles at the pool yesterday. I wanted to say Bite me! " I'll be the first to admit I have felt just this way!

Just stay there and please keep considering adopting me.

Do you take your hubby to the pulmonologist appointments. IF not take him next time. Take a list of questions with you. You can get ammo here for the list. Ask the hard questions. When my husband heard the doc say the same thing I had been trying to tell him, he got it! I didn't think he really understood even then. One day I said to him that I had seen a woman who was 86 and she was really enjoying life and that I wished I could be 86 someday. I turned around and he was crying. I think he and I try to protect one another by not getting real about the prognosis of this thing. That is probably what your husband is doing. If he doesn't act worried, then you will not worry. , just unload here. We all do it and I thank God for all of you who GET IT!

Hugs, Joyce PF 1997 > > > >> > > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said > > he has> > > seen> > > > way too many that allow that to completely take over the patients> > > life. He> > > > said on patient did not do anything without checking the > > oxymeter, and> > > even> > > > while doing the activity. He said the oxymeter became more > > important> > > than life.> > > > I know I can still get one online. He ccommented on someome who > > cheked> > > their> > > > stats while eating corn flakes. Not sure I would be that> > > extreme...lol.> > > > kiss kiss,> > > > Ginger> > > > 9/04 ipf> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Want to start your own business? Learn how on Yahoo! Small Business.> >>

[Guest guest]

Joyce, That just makes me sick. I also have Cigna. I'm in a POS. We need the docs to be motivated for us. Not them. LeanneJoyce wrote: Leanne, Just today we received our new Cigna HMO booklet...it says "Providers may also receive financial or non financial incenitive (hmm, wonder what

these are) that promote utilization of cost effective participating providers and covered drugs and supplies." Now, I may be a suspicious sort, but it sounds to me like "don't ask for unapproved testing or prescriptions even if the patient needs it. Don't send the patient to the best specialist. Don't ask for medical supplies (ie: pulse oximeters). Stick to the program if you want a nice fat bonus." I think I have been at this too long. Maybe I am looking for a fraud behind every rock. Aaaargh! Hugs, Joyce (the paranoid) PF 1997 RE: I wonder why some doctors have no problem writing scripts for it and some just refuse > > > >> > > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said> > he has> > > seen> > > > way too many that allow that to completely take over the patients> > > life. He> > > > said on patient did not do

anything without checking the> > oxymeter, and> > > even> > > > while doing the activity. He said the oxymeter became more> > important> > > than life.> > > > I know I can still get one online. He ccommented on someome who> > cheked> > > their> > > > stats while eating corn flakes. Not sure I would be that> > > extreme...lol.> > > > kiss kiss,> > > > Ginger> > > > 9/04 ipf> > > >> > >> >> >> >> >> >> >> > ---------------------------------> > Want to start your own business? Learn how on Yahoo! Small Business.> >> Leanne Storch-Diagnosed with IPF 1/03 Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 P F It takes your breath away

Everyone is raving about the all-new Yahoo! Mail.

[Guest guest]

Joyce,

Believe me, I'm thankful, grateful and every other word I can think of that means I don't take Dr. M for granted. He's very special and so is his office staff!! Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Beth,

I was thinking that today when I was thinking about docs and all of us. You seem to have gotten excellent care so far and had all your needs met. Be thankful.

Joyce > > > >> > > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said > > he has> > > seen> > > > way too many that allow that to completely take over the patients> > > life. He> > > > said on patient did not do anything without checking the > > oxymeter, and> > > even> > > > while doing the activity. He said the oxymeter became more > > important> > > than life.> > > > I know I can still get one online. He ccommented on

someome who > > cheked> > > their> > > > stats while eating corn flakes. Not sure I would be that> > > extreme...lol.> > > > kiss kiss,> > > > Ginger> > > > 9/04 ipf> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Want to start your own business? Learn how on Yahoo! Small Business.> >>

[Guest guest]

Hi , We are having the best weather in the country right now. I am usually 5 to 10 degrees cooler up here.

