Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 i understand your foot pain.i've had a broken bone in my foot for years i guess. i've also had plantar fascitis and tarsal tunnel. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 I am still having really bad foot pain. Saw my rheumy yesterday, he now thinks I probably have a stress fracture in my foot. He told me these are common with RA does this mean I get to have these again. I have to go for a bone scan of the foot and then he wants to see me back in 2 weeks and we will discuss what to do. Also told me I may want to start thinjking of another job. I just can't imagine not being with the kids all the time. I love my job have done in for 13 years. Oh well I will stop whining I just am a little scared of what all is going on. Thanks for letting me whine to you guys Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Hi Angie, I'm sorry about your foot pain. This is common in RA, as I found out awhile ago. Althea, has been having a time with her foot, she also has a stress fracture. I will keep you in my prayers, Tawny > > I am still having really bad foot pain. Saw my rheumy yesterday, he > now thinks I probably have a stress fracture in my foot. He told me > these are common with RA does this mean I get to have these again. > I have to go for a bone scan of the foot and then he wants to see me > back in 2 weeks and we will discuss what to do. Also told me I may > want to start thinjking of another job. I just can't imagine not > being with the kids all the time. I love my job have done in for 13 > years. Oh well I will stop whining I just am a little scared of > what all is going on. > Thanks for letting me whine to you guys > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 sorry to hear that, angie... we will pray for the best...) rae [ ] foot pain I am still having really bad foot pain. Saw my rheumy yesterday, he now thinks I probably have a stress fracture in my foot. He told me these are common with RA does this mean I get to have these again. I have to go for a bone scan of the foot and then he wants to see me back in 2 weeks and we will discuss what to do. Also told me I may want to start thinjking of another job. I just can't imagine not being with the kids all the time. I love my job have done in for 13 years. Oh well I will stop whining I just am a little scared of what all is going on. Thanks for letting me whine to you guys Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I have never heard of Biofreeze, what is that exactly and where would I get this? He cannot seem to explain the pain but says it is his whole foot not just the bottom and goes to the ankle. We currently don't have a neuro or orthotist, he is starting with a new PT in a couple weeks. I did suggest he try some foot stretches when we got home with shoes off. Definitely need to get new sneakers for him. I was also trying to cut his toenails tonight (boy were they bad) but his feet as so sensitive he does not like me touching them so clipping is quite a struggle. Would the biofreeze help with the sensitivity or it just a cooling agent? Will speak with dr next week and see what he says also. Thx lori From: [mailto: ] On Behalf Of gfijig Sent: Wednesday, August 11, 2010 8:08 PM Subject: Re: foot pain Lori, Can he describe the pain? Ask him if his feel like they are burning. Burning is a type of pain. To stop the burning, take shoes off and use some BioFreeze or any cold lotion. I've had this my whole life, I also walk on cold tiles to cool my feet, or soak in cold water and my orthotist did make the last topcover in a special material that helps. Changing shoes throughout the day can help. Massaging can help. (Your son can learn to self-massage - even with something as simple as a tennis ball). I doubt AFOs will help with foot pain, since the pain is on the bottom of the feet (I am assuming, that's where the burn starts) I also have some Spenco liners which help too. But no AFOs, because they are for footdrop. As for his shoes - they should be replaced about every 4 months - and have plenty of room in the toe and metatarsal area, while snug in the heels. There are medications that can help - but don't know if you want to go that route. Your neurologist, orthotist, phys should all work together for your son. My orthotist also has certain brands and lasts of shoes that he recommends for his clients. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Lori, I bet orthotics or AFOs would help your son a lot, esp if he is having foot pain. There are many new types of AFOs and orthotics try to find one that helps him that he will wear. My orthotist, Wade Bader, has a AFOcalled the noodle that has very little skin contact. I like it a lot. He has a couple of you tube videos of it if you are interested. He's in Tampa but will work through your local orthotist. Bob > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I have alternating hot and cold feet such that I have socks all over the house... When my feet get hot, I take them off. The pain is pretty bad. None of the medications that I have used do anything for the cold feet. Inverting your body, that is placing the feet above thew heart, preferably against a wall, so the feet can get higher. The blood is then forced out and replaced with new blood when you again put your feet on the floor. his takes a few minutes, but it usually has some effect. When they get cold, it is sometimes necessary to heat them up in water On Aug 11, 2010, at 6:11 PM, Lori Mattheiss wrote: > I have never heard of Biofreeze, what is that exactly and where would I get > this? He cannot seem to explain the pain but says it is his whole foot not > just the bottom and goes to the ankle. We currently don't have a neuro or > orthotist, he is starting with a new PT in a couple weeks. I did suggest he > try some foot stretches when we got home with shoes off. Definitely need to > get new sneakers for him. I was also trying to cut his toenails tonight (boy > were they bad) but his feet as so sensitive he does not like me touching > them so clipping is quite a struggle. Would the biofreeze help with the > sensitivity or it just a cooling agent? Will speak with dr next week and > see what he says also. > > Thx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 I would replace his shoes first. See if that helps. It always helped me as a kid. In a message dated 8/11/2010 5:12:53 P.M. Pacific Daylight Time, mattheiss137@... writes: Ok need some advice, went to the fair with my son today, he could only walk about 15-20 minutes before his feet hurt so much he had to sit down. We were really having a good time and it was a shame he just couldn't enjoy it so much. so my question is this, would AFOs help this? He only wears splints at night currently to help stretch his tendons. His current sneakers are about a year old, should we replace them possibly? We are going to the physiatrist next week so will mention this to him but was wondering what has helped other people with the foot pain. Lori [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 After foot surgery in the Spring, the surgeon told me to wear a compression stocking to reduce swelling. Almost instant relief from the nerve pain. While the sweling has gone down, I'll still put on the compression stocking if I'm going to be horizontal for any length of time. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi Lori, We had our visit with Dr. Shy and the talented staff today. Much to my surprise, (and complete dismay, it was very much agreed that it was time for Zack to be fit for AFOs. He tried the Blue Rockers like I have. After walking the halls for a good amount of time, he very strongly felt they helped him walk much easier and everyone in the staff felt it would be so much easier for Zack in school and any time he had a lot of walking to do. They said he would not need them all the time, but he would know when it was right. Maybe the same is true for son too. Dismay? Yes, it was one of those moments when a parent feels all the weight of passing on an inherited disorder to their child. The generations up to me did not know about this. I was already an uncle 4 times over before I was diagnosed, so my bro and sis did not know anything other than the " Griffiths Foot " ran in the family, but neither of them had any signs of it. So then the heavy guilt and weight of this really came crashing down on my today hearing those words. Was I narcissistic in having children? What was I thinking? I know this, my life would be nothing without my family. I guess I have to channel this more into the drive to stopping this so no more generations have this. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Wow Lori. Sounds just like Zack! His PT used to use horse hair brushes on him to try and desensitize him. Yesterday, Dr. Shy had to let him do his own pin pricks to determine his feeling because he could not tolerate Dr. Shy doing it. He rarely complains of foot pain, just fatigue. Like today. We just spent the day at the Detroit Zoo and now he is flat in bed. His little bro is aching to go to the waterpark in our hotel and he has NO interest, so we are going without him, and he is just fine with that. I on the other hand, know exactly what your son means about the whole foot hurting. I often wake up in the morning and the bottom of my foot feels like I was on them all night, but other than that, it is like every joint, muscle and bone in my feet ache. I have found little to help but get off them and elevate. Mark > > I have never heard of Biofreeze, what is that exactly and where would I get > this? He cannot seem to explain the pain but says it is his whole foot not > just the bottom and goes to the ankle. We currently don't have a neuro or > orthotist, he is starting with a new PT in a couple weeks. I did suggest he > try some foot stretches when we got home with shoes off. Definitely need to > get new sneakers for him. I was also trying to cut his toenails tonight (boy > were they bad) but his feet as so sensitive he does not like me touching > them so clipping is quite a struggle. Would the biofreeze help with the > sensitivity or it just a cooling agent? Will speak with dr next week and > see what he says