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Anne Honey, I am so very sorry. My heart breaks for you. You have been in the grieving process for a while now. My daughter is the same. As another ipfer I have an advance directive and do not want all the life prolonging things. I know it will be hard enough on my family, So I do pray for you and your family, God Bless and give you strength through this rough time. Keep us posted and know we are here for you.

Love and Prayers, Peggy 9/04 ipf

Hi everyone,

I've just had a really rough day. I took my Dad into emerg

yesterday because of increasing SOB--they reassessed his home 02

level and increased it from 1.5LPM to 3.5LPM and sent him home.

Well, this morning, he went back, this time in an ambulance. His

sats were in the 50's. My brother, mom and I spent most of the day

in emerg with him and spoke with doctor after doctor. I thought

that the increased SOB might be due to the fact that he has been

weaning off of the prednisone for the past 2 weeks. the ER doc

asked us if we had discussed DNR and life support issues with my

Dad...we hadn't. So we discussed --it was such a hard thing to do.

I'm a bit angry too, that his respirologist never discussed this

type of thing with us. I don't think any of us knew how far the

fibrosis had progressed. They think that my Dad has had a heart

attack recently (from the cardiac enzyme levels) although we can't

pinpoint when. He's been admitted to the repiratory department and

they expect him to be there at least three days although there is a

chance that he may not be coming home at all. When we left him, he

was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid

that this may be the end for him and just wanted to ask you all to

please say a prayer for us,

anne (dad ipf 03/06)

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thank you joyce,

the support and understanding from all of you is so much appreciated.

Last night i prayed that if this is my dad's time, that he will go quickly without too much suffering.

the icu doctor reassured us and Dad that he needn't be afraid of the end, that they have medications to make him comfortable. it's just that none of us thought it would happen so fast. it may not, as you've said before, only god knows when.

i continue to pray for all of you too.

anne (dad ipf 03/06)

Re: My Dad

Anne,

Honey, we will of course pray for your dad. Don't give up hope. I can and cannot believe they sent him home yesturday. Grrrr!

Try to get some rest. You are an absolute angel for taking such good care of your folks. You will forever be glad of everything you have done. Continue to pray and trust in the Creator. He is as close as the air you breathe.

Hugs and prayers,

Joyce PF 1997>> Hi everyone,> I've just had a really rough day. I took my Dad into emerg > yesterday because of increasing SOB--they reassessed his home 02 > level and increased it from 1.5LPM to 3.5LPM and sent him home. > Well, this morning, he went back, this time in an ambulance. His > sats were in the 50's. My brother, mom and I spent most of the day > in emerg with him and spoke with doctor after doctor. I thought > that the increased SOB might be due to the fact that he has been > weaning off of the prednisone for the past 2 weeks. the ER doc > asked us if we had discussed DNR and life support issues with my > Dad...we hadn't. So we discussed --it was such a hard thing to do. > > I'm a bit angry too, that his respirologist never discussed this > type of thing with us. I don't think any of us knew how far the > fibrosis had progressed. They think that my Dad has had a heart > attack recently (from the cardiac enzyme levels) although we can't > pinpoint when. He's been admitted to the repiratory department and > they expect him to be there at least three days although there is a > chance that he may not be coming home at all. When we left him, he > was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid > that this may be the end for him and just wanted to ask you all to > please say a prayer for us,> anne (dad ipf 03/06)>

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I will keep you and your family in my prayers. Mark ipf/2004

Mark L.Odegard

>

>Reply-To: Breathe-Support

>To: <Breathe-Support >

>Subject: Re: Re: My Dad

>Date: Tue, 31 Oct 2006 20:41:28 -0500

>

>Hello Joanie,

>Thank you for your post and for your support and for sharing. I wish you

>and Bud all the best,

>anne (dad ipf 03/06)

> Re: My Dad

>

>

> Dear Anne, I will hold you, your Dad and family in love and light.

> How difficult for each of you. My husband Bud and I have just

> completed a Living Trust (lots and lots of decisions), Advanced

> Medical Directives and Power of Attorney formalities. His IPF was

> certainly the motivator to get these things completed. After all

> the signing and assigning, it was actually a relief. Hopefully you

> have some weight lifted with each hard task behind you.

