Can't get this flare under control

[Guest guest]

Remicade is good stuff. You can flare on anything- IMHO- but it certainly

lessens the flares. I have not heard of anyone " outgrowing " the drug- lesser

effect. I do know,unfortunately, that not having an allergic reaction to the

drug does not assure you will never have an allergic reaction. My rheumatologist

monitors my response to the drug between infusions. My biggest problem with it

has been getting the infusion started. I have small deep veins. It has helped my

hands and shoulders tremendously but my ankles and the various joints in my feet

are still pretty miserable. I have been flaring the past few days- I think

weather related. Hope that helps.

Hugs, )in MIch.)

-------------- Original message ----------------------

From: " inwestcliffe " <inwestcliffe@...>

>

>

> Oh boy it's been a difficult couple of weeks for me. The predisone

> burst worked while I was at 10 mg but now back to 5 and flaring again.

> The good news is I go for rhemicade infusion today (rhemy bumped it up

> a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

> some relief! Has anyone here flared on rhemicade and then gotten back

> on track or is this another worn out med. I've been on it a year with

> very good results till now.

> janc

>

>

>

>

>

>

>

[Guest guest]

Remicade is good stuff. You can flare on anything- IMHO- but it certainly

lessens the flares. I have not heard of anyone " outgrowing " the drug- lesser

effect. I do know,unfortunately, that not having an allergic reaction to the

drug does not assure you will never have an allergic reaction. My rheumatologist

monitors my response to the drug between infusions. My biggest problem with it

has been getting the infusion started. I have small deep veins. It has helped my

hands and shoulders tremendously but my ankles and the various joints in my feet

are still pretty miserable. I have been flaring the past few days- I think

weather related. Hope that helps.

Hugs, )in MIch.)

-------------- Original message ----------------------

From: " inwestcliffe " <inwestcliffe@...>

>

>

> Oh boy it's been a difficult couple of weeks for me. The predisone

> burst worked while I was at 10 mg but now back to 5 and flaring again.

> The good news is I go for rhemicade infusion today (rhemy bumped it up

> a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

> some relief! Has anyone here flared on rhemicade and then gotten back

> on track or is this another worn out med. I've been on it a year with

> very good results till now.

> janc

>

>

>

>

>

>

>

[Guest guest]

Thanks that's good to hear. How long have you been on it and

often do you take it?

Janc

> Remicade is good stuff. You can flare on anything- IMHO- but it

certainly lessens the flares. I have not heard of anyone " outgrowing "

the drug- lesser effect. I do know,unfortunately, that not having an

allergic reaction to the drug does not assure you will never have an

allergic reaction. My rheumatologist monitors my response to the drug

between infusions. My biggest problem with it has been getting the

infusion started. I have small deep veins. It has helped my hands and

shoulders tremendously but my ankles and the various joints in my feet

are still pretty miserable. I have been flaring the past few days- I

think weather related. Hope that helps.

>

> Hugs, )in MIch.)

> -------------- Original message ----------------------

> From: " inwestcliffe " <inwestcliffe@y...>

> >

> >

> > Oh boy it's been a difficult couple of weeks for me. The predisone

> > burst worked while I was at 10 mg but now back to 5 and flaring again.

> > The good news is I go for rhemicade infusion today (rhemy bumped it up

> > a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

> > some relief! Has anyone here flared on rhemicade and then gotten back

> > on track or is this another worn out med. I've been on it a year with

> > very good results till now.

> > janc

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks that's good to hear. How long have you been on it and

often do you take it?

Janc

> Remicade is good stuff. You can flare on anything- IMHO- but it

certainly lessens the flares. I have not heard of anyone " outgrowing "

the drug- lesser effect. I do know,unfortunately, that not having an

allergic reaction to the drug does not assure you will never have an

allergic reaction. My rheumatologist monitors my response to the drug

between infusions. My biggest problem with it has been getting the

infusion started. I have small deep veins. It has helped my hands and

shoulders tremendously but my ankles and the various joints in my feet

are still pretty miserable. I have been flaring the past few days- I

think weather related. Hope that helps.

>

> Hugs, )in MIch.)

> -------------- Original message ----------------------

> From: " inwestcliffe " <inwestcliffe@y...>

> >

> >

> > Oh boy it's been a difficult couple of weeks for me. The predisone

> > burst worked while I was at 10 mg but now back to 5 and flaring again.

> > The good news is I go for rhemicade infusion today (rhemy bumped it up

> > a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

> > some relief! Has anyone here flared on rhemicade and then gotten back

> > on track or is this another worn out med. I've been on it a year with

> > very good results till now.

> > janc

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Janc...Remicade worked well for me the first few months, but then I

did begin flaring. My rheumy went from doing Remicade every 8 weeks, to

every 6, then every 4-5. At that point I became pretty ill with

pneumonia that was stubborn to heal. I'm not sure how common my

experience is. I've been on Humira with inj. mtx for a year or so with

good results.

I hope you continue to get relief from Remicade.

Hugs...

Tess in Oregon