Re: Carol-not for squimish

[Guest guest]

Carol,

You are going through Hell, and that lousy surgeon doesn't seem to even

care. This is outrageous! He does not want to accept responsibility for

his dirty deed. I can't believe his callous attitude! You need help

from someone knowledgeable about infections. I agree that you have

been royally messed with. Can you see some other doctor? Your regular

doctor seems sympathetic, but does he know enough to help you? You may

need to be taking antibiotics at least. I will keep you in my thoughts

and prayers for healing.

Sue

On Friday, October 29, 2004, at 11:02 PM, Dandcmayer@... wrote:

>

> It really has been a pretty rough week. I appreciate the support that

> I

> have received from this group, it helps - even though I do not not

> post alot -

[Guest guest]

Carol,

You are going through Hell, and that lousy surgeon doesn't seem to even

care. This is outrageous! He does not want to accept responsibility for

his dirty deed. I can't believe his callous attitude! You need help

from someone knowledgeable about infections. I agree that you have

been royally messed with. Can you see some other doctor? Your regular

doctor seems sympathetic, but does he know enough to help you? You may

need to be taking antibiotics at least. I will keep you in my thoughts

and prayers for healing.

Sue

On Friday, October 29, 2004, at 11:02 PM, Dandcmayer@... wrote:

>

> It really has been a pretty rough week. I appreciate the support that

> I

> have received from this group, it helps - even though I do not not

> post alot -

[Guest guest]

Carol, we are here for each other, were a big family. It's so

wonderful to be able to come here, and get such wonderful support and

concern. We all can't post all the time, but we all know were right

here real close.

I pray that you start feeling better, and get some help. This is so

awful, it makes you scared to put your self in a doctor's hands some

times. Please, take care, and keep in touch, T

> Dear Group,

>

> It really has been a pretty rough week. I appreciate the support

that I

> have received from this group, it helps - even though I do not not

post alot -

> Thank You!

>

> You will not believe ! The treatment co-ordinator at my regular

Dr's office

> has called me every day since Tuesday - telling me that she has

talked to

> the hyperbaric dept. and the will call and get things set up. Lupe

knows what

> she is doing and is really good. SOOOOO I wait for the call - no

call

> Tuesday- no call Wednesday- no call Thursday - so I call and am

told that I will

> need to talk to the Infectious Disease Dr. before they can get me

in.

> Meanwhile - there is a hole in my tongue, stitches are hanging out

( I am slowly

> eating them), it is raw and bleeding (last night looked like

hamburger meat with

> blood). I called my regular Dr. to ask for a Duragesic to get me

thru the

> weekend - which he did:). I got home from the pharmacy and

received a call

> from the hyperbaric treatment center telling me that they did not

think it would

> help my situation, they talked it over with the surgeon (who had

literally

> washed his hands of me when things got bad and sent me to my reg

Dr.) and it

> should heal on it's own! I think I saw RED, but it was after 4:00

and no one

> was in. I went to the bathroom, got out the scissors, and cut out

the

> useless stitches that I had been requesting be removed all week.

I expected the

> the edge of my tongue would have a slight dent and rough edge. I

did not

> expect a hole that looks like the end of a small elephant trunk!

I am using the

> Peridex mouthwash to help prevent infection and skipped my MTX

shot, but I

> really feel like I have been royally messed with? or am I just

emotional

> because it still hurts so much? I trust my regular Dr. but I am

really thinking

> that the Surgeon jumped the gun to operate. Guess I have a great

Halloween

> costume.

> Thanks for listening,

> Gentle Hugs,

> Carol M. in CA

>

>

>

[Guest guest]

Carol, we are here for each other, were a big family. It's so

wonderful to be able to come here, and get such wonderful support and

concern. We all can't post all the time, but we all know were right

here real close.

I pray that you start feeling better, and get some help. This is so

awful, it makes you scared to put your self in a doctor's hands some

times. Please, take care, and keep in touch, T

> Dear Group,

>

> It really has been a pretty rough week. I appreciate the support

that I

> have received from this group, it helps - even though I do not not

post alot -

> Thank You!