> Joanie

>

>

> >

> > Hi everyone,

> > I've just had a really rough day. I took my Dad into emerg

> > yesterday because of increasing SOB--they reassessed his home 02

> > level and increased it from 1.5LPM to 3.5LPM and sent him home.

> > Well, this morning, he went back, this time in an ambulance. His

> > sats were in the 50's. My brother, mom and I spent most of the

> day

> > in emerg with him and spoke with doctor after doctor. I thought

> > that the increased SOB might be due to the fact that he has been

> > weaning off of the prednisone for the past 2 weeks. the ER doc

> > asked us if we had discussed DNR and life support issues with my

> > Dad...we hadn't. So we discussed --it was such a hard thing to

> do.

> >

> > I'm a bit angry too, that his respirologist never discussed this

> > type of thing with us. I don't think any of us knew how far the

> > fibrosis had progressed. They think that my Dad has had a heart

> > attack recently (from the cardiac enzyme levels) although we can't

> > pinpoint when. He's been admitted to the repiratory department

> and

> > they expect him to be there at least three days although there is

> a

> > chance that he may not be coming home at all. When we left him,

> he

> > was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid

> > that this may be the end for him and just wanted to ask you all to

> > please say a prayer for us,

> > anne (dad ipf 03/06)

> >

>

>

>

>

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---Anne, My prayers are with you and your and the rest of your

family. I am so sorry that you are having to go through this now or

anytime. Just keep trusting in God and He will take care of every

thing. He knew the before we were conceived when He would take us

home to be with Him and how He would take us home and no one but God

can make that decision. The doctors can give us their educated guess

but they can't tell us the day, hour or min that it will take place

only our Heavenly Father knows for sure. Hold on to His hand and

don't let go and no matter the out come of the situation remember

that God and only God is in control.

Hugs and prayers!

Barbara R. IPF 1/2003

In Breathe-Support , " anne " wrote:

>

> Hi everyone,

> I've just had a really rough day. I took my Dad into emerg

> yesterday because of increasing SOB--they reassessed his home 02

> level and increased it from 1.5LPM to 3.5LPM and sent him home.

> Well, this morning, he went back, this time in an ambulance. His

> sats were in the 50's. My brother, mom and I spent most of the day

> in emerg with him and spoke with doctor after doctor. I thought

> that the increased SOB might be due to the fact that he has been

> weaning off of the prednisone for the past 2 weeks. the ER doc

> asked us if we had discussed DNR and life support issues with my

> Dad...we hadn't. So we discussed --it was such a hard thing to do.

>

> I'm a bit angry too, that his respirologist never discussed this

> type of thing with us. I don't think any of us knew how far the

> fibrosis had progressed. They think that my Dad has had a heart

> attack recently (from the cardiac enzyme levels) although we can't

> pinpoint when. He's been admitted to the repiratory department and

> they expect him to be there at least three days although there is a

> chance that he may not be coming home at all. When we left him, he

> was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid

> that this may be the end for him and just wanted to ask you all to

> please say a prayer for us,

> anne (dad ipf 03/06)

>

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Anne, You, your dad and your family are in my prayers. I wish I was in Canada to help you! Please keep us posted.Sorry you have to go through this.Cyndi (DAD PF 12.05)anne wrote: Hi everyone, I've just had a really rough day. I took my Dad into emerg yesterday because of increasing SOB--they reassessed his home 02 level and increased it from 1.5LPM to 3.5LPM and sent him home. Well, this morning, he went back, this time in an ambulance. His sats were in the 50's. My

brother, mom and I spent most of the day in emerg with him and spoke with doctor after doctor. I thought that the increased SOB might be due to the fact that he has been weaning off of the prednisone for the past 2 weeks. the ER doc asked us if we had discussed DNR and life support issues with my Dad...we hadn't. So we discussed --it was such a hard thing to do. I'm a bit angry too, that his respirologist never discussed this type of thing with us. I don't think any of us knew how far the fibrosis had progressed. They think that my Dad has had a heart attack recently (from the cardiac enzyme levels) although we can't pinpoint when. He's been admitted to the repiratory department and they expect him to be there at least three days although there is a chance that he may not be coming home at all. When we left him, he was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid that this

may be the end for him and just wanted to ask you all to please say a prayer for us, anne (dad ipf 03/06)

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Ann you & your Dad are in my prayers

>Z T.