also. > > > > Thx > > lori > > > > From: [mailto: ] On Behalf Of > gfijig > Sent: Wednesday, August 11, 2010 8:08 PM > > Subject: Re: foot pain > > > > > > Lori, > > Can he describe the pain? Ask him if his feel like they are burning. Burning > is a type of pain. To stop the burning, take shoes off and use some > BioFreeze or any cold lotion. I've had this my whole life, I also walk on > cold tiles to cool my feet, or soak in cold water and my orthotist did make > the last topcover in a special material that helps. > > Changing shoes throughout the day can help. Massaging can help. (Your son > can learn to self-massage - even with something as simple as a tennis ball). > I doubt AFOs will help with foot pain, since the pain is on the bottom of > the feet (I am assuming, that's where the burn starts) I also have some > Spenco liners which help too. But no AFOs, because they are for footdrop. > > As for his shoes - they should be replaced about every 4 months - and have > plenty of room in the toe and metatarsal area, while snug in the heels. > > There are medications that can help - but don't know if you want to go that > route. Your neurologist, orthotist, phys should all work together for your > son. My orthotist also has certain brands and lasts of shoes that he > recommends for his clients. > > Gretchen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2010 Report Share Posted August 15, 2010 Hi Lori, What a time we had trying to get Zack out of bed today! He was in tremendous pain all night, all over - back, hips, legs... Could not get comfortable in bed, on the floor... I woke up and he was curled up in a chair with his pillow. Thursday was our day at WSU, then we spent the day walking the Detroit Zoo... I guess it was just too much. We tried to get him up for breakfast and a ride to his Grandparent's old neighborhood and some other errands, and finally gave up. He is 16 and his cousins were still here at the hotel, so the other 3 of us headed out and did most of what we wanted, and then got him in time to go to a bbq at my sister-in-law's house. Funny thing is, we were thinking of stopping at one of our favorite places in Lancaster on the way home on Monday! That is GREAT news about the diner near you. Good luck! One of our other members is working on something that might be big news for another regional chain on the same night. Keep your fingers crossed! Mark > > Thanks Mark, > > Going to dr diamond, our physiatrist next Monday. will ask him > about it. Have to think hard about the trip to Detroit or we are considering going to CHOP possibly instead. cannot stand all these dr's and therapies etc so we try and keep it to a minimum. He qualified for a study at CHOP but refuses to do it. We are heading for Lancaster tomorrow morning (lots of walking around) and of course he has been in so much pain these last few days. Put new inserts into his shoes but going to get him new sneakers tonight (fingers crossed) that will help. > > On an aside, I am waiting to hear back from local diner about sept 21st, have to stop back in I guess and looking into a partylite fundraiser where CMTA would get 50% of everything sold. > > Lori > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 I'm feeling real bad for your son.. Geri Hi Lori, What a time we had trying to get Zack out of bed today! He was in tremendous pain all night, all over - back, hips, legs... Could not get comfortable in bed, on the floor... I woke up and he was curled up in a chair with his pillow. Thursday was our day at WSU, then we spent the day walking the Detroit Zoo... I guess it was just too much. We tried to get him up for breakfast and a ride to his Grandparent's old neighborhood and some other errands, and finally gave up. He is 16 and his cousins were still here at the hotel, so the other 3 of us headed out and did most of what we wanted, and then got him in time to go to a bbq at my sister-in-law's house. Funny thing is, we were thinking of stopping at one of our favorite places in Lancaster on the way home on Monday! That is GREAT news about the diner near you. Good luck! One of our other members is working on something that might be big news for another regional chain on the same night. Keep your fingers crossed! Mark > > Thanks Mark, > > Going to dr diamond, our physiatrist next Monday. will ask him > about it. Have to think hard about the trip to Detroit or we are considering going to CHOP possibly instead. cannot stand all these dr's and therapies etc so we try and keep it to a minimum. He qualified for a study at CHOP but refuses to do it. We are heading for Lancaster tomorrow morning (lots of walking around) and of course he has been in so much pain these last few days. Put new inserts into his shoes but going to get him new sneakers tonight (fingers crossed) that will help. > > On an aside, I am waiting to hear back from local diner about sept 21st, have to stop back in I guess and looking into a partylite fundraiser where CMTA would get 50% of everything sold. > > Lori > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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