Let me know if you ever head north on 75, I'll meet you somewhere. I'm in Silver Springs

and would love to meet you.

Love and Prayers, Peggy 9/04 ipf

Hi,

I am sucking up all this information like a sponge.

Have learned more in 2 weeks than 7 months from the Drs. .I have a feeling they didn¹t want to tell me I wasn¹t going to get better. The reality is sinking in .Am wearing the O2 inside now all the time and took my portable to the store this morning.

I love your sense of humor. A fellow was telling me his troubles at the pool yesterday. I wanted to say Bite me! I look incredibly healthy. Does everyone else?

Anyway thank you. I hope if I post every day I will get to know every one. I thank god every day we have this place in Fl. I have a feeling I won¹t leave in the spring. No stairs and the pool makes me feel like a kid again. My husband is not supportive. He has no idea what to do as I have always been the strong independent one. He makes jokes and fusses a bit but I need someone to talk to.

Englewood Florida beautiful weather. Low 80s.

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Beth

Sent: Monday, October 30, 2006 12:44 PM

To: Breathe-Support

Subject: Re: Re: pulse oxymeter

It's when I hear stuff like this that I thank God for my wonderful pulmonologist! I've been so blessed and he was the one who just happened to be " on call " last Memorial Day when I was in the ER. Some would say it was " luck of the draw " , I know Someone was looking out for me!

Anything I've ever asked for, he's gotten it for me....hmmmm maybe I should ask for a million dollars! LOL

Beth (Fibrotic NSIP 06/06)

Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >

> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

> he has

> > seen

> > > way too many that allow that to completely take over the patients

> > life. He

> > > said on patient did not do anything without checking the

> oxymeter, and

> > even

> > > while doing the activity. He said the oxymeter became more

> important

> > than life.

> > > I know I can still get one online. He ccommented on someome who

> cheked

> > their

> > > stats while eating corn flakes. Not sure I would be that

> > extreme...lol.

> > > kiss kiss,

> > > Ginger

> > > 9/04 ipf

> > >

> >

>

>

>

>

>

>

> ------------ --------- --------- ---

> Want to start your own business? Learn how on Yahoo! Small Business.

>

[Guest guest]

Well, it all depends on the attitude. If it's bad or sarcastic " I have a non smoking, fatal lung disease. why? " That tends to shut them up. I have had someone say " Bet you are wishing you never smoked. " That's the one that gets my IRE up..Most people are just curious. So I explain ipf a little.

I am a buckeye too. lol

Love and Prayers, Peggy 9/04 ipf

Hi Beth,

Glad someone else looks the picture of health LOL! I can relate to running out of steam. I pick my ³battles every day and then say Enough!

I am thrilled to have this place. I didn¹t expect to enjoy it for another few years but what the heck.

Thanks to the group I am getting a handle on this disease. What do you tell people? I just can¹t spit out the word PF yet without getting teary.

My friends call from Ohio and ask if I am better being in the sunshine..

  Florida (P.F. 04/06)

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Beth

Sent: Monday, October 30, 2006 2:45 PM

To: Breathe-Support

Subject: Re: Re: pulse oxymeter

,

I too look quite healthy. If it wasn't for the O2 tubing hanging on my face no one would know there is anything wrong with me. I'm happy to look healthy though it does cause people to question me. People can be amazingly bold.... " Why can't you work? " Ummmm none of your business or I like your reply, Bite me! No one knows the incredible mind numbing aching fatigue when I do just about anything. Sometimes, I still have a tendency to do too much and revert to my old " normal " self. Reality smacks me pretty quickly, I'm only 47 but I run out of steam very quickly these days and need rest and naps in between tasks.