>

> You will not believe ! The treatment co-ordinator at my regular

Dr's office

> has called me every day since Tuesday - telling me that she has

talked to

> the hyperbaric dept. and the will call and get things set up. Lupe

knows what

> she is doing and is really good. SOOOOO I wait for the call - no

call

> Tuesday- no call Wednesday- no call Thursday - so I call and am

told that I will

> need to talk to the Infectious Disease Dr. before they can get me

in.

> Meanwhile - there is a hole in my tongue, stitches are hanging out

( I am slowly

> eating them), it is raw and bleeding (last night looked like

hamburger meat with

> blood). I called my regular Dr. to ask for a Duragesic to get me

thru the

> weekend - which he did:). I got home from the pharmacy and

received a call

> from the hyperbaric treatment center telling me that they did not

think it would

> help my situation, they talked it over with the surgeon (who had

literally

> washed his hands of me when things got bad and sent me to my reg

Dr.) and it

> should heal on it's own! I think I saw RED, but it was after 4:00

and no one

> was in. I went to the bathroom, got out the scissors, and cut out

the

> useless stitches that I had been requesting be removed all week.

I expected the

> the edge of my tongue would have a slight dent and rough edge. I

did not

> expect a hole that looks like the end of a small elephant trunk!

I am using the

> Peridex mouthwash to help prevent infection and skipped my MTX

shot, but I

> really feel like I have been royally messed with? or am I just

emotional

> because it still hurts so much? I trust my regular Dr. but I am

really thinking

> that the Surgeon jumped the gun to operate. Guess I have a great

Halloween

> costume.

> Thanks for listening,

> Gentle Hugs,

> Carol M. in CA

>

>

>

[Guest guest]

wow carol, that really stinks. we put our lives into these peoples hands.

some of them just don't care i guess they are in it for the $. i hope you find

the treatment you deserve and when your tongue heals i hope you give them all a

good lashing with it. or atleast speak to an atty to do it for you. kathy in il

[Guest guest]

wow carol, that really stinks. we put our lives into these peoples hands.

some of them just don't care i guess they are in it for the $. i hope you find

the treatment you deserve and when your tongue heals i hope you give them all a

good lashing with it. or atleast speak to an atty to do it for you. kathy in il

[Guest guest]

Carol, please document everything that is happening - symptoms, dates,

phone calls, medications stopped and started, etc.

At this point, I would contact the surgeon again and tell him that you

are not healing and in a lot of pain. Tell him that you are very worried

about the possibility of infection, too.

I would also give your rheumatologist a call directly and explain in

gory detail what is going on.

NO, do not try to put the blame back on yourself and characterize your

reaction as an overreaction. Your pain and lack of healing should be

taken very seriously.

Glad to hear that you are rinsing with Peridex. I hope it helps.

Please keep us posted.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Carol-not for squimish

>

> Dear Group,

>

> It really has been a pretty rough week. I appreciate the support that

I

> have received from this group, it helps - even though I do not not

post alot -

> Thank You!

>

> You will not believe ! The treatment co-ordinator at my regular Dr's

office

> has called me every day since Tuesday - telling me that she has talked

to

> the hyperbaric dept. and the will call and get things set up. Lupe

knows what

> she is doing and is really good. SOOOOO I wait for the call - no call

> Tuesday- no call Wednesday- no call Thursday - so I call and am told

that I will

> need to talk to the Infectious Disease Dr. before they can get me in.

> Meanwhile - there is a hole in my tongue, stitches are hanging out ( I

am slowly

> eating them), it is raw and bleeding (last night looked like hamburger

meat with

> blood). I called my regular Dr. to ask for a Duragesic to get me thru

the

> weekend - which he did:). I got home from the pharmacy and received a

call

> from the hyperbaric treatment center telling me that they did not

think it would

> help my situation, they talked it over with the surgeon (who had

literally

> washed his hands of me when things got bad and sent me to my reg Dr.)

and it

> should heal on it's own! I think I saw RED, but it was after 4:00 and

no one

> was in. I went to the bathroom, got out the scissors, and cut out

the

> useless stitches that I had been requesting be removed all week. I

expected the

> the edge of my tongue would have a slight dent and rough edge. I did

not

> expect a hole that looks like the end of a small elephant trunk! I

am using the

> Peridex mouthwash to help prevent infection and skipped my MTX shot,

but I

> really feel like I have been royally messed with? or am I just

emotional

> because it still hurts so much? I trust my regular Dr. but I am

really thinking

> that the Surgeon jumped the gun to operate. Guess I have a great

Halloween

> costume.