> Ann...you and your dad are in my prayers! Sher

> My Dad

>

>

> Hi everyone,

> I've just had a really rough day. I took my Dad into emerg

> yesterday because of increasing SOB--they reassessed his home 02

> level and increased it from 1.5LPM to 3.5LPM and sent him home.

> Well, this morning, he went back, this time in an ambulance. His

> sats were in the 50's. My brother, mom and I spent most of the

day

> in emerg with him and spoke with doctor after doctor. I thought

> that the increased SOB might be due to the fact that he has been

> weaning off of the prednisone for the past 2 weeks. the ER doc

> asked us if we had discussed DNR and life support issues with my

> Dad...we hadn't. So we discussed --it was such a hard thing to

do.

>

> I'm a bit angry too, that his respirologist never discussed this

> type of thing with us. I don't think any of us knew how far the

> fibrosis had progressed. They think that my Dad has had a heart

> attack recently (from the cardiac enzyme levels) although we

can't

> pinpoint when. He's been admitted to the repiratory department

and

> they expect him to be there at least three days although there is

a

> chance that he may not be coming home at all. When we left him,

he

> was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid

> that this may be the end for him and just wanted to ask you all

to

> please say a prayer for us,

> anne (dad ipf 03/06)

>

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Anne,

I wish there was something more I could do to make this easier for you.

Your Dad (and your Mom and you too!) are in my prayers.

I can only imagine how frustrated you are with the doctors, feeling like

you haven't been given all the information you need to help your folks

through this. Please know that we are with you in thought and prayer.

Beth

>

> Hi everyone,

> I've just had a really rough day. I took my Dad into emerg

> yesterday because of increasing SOB--they reassessed his home 02

> level and increased it from 1.5LPM to 3.5LPM and sent him home.

> Well, this morning, he went back, this time in an ambulance. His

> sats were in the 50's. My brother, mom and I spent most of the day

> in emerg with him and spoke with doctor after doctor. I thought

> that the increased SOB might be due to the fact that he has been

> weaning off of the prednisone for the past 2 weeks. the ER doc

> asked us if we had discussed DNR and life support issues with my

> Dad...we hadn't. So we discussed --it was such a hard thing to do.

>

> I'm a bit angry too, that his respirologist never discussed this

> type of thing with us. I don't think any of us knew how far the

> fibrosis had progressed. They think that my Dad has had a heart

> attack recently (from the cardiac enzyme levels) although we can't

> pinpoint when. He's been admitted to the repiratory department and

> they expect him to be there at least three days although there is a

> chance that he may not be coming home at all. When we left him, he

> was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid

> that this may be the end for him and just wanted to ask you all to

> please say a prayer for us,

> anne (dad ipf 03/06)

>

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Thank you Cyndi,

I appreciate your kind words and good wishes.

anne (dad ipf 03/06)

Re: My Dad

Anne, You, your dad and your family are in my prayers. I wish I was in Canada to help you! Please keep us posted.Sorry you have to go through this.Cyndi (DAD PF 12.05)anne <annewolfrogers> wrote:

Hi everyone,I've just had a really rough day. I took my Dad into emerg yesterday because of increasing SOB--they reassessed his home 02 level and increased it from 1.5LPM to 3.5LPM and sent him home. Well, this morning, he went back, this time in an ambulance. His sats were in the 50's. My brother, mom and I spent most of the day in emerg with him and spoke with doctor after doctor. I thought that the increased SOB might be due to the fact that he has been weaning off of the prednisone for the past 2 weeks. the ER doc asked us if we had discussed DNR and life support issues with my Dad...we hadn't. So we discussed --it was such a hard thing to do. I'm a bit angry too, that his respirologist never discussed this type of thing with us. I don't think any of us knew how far the fibrosis had progressed. They think that my Dad has had a heart attack recently (from the cardiac enzyme levels) although we can't pinpoint when. He's been admitted to the repiratory department and they expect him to be there at least three days although there is a chance that he may not be coming home at all. When we left him, he was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid that this may be the end for him and just wanted to ask you all to please say a prayer for us,anne (dad ipf 03/06)

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Dear Anne,

I will be praying for you, your family and

your dad.

