Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 > > oh my gosh----there is so much that I could/ and want to learn from all of you, which is why I joined this list. I would love to find someone to discuss things with and really get a handle on some things for resolve. > My first visit to a Rheumatologist was when I was 32. > When I was 12 years old, I was getting off a stopped school bus and a drunk driver passed the bus at a high rate of speed and hit me. > Needless to say, the goal of the physicians at that time was to save my life, treating the obvious and life threatening injuries. > Well, because I was a child, there were numerous bone and joint injuries that were left untreated. As an adult, I am suffering terribly because of the neglect. And the Dr's repeatedly told my parents " she is young, she'll be fine. she's alive and walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at night here in PA that I would wrap one knee within the other to try to sleep. I was always active and worked from the time I was 15 but I was never athletic. Again, everytime, I would complain about a " hurt " somewhere, the Dr's back then would say, I was young and would outgrow it. > After the birth of my first child at 32, my hips really started to bother me, so my Gyn sent me to the Rheu. Various blood tests were run then and the only thing conclusive was an elevated sed rate. My son acquired ITP when he was 5 months old---- repeat of all the tests again to attempt to get answers for 's condition ----again an elevated sed rate. > So things continued---I hurt and ached more, my DH was in a car accident where he acquired a brain injury and he became the primary concern. I started to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO would do a joint manipulation or two and I would feel so much better for a while--- but the last 2 years have been absolutely terrible, from the pain stand point for me. He no longer does manipulations. > Now, my dilemma, I have 2 older brothers and an older sister, all of them suffer from some sort of joint problem. Obviously there is a genetic problem, but neither of my parents or any other distant relative have the problem. None of us see the same Drs, so we have concluded that it is caused by something that we were exposed to living next door to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) laying on the couch, very inactive and complaining to anyone who will listen. Drs tell her, she has Osteo all over and FMS. > We are all so tired of listening to her, as we all suffer the same way, but realize that getting up and moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, complains very little, but attempts to live a normal life, DRs tell him that he too has Osteo, " worn out " joints and FMS. > My other brother is a pastor, suffers alot, but never complains--that would be negative confession and in his Christian faith life, there is no room for negative confession even if it is the truth. Although, he told us about 12 years ago that tests revealed that both of his shoulder sockets were shot. > So, now there is me---being the youngest, at 50, I don't enjoy looking at them and seeing what the future has in store for me. Although I am the only one of the four that has had an RA diagnosis. You see, this is where my denial comes in----- I have denied this disease and suffered more than you know for about 3 years. Although I am the only one of the four of us with various joint nodules and all 10 fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had a terrible day yesterday---I could not stop sleeping, but I couldn't get any rest as I could not get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is far too busy for me -- that is a good thing that it is busy. I tried digest form, but I still couldn't keep up. I will try to hold on for another day or two, but I doubt that I can find the time to sit and read all of the wonderful and informative messages, as I just have too much to do. The farm , we homeschool our son and we now another teenage boy, a friend of my son's living with us. He moved in 2 weeks ago, his Mom brought him here, asked us to take him in----I can't go into any detail on this, but let's just say, the kid has done nothing wrong. He has had to change school districts, too, and he has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that I can learn from you all, since I can't keep up with all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************************\ **** ********************************************************************************\ **** *********************************************************** > This message and any attachments are solely for the intended recipient. If you are not the intended recipient, disclosure, copying, use or distribution of the information included in this message is prohibited -- Please immediately and permanently delete. > ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ************************************************************ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 > > oh my gosh----there is so much that I could/ and want to learn from all of you, which is why I joined this list. I would love to find someone to discuss things with and really get a handle on some things for resolve. > My first visit to a Rheumatologist was when I was 32. > When I was 12 years old, I was getting off a stopped school bus and a drunk driver passed the bus at a high rate of speed and hit me. > Needless to say, the goal of the physicians at that time was to save my life, treating the obvious and life threatening injuries. > Well, because I was a child, there were numerous bone and joint injuries that were left untreated. As an adult, I am suffering terribly because of the neglect. And the Dr's repeatedly told my parents " she is young, she'll be fine. she's alive and walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at night here in PA that I would wrap one knee within the other to try to sleep. I was always active and worked from the time I was 15 but I was never athletic. Again, everytime, I would complain about a " hurt " somewhere, the Dr's back then would say, I was young and would outgrow it. > After the birth of my first child at 32, my hips really started to bother me, so my Gyn sent me to the Rheu. Various blood tests were run then and the only thing conclusive was an elevated sed rate. My son acquired ITP when he was 5 months old---- repeat of all the tests again to attempt to get answers for 's condition ----again an elevated sed rate. > So