> Thanks for listening,

> Gentle Hugs,

> Carol M. in CA

[Guest guest]

Carol, please document everything that is happening - symptoms, dates,

phone calls, medications stopped and started, etc.

At this point, I would contact the surgeon again and tell him that you

are not healing and in a lot of pain. Tell him that you are very worried

about the possibility of infection, too.

I would also give your rheumatologist a call directly and explain in

gory detail what is going on.

NO, do not try to put the blame back on yourself and characterize your

reaction as an overreaction. Your pain and lack of healing should be

taken very seriously.

Glad to hear that you are rinsing with Peridex. I hope it helps.

Please keep us posted.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Carol-not for squimish

>

> Dear Group,

>

> It really has been a pretty rough week. I appreciate the support that

I

> have received from this group, it helps - even though I do not not

post alot -

> Thank You!

>

> You will not believe ! The treatment co-ordinator at my regular Dr's

office

> has called me every day since Tuesday - telling me that she has talked

to

> the hyperbaric dept. and the will call and get things set up. Lupe

knows what

> she is doing and is really good. SOOOOO I wait for the call - no call

> Tuesday- no call Wednesday- no call Thursday - so I call and am told

that I will

> need to talk to the Infectious Disease Dr. before they can get me in.

> Meanwhile - there is a hole in my tongue, stitches are hanging out ( I

am slowly

> eating them), it is raw and bleeding (last night looked like hamburger

meat with

> blood). I called my regular Dr. to ask for a Duragesic to get me thru

the

> weekend - which he did:). I got home from the pharmacy and received a

call

> from the hyperbaric treatment center telling me that they did not

think it would

> help my situation, they talked it over with the surgeon (who had

literally

> washed his hands of me when things got bad and sent me to my reg Dr.)

and it

> should heal on it's own! I think I saw RED, but it was after 4:00 and

no one

> was in. I went to the bathroom, got out the scissors, and cut out

the

> useless stitches that I had been requesting be removed all week. I

expected the

> the edge of my tongue would have a slight dent and rough edge. I did

not

> expect a hole that looks like the end of a small elephant trunk! I

am using the

> Peridex mouthwash to help prevent infection and skipped my MTX shot,

but I

> really feel like I have been royally messed with? or am I just

emotional

> because it still hurts so much? I trust my regular Dr. but I am

really thinking

> that the Surgeon jumped the gun to operate. Guess I have a great

Halloween

> costume.

> Thanks for listening,

> Gentle Hugs,

> Carol M. in CA

[Guest guest]

Carol, I agree with . Take a tough stand, especially with the surgeon,

phone and tell him he WILL see you and do something about this mess he has left

you in or you will just show up at his office full of patients. This is a

serious matter and you must be looked after.

Hugs

June

[ ] Carol-not for squimish

>

> Dear Group,

>

> It really has been a pretty rough week. I appreciate the support that

I

> have received from this group, it helps - even though I do not not

post alot -

> Thank You!

>

> You will not believe ! The treatment co-ordinator at my regular Dr's

office

> has called me every day since Tuesday - telling me that she has talked

to

> the hyperbaric dept. and the will call and get things set up. Lupe

knows what

> she is doing and is really good. SOOOOO I wait for the call - no call

> Tuesday- no call Wednesday- no call Thursday - so I call and am told

that I will

> need to talk to the Infectious Disease Dr. before they can get me in.

> Meanwhile - there is a hole in my tongue, stitches are hanging out ( I

am slowly

> eating them), it is raw and bleeding (last night looked like hamburger

meat with

> blood). I called my regular Dr. to ask for a Duragesic to get me thru

the

> weekend - which he did:). I got home from the pharmacy and received a

call

> from the hyperbaric treatment center telling me that they did not

think it would

> help my situation, they talked it over with the surgeon (who had

literally

> washed his hands of me when things got bad and sent me to my reg Dr.)

and it

> should heal on it's own! I think I saw RED, but it was after 4:00 and

no one

> was in. I went to the bathroom, got out the scissors, and cut out

the

> useless stitches that I had been requesting be removed all week. I

expected the

> the edge of my tongue would have a slight dent and rough edge. I did

not

> expect a hole that looks like the end of a small elephant trunk! I

am using the

> Peridex mouthwash to help prevent infection and skipped my MTX shot,

but I

> really feel like I have been royally messed with? or am I just

emotional

> because it still hurts so much? I trust my regular Dr. but I am

really thinking

> that the Surgeon jumped the gun to operate. Guess I have a great

Halloween

> costume.