This group and pulmonary rehab are the places I learned most about living with this type of lung disease. This group has been amazing support and understanding. I can't overstate the value of people who " get it " . It's such a huge comfort to not be the only one feeling the things I'm feeling and thinking the things I'm thinking.

If I were in Florida you'd have to dynamite to get me out of there. I'm just concentrating on making it through one more NY winter and I'm headed south myself!

I'm glad you're here, though sorry you need to be. We're all in this together!

Beth (Fibrotic NSIP 06/06)

Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >

> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

> he has

> > seen

> > > way too many that allow that to completely take over the patients

> > life. He

> > > said on patient did not do anything without checking the

> oxymeter, and

> > even

> > > while doing the activity. He said the oxymeter became more

> important

> > than life.

> > > I know I can still get one online. He ccommented on someome who

> cheked

> > their

> > > stats while eating corn flakes. Not sure I would be that

> > extreme...lol.

> > > kiss kiss,

> > > Ginger

> > > 9/04 ipf

> > >

> >

>

>

>

>

>

>

> ------------ --------- --------- ---

> Want to start your own business? Learn how on Yahoo! Small Business.

>

[Guest guest]

Oh Honey about the teary part. I understand and am sending you HUGS.

Love and Prayers, Peggy 9/04 ipf

Hi Beth,

Glad someone else looks the picture of health LOL! I can relate to running out of steam. I pick my ³battles every day and then say Enough!

I am thrilled to have this place. I didn¹t expect to enjoy it for another few years but what the heck.

Thanks to the group I am getting a handle on this disease. What do you tell people? I just can¹t spit out the word PF yet without getting teary.

My friends call from Ohio and ask if I am better being in the sunshine..

  Florida (P.F. 04/06)

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Beth

Sent: Monday, October 30, 2006 2:45 PM

To: Breathe-Support

Subject: Re: Re: pulse oxymeter

,

I too look quite healthy. If it wasn't for the O2 tubing hanging on my face no one would know there is anything wrong with me. I'm happy to look healthy though it does cause people to question me. People can be amazingly bold.... " Why can't you work? " Ummmm none of your business or I like your reply, Bite me! No one knows the incredible mind numbing aching fatigue when I do just about anything. Sometimes, I still have a tendency to do too much and revert to my old " normal " self. Reality smacks me pretty quickly, I'm only 47 but I run out of steam very quickly these days and need rest and naps in between tasks.

This group and pulmonary rehab are the places I learned most about living with this type of lung disease. This group has been amazing support and understanding. I can't overstate the value of people who " get it " . It's such a huge comfort to not be the only one feeling the things I'm feeling and thinking the things I'm thinking.

If I were in Florida you'd have to dynamite to get me out of there. I'm just concentrating on making it through one more NY winter and I'm headed south myself!

I'm glad you're here, though sorry you need to be. We're all in this together!

Beth (Fibrotic NSIP 06/06)

Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >

> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

> he has

> > seen

> > > way too many that allow that to completely take over the patients

> > life. He

> > > said on patient did not do anything without checking the

> oxymeter, and

> > even

> > > while doing the activity. He said the oxymeter became more

> important

> > than life.

> > > I know I can still get one online. He ccommented on someome who

> cheked

> > their

> > > stats while eating corn flakes. Not sure I would be that

> > extreme...lol.

> > > kiss kiss,

> > > Ginger

> > > 9/04 ipf

> > >

> >

>

>

>

>

>

>

> ------------ --------- --------- ---

> Want to start your own business? Learn how on Yahoo! Small Business.

>

[Guest guest]

,

Enjoy your place in the sun. We, of all people, have gotten the wake up call about how short life is. The time for waiting to enjoy the gifts of this world is over. The only time is right now because none of us know what tomorrow brings.