things continued---I hurt and ached more, my DH was in a car accident where he acquired a brain injury and he became the primary concern. I started to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO would do a joint manipulation or two and I would feel so much better for a while--- but the last 2 years have been absolutely terrible, from the pain stand point for me. He no longer does manipulations. > Now, my dilemma, I have 2 older brothers and an older sister, all of them suffer from some sort of joint problem. Obviously there is a genetic problem, but neither of my parents or any other distant relative have the problem. None of us see the same Drs, so we have concluded that it is caused by something that we were exposed to living next door to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) laying on the couch, very inactive and complaining to anyone who will listen. Drs tell her, she has Osteo all over and FMS. > We are all so tired of listening to her, as we all suffer the same way, but realize that getting up and moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, complains very little, but attempts to live a normal life, DRs tell him that he too has Osteo, " worn out " joints and FMS. > My other brother is a pastor, suffers alot, but never complains--that would be negative confession and in his Christian faith life, there is no room for negative confession even if it is the truth. Although, he told us about 12 years ago that tests revealed that both of his shoulder sockets were shot. > So, now there is me---being the youngest, at 50, I don't enjoy looking at them and seeing what the future has in store for me. Although I am the only one of the four that has had an RA diagnosis. You see, this is where my denial comes in----- I have denied this disease and suffered more than you know for about 3 years. Although I am the only one of the four of us with various joint nodules and all 10 fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had a terrible day yesterday---I could not stop sleeping, but I couldn't get any rest as I could not get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is far too busy for me -- that is a good thing that it is busy. I tried digest form, but I still couldn't keep up. I will try to hold on for another day or two, but I doubt that I can find the time to sit and read all of the wonderful and informative messages, as I just have too much to do. The farm , we homeschool our son and we now another teenage boy, a friend of my son's living with us. He moved in 2 weeks ago, his Mom brought him here, asked us to take him in----I can't go into any detail on this, but let's just say, the kid has done nothing wrong. He has had to change school districts, too, and he has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that I can learn from you all, since I can't keep up with all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************************\ **** ********************************************************************************\ **** *********************************************************** > This message and any attachments are solely for the intended recipient. If you are not the intended recipient, disclosure, copying, use or distribution of the information included in this message is prohibited -- Please immediately and permanently delete. > ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ************************************************************ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Debbie: Welcome to the group. I am a newbie as well. I just joined the group this weekend, and am overwhelmed with the positive information and encouragement that I have been provided with by the members. All I can tell you is to post if you have questions. There's someone here that will try their best to answer. I too can't keep up with all the e- mail, but I do come on to read when I feel well enough to. This is a wonderful resource, and I know that if you hang in there, you will benefit from the knowledge and experience that the group members can provide. All the best to you... - In , " Debbie McCandless " <ryansridge@e...> wrote: > > oh my gosh----there is so much that I could/ and want to learn from all of you, which is why I joined this list. I would love to find someone to discuss things with and really get a handle on some things for resolve. > My first visit to a Rheumatologist was when I was 32. > When I was 12 years old, I was getting off a stopped school bus and a drunk driver passed the bus at a high rate of speed and hit me. > Needless to say, the goal of the physicians at that time was to save my life, treating the obvious and life threatening injuries. > Well, because I was a child, there were numerous bone and joint injuries that were left untreated. As an adult, I am suffering terribly because of the neglect. And the Dr's repeatedly told my parents " she is young, she'll be fine. she's alive and walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at night here in PA that I would wrap one knee within the other to try to sleep. I was always active and worked from the time I was 15 but I was never athletic. Again, everytime, I would complain about a " hurt " somewhere, the Dr's back then would say, I was young and would outgrow it. > After the birth of my first child at 32, my hips really started to bother me, so my Gyn sent me to the Rheu. Various blood tests were run then and the only thing conclusive was an elevated sed rate. My son acquired ITP when he was 5 months old---- repeat of all the tests again to attempt to get answers for 's condition ----again an elevated sed rate. > So things continued---I hurt and ached more, my DH was in a car accident where he acquired a brain injury and he became the primary concern. I started to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO would do a joint manipulation or two and I would feel so much better for a while--- but the last 2 years have been absolutely terrible, from the pain stand point for me. He no longer does manipulations. > Now, my dilemma, I have 2 older brothers and an older sister, all of them suffer from some sort of joint problem. Obviously there is a genetic problem, but neither of my parents or any other distant relative have the problem. None of us see the same Drs, so we have concluded that it is caused by something that we were exposed to living next door to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) laying on the couch, very inactive and complaining to anyone who will listen. Drs tell