Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 ka, you are being heard. I know, for me, what I sometimes think, and I guess it's a terrible way to think, but I th ink " they don't need my answer because they will get so many more answers from others! " I know that is not right obviously from your post. So, I do read them but I guess that I need to answer. Just to let you know that I do appreciate your post and making us aware of being more attentive of others feelings and needs. Margaret, Mom to the monsters and master quilter (haha) does anyone care? > It seems like not all my posts are being read or that anyone cares > about my posts... some of them are very important to me but nobody > replies to them or ims me or anything to tell me thewir thoughts or > ideas about what I have said. I know there are a lot of members and > all of us have bad days where we dont get back to posts as often as > we would like but dang it sure makes me feel horrible to think that > my thoughs and words arent being listened to.... I try to respond to > every post or at least let the person know I read it so they feel > importand. I dont know I am just feeling like what I have to say isnt > taken seriously or is falling on deaf ears. if you read my post and > dont have anything to say to them would you at least let me know im > being heard please. that to me is very important. > > ka > > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. > > > Have a nice day everyone. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Well I care ka:) Sorry if you feel neglected, I hope things improve for you. Hugs Penny On 02/09/2004 20:15:22, fibromyalgia_support_group wrote: > It seems like not all my posts are being read or that anyone cares > about my posts... some of them are very important to me but nobody > replies to them or ims me or anything to tell me thewir thoughts or > ideas about what I have said. I know there are a lot of members and > all of us have bad days where we dont get back to posts as often as > we would like but dang it sure makes me feel horrible to think that > my thoughs and words arent being listened to.... I try to respond to > every post or at least let the person know I read it so they feel > importand. I dont know I am just feeling like what I have to say isnt > taken seriously or is falling on deaf ears. if you read my post and > dont have anything to say to them would you at least let me know im > being heard please. that to me is very important. > > ka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 ka, I too am new to the group, and everytime I post I might not get a reply. This is a large group and it is easy to get lost in the shuffle in any large group, club, organization, etc. I am a member in several groups realted to my autoimmune thyroiditis, fibromyalgia, and possible diagnosis of RA. I am also a member in some online groups and organizations related to my profession. I don't post or read on all of them daily. What my thoughts are regarding online groups are they are an adjunct to your support system. I am intending on getting some counseling, and maybe hooking up with some folks in my area who have the same diseases I do. My mom, dad and sister are very supportive, which is good, because my husband of 13 years is a big fat ZERO. His only concern is that my illnesses interfere with us having sex. Although I work out of my home and travel a little, I work about 45 hours per week, have my 2 youngest sons at home (ages 9 1/2 and 11), one of which has severe behavioral and emotional problems, and get virtually no help with housework or yardwork from my husband. My home is almost 3000 sq. feet and I cannot physically keep it clean, so I don't anymore. I am probably looking at divorcing my husband in the spring when I sell my house, and buying a mini-farm with a smaller house with my sister, who is an angel, and she also has health problems, so we will make a good pair of old maids one day:) I am also learning to rely on my faith more now than ever and learning to take every day one day at a time. I did not mean to ramble about my problems. I just wanted to encourage you not to rely soley on an online group for support, because there is no way all your emotional needs and support can be met through one source. I empathize (spelling?) as autoimmune diseases SUCK!!!!!! I pretty much look like I always have just thinner with dark circles under my eyes and dry scaly skin from my thyroid probs. So I am having to teach everyone around me that some days are good, some days I look good, but most days are bad and most days I look like hell. Another idea for the group may be for some of the veterans of the group to become " buddies " to the newbies for a while, and they could send private emails to each other, so they don't clog up the list. Just my thoughts on this subject. ka, you are in my thoughts and prayers, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 ka, Yes sweetie, I CARE! I may not get to answer all of your posts, or be able to reply right away, because I'm sick, or otherwise not able to get to my computer, but I most definitely care. I've written you several very heartfelt notes this week, and have not gotten offended when you didn't respond. As much as I would like to, I can't be here every day. I work 5-6 days a week, and am usually physically and mentally exhausted by the time I get home. But when I DO get home, I still have a family, my husband and kids, to tend to. So it's a priviledge for me to be able to get some relaxing time on the computer. I try to respond to as many people as I can, but I can't always get to everyone. This is an unusually busy group, so sometimes I miss things. I'm so sorry that you feel neglected sweetie. I don't think that anyone here ever intentionally meant to do it. We all love you here, as you're a very active participant, always willing to help someone out. You're very warm and compassionate, and it shows. I'll try harder to pay attention, I promise. I hope you're feeling better now, and that you know we all really do care about you! Much love and tons of hugs, Jen Quote Link to comment Share on other sites More sharing options...
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