> Thanks for listening,

> Gentle Hugs,

> Carol M. in CA

[Guest guest]

Carol, I agree with . Take a tough stand, especially with the surgeon,

phone and tell him he WILL see you and do something about this mess he has left

you in or you will just show up at his office full of patients. This is a

serious matter and you must be looked after.

Hugs

June

[ ] Carol-not for squimish

>

> Dear Group,

>

> It really has been a pretty rough week. I appreciate the support that

I

> have received from this group, it helps - even though I do not not

post alot -

> Thank You!

>

> You will not believe ! The treatment co-ordinator at my regular Dr's

office

> has called me every day since Tuesday - telling me that she has talked

to

> the hyperbaric dept. and the will call and get things set up. Lupe

knows what

> she is doing and is really good. SOOOOO I wait for the call - no call

> Tuesday- no call Wednesday- no call Thursday - so I call and am told

that I will

> need to talk to the Infectious Disease Dr. before they can get me in.

> Meanwhile - there is a hole in my tongue, stitches are hanging out ( I

am slowly

> eating them), it is raw and bleeding (last night looked like hamburger

meat with

> blood). I called my regular Dr. to ask for a Duragesic to get me thru

the

> weekend - which he did:). I got home from the pharmacy and received a

call

> from the hyperbaric treatment center telling me that they did not

think it would

> help my situation, they talked it over with the surgeon (who had

literally

> washed his hands of me when things got bad and sent me to my reg Dr.)

and it

> should heal on it's own! I think I saw RED, but it was after 4:00 and

no one

> was in. I went to the bathroom, got out the scissors, and cut out

the

> useless stitches that I had been requesting be removed all week. I

expected the

> the edge of my tongue would have a slight dent and rough edge. I did

not

> expect a hole that looks like the end of a small elephant trunk! I

am using the

> Peridex mouthwash to help prevent infection and skipped my MTX shot,

but I

> really feel like I have been royally messed with? or am I just

emotional

> because it still hurts so much? I trust my regular Dr. but I am

really thinking

> that the Surgeon jumped the gun to operate. Guess I have a great

Halloween

> costume.

> Thanks for listening,

> Gentle Hugs,

> Carol M. in CA

[Guest guest]

And please, if this doctor refuses to take care of his mess, file a complaint

against him at your state board of medicine or professional regulation so others

can see what he does.

Cary

[Guest guest]

And please, if this doctor refuses to take care of his mess, file a complaint

against him at your state board of medicine or professional regulation so others

can see what he does.

Cary

[Guest guest]

> Carol,

> This is just not right. I hope you listen to and document everything.

> June¹s idea of showing up in an office full of patients would surely get his

> attention. But right now you need care, and maybe you¹ll have to go to the

> emergency ward to get it. Being on MTX makes you an immune compromised

> patient that may not heal like anyone else. Keeping it clean is all you can

> do for yourself. I pray it starts healing for you.

> a

>

>

> [ ] Carol-not for squimish

>

>

>> >

>> > Dear Group,

>> >

>> > It really has been a pretty rough week. I appreciate the support that

> I

>> > have received from this group, it helps - even though I do not not

> post alot -

>> > Thank You!

>> >

>> > You will not believe ! The treatment co-ordinator at my regular Dr's

> office

>> > has called me every day since Tuesday - telling me that she has talked

> to

>> > the hyperbaric dept. and the will call and get things set up. Lupe

> knows what

>> > she is doing and is really good. SOOOOO I wait for the call - no call

>> > Tuesday- no call Wednesday- no call Thursday - so I call and am told

> that I will

>> > need to talk to the Infectious Disease Dr. before they can get me in.

>> > Meanwhile - there is a hole in my tongue, stitches are hanging out ( I

> am slowly

>> > eating them), it is raw and bleeding (last night looked like hamburger

> meat with

>> > blood). I called my regular Dr. to ask for a Duragesic to get me thru

> the

>> > weekend - which he did:). I got home from the pharmacy and received a

> call

>> > from the hyperbaric treatment center telling me that they did not

> think it would

>> > help my situation, they talked it over with the surgeon (who had

> literally

>> > washed his hands of me when things got bad and sent me to my reg Dr.)