her, she has Osteo all over and FMS. > We are all so tired of listening to her, as we all suffer the same way, but realize that getting up and moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, complains very little, but attempts to live a normal life, DRs tell him that he too has Osteo, " worn out " joints and FMS. > My other brother is a pastor, suffers alot, but never complains--that would be negative confession and in his Christian faith life, there is no room for negative confession even if it is the truth. Although, he told us about 12 years ago that tests revealed that both of his shoulder sockets were shot. > So, now there is me---being the youngest, at 50, I don't enjoy looking at them and seeing what the future has in store for me. Although I am the only one of the four that has had an RA diagnosis. You see, this is where my denial comes in----- I have denied this disease and suffered more than you know for about 3 years. Although I am the only one of the four of us with various joint nodules and all 10 fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had a terrible day yesterday---I could not stop sleeping, but I couldn't get any rest as I could not get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is far too busy for me -- that is a good thing that it is busy. I tried digest form, but I still couldn't keep up. I will try to hold on for another day or two, but I doubt that I can find the time to sit and read all of the wonderful and informative messages, as I just have too much to do. The farm , we homeschool our son and we now another teenage boy, a friend of my son's living with us. He moved in 2 weeks ago, his Mom brought him here, asked us to take him in----I can't go into any detail on this, but let's just say, the kid has done nothing wrong. He has had to change school districts, too, and he has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that I can learn from you all, since I can't keep up with all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************************\ **** ********************************************************************************\ **** *********************************************************** > This message and any attachments are solely for the intended recipient. If you are not the intended recipient, disclosure, copying, use or distribution of the information included in this message is prohibited -- Please immediately and permanently delete. > ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ************************************************************ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Debbie: Welcome to the group. I am a newbie as well. I just joined the group this weekend, and am overwhelmed with the positive information and encouragement that I have been provided with by the members. All I can tell you is to post if you have questions. There's someone here that will try their best to answer. I too can't keep up with all the e- mail, but I do come on to read when I feel well enough to. This is a wonderful resource, and I know that if you hang in there, you will benefit from the knowledge and experience that the group members can provide. All the best to you... - In , " Debbie McCandless " <ryansridge@e...> wrote: > > oh my gosh----there is so much that I could/ and want to learn from all of you, which is why I joined this list. I would love to find someone to discuss things with and really get a handle on some things for resolve. > My first visit to a Rheumatologist was when I was 32. > When I was 12 years old, I was getting off a stopped school bus and a drunk driver passed the bus at a high rate of speed and hit me. > Needless to say, the goal of the physicians at that time was to save my life, treating the obvious and life threatening injuries. > Well, because I was a child, there were numerous bone and joint injuries that were left untreated. As an adult, I am suffering terribly because of the neglect. And the Dr's repeatedly told my parents " she is young, she'll be fine. she's alive and walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at night here in PA that I would wrap one knee within the other to try to sleep. I was always active and worked from the time I was 15 but I was never athletic. Again, everytime, I would complain about a " hurt " somewhere, the Dr's back then would say, I was young and would outgrow it. > After the birth of my first child at 32, my hips really started to bother me, so my Gyn sent me to the Rheu. Various blood tests were run then and the only thing conclusive was an elevated sed rate. My son acquired ITP when he was 5 months old---- repeat of all the tests again to attempt to get answers for 's condition ----again an elevated sed rate. > So things continued---I hurt and ached more, my DH was in a car accident where he acquired a brain injury and he became the primary concern. I started to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO would do a joint manipulation or two and I would feel so much better for a while--- but the last 2 years have been absolutely terrible, from the pain stand point for me. He no longer does manipulations. > Now, my dilemma, I have 2 older brothers and an older sister, all of them suffer from some sort of joint problem. Obviously there is a genetic problem, but neither of my parents or any other distant relative have the problem. None of us see the same Drs, so we have concluded that it is caused by something that we were exposed to living next door to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) laying on the couch, very inactive and complaining to anyone who will listen. Drs tell her, she has Osteo all over and FMS. > We are all so tired of listening to her, as we all suffer the same way, but realize that getting up and moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, complains very little, but attempts to live a normal life, DRs tell him that he too has Osteo, " worn out " joints and FMS. > My other brother is a pastor, suffers alot, but never complains--that would be negative confession and in his Christian faith life, there is no room for negative confession even if it is the truth. Although, he told us about 12 years ago that tests revealed that both of his shoulder sockets were shot. > So, now there is me---being the youngest, at 50, I don't enjoy looking at them and seeing what the future has in store for me. Although I am the only one of the four that has had an RA diagnosis. You see, this is where my denial comes in----- I have denied this disease and