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Welcome, Jim.

yoma@... wrote:

> Would like to join PSC support group...

>

> Jim Heitkemper

> yoma@...

>

> ------------------------------------------------------------------------

> Try our 6 NEW games! Download our FREE Software!

> Join for REAL & get a FREE $20 CHIP!

> http://clickhere./click/414

>

> eGroups.com home: /group/

> - Simplifying group communications

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eGroups.com home: /group/

- Simplifying group communications

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  • 2 months later...

Hi Jim & Kathy,

Thanks for your information. We have a lot of similarities. Phil (56) has

Kaiser doctors and will be transplanted at UCLA. We are working toward

getting listed. We had a little setback because they thought they saw a

blood clot when they were doing the CT scan in preparation to list him.

They did a couple of other tests and have determined that he doesn't have a

clot. So we will proceed with meeting with the social worker and

coordinator. Phil was dx on Dec. 28, 1998 and had a bout of cholangitis

each of the 4 months after dx but has been infection free for 5 months now.

He takes many of the same meds and supplements as Jim. Does Jim have UC?

Peg, wife of Phil (56) UC 30 yrs, dx PSC 12/98 - working on getting listed.

yoma@... wrote:

> We would like to share some of the things that we have found

> helpful over the past eight years.

>

> Jim (56) was diagnosed with PSC in 1991. He was placed on

> the liver transplant list on June 8, 1999 at Oregon Health

> Sciences University. His Kaiser primary care physician and

> his GI doctor have been great. (RX's include: Actigal;

> Vitamin K and Fosamax-that's for low bone density -

> indirectly related to PSC). He has also worked extensively

> with a naturopathic MD. (His supplements include: Silymarin

> (Milk Thistle - good studies on this from OHSU); Vitamin C;

> Calcium Magnesium, Vitamin E; Multiple Vitamin; Zinc).

> While always health conscious, he made significant dietary

> changes. Through trial and error he has discovered foods

> that 'irritate' his system (i.e., make him itch). He agrees

> with the information provided in the book " Eat Right Four

> Your Type " by Dr. J. D'Adamo. He has also found good

> information from The American Liver Foundation. Whenever

> there has been a conference that they have sponsored, Jim

> has ordered copies of tapes. They've had some good info. A

> very good personal PSC transplant site is:

> http://ourworld.compuserve.com/homepages/drbingo/LIVER.

> It's graphic, but excellent. There is also a good PBC site

> - http://hometown.aol.com/pbcers.

>

> Hope you'll find a new bit of information tucked in here

> somewhere.

>

> Kathy & Jim

>

> ------------------------------------------------------------------------

> MyPoints-Free Rewards When You're Online.

> Start with up to 150 Points for joining!

> http://clickhere./click/805

>

> eGroups.com home: /group/

> - Simplifying group communications

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  • 4 years later...
  • 9 months later...

Daphne

The trouble is the book ain't always right. Also,

one person is allergic to a given herb and you

are not. A given person will have a bad reaction

to supplement " X " at a certain level, yet you

can take 5 times as much without a problem. And

on, and on.

Szpak

> Well, I thought I HAD done the research! But reading scientific

materials

> isn't my best area so I do appreciate being able to check things

out with the

> gang here before I go on! Take it easy on me, my friends! :)

Daphne

>

>

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  • 2 years later...
Guest guest

This poem has brought me some tears. My dad passed away in 2005 and

for some reason, unknown to me, I just picture seeing him again when

I am in serious trouble. I remember all my life my dad telling me "

you don't get scared until I get scared " . I don't think I ever saw my

dad scared of anything though.

Beth

Md

>

>

> A drunk man in an Oldsmobile

> They said had run the light

> That caused the six-car pileup

> On 109 that night.

> When broken bodies lay about

> " And blood was everywhere, "

> " The sirens screamed out eulogies,

> For death was in the air.

> " A mother, trapped inside her car, "

> Was heard above the noise;

> Her plaintive plea near split the air:

> " Oh, God, please spare my boys! "

> She fought to loose her pinned hands;

> " She struggled to get free, "

> But mangled metal held her fast

> In grim captivity.

> Her frightened eyes then focused

> " On where the back seat once had been, "

> But all she saw was broken glass and

> Two children's seats crushed in.

> Her twins were nowhere to be seen;

> " She did not hear them cry, "

> " And then she prayed they'd been thrown free, "

> " Oh, God, don't let them die! "

> Then firemen came and cut her loose, "

> " But when they searched the back, "

> " They found therein no little boys, "

> But the seat belts were intact.

> They thought the woman had gone mad

> " And was traveling alone, "

> " But when they turned to question her, "

> They discovered she was gone.

> Policemen saw her running wild

> And screaming above the noise

> " In beseeching supplication, "

> Please help me find my boys!

> They're four years old and wear blue shirts;

> " Their jeans are blue to match. " "

> " One cop spoke up, " " They're in my car, "

> And they don't have a scratch.

> They said their daddy put them there

> " And gave them each a cone, "

> Then told them both to wait for Mom

> To come and take them home.

> " I've searched the area high an d low, "

> But I can't find their dad.

> " He must have fled the scene, "

> " I guess, and that is very bad. "

> " The mother hugged the twins and said, "

> " While wiping at a tear, "

> " He could not flee the scene, you see, "

> " For he's been dead a year. "

> " The cop just looked confused and asked, "

> " Now, how can that be true? "

> " The boys said, " " Mommy, Daddy came "

> " And left a kiss for you. " " "

> He told us not to worry

> " And that you would be all right, "

> And then he put us in this car with

> " The pretty, flashing light. "

> " We wanted him to stay with us, "

> " Because we miss him so, "

> " But Mommy, he just hugged us tight "

> And said he had to go.

> He said someday we'd understand

> " And told us not to fuss, "

> " And he said to tell you, Mommy, "

> " He's watching over us. "

> The mother knew without a doubt

> " That what they spoke was true, "

> " For she recalled their dad's last words, "

> " I will watch over you. "

> The firemen's notes could not explain

> " The twisted, mangled car, "

> And how the three of them escaped

> Without a single scar.

> " But on the cop's report was scribed, "

> " In print so very fine, "

> An angel walked the beat tonight on Highway 109.

>

> " The 7 Second Prayer, Just repeat this phrase and see how God

moves.

> " Lord, I love you and I need you, come into my heart, and bless my

> family, my home, my friends, and me. Amen. "

> Pass this message to 7 people {EXCEPT YOU AND ME}.

> You will receive a miracle tomorrow.

> He who has a thousand friends has not a friend to spare.

> This morning when the Lord opened a window to Heaven, He saw me,

and

> He asked: " My child, what is your greatest wish for today? " I

responded:

> " Lord please, take care of the person

> who is reading this message, their family and their special

friends.

> They deserve it and I love them very much.

> " The love of God is like the ocean, you can see its beginning,

> but not its end.This message works on the day you receive it.

> Let us see if it is true.

> ANGELS EXIST but some times, since they don't all have wings, we

call them

> FRIENDS.

> Pass this on to your true friends.

> Something good will happen to you at 11:11 in the evening;

something that you

> have been waiting to hear.

> Do not break this prayer; send it to a minimum of 5 friends

> If any of you needs wisdom, you should ask God for it.

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

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  • 4 years later...

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