As far as what I tell people... in general, the truth. Most people are just curious and mean no harm. Seeing someone my age out and about with oxygen is fairly unusual so it does provoke questions. I don't mind at all. Children generally stare but that's normal and doesn't bother me. It's the times when people say things to each other that they don't think I can hear. For instance a little girl asked her mom "Why does that lady have that thing in her nose?" Perfectly reasonable question that I would have been happy to answer. The woman looked over at me and then at her daughter and said, "That's what happens to you if you smoke." I reacted. I turned to her, smiled and said, 'Just so that you know, I never smoked at all.' She blushed, mumbled and made a hasty exit. Ummm, just because I have oxygen, doesn't mean I'm deaf.

But people like that who make snap judgements are unusual. Most people are kind and compassionate.

Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said >

he has> > seen> > > way too many that allow that to completely take over the patients> > life. He> > > said on patient did not do anything without checking the > oxymeter, and> > even> > > while doing the activity. He said the oxymeter became more > important> > than life.> > > I know I can still get one online. He ccommented on someome who > cheked> > their> > > stats while eating corn flakes. Not sure I would be that> > extreme...lol.> > > kiss kiss,> > > Ginger> > > 9/04 ipf> > >> >> > > > > > > ------------ --------- --------- ---> Want to start your own business? Learn how on Yahoo! Small Business.>

[Guest guest]

,

I'm glad you're doing what you need to do to make yourself more comfortable and able to cope. These interstitial lung diseases are tough and take alot out of us. I find the assault on my independence very difficult to take. I remain determined to do as much as I can myself for as long as I can.

I too had a hard time with being in public with the oxygen the first few times. Now after several months it doesn't bother me anymore. Many people don't give me a second glance and those that do are generally kind and compassionate. And of course the folks who are in my normal round of places that I go, grocery store, drug store, church, park, etc etc know me and the situation and have become familiar and even protective of me. I would encourage you to just grit your teeth and get out when you feel up to it. It does get easier and doing what you still can on your own will make you feel more like yourself and lift your spirits! At least that's the way it works for me! Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said >

he has> > seen> > > way too many that allow that to completely take over the patients> > life. He> > > said on patient did not do anything without checking the > oxymeter, and> > even> > > while doing the activity. He said the oxymeter became more > important> > than life.> > > I know I can still get one online. He ccommented on someome who > cheked> > their> > > stats while eating corn flakes. Not sure I would be that> > extreme...lol.> > > kiss kiss,> > > Ginger> > > 9/04 ipf> > >> >> > > > > > > ------------ --------- --------- ---> Want to start your own business? Learn how on Yahoo! Small Business.>

[Guest guest]

Hi Peggy and the group,

This teary thing has to stop. Whined and

sniveled all morning while calling Drs.

Tried this morning to make a Drs appt. The

first two said no new patients without a referral.. The third didn’t take

our insurance and also need a referral.

I got smart the fourth time. There is a

team of pulmos in Venice

about 12 miles from us. I lied and said my pulmo in Toledo Ohio

had referred me. That got me in. Florida

is not good with insurance I m finding out. They make you pay up front then you

have to file yourself. Oh well at least I got an appointment. These are the

only pulmonologists in the area so perhaps it is better I hooked up with them.

Peggy I hope the good lord will forgive me

for lying. I keep looking in the mirror to see if my nose has grown. LOL!

Englewood Florida.

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Peggy

Sent: Monday, October 30, 2006

10:57 PM

To: Breathe-Support

Subject: Re: Re:

pulse oxymeter

Oh Honey about the teary part. I understand and am

sending you HUGS.

Love and Prayers, Peggy 9/04 ipf

Hi Beth,

Glad

someone else looks the picture of health LOL! I can relate to running out of

steam. I pick my ³battles every day and then say Enough!

I am thrilled to have this place. I didn¹t expect to enjoy it for another few

years but what the heck.

Thanks to the group I am getting a handle on this disease. What do you tell

people? I just can¹t spit out the word PF yet without getting teary.

My friends call from Ohio

and ask if I am better being in the sunshine..