suffered more than you know for about 3 years. Although I am the only one of the four of us with various joint nodules and all 10 fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had a terrible day yesterday---I could not stop sleeping, but I couldn't get any rest as I could not get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is far too busy for me -- that is a good thing that it is busy. I tried digest form, but I still couldn't keep up. I will try to hold on for another day or two, but I doubt that I can find the time to sit and read all of the wonderful and informative messages, as I just have too much to do. The farm , we homeschool our son and we now another teenage boy, a friend of my son's living with us. He moved in 2 weeks ago, his Mom brought him here, asked us to take him in----I can't go into any detail on this, but let's just say, the kid has done nothing wrong. He has had to change school districts, too, and he has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that I can learn from you all, since I can't keep up with all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************************\ **** ********************************************************************************\ **** *********************************************************** > This message and any attachments are solely for the intended recipient. If you are not the intended recipient, disclosure, copying, use or distribution of the information included in this message is prohibited -- Please immediately and permanently delete. > ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ********************************************************************************\ **** ************************************************************ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hi Debbie: Welcome to our family of friends - this is a wonderful place for information and support. I just spent some time looking at your site - your ranch is beautiful - what views! Your place sounds a lot like ours, but we only have 2 acres. We have basically the same animals too - except for goats- horses, dogs, chickens, ducks, geese, a turkey, and a rabbit, then more birds inside the house lol. It is a lot of work, I can totally sympathize with you on that one - but isn't it just a wonderful way to live and such a joy really? I don't know what I would do without my critters. Anyway, the part in your story about growing up by an electrical power plant was intersting - wonder if that did have something to do with your problems and those of your siblings. There is a lot of talk about that sort of thing. On our little street we just recently fought off a cell phone tower placement, and our main argument was the unknown health issues posed by microwave rays emmitted by those towers. After reading about cell towers in our effort to stop the one that was going in up the street, I learned quite a lot and, frankly, it's pretty scary. I understand where you say it's hard to keep up with all the postings - sometimes I just go through and check on the headings of the posts and if it is something that I can relate to, then I read it, if not I skip it over. That way I can get through it all pretty well, but I do get on every day sometime. Yes, the Mtx also makes me very tired the next day, and sometimes gives me a headache also. Do you take Folic Acid? Also, I take the Mtx at night so that I sleep through any nausea that I might have, but the next day I am pretty wiped out. What other meds are you taking? You are right about keeping active and keeping mobile - it is the best thing. There are days I am quite the couch potato too, but the animals keep me going - they can't feed and water themselves lol. Are yours the same for you? Anyway, try to keep coming back as much as you can - there is a lot of very helpful information that comes through here, not only personal from the members, but also through medical updates provided on new meds and treatments, etc. Hang in there - Kathe in CA --- Debbie McCandless <ryansridge@...> wrote: > > oh my gosh----there is so much that I could/ and > want to learn from all of you, which is why I joined > this list. I would love to find someone to discuss > things with and really get a handle on some things > for resolve. > My first visit to a Rheumatologist was when I was > 32. > When I was 12 years old, I was getting off a stopped > school bus and a drunk driver passed the bus at a > high rate of speed and hit me. > Needless to say, the goal of the physicians at that > time was to save my life, treating the obvious and > life threatening injuries. > Well, because I was a child, there were numerous > bone and joint injuries that were left untreated. As > an adult, I am suffering terribly because of the > neglect. And the Dr's repeatedly told my parents " > she is young, she'll be fine. she's alive and > walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at > night here in PA that I would wrap one knee within > the other to try to sleep. I was always active and > worked from the time I was 15 but I was never > athletic. Again, everytime, I would complain about a > " hurt " somewhere, the Dr's back then would say, I > was young and would outgrow it. > After the birth of my first child at 32, my hips > really started to bother me, so my Gyn sent me to > the Rheu. Various blood tests were run then and the > only thing conclusive was an elevated sed rate. My > son acquired ITP when he was 5 months old---- > repeat of all the tests again to attempt to get > answers for 's condition ----again an elevated > sed rate. > So things continued---I hurt and ached more, my DH > was in a car accident where he acquired a brain > injury and he became the primary concern. I started > to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO > would do a joint manipulation or two and I would > feel so much better for a while---but the last 2 > years have been absolutely terrible, from the pain > stand point for me. He no longer does manipulations. > > Now, my dilemma, I have 2 older brothers and an > older sister, all of them suffer from some sort of > joint problem. Obviously there is a genetic problem, > but neither of my parents or any other distant > relative have the problem. None of us see the same > Drs, so we have concluded that it is caused by > something that we were exposed to living next door > to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) > laying on the couch, very inactive and complaining > to anyone who will listen. Drs tell her, she has > Osteo