Re: New here

[Guest guest]

Hi Charnel,

I live in SW Washington and Dr. Wehby did my 12 yr old daughters surgery 3

weeks ago. She is WONDERFUL and very knowledgeable about tethered cord.

She is caring, loving and respectful to her patients and parents. Her PA is

Hume who is also wonderful. Your children will receive the utmost

care from them. I also love Legacy Emanuel Children's Hospital. I have

nothing negative to say. I've met a few parents online who also have great

things to say about Dr. Wehby. Several nurses at Legacy said wonderful

things as well.

As far as the Chiari malformation, I've heard she isn't that knowledgeable,

but we haven't seen her for that *whew*. I have heard she has good

recommendations though.

When is your appt.? My daughter goes for a follow-up on Oct. 2nd.

Good luck and please keep us posted.

Connie

(Sara's mom)

[Guest guest]

Hi Joni,

I know that sense of relief! When Dr. Wehby told us about Sara's tethered

cord, Sara cried and ran out the door (8 1/2 yrs of fighting with doctors to

find out what was wrong...she doesn't like doctors now), and I cried too.

Dr. Wehby put her hand on my shoulder and said how sorry she was about the

long journey we've been through. I told her my tears were of 'relief' and

happiness because we finally found a caring doctor who understood what I've

been trying to say for years!!

Please give a hug and kiss for me!

You'll be in my thoughts and prayers, please let us know how surgery goes.

Connie

(Sara's mom)

[Guest guest]

Hi Charnel,

I am glad you found your way here. Dr. Wehby is also mentioned in a book about

a boy named Sam. (The book is not about tethered cord. It does talk about Dr.

Wehby's compassion and tenacity for her patients.)

http://www.penguin.ca/Book/BookFrame/0,1007,,00.html?id=0399149333

How soon do the girls see Dr. Wehby?

's mom

New here

I have three children my middle daughter (a 3yrs) has been

just diagnosed with tethered cord among a host of other thing and my

oldest (Machenzie 5yrs)is currently being tested for it and I am sure

she also has it. We live in Oregon outside of Portland and the girls

are scheduled to see Dr Wehby for the teathered cord. Is

anyone out there in the area and have experience with Dr Wehby. Our

pediatrition says she is one of the best in the country. Also does

anyone have experience with Dr Wehby and her stance/experience with

Chiari malformation. I have it and highly suspect that my daughters

also have it from thier symptoms and from looking at a's MRI.

Any info would be much appriciated.

Charnel

[Guest guest]

Hi ,

I didn't know about this book until now. I'm going to try

and get a copy.

Connie

(Sara's mom)

[Guest guest]

Hello there,

You'll find a lot of help here. I too was raised by my divorced BPD

nada who kept me away from my father by her clever manipulations (all

the time announcing to everyone that I was always free to do as I

pleased).

I'm reading a good book at the moment " Codependents' Guide to the 12

Steps " by Melody Beattie, which is based on the Al-Anon & Alcoholics

Anonymous 12 Step Program you mention so you're probably very familiar

with these. Main thing I'm learning (and I found this book has helped

a lot with that) is that you have to be good to yourself during this

recovery process - always be patient and gentle with yourself, and

trust that you will make it through and come out stronger. It is such

a difficult and scary time when actually coming face-to-face with

these issues. It's good to try and pamper ourselves a bit in these

hard times (as sometimes we're so used to thinking we don't deserve it!)

Good luck with everything.

>

> Hey guys,

>

> I just joined the site. I am a fairly young college student and just

> had one of those heart to heart conversations with my father about

> the real reasons why my parents divorced when I was 2. My mom has

> the characteristics of someone with BPD.

>

> I am new to all this but so much makes since from my childhood. My

> mom got custody of me from the divorce and in a nutshell kept me from

> visiting with my dad..although she always told me that I could go see

> him whenever I wanted to.

>

> There are so many new things I want to try and do to help rekindle my

> mom and my relationship. Last semester she was severly depressed and

> was threatening to harm herself. And I realized then that something

> was not right with our as she calls it " best friend " relationship.

>

> I am currently reading SWOE by Mason and Kreger and going through the

> 12 Step Plan that is used by Al-Anon as both of my parents are also

> alcoholics. I have experienced so much at such a young age.

>

> My new years goals are to be healthy and find happiness.

>

> Any suggestions yall may have about going through this long process

> of understanding these circumstances and developing a new way of

> living with a new perspective would be amazing.

>

> I think this site is so amazing...makes me feel a little more normal

> than what I have thought before. Thanks.

>

[Guest guest]

Tawny,

Thank you for the " Welcome " . I am on 120mg. of Cymbalta, supposed to

help with the pain as well as depression. I also take 1 mg. of

Klonopin at noon, I have flexeril every 4 hours prn. My nightmeds

include... 600mg of Seroquel, 2mg of Klonopin, 10 mg. flexeril, and

my hormone *Estratest HS*.

