Re: Questions, questions, and more questions.

May 7, 1999

,

I have PSC and no other problems. Lately, PSC is enough!

WYBEAR21@... wrote:

> Hello everyone!

> I hope everyone is feeling GREAT! Okay, first question is...is there

> ANY PSC'ers out there that don't have UC, Chron's (sp?), or any other bowel

> disease? Am I the only one that has yet to get this?

> Another question...who is talking to the URSO people about the web page?

> Are they still willing to do one for us? and are they willing to sponser a

> conference for us?

> Also, anyone that doesn't have Jacquelyn's address yet...can still call

> me to get it. Jacquelyn does not want her information to be posted on the

> internet. My home phone number is . Best time to call is before

> 2pm or after 11pm. I am off Friday May 7th, so anytime is okay to call.

> Have a wonderful day everyone!!!!

> Love,

>

> ------------------------------------------------------------------------

> @Backup - The #1 Online Backup Service

> Automatic, Safe, Reliable Backup and Restores. FREE for

> 30 Days. INSTALL Now and have a chance to win a Palm Pilot V!

> http://clickhere./click/218

>

May 7, 1999

WYBEAR21@... wrote:

Okay, first question is...is there

> ANY PSC'ers out there that don't have UC, Chron's (sp?), or any other bowel

> disease? Am I the only one that has yet to get this?

As far as I know I don't have any bowel disease. I sometimes wonder,

because my digestion does act up quite a bit sometimes, but I think

that's mainly due to the PSC. I did have a sigmoidoscopy done back when

I was first diagnosed, so unless I've developed a problem since then, I

don't have any bowel disease!

athan

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May 7, 1999

I had no symptoms of crohns and the sigmoidoscopy i had showed no evidence.

When i had a colonoscopy they found evidence of crohns. I believe that i've

had a minor case all my life. I have symptoms now but my psc is much better,

i think due to carbicula, barley green,artichokes, and actigall.

>

> <html><table><tr><td><pre>

>

> WYBEAR21@... wrote:

> Okay, first question is...is there

> & gt; ANY PSC'ers out there that don't have UC, Chron's (sp?), or any

other bowel

> & gt; disease? Am I the only one that has yet to get this?

>

> As far as I know I don't have any bowel disease. I sometimes wonder,

> because my digestion does act up quite a bit sometimes, but I think

> that's mainly due to the PSC. I did have a sigmoidoscopy done back when

> I was first diagnosed, so unless I've developed a problem since then, I

> don't have any bowel disease!

>

> athan

> </pre></td></tr></table></html>

>

> <hr><center><center>

> <a target= " egnewwin " href= " http://clickhere./click/215 " >

> <img width= " 468 " height= " 60 " border= " 0 "

> src= " http://clickhere./img/000215/Hiding-468x60.gif "

> alt= " click here " ><BR>

> Click Here!

> </a>

> </center><p>

> </center>

>

May 7, 1999

, my husband has PSC and thank God as of yet he has no signs or

symptoms of inflammatory bowel diseases. His dad had colon cancer so he has

to go for a screening colonscopy soon, but so far so good. Liz

------------------------------------------------------------------------

May 7, 1999

,

I'm also one of the lucky 30% that doesn't suffer from UC or any form of

digestive disorder.

Norm

At 01:32 AM 5/7/99 EDT, you wrote:

>Hello everyone!

> I hope everyone is feeling GREAT! Okay, first question is...is there

>ANY PSC'ers out there that don't have UC, Chron's (sp?), or any other bowel

>disease? Am I the only one that has yet to get this?

> Another question...who is talking to the URSO people about the web

page?

> Are they still willing to do one for us? and are they willing to sponser a

>conference for us?

> Also, anyone that doesn't have Jacquelyn's address yet...can still call

>me to get it. Jacquelyn does not want her information to be posted on the

>internet. My home phone number is . Best time to call is

before

>2pm or after 11pm. I am off Friday May 7th, so anytime is okay to call.

>Have a wonderful day everyone!!!!

>Love,

>

>------------------------------------------------------------------------

>@Backup - The #1 Online Backup Service

>Automatic, Safe, Reliable Backup and Restores. FREE for

>30 Days. INSTALL Now and have a chance to win a Palm Pilot V!

>http://clickhere./click/218

>

May 7, 1999

wow, great to hear that your surgery went so smoothly. I will be praying

that you have a full recovery!

Love,

------------------------------------------------------------------------

May 7, 1999

Hi ,

I've had a fairly extensive workup since my initial presentation last Nov,

including a full colonoscopy that was negative for UC or Crohn's. I guess in

order to fully exclude Crohn's, though, I still need a small bowel study just to

make sure. As an aside, I had my gallbladder out laparoscopically two days ago,

as a prophylactic measure against stone disease complicating my PSC. I was

blessed to have had it go smoothly enough to be discharged the evening of my

surgery, and have been able to spend the last two days recovering at home with

family, rather than in the hospital where I'd get much less rest.

Hope all's well w/you.

Caseyspa

------------------------------------------------------------------------

May 9, 1999

Caseyspa, just read your posting regarding your lap choley. My husband had

the same done just prior to his diagnosis, as he had some huge stones and a

big dilation in the cystic duct. The docs were hoping the LFT elevations

somehow connected to this, so he had the surgery done here in Staten Island,

by Dr. Ferzli, who had something to do with pioneering this procedure, or has

a patent on one of the instruments or something. How great it is to avoid an

open procedure, no drains or big incisions to deal with. I hope you are on

the mend and recover as quickly as he did. He was asking for something to

eat as soon as he woke up. Best wishes for a speedy recovery! Liz

------------------------------------------------------------------------

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