all over and FMS. > We are all so tired of listening to her, as we all > suffer the same way, but realize that getting up and > moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, > complains very little, but attempts to live a normal > life, DRs tell him that he too has Osteo, " worn out " > joints and FMS. > My other brother is a pastor, suffers alot, but > never complains--that would be negative confession > and in his Christian faith life, there is no room > for negative confession even if it is the truth. > Although, he told us about 12 years ago that tests > revealed that both of his shoulder sockets were > shot. > So, now there is me---being the youngest, at 50, I > don't enjoy looking at them and seeing what the > future has in store for me. Although I am the only > one of the four that has had an RA diagnosis. You > see, this is where my denial comes in----- I have > denied this disease and suffered more than you know > for about 3 years. Although I am the only one of the > four of us with various joint nodules and all 10 > fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had > a terrible day yesterday---I could not stop > sleeping, but I couldn't get any rest as I could not > get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is > far too busy for me --that is a good thing that it > is busy. I tried digest form, but I still couldn't > keep up. I will try to hold on for another day or > two, but I doubt that I can find the time to sit and > read all of the wonderful and informative messages, > as I just have too much to do. The farm , we > homeschool our son and we now another teenage boy, a > friend of my son's living with us. He moved in 2 > weeks ago, his Mom brought him here, asked us to > take him in----I can't go into any detail on this, > but let's just say, the kid has done nothing wrong. > He has had to change school districts, too, and he > has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that > I can learn from you all, since I can't keep up with > all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************************\ ********************************************************************************\ ******************************************************************* > This message and any attachments are solely for the > intended recipient. If you are not the intended > recipient, disclosure, copying, use or distribution > of the information included in this message is > prohibited -- Please immediately and permanently > delete. > ********************************************************************************\ ********************************************************************************\ ********************************************************************************\ ********************************************************************************\ **************************************************************************** > > > > [Non-text portions of this message have been > removed] > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Hi Debbie: Welcome to our family of friends - this is a wonderful place for information and support. I just spent some time looking at your site - your ranch is beautiful - what views! Your place sounds a lot like ours, but we only have 2 acres. We have basically the same animals too - except for goats- horses, dogs, chickens, ducks, geese, a turkey, and a rabbit, then more birds inside the house lol. It is a lot of work, I can totally sympathize with you on that one - but isn't it just a wonderful way to live and such a joy really? I don't know what I would do without my critters. Anyway, the part in your story about growing up by an electrical power plant was intersting - wonder if that did have something to do with your problems and those of your siblings. There is a lot of talk about that sort of thing. On our little street we just recently fought off a cell phone tower placement, and our main argument was the unknown health issues posed by microwave rays emmitted by those towers. After reading about cell towers in our effort to stop the one that was going in up the street, I learned quite a lot and, frankly, it's pretty scary. I understand where you say it's hard to keep up with all the postings - sometimes I just go through and check on the headings of the posts and if it is something that I can relate to, then I read it, if not I skip it over. That way I can get through it all pretty well, but I do get on every day sometime. Yes, the Mtx also makes me very tired the next day, and sometimes gives me a headache also. Do you take Folic Acid? Also, I take the Mtx at night so that I sleep through any nausea that I might have, but the next day I am pretty wiped out. What other meds are you taking? You are right about keeping active and keeping mobile - it is the best thing. There are days I am quite the couch potato too, but the animals keep me going - they can't feed and water themselves lol. Are yours the same for you? Anyway, try to keep coming back as much as you can - there is a lot of very helpful information that comes through here, not only personal from the members, but also through medical updates provided on new meds and treatments, etc. Hang in there - Kathe in CA --- Debbie McCandless <ryansridge@...> wrote: > > oh my gosh----there is so much that I could/ and > want to learn from all of you, which is why I joined > this list. I would love to find someone to discuss > things with and really get a handle on some things > for resolve. > My first visit to a Rheumatologist was when I was > 32. > When I was 12 years old, I was getting off a stopped > school bus and a drunk driver passed the bus at a > high rate of speed and hit me. > Needless to say, the goal of the physicians at that > time was to save my life, treating the obvious and > life threatening injuries. > Well, because I was a child, there were numerous > bone and joint injuries that were left untreated. As > an adult, I am suffering terribly because of the > neglect. And the Dr's repeatedly told my parents " > she is young, she'll be fine. she's alive and > walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at > night here in PA that I would wrap one knee within > the other to try to sleep. I was always active and > worked from the time I was 15 but I was never > athletic. Again, everytime, I would complain about a > " hurt " somewhere, the Dr's back then would say, I > was young and would outgrow it. > After the birth of my first child at 32, my hips > really started to bother me, so my Gyn