> and it

>> > should heal on it's own! I think I saw RED, but it was after 4:00 and

> no one

>> > was in. I went to the bathroom, got out the scissors, and cut out

> the

>> > useless stitches that I had been requesting be removed all week. I

> expected the

>> > the edge of my tongue would have a slight dent and rough edge. I did

> not

>> > expect a hole that looks like the end of a small elephant trunk! I

> am using the

>> > Peridex mouthwash to help prevent infection and skipped my MTX shot,

> but I

>> > really feel like I have been royally messed with? or am I just

> emotional

>> > because it still hurts so much? I trust my regular Dr. but I am

> really thinking

>> > that the Surgeon jumped the gun to operate. Guess I have a great

> Halloween

>> > costume.

>> > Thanks for listening,

>> > Gentle Hugs,

>> > Carol M. in CA

>

>

>

[Guest guest]

> Carol,

> This is just not right. I hope you listen to and document everything.

> June¹s idea of showing up in an office full of patients would surely get his

> attention. But right now you need care, and maybe you¹ll have to go to the

> emergency ward to get it. Being on MTX makes you an immune compromised

> patient that may not heal like anyone else. Keeping it clean is all you can

> do for yourself. I pray it starts healing for you.

> a

>

>

> [ ] Carol-not for squimish

>

>

>> >

>> > Dear Group,

>> >

>> > It really has been a pretty rough week. I appreciate the support that

> I

>> > have received from this group, it helps - even though I do not not

> post alot -

>> > Thank You!

>> >

>> > You will not believe ! The treatment co-ordinator at my regular Dr's

> office

>> > has called me every day since Tuesday - telling me that she has talked

> to

>> > the hyperbaric dept. and the will call and get things set up. Lupe

> knows what

>> > she is doing and is really good. SOOOOO I wait for the call - no call

>> > Tuesday- no call Wednesday- no call Thursday - so I call and am told

> that I will

>> > need to talk to the Infectious Disease Dr. before they can get me in.

>> > Meanwhile - there is a hole in my tongue, stitches are hanging out ( I

> am slowly

>> > eating them), it is raw and bleeding (last night looked like hamburger

> meat with

>> > blood). I called my regular Dr. to ask for a Duragesic to get me thru

> the

>> > weekend - which he did:). I got home from the pharmacy and received a

> call

>> > from the hyperbaric treatment center telling me that they did not

> think it would

>> > help my situation, they talked it over with the surgeon (who had

> literally

>> > washed his hands of me when things got bad and sent me to my reg Dr.)

> and it

>> > should heal on it's own! I think I saw RED, but it was after 4:00 and

> no one

>> > was in. I went to the bathroom, got out the scissors, and cut out

> the

>> > useless stitches that I had been requesting be removed all week. I

> expected the

>> > the edge of my tongue would have a slight dent and rough edge. I did

> not

>> > expect a hole that looks like the end of a small elephant trunk! I

> am using the

>> > Peridex mouthwash to help prevent infection and skipped my MTX shot,

> but I

>> > really feel like I have been royally messed with? or am I just

> emotional

>> > because it still hurts so much? I trust my regular Dr. but I am

> really thinking

>> > that the Surgeon jumped the gun to operate. Guess I have a great

> Halloween

>> > costume.

>> > Thanks for listening,

>> > Gentle Hugs,

>> > Carol M. in CA

>

>

>

[Guest guest]

Carol, It does sound like you got the royal brush off. I can feel

for you. I have seent his happen to others and it has happened to

me as well. Don't give up. Go see your regular doc and see what he

thinks about you going to see a ENT surgeon or even a plastic

surgeon. They can work with you and an Infectious Diseases

specialist to get you better. Take care, I'll keep you in my

prayers, Marina in Ohio

[Guest guest]

Carol, It does sound like you got the royal brush off. I can feel

for you. I have seent his happen to others and it has happened to

me as well. Don't give up. Go see your regular doc and see what he

thinks about you going to see a ENT surgeon or even a plastic

surgeon. They can work with you and an Infectious Diseases

specialist to get you better. Take care, I'll keep you in my

prayers, Marina in Ohio