P.F. 04/2006

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of anne wolf

Sent: Tuesday, October 31, 2006

8:54 PM

To: Breathe-Support

Subject: Re: Re:

My Dad

thank you joyce,

the support and understanding from all of you is so much

appreciated.

Last night i prayed that if this is my dad's time, that he will go

quickly without too much suffering.

the icu doctor reassured us and Dad that he needn't be afraid of

the end, that they have medications to make him comfortable. it's

just that none of us thought it would happen so fast. it may not, as

you've said before, only god knows when.

i continue to pray for all of you too.

anne (dad ipf 03/06)

Re: My Dad

Anne,

Honey, we will of course pray for your

dad. Don't give up hope. I can and cannot believe they sent him

home yesturday. Grrrr!

Try to get some rest. You are an

absolute angel for taking such good care of your folks. You will forever

be glad of everything you have done. Continue to pray and trust in the

Creator. He is as close as the air you breathe.

Hugs and prayers,

Joyce PF 1997

>

> Hi everyone,

> I've just had a really rough day. I took my Dad into emerg

> yesterday because of increasing SOB--they reassessed his home 02

> level and increased it from 1.5LPM to 3.5LPM and sent him home.

> Well, this morning, he went back, this time in an ambulance. His

> sats were in the 50's. My brother, mom and I spent most of the day

> in emerg with him and spoke with doctor after doctor. I thought

> that the increased SOB might be due to the fact that he has been

> weaning off of the prednisone for the past 2 weeks. the ER doc

> asked us if we had discussed DNR and life support issues with my

> Dad...we hadn't. So we discussed --it was such a hard thing to do.

>

> I'm a bit angry too, that his respirologist never discussed this

> type of thing with us. I don't think any of us knew how far the

> fibrosis had progressed. They think that my Dad has had a heart

> attack recently (from the cardiac enzyme levels) although we can't

> pinpoint when. He's been admitted to the repiratory department and

> they expect him to be there at least three days although there is a

> chance that he may not be coming home at all. When we left him, he

> was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid

> that this may be the end for him and just wanted to ask you all to

> please say a prayer for us,

> anne (dad ipf 03/06)

>

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Dear Anne, My prayers are with you and your family at this time. We know that this is a difficult time. You have the support of this group. We love you! Leanne uip 1/03 Holloway wrote: Dear Anne, I will be praying for you, your family and your dad. P.F. 04/2006 From:

Breathe-Support [mailto:Breathe-Support ] On Behalf Of anne wolfSent: Tuesday, October 31, 2006 8:54 PMTo: Breathe-Support Subject: Re: Re: My Dad thank you joyce, the support and understanding from all of you is so much

appreciated. Last night i prayed that if this is my dad's time, that he will go quickly without too much suffering. the icu doctor reassured us and Dad that he needn't be afraid of the end, that they have medications to make him comfortable. it's just that none of us thought it would happen so fast. it may not, as you've said before, only god knows when. i continue to pray for all of you too. anne (dad ipf

03/06) Re: My Dad Anne, Honey, we will of course pray for your dad. Don't give up hope. I can and cannot believe they sent him home yesturday. Grrrr! Try to get some rest. You are an absolute angel for taking such good care of your folks. You will forever be glad of everything you have done. Continue to pray and trust in the Creator. He is as close as the air you breathe. Hugs and prayers, Joyce PF 1997>> Hi everyone,> I've just had a really rough day. I took my Dad into emerg > yesterday because of increasing SOB--they reassessed his home 02 > level and increased it from 1.5LPM to 3.5LPM and sent him home. > Well, this morning, he went back, this time in an ambulance. His > sats were in the 50's. My brother, mom and I spent most of the day > in emerg with him and spoke with doctor after doctor. I thought > that the increased SOB might be due to the fact that he has been > weaning off of the prednisone for the past 2 weeks. the ER doc > asked us if we had discussed DNR and life support issues with my > Dad...we hadn't. So we discussed --it was such a hard thing to do. > > I'm a bit angry too, that his respirologist never discussed this > type of thing with us. I don't think any of us knew how far the > fibrosis had progressed. They

think that my Dad has had a heart > attack recently (from the cardiac enzyme levels) although we can't > pinpoint when. He's been admitted to the repiratory department and > they expect him to be there at least three days although there is a > chance that he may not be coming home at all. When we left him, he > was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid > that this may be the end for him and just wanted to ask you all to > please say a prayer for us,> anne (dad ipf 03/06)>

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Anne...I hope you do have the opportunity to thank him for who he is and what he is in your life and then, let him go in peace. We often "hang on" for loved ones and it's hard for those who want to "let go".