I was on Ultram for pain but the Dr. took it away saying it was

contraindicated with the cymbalta...

Needless to say that didn't help me much with the pain. It's worse

than ever. I've been struggling hard all weekend. The Cymbalta and

Klonopin are supposed to be my " pain meds " . Shrug, I have no idea.

I go see him a week from tomorrow.

I'm also having Kidney probs. I have 14 stones. Passed one a week

ago and now passing gravel as they put it. Talk about PAIN... OMG

I'd rather have 10 babies at once!!!

I'm not sure if the Cymbalta and Klonopin during the day are making

me so tired or if it's the night meds still clinging to me when I

wake up... At any rate I'm sooooooo freaking tired!!

We'll see what he says next week.

Gentle Hugs,

>

> Welcome ,

>

> We all have different problems, but we do have one thing in

> problem, " PAIN " !!!! What type of med are you taking for

depression? I

> am taking Prozac, and it works ok for me. I've tried a lot of

> different anti-depressants, and you just have to keep trying until

you

> find the right one. I have a lot of fatigue, but really don't

think

> its from the Prozac, not sure what really. I have a lot of health

> issues, so I'm pretty sure its linked to one of them. I'm sorry

about

> what you have went through, but your still here. I sometimes

wonder

> why I'm still around, but your right God has a plan for us all,

would

> like to just know. I'm glad you found the group, we all know what

you

> go through. I'm here if you ever need to chat, email me anytime,

hugs

> Tawny

>

[Guest guest]

Hi ,

Sorry your in so much pain. You might try calling your doc's office,

and see if you can't get in earlier, or they can give you something

else. How long have you been on Cymbalta? If it's like other anti-

depressant meds, it could take awhile to start working. That is a

fairly new med, so I don't know much about it, but just the commercial

on TV. Someone did tell me it's kind of expensive, so out of my

circle. I was on Ultram for a short time, it did nothing for me. He

needs to give you something that will really help you. I can't

imagine how much pain your in passing all those stones, I'm so sorry.

It seems like you should be in a hospital. If he does nothing, and

your in a lot of pain, go to the ER. You take care, and I'll be

praying for you to get some relief, hugs Tawny

[Guest guest]

Hi ,

A little clue for your PM doc or who ever told you that Cymbalta works for

" pain " . Cymbalta works for Neuropathy pain, NOT pain in general. This is from my

Psychiatrist! And he has you on the right dose to help with Neuropathy, IF you

have that, but it won't help Fibro pain, or any other kind of pain,except

Neuropathy! I get so mad at docs trying to avoid giving adequate pain meds, I

just want to scream!

Sorry , not taking this out on you, it just makes me sick, docs are such

cowards anymore and I wish more of them would get sued these days for NOT

treating pain. It is a chronic illness just like anything else. And patients

deserve to be treated for this illness, just as they are for diabetes or

anything else. Grrrrr they make me so mad!!

Ok, that feels better!

Good luck on getting pain management , I'll keep you in my prayers.

Tommie

Re: New Here

Tawny,

Thank you for the " Welcome " . I am on 120mg. of Cymbalta, supposed to

help with the pain as well as depression. I also take 1 mg. of

Klonopin at noon, I have flexeril every 4 hours prn. My nightmeds

include... 600mg of Seroquel, 2mg of Klonopin, 10 mg. flexeril, and

my hormone *Estratest HS*.

I was on Ultram for pain but the Dr. took it away saying it was

contraindicated with the cymbalta...

Needless to say that didn't help me much with the pain. It's worse

than ever. I've been struggling hard all weekend. The Cymbalta and

Klonopin are supposed to be my " pain meds " . Shrug, I have no idea.

I go see him a week from tomorrow.

I'm also having Kidney probs. I have 14 stones. Passed one a week

ago and now passing gravel as they put it. Talk about PAIN... OMG

I'd rather have 10 babies at once!!!

I'm not sure if the Cymbalta and Klonopin during the day are making

me so tired or if it's the night meds still clinging to me when I

wake up... At any rate I'm sooooooo freaking tired!!

We'll see what he says next week.

Gentle Hugs,

>

> Welcome ,

>

> We all have different problems, but we do have one thing in

> problem, " PAIN " !!!! What type of med are you taking for

depression? I

> am taking Prozac, and it works ok for me. I've tried a lot of

> different anti-depressants, and you just have to keep trying until

you

> find the right one. I have a lot of fatigue, but really don't

think

> its from the Prozac, not sure what really. I have a lot of health

> issues, so I'm pretty sure its linked to one of them. I'm sorry

about

> what you have went through, but your still here. I sometimes

wonder

> why I'm still around, but your right God has a plan for us all,

would

> like to just know. I'm glad you found the group, we all know what

you

> go through. I'm here if you ever need to chat, email me anytime,

hugs

> Tawny

>