Florida (P.F. 04/06)

From: Breathe-Support

[mailto:Breathe-Support ]

On Behalf Of Beth

Sent: Monday, October 30, 2006

2:45 PM

To: Breathe-Support

Subject: Re: Re:

pulse oxymeter

,

I too look quite healthy. If it wasn't for the O2 tubing hanging on my

face no one would know there is anything wrong with me. I'm happy to look

healthy though it does cause people to question me. People can be

amazingly bold.... " Why can't you work? " Ummmm none of

your business or I like your reply, Bite me! No one knows the incredible

mind numbing aching fatigue when I do just about anything. Sometimes, I

still have a tendency to do too much and revert to my old " normal "

self. Reality smacks me pretty quickly, I'm only 47 but I run out of

steam very quickly these days and need rest and naps in between tasks.

This group and pulmonary rehab are the places I learned most about living with

this type of lung disease. This group has been amazing support and

understanding. I can't overstate the value of people who " get

it " . It's such a huge comfort to not be the only one feeling the

things I'm feeling and thinking the things I'm thinking.

If I were in Florida

you'd have to dynamite to get me out of there. I'm just concentrating on

making it through one more NY winter and I'm headed south myself!

I'm glad you're here, though sorry you need to be. We're all in this together!

Beth (Fibrotic NSIP 06/06)

Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE:

I wonder why some doctors have no problem writing scripts

for it and some just refuse

I

believe it is because most insurance plans, especially HMOs, offer physician

bonuses for keeping costs down by ordering less testing and writing less

prescriptions. It even states that in the book that I have explaining our

health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs,

Joyce PF 1997

> > >

> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

> he has

> > seen

> > > way too many that allow that to completely take over the

patients

> > life. He

> > > said on patient did not do anything without checking the

> oxymeter, and

> > even

> > > while doing the activity. He said the oxymeter became more

> important

> > than life.

> > > I know I can still get one online. He ccommented on someome who

> cheked

> > their

> > > stats while eating corn flakes. Not sure I would be that

> > extreme...lol.

> > > kiss kiss,

> > > Ginger

> > > 9/04 ipf

> > >

> >

>

>

>

>

>

>

> ------------ --------- --------- ---

> Want to start your own business? Learn how on Yahoo! Small Business.

>

[Guest guest]

Beth,

You have a wise way about you. and I

need to listen. I think losing my independence is what has been so depressing

and being so blasted tired all the time doesn’t help either. At least few people

know me here. Didn’t realize how vain I was until I had to use oxygen. Thought I

was above all that. Wrong!!!!!

Our character defects do glare when we can’t

breathe don’t they? I keep trying to let go and let God but a few whys keeping

popping in there. LOL!

Englewood Florida

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Beth

Sent: Tuesday, October 31, 2006

10:57 AM

To: Breathe-Support

Subject: Re: Re:

pulse oxymeter

,

I'm glad you're doing what you need to do to make yourself

more comfortable and able to cope. These interstitial lung diseases are

tough and take alot out of us. I find the assault on my

independence very difficult to take. I remain determined to do as much as

I can myself for as long as I can.

I too had a hard time with being in

public with the oxygen the first few times. Now after several

months it doesn't bother me anymore. Many people don't give me a

second glance and those that do are generally kind and compassionate. And

of course the folks who are in my normal round of places that I go, grocery

store, drug store, church, park, etc etc know me and the

situation and have become familiar and even protective of me. I

would encourage you to just grit your teeth and get out when you feel up

to it. It does get easier and doing what you still can on your own will

make you feel more like yourself and lift your spirits! At least

that's the way it works for me!

Beth (Fibrotic NSIP

06/06)

Draw close. Hold hands. Life is short.

God is good.