We instinctively "know" our time.

Perhaps God allows us this little window to say all we need to say to each other.

Love to you too. Sher

Re: My Dad

Dear Anne,

My thoughts are very much with you!

God will know what is best, we just have to place ourselves into His hands.

I'm scared too, my husband's condition is slowly getting worse.

Take care of each other.

Love

Gretel

anne <annewolfrogers> wrote:

Hi everyone,I've just had a really rough day. I took my Dad into emerg yesterday because of increasing SOB--they reassessed his home 02 level and increased it from 1.5LPM to 3.5LPM and sent him home. Well, this morning, he went back, this time in an ambulance. His sats were in the 50's. My brother, mom and I spent most of the day in emerg with him and spoke with doctor after doctor. I thought that the increased SOB might be due to the fact that he has been weaning off of the prednisone for the past 2 weeks. the ER doc asked us if we had discussed DNR and life support issues with my Dad...we hadn't. So we discussed --it was such a hard thing to do. I'm a bit angry too, that his respirologist never discussed this type of thing with us. I don't think any of us knew how far the fibrosis had progressed. They think that my Dad has had a heart attack recently (from the cardiac enzyme levels) although we can't pinpoint when. He's been admitted to the repiratory department and they expect him to be there at least three days although there is a chance that he may not be coming home at all. When we left him, he was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid that this may be the end for him and just wanted to ask you all to please say a prayer for us,anne (dad ipf 03/06)

Everyone is raving about the all-new Yahoo! Mail.

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Hello Anne, Please accept my heartfelt condolences to the passing of your Dad. He's relieved of his pain and may God relieve yours. Gretelanne wolf wrote: Hello everyone, I spent most of today at the hospital with my Dad, my Mom and my brother. My Dad continues

to fight and never complains. He's so brave, truly an inspiration. His sats dropped to the 50's twice while i was with him, it was so frightening but they managed to get him back up. I believe that he is now on the maximum amount of 02, 15LPM and I discussed with his doctor about getting him some medication to ease his discomfort and help him get some rest. It was incredibly difficult to leave him tonight, wondering if this might be the last time I see him. While I will miss him dearly, I don't want him to suffer. I am putting this in God's hands--I guess I know that it always has been, although I like to think that I can control things sometimes. Thank you to all of you for your thoughts and prayers, they have been very comforting to me. Thank you too Sher, for what you said about telling your loved ones that it's ok to go--i

thought about telling my dad this all day but didn't and then i saw your post today. I may have the opportunity to tell him tomorrow. Love to all of you, anne (dad ipf 03/06) Re: My Dad Dear Anne, My thoughts are very much with you! God will know what is best, we just have to place ourselves into His hands. I'm scared too, my husband's condition is slowly getting worse. Take care of each other. Love Gretel anne <annewolfrogers> wrote: Hi everyone,I've just had a really rough day. I took my Dad into emerg yesterday because of increasing SOB--they reassessed his home 02 level and increased it from

1.5LPM to 3.5LPM and sent him home. Well, this morning, he went back, this time in an ambulance. His sats were in the 50's. My brother, mom and I spent most of the day in emerg with him and spoke with doctor after doctor. I thought that the increased SOB might be due to the fact that he has been weaning off of the prednisone for the past 2 weeks. the ER doc asked us if we had discussed DNR and life support issues with my Dad...we hadn't. So we discussed --it was such a hard thing to do. I'm a bit angry too, that his respirologist never discussed this type of thing with us. I don't think any of us knew how far the fibrosis had progressed. They think that my Dad has had a heart attack recently (from the cardiac enzyme levels) although we can't pinpoint when. He's been admitted to the repiratory department and they expect him to be there at least three days although there is a chance that he may not be coming home at

all. When we left him, he was on about 12LPM 02 and his heart rate was 120BPM. I'm afraid that this may be the end for him and just wanted to ask you all to please say a prayer for us,anne (dad ipf 03/06) Everyone is raving about the all-new Yahoo! Mail.

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