Guest guest Posted January 30, 1999 Report Share Posted January 30, 1999 Hello, and welcome!!!!!! There are a few questions that I would like you to answer if you could please: Age: Sex: Age @ diagnosis: Meds for this disease: Other diseases: Tell a little about yourself: A reminder to everyone...If you would like to be on the PSC-support web page, I need your " stories " as soon as possible!!!!!!! I would really like to get this going! Have a great day everyone! Update: I have an appt. with my Dr. next wednesday, and for the nausea I am now on 15mg of Compazine (twice daily). For the most part...I would say that this is working MUCH better than the phenergan, and although it does make me a little drowsy, it doesn't knock me out like the phenergan did! God bless and keep you all! Love, ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 1999 Report Share Posted January 30, 1999 Hello Jon, How about telling us a little about yourself, and welcome to the group. I think you will like it here. My wife Tina has PSC & UC and has found this group to be very helpfull. Fell free to ask any question or give input as much or as little as you would like. The people in this group are in all stages of PSC and can give great answers and support to almost any question. I am sure you yourself can also help with it. So once again welcome!!!!! Jeff, Husband of Tina (PSC-UC) ---------- > From: LSSW74@... > To: egroups > Subject: psc > Date: Saturday, January 30, 1999 12:43 AM > > Hello, I was directed to your support group via the CCFA site. Thanks Jon. > > ------------------------------------------------------------------------ > What's everyone looking at? Check out the Top40 most requested stocks! > Plus quotes, charts, news, portfolios, mutual funds, and discussion. > All free, fast, and easy. Visit: http://www.stockmaster.com/?a=f5 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 Michele Bruno Age: 30 Sex: Female Married Age of Diagnosis: 27 Meds. Actigall 300mg 3x a day Asacol 2 tabs. 3x a day for ulcerative colitis Was on methotrexate for 8 months but stopped due to a severe suppression of immune system, that may have contributed to infections. I was diagnosed three years ago after routine blood work showed elevated liver enzymes. I have had one liver biopsy and three ERCPs. It was assumed that the disease was progressing slowly, until the last ERCP showed a narrowing of the bile ducts and a dilation was performed. It was then that I was placed on the transplant list. I've been on the list now for 10 months. Feel good with the exception of flare ups of my UC and a loss of energy which has been a new symptom in the last 6 months. I've tried various herbal remedies, relaxation tech., yoga, etc. I still take milk thistle and maintain relaxation exercises. I try to keep a positive attitude and live day to day. This disease as well as the recent death of my mother to terminal cancer has given me a greater appreciation for life and family. I've grown and matured in my relationship with my husband. I long to have children but that has been put on hold due to the strain it would put on my liver at this time. I continue to work full time as an audiologist. I'm currently employed by a hearing aid manufacturer where I serve as a technical/educational coordinator. I provide support and training to other professionals in the field. My job helps to keep me active and my mind off of this disease. I know many of you from the autoimmune Liver disease support group WYBEAR21@... wrote: > Hello, and welcome!!!!!! There are a few questions that I would like you to > answer if you could please: > Age: > Sex: > Age @ diagnosis: > Meds for this disease: > Other diseases: > Tell a little about yourself: > > A reminder to everyone...If you would like to be on the PSC-support web page, > I need your " stories " as soon as possible!!!!!!! I would really like to get > this going! > Have a great day everyone! > Update: I have an appt. with my Dr. next wednesday, and for the nausea I am > now on 15mg of Compazine (twice daily). For the most part...I would say that > this is working MUCH better than the phenergan, and although it does make me a > little drowsy, it doesn't knock me out like the phenergan did! > God bless and keep you all! > Love, > > > ------------------------------------------------------------------------ > @Backup- Automatic, Safe, Reliable online backups > and restores. Free for 30 days. > Download Now. http://offers./click/215/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 1999 Report Share Posted July 6, 1999 I've had PSC for 12 confirmed years & liver cholangitis problems since 1980. What specifically did you want to ask about? I don't know where to start--don't know what you've already learned and/or found out on your own through experience. Laurie ------------------------------------------------------------------------ eGroups.com home: /group/ - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 1999 Report Share Posted August 2, 1999 Greg-- Thanks for sharing. How true. Glad to hear you are several yrs out from your tx. Hope you are doing well. Laurie, PSC 12+ yrs; UC (now pouchitis) 21 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 1999 Report Share Posted September 19, 1999 hmmm wow! Do you have Primary Sclerosing Cholangitis? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 1999 Report Share Posted September 25, 1999 Hi: I am new at this internet stuff but am trying to learn. One of the main reasons I got it was to find out more about PSC and to talk to others that also have it and how they are handling it and keeping it under control. If there is a chat room for " PSC " , please tell me when. Any response would be greatly appreciated. thanks, Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Doris Welcome to the group...There are a lot of people here for help and a smile ...My name is Luanne and I'm here because of my 16 (will be 17 in 2 weeks)..keep forgetting that.LOL. He has Crohns Disease since 10 yrs old and Rhuematoid Arthritis since 12 and this past spring was diagnosed with PSC and AIH...Has had the biopsy and ERCP..Taking Urso for liver and counts have been doing good....He's been having RH problems lately..He tends to have one thing be the worst at one time...Thank God... Again Welcome Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
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