Re: pulse oxymeter

Leanne,

RE: I

wonder why some doctors have no problem writing scripts for it and some just

refuse

I believe it is because most insurance

plans, especially HMOs, offer physician bonuses for keeping costs down by

ordering less testing and writing less prescriptions. It even states that

in the book that I have explaining our health benifits. Now, who do you think

is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >

> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

> he has

> > seen

> > > way too many that allow that to completely take over the

patients

> > life. He

> > > said on patient did not do anything without checking the

> oxymeter, and

> > even

> > > while doing the activity. He said the oxymeter became more

> important

> > than life.

> > > I know I can still get one online. He ccommented on someome who

> cheked

> > their

> > > stats while eating corn flakes. Not sure I would be that

> > extreme...lol.

> > > kiss kiss,

> > > Ginger

> > > 9/04 ipf

> > >

> >

>

>

>

>

>

>

> ------------ --------- --------- ---

> Want to start your own business? Learn how on Yahoo! Small Business.

>

[Guest guest]

Ha HA HA, I think at times ya just gotta do what ya gotta do.. I would like to smack some of them.. hee hee

I have never had a problem with the Dr.s office filing for me. I just pay my co-pay and they do the rest. I think I would talk to them a little more, some of the tests are pricey..

Love and Prayers, Peggy 9/04 ipf

Hi Peggy and the group,

This teary thing has to stop. Whined and sniveled all morning while calling Drs.

Tried this morning to make a Drs appt. The first two said no new patients without a referral.. The third didn¹t take our insurance and also need a referral.

I got smart the fourth time. There is a team of pulmos in Venice about 12 miles from us. I lied and said my pulmo in Toledo Ohio had referred me. That got me in. Florida is not good with insurance I m finding out. They make you pay up front then you have to file yourself. Oh well at least I got an appointment. These are the only pulmonologists in the area so perhaps it is better I hooked up with them.

Peggy I hope the good lord will forgive me for lying. I keep looking in the mirror to see if my nose has grown. LOL!

Englewood Florida.

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Peggy

Sent: Monday, October 30, 2006 10:57 PM

To: Breathe-Support

Subject: Re: Re: pulse oxymeter

Oh Honey about the teary part. I understand and am sending you HUGS.

Love and Prayers, Peggy 9/04 ipf

Hi Beth,

Glad someone else looks the picture of health LOL! I can relate to running out of steam. I pick my ³battles every day and then say Enough!

I am thrilled to have this place. I didn¹t expect to enjoy it for another few years but what the heck.

Thanks to the group I am getting a handle on this disease. What do you tell people? I just can¹t spit out the word PF yet without getting teary.

My friends call from Ohio and ask if I am better being in the sunshine..

Florida (P.F. 04/06)

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Beth

Sent: Monday, October 30, 2006 2:45 PM

To: Breathe-Support

Subject: Re: Re: pulse oxymeter

,

I too look quite healthy. If it wasn't for the O2 tubing hanging on my face no one would know there is anything wrong with me. I'm happy to look healthy though it does cause people to question me. People can be amazingly bold.... " Why can't you work? " Ummmm none of your business or I like your reply, Bite me! No one knows the incredible mind numbing aching fatigue when I do just about anything. Sometimes, I still have a tendency to do too much and revert to my old " normal " self. Reality smacks me pretty quickly, I'm only 47 but I run out of steam very quickly these days and need rest and naps in between tasks.

This group and pulmonary rehab are the places I learned most about living with this type of lung disease. This group has been amazing support and understanding. I can't overstate the value of people who " get it " . It's such a huge comfort to not be the only one feeling the things I'm feeling and thinking the things I'm thinking.

If I were in Florida you'd have to dynamite to get me out of there. I'm just concentrating on making it through one more NY winter and I'm headed south myself!

I'm glad you're here, though sorry you need to be. We're all in this together!

Beth (Fibrotic NSIP 06/06)

Draw close. Hold hands. Life is short. God is good.

Re: pulse oxymeter

Leanne,

RE: I wonder why some doctors have no problem writing scripts for it and some just refuse

I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh!