sent me to > the Rheu. Various blood tests were run then and the > only thing conclusive was an elevated sed rate. My > son acquired ITP when he was 5 months old---- > repeat of all the tests again to attempt to get > answers for 's condition ----again an elevated > sed rate. > So things continued---I hurt and ached more, my DH > was in a car accident where he acquired a brain > injury and he became the primary concern. I started > to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO > would do a joint manipulation or two and I would > feel so much better for a while---but the last 2 > years have been absolutely terrible, from the pain > stand point for me. He no longer does manipulations. > > Now, my dilemma, I have 2 older brothers and an > older sister, all of them suffer from some sort of > joint problem. Obviously there is a genetic problem, > but neither of my parents or any other distant > relative have the problem. None of us see the same > Drs, so we have concluded that it is caused by > something that we were exposed to living next door > to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) > laying on the couch, very inactive and complaining > to anyone who will listen. Drs tell her, she has > Osteo all over and FMS. > We are all so tired of listening to her, as we all > suffer the same way, but realize that getting up and > moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, > complains very little, but attempts to live a normal > life, DRs tell him that he too has Osteo, " worn out " > joints and FMS. > My other brother is a pastor, suffers alot, but > never complains--that would be negative confession > and in his Christian faith life, there is no room > for negative confession even if it is the truth. > Although, he told us about 12 years ago that tests > revealed that both of his shoulder sockets were > shot. > So, now there is me---being the youngest, at 50, I > don't enjoy looking at them and seeing what the > future has in store for me. Although I am the only > one of the four that has had an RA diagnosis. You > see, this is where my denial comes in----- I have > denied this disease and suffered more than you know > for about 3 years. Although I am the only one of the > four of us with various joint nodules and all 10 > fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had > a terrible day yesterday---I could not stop > sleeping, but I couldn't get any rest as I could not > get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is > far too busy for me --that is a good thing that it > is busy. I tried digest form, but I still couldn't > keep up. I will try to hold on for another day or > two, but I doubt that I can find the time to sit and > read all of the wonderful and informative messages, > as I just have too much to do. The farm , we > homeschool our son and we now another teenage boy, a > friend of my son's living with us. He moved in 2 > weeks ago, his Mom brought him here, asked us to > take him in----I can't go into any detail on this, > but let's just say, the kid has done nothing wrong. > He has had to change school districts, too, and he > has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that > I can learn from you all, since I can't keep up with > all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************************\ ********************************************************************************\ ******************************************************************* > This message and any attachments are solely for the > intended recipient. If you are not the intended > recipient, disclosure, copying, use or distribution > of the information included in this message is > prohibited -- Please immediately and permanently > delete. > ********************************************************************************\ ********************************************************************************\ ********************************************************************************\ ********************************************************************************\ **************************************************************************** > > > > [Non-text portions of this message have been > removed] > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Debbie, I've been on the list for a long time but circumstances make it very difficult for me to keep up too, even in digest. At the bottom of the emails (very bottom of digest emails)there is an option to " visit your group on the web " . When you go there (and a or please send Debbie instructions for establishing a password and anything else she might need to you.........my memory has failed me on this) you can scan through the topics, go to your email and look at the replys, or just look for what might interest you and read only those emails. It is a fast way to find what is most important to you. You can also do searches for various topics, although so often the topic changes but not the subject that this isn't always the best way......but I don't want to undermine it, you can still find a lot of what you might want this way. When I'm in a rush but want to either follow a particular email and its replies or want to just scan topics I go to the web site. I find it so much easier to keep up with what's most important to me. and a also put something in their subject line when they are sharing research, news, etc. to let you know that's what it is. You can look for their preface, then at the title to see if that might be applicable or of particular interest to you. They post a tremendous amount of very valuable information. If you have a particular topic you want researched they are also wonderful at doing that. Much of their research is the result of questions posed by members of this group, along with whatever they find that is new, informative and useful to our members. They are No. 1 in my book! I'm so sorry for your many challenges. It can be terribly frustrating and overwhelming dealing with so much. I do hope you will find a way to stay with us. Please give a try to going to the website and see if that might help you to find only what you are looking for and skip through what you don't have time for. Then when you just might have a little spare time you can browse your digest. I hope we can be of help to you. Please try to stick it out as this group is full of good information and support. Elaine from Vegas > > oh my gosh----there is so much that I could/ and want to learn from all of you, which is why I joined this list. I would love to find