Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 They told me the max was normally 100 mgs. However, the doctor put me up to 120 mgs. to see if that would work and I was tolerating the 100 mgs. to his defense; however, when I realized the dangers of the high dose that I was on (after the breathing problems began and after I started the tapering), I was shocked to say the least. I switched doctors within that clinic shortly after and ended up with the best doctor around (sorry to say he wouldn't move with us.) Kathy Re: morning neuropathy pains... I am no longer alone... > > > DK Moulton said the following on 10/3/2006 12:56 PM: > > My take on my own pain in the mornings, because I've found it directly relates to the amount of sleep I get (less sleep equals less pain most days and more sleep equals much more pain), is that because I am not active during sleep, everything tightens and stiffens. > > Kathy, have you tried oral Baclofen? A 10 mg tablet should be effective > for at least 6 hours. Baclofen (Lioresel) is a skeletal muscle relaxant, > it is what I have in my pump. I used to be so stiff I could only move my > legs by grabbing my ankles and pull them. > > Also for an update, for those that do not know, I had a Medtronics > Baclofen pump implanted about 6 years ago. The pump injects liquid > Baclofen into your dura at the area of nerve damage continuously or at > different rates for different hours, what ever works. I used to have > more delivered at night to help sleep and prevent night spasms. In the > beginning, it took 365 mcg/day to control my spasticity. After I started > getting flaccid legs about 3 years ago, we have been decreasing the dose > 10-15% every 4 to 6 weeks. Today at 9 am my doctor reduced my level from > 42 to 35 mcg/day. at 9 am Halloween day it goes to 25 mcg/day, that is > the lowest it will go. Sometime around Thanksgiving, she will put saline > water in it. If that works, my nsg will remove it from my body in Jan 07. > > Ok, I wasnt sure how to spell Lioresel so I typed it in google to see > what happened. Here is one of the hits: > > http://www.ningxfu.com/testimonials/index.race?ID=10 > > The purpose of this letter is to inform you about my experience with > acupuncture as an effective and fair priced medical treatment process. > On 2/24/84 I broke vertebrae T7 and T8 and bruise my spinal cord. > The doctors told me that I would never walk again. From that point > on I was confined to a wheelchair for the remainder of my life. On > 9/90 I began acupuncture treatment with Dr. Fu in San . Since > then I have been traveling from Hughson, CA, to San , CA, once a > week. > Some improvements I have experienced are (1) I have improved motor > function which enables me to reciprocal gate with the use of forearm > crutches for a distance of one mile per day (2) I no longer need to > take spasm medicine (lioresel) because my spasms have been reduced > by 90%. (3) The constant aching pain I used to have in my back has > been reduced by 90%. > Dr. Fu's treatment consists of putting needles into particular > locations on my back and legs, a " moving cup treatment " , Asian > massage techniques, and a herb treatment. > > Rick > > > Recent Activity > a.. 6New Members > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
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