Re: rate of reocurring tethered cord/Lipo

[Guest guest]

Well, whatever the word for it, my stupid lipoma keeps

showing up. I figure I must really be supposed to

have it since it wants to be there so badly. Lucky

for me, in an odd kind of way, that the damage the

lipoma did is done, and there is no good reason to

remove it again.

--- Chappler wrote:

> Most doctors would use the term grow back, come

> back, or recur to mean that a tumor that seemed to

> be gone at one time is now not gone at all, but

> rather has returned. Truly, cancers that recur have

> really persisted rather than recurred. I agree that

> the terminology is not exact.

> Ron

__________________________________________________

[Guest guest]

My daughter does have a lump (a very small one that I can alone see)

at the very spot that you describe. I am assuming that in your case,

this lump is directly connected to the lipoma inside, and there fore

when the entire lipoma grows, it also shows on the outside. Am I right

in my understanding?

In my daughter's case, the internal lipoma and external lipoma (bump)

are not connected. I assume that they would have been connected once

upon a time before her dura and cord were completely formed. But

during separation, they didnt keep in touch! So, there is a small

strand inside with a full intact dura and spine, and a small bump

outside.

So I think I cannot monitor. Does this make sense?

Abby.

>

> > Are you talking about the lipoma that you can see

> > externally? How does

> > that translate to the lipoma in the spinal canal? My

> > dd's lipoma is

> > deep inside her spinal canal, covered by dura. I am

> > under the

> > impression that the only way of watching it is via

> > an MRI.

> >

> > -Abby.

> >

>

> __________________________________________________

>

[Guest guest]

I am an M.D., however dermatologists usually do not know much about

neurosurgery, neurology, or chronic pain situations. We do however have a basic

knowledge of medicine. In my case, I am unfortunate enough to have had a nasty

combination of a Chiari one malformation, a post-traumatic tethered thoracic

spinal cord, severe cervical disc disease, and multiple pinched nerves in my

neck due to arthritis. I also had a prolapsed mitral valve with regurgitation

that required surgery because of a arrhythmia caused by the Chiari.

Re: rate of reocurring tethered cord/Lipo

Hi Ron..It sounds as if you are a MD? That is very helpful to have on this

site though your field is dermatology? Randee

[Guest guest]

Bummer...Did you have cervical spine surgery then? Any luck with it?

Are you still working?

I have 2 people I know that I've been telling them about the Chiari institute

b/c they have Chiari and a lot of symptoms but I'm not sure if surgery is an

option for them.

AG

Re: rate of reocurring tethered cord/Lipo

Hi Ron..It sounds as if you are a MD? That is very helpful to have on this

site though your field is dermatology? Randee

[Guest guest]

HI

Anyone with Chiari have long term eye twitches? Just curious!

Re: rate of reocurring tethered cord/Lipo

Hi Ron..It sounds as if you are a MD? That is very helpful to have on this

site though your field is dermatology? Randee