someone to discuss things with and really get a handle on some things for resolve. > My first visit to a Rheumatologist was when I was 32. > When I was 12 years old, I was getting off a stopped school bus and a drunk driver passed the bus at a high rate of speed and hit me. > Needless to say, the goal of the physicians at that time was to save my life, treating the obvious and life threatening injuries. > Well, because I was a child, there were numerous bone and joint injuries that were left untreated. As an adult, I am suffering terribly because of the neglect. And the Dr's repeatedly told my parents " she is young, she'll be fine. she's alive and walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at night here in PA that I would wrap one knee within the other to try to sleep. I was always active and worked from the time I was 15 but I was never athletic. Again, everytime, I would complain about a " hurt " somewhere, the Dr's back then would say, I was young and would outgrow it. > After the birth of my first child at 32, my hips really started to bother me, so my Gyn sent me to the Rheu. Various blood tests were run then and the only thing conclusive was an elevated sed rate. My son acquired ITP when he was 5 months old---- repeat of all the tests again to attempt to get answers for 's condition ----again an elevated sed rate. > So things continued---I hurt and ached more, my DH was in a car accident where he acquired a brain injury and he became the primary concern. I started to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO would do a joint manipulation or two and I would feel so much better for a while- --but the last 2 years have been absolutely terrible, from the pain stand point for me. He no longer does manipulations. > Now, my dilemma, I have 2 older brothers and an older sister, all of them suffer from some sort of joint problem. Obviously there is a genetic problem, but neither of my parents or any other distant relative have the problem. None of us see the same Drs, so we have concluded that it is caused by something that we were exposed to living next door to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) laying on the couch, very inactive and complaining to anyone who will listen. Drs tell her, she has Osteo all over and FMS. > We are all so tired of listening to her, as we all suffer the same way, but realize that getting up and moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, complains very little, but attempts to live a normal life, DRs tell him that he too has Osteo, " worn out " joints and FMS. > My other brother is a pastor, suffers alot, but never complains-- that would be negative confession and in his Christian faith life, there is no room for negative confession even if it is the truth. Although, he told us about 12 years ago that tests revealed that both of his shoulder sockets were shot. > So, now there is me---being the youngest, at 50, I don't enjoy looking at them and seeing what the future has in store for me. Although I am the only one of the four that has had an RA diagnosis. You see, this is where my denial comes in----- I have denied this disease and suffered more than you know for about 3 years. Although I am the only one of the four of us with various joint nodules and all 10 fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had a terrible day yesterday---I could not stop sleeping, but I couldn't get any rest as I could not get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is far too busy for me --that is a good thing that it is busy. I tried digest form, but I still couldn't keep up. I will try to hold on for another day or two, but I doubt that I can find the time to sit and read all of the wonderful and informative messages, as I just have too much to do. The farm , we homeschool our son and we now another teenage boy, a friend of my son's living with us. He moved in 2 weeks ago, his Mom brought him here, asked us to take him in----I can't go into any detail on this, but let's just say, the kid has done nothing wrong. He has had to change school districts, too, and he has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that I can learn from you all, since I can't keep up with all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************** ********************************************************************** ********************************************************************** ***************** > This message and any attachments are solely for the intended recipient. If you are not the intended recipient, disclosure, copying, use or distribution of the information included in this message is prohibited -- Please immediately and permanently delete. > ********************************************************************** ********************************************************************** ********************************************************************** ********************************************************************** ********************************************************************** ********************************************** > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Debbie, I've been on the list for a long time but circumstances make it very difficult for me to keep up too, even in digest. At the bottom of the emails (very bottom of digest emails)there is an option to " visit your group on the web " . When you go there (and a or please send Debbie instructions for establishing a password and anything else she might need to you.........my memory has failed me on this) you can scan through the topics, go to your email and look at the replys, or just look for what might interest you and read only those emails. It is a fast way to find what is most important to you. You can also do searches for various topics, although so often the topic changes but not the subject that this isn't always the best way......but I don't want to undermine it, you can still find a lot of what you might want this way. When I'm in a rush but want to either follow a particular email and its replies or want to just scan topics I go to the web site. I find it so much easier to keep up with what's most important to me. and a also put something in their subject line when they are sharing research, news, etc. to let you know that's what it is. You can look for their preface, then at the title to see if that might be applicable or of particular interest to you. They post a tremendous amount of very valuable information. If you have a particular topic you want researched they