Hugs, Joyce PF 1997

> > >

> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said

> he has

> > seen

> > > way too many that allow that to completely take over the patients

> > life. He

> > > said on patient did not do anything without checking the

> oxymeter, and

> > even

> > > while doing the activity. He said the oxymeter became more

> important

> > than life.

> > > I know I can still get one online. He ccommented on someome who

> cheked

> > their

> > > stats while eating corn flakes. Not sure I would be that

> > extreme...lol.

> > > kiss kiss,

> > > Ginger

> > > 9/04 ipf

> > >

> >

>

>

>

>

>

>

> ------------ --------- --------- ---

> Want to start your own business? Learn how on Yahoo! Small Business.

>

[Guest guest]

Beth,

Once, when I had first started going out with oxygen and was still pretty sick, I was using the big E tank....a little boy about 4 was sitting behind me at church. Just as everything got real quiet, he asked his mama..."Mama, why did that lady bring her vacum cleaner to church"? Everyone around me broke out laughing!

When kids ask, I usually get down on thier level and ask them if they want to know about my air tubing. I explain that I am not able to breathe as well as they can and this is a machine that helps me. I let them listen to the puffing. They are so curious and like to have things explained. Because my voice is so bad, one little boy pointed to my mouth and said, "but, what is wrong in there?" HA! HA!

It is the adults who are ignorant and over the years I have heard all the insulting and ignorant things you can imagine. Incredible stupidity in this world! Idiots, ...they are everywhere!

Hugs, Joyce PF 1997

> > > >> > > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said > > he has> > > seen> > > > way too many that allow that to completely take over the patients> > > life. He> > > > said on patient did not do anything without checking the > > oxymeter, and> > > even> > > > while doing the activity. He said the oxymeter became more > > important> > > than life.> > > > I know I can still get one online. He ccommented on someome who > > cheked> > > their> > > > stats while eating corn flakes. Not sure I would be that> > > extreme...lol.> > > > kiss kiss,> > > > Ginger> > > > 9/04 ipf> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Want to start your own business? Learn how on Yahoo! Small Business.> >>

[Guest guest]

...in my lil'ole'opinion, your nose is just fine! You haven't harmed anyone, you haven't cheated and you will pay for your care. Girl, will you pay! LOL.

"Courage to change the things we can"....sometimes our health care has to be a priority or look at the options.

So much from me. Sher ipf 5-06

Re: pulse oxymeter Leanne, RE: I wonder why some doctors have no problem writing scripts for it and some just refuse I believe it is because most insurance plans, especially HMOs, offer physician bonuses for keeping costs down by ordering less testing and writing less prescriptions. It even states that in the book that I have explaining our health benifits. Now, who do you think is the loser in that deal???? Duh! Hugs, Joyce PF 1997 > > >> > > My new Pul. Dr. would not perscrbe an oxymeter for me. He said > he has> > seen> > > way too many that allow that to completely take over the patients> > life. He> > > said on patient did not do anything without checking the > oxymeter, and> > even> > > while doing the activity. He said the oxymeter became more > important> > than life.> > > I know I can still get one online. He ccommented on someome who > cheked> > their> > > stats while eating corn flakes. Not sure I would be that> > extreme...lol.> > > kiss kiss,> > > Ginger> > > 9/04 ipf> > >> >> > > > > > > ------------ --------- --------- ---> Want to start your own business? Learn how on Yahoo! Small Business.>

[Guest guest]

The woman looked over at me and then at her daughter and said, "That's what happens to you if you smoke." I reacted. I turned to her, smiled and said, 'Just so that you know, I never smoked at all.' She blushed, mumbled and made a hasty exit. Ummm, just because I have oxygen, doesn't mean I'm deaf.

But people like that who make snap judgements are unusual. Most people are kind and compassionate.

You Go Girl!!!!!!!

kiss kiss,

Ginger

ipf 9/04