are also wonderful at doing that. Much of their research is the result of questions posed by members of this group, along with whatever they find that is new, informative and useful to our members. They are No. 1 in my book! I'm so sorry for your many challenges. It can be terribly frustrating and overwhelming dealing with so much. I do hope you will find a way to stay with us. Please give a try to going to the website and see if that might help you to find only what you are looking for and skip through what you don't have time for. Then when you just might have a little spare time you can browse your digest. I hope we can be of help to you. Please try to stick it out as this group is full of good information and support. Elaine from Vegas > > oh my gosh----there is so much that I could/ and want to learn from all of you, which is why I joined this list. I would love to find someone to discuss things with and really get a handle on some things for resolve. > My first visit to a Rheumatologist was when I was 32. > When I was 12 years old, I was getting off a stopped school bus and a drunk driver passed the bus at a high rate of speed and hit me. > Needless to say, the goal of the physicians at that time was to save my life, treating the obvious and life threatening injuries. > Well, because I was a child, there were numerous bone and joint injuries that were left untreated. As an adult, I am suffering terribly because of the neglect. And the Dr's repeatedly told my parents " she is young, she'll be fine. she's alive and walking and talking isn't she " ? > I remember at 16, my knees would hurt so bad at night here in PA that I would wrap one knee within the other to try to sleep. I was always active and worked from the time I was 15 but I was never athletic. Again, everytime, I would complain about a " hurt " somewhere, the Dr's back then would say, I was young and would outgrow it. > After the birth of my first child at 32, my hips really started to bother me, so my Gyn sent me to the Rheu. Various blood tests were run then and the only thing conclusive was an elevated sed rate. My son acquired ITP when he was 5 months old---- repeat of all the tests again to attempt to get answers for 's condition ----again an elevated sed rate. > So things continued---I hurt and ached more, my DH was in a car accident where he acquired a brain injury and he became the primary concern. I started to really fall apart in 98-- > and now I have no health insurance and still do not. > I see a DO rather than an MD because my wonderful DO would do a joint manipulation or two and I would feel so much better for a while- --but the last 2 years have been absolutely terrible, from the pain stand point for me. He no longer does manipulations. > Now, my dilemma, I have 2 older brothers and an older sister, all of them suffer from some sort of joint problem. Obviously there is a genetic problem, but neither of my parents or any other distant relative have the problem. None of us see the same Drs, so we have concluded that it is caused by something that we were exposed to living next door to a rather large electric power plant growing up. > Now, my older sister spends most of her days (life) laying on the couch, very inactive and complaining to anyone who will listen. Drs tell her, she has Osteo all over and FMS. > We are all so tired of listening to her, as we all suffer the same way, but realize that getting up and moving is the only solution and she won't get up. > One older brother takes far too much pain meds IMHO, complains very little, but attempts to live a normal life, DRs tell him that he too has Osteo, " worn out " joints and FMS. > My other brother is a pastor, suffers alot, but never complains-- that would be negative confession and in his Christian faith life, there is no room for negative confession even if it is the truth. Although, he told us about 12 years ago that tests revealed that both of his shoulder sockets were shot. > So, now there is me---being the youngest, at 50, I don't enjoy looking at them and seeing what the future has in store for me. Although I am the only one of the four that has had an RA diagnosis. You see, this is where my denial comes in----- I have denied this disease and suffered more than you know for about 3 years. Although I am the only one of the four of us with various joint nodules and all 10 fingers are terribly disfigured. > The Methotrexate, I took my 3rd dose on Sat and had a terrible day yesterday---I could not stop sleeping, but I couldn't get any rest as I could not get comfortable to sleep-- major case of fatigue. > I would love to stick around here, but this list is far too busy for me --that is a good thing that it is busy. I tried digest form, but I still couldn't keep up. I will try to hold on for another day or two, but I doubt that I can find the time to sit and read all of the wonderful and informative messages, as I just have too much to do. The farm , we homeschool our son and we now another teenage boy, a friend of my son's living with us. He moved in 2 weeks ago, his Mom brought him here, asked us to take him in----I can't go into any detail on this, but let's just say, the kid has done nothing wrong. He has had to change school districts, too, and he has a major life changing situation to deal with. > Maybe there is a way some of you might suggest that I can learn from you all, since I can't keep up with all the mail. > Have a great day-- > > > Debbie McCandless > 's Ridge LaManchas > Titusville, PA > www.ryansridge.com > ********************************************************************** ********************************************************************** ********************************************************************** ***************** > This message and any attachments are solely for the intended recipient. If you are not the intended recipient, disclosure, copying, use or distribution of the information included in this message is prohibited -- Please immediately and permanently delete. > ********************************************************************** ********************************************************************** ********************************************************************** ********************************************************************** ********************************************************************** ********************************************** > > > > Quote Link to comment Share on other sites More sharing options...
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