Re: Re: Can't get this flare under control

[Guest guest]

I misspoke myself - I have been on since fall of 2002.

-------------- Original message ----------------------

From: " inwestcliffe " <inwestcliffe@...>

>

>

> Thanks that's good to hear. How long have you been on it and

> often do you take it?

> Janc

>

> > Remicade is good stuff. You can flare on anything- IMHO- but it

> certainly lessens the flares. I have not heard of anyone " outgrowing "

> the drug- lesser effect. I do know,unfortunately, that not having an

> allergic reaction to the drug does not assure you will never have an

> allergic reaction. My rheumatologist monitors my response to the drug

> between infusions. My biggest problem with it has been getting the

> infusion started. I have small deep veins. It has helped my hands and

> shoulders tremendously but my ankles and the various joints in my feet

> are still pretty miserable. I have been flaring the past few days- I

> think weather related. Hope that helps.

> >

> > Hugs, )in MIch.)

> > -------------- Original message ----------------------

> > From: " inwestcliffe " <inwestcliffe@y...>

> > >

> > >

> > > Oh boy it's been a difficult couple of weeks for me. The predisone

> > > burst worked while I was at 10 mg but now back to 5 and flaring again.

> > > The good news is I go for rhemicade infusion today (rhemy bumped it up

> > > a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

>

>

> > > some relief! Has anyone here flared on rhemicade and then gotten back

> > > on track or is this another worn out med. I've been on it a year with

> > > very good results till now.

> > > janc

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I have been on Remicade since fall of 2003. My infusions are every 8 weeks - and

my labs but not always my feet and ankles have shown a great improvement. There

are other TNFs that also work well. Tess's comments on Humira are well stated.

My doctor and I have discussed humira as an alternate if the vein situation

continues to be a problem.

Hugs,

-------------- Original message ----------------------

From: " inwestcliffe " <inwestcliffe@...>

>

>

> Thanks that's good to hear. How long have you been on it and

> often do you take it?

> Janc

>

> > Remicade is good stuff. You can flare on anything- IMHO- but it

> certainly lessens the flares. I have not heard of anyone " outgrowing "

> the drug- lesser effect. I do know,unfortunately, that not having an

> allergic reaction to the drug does not assure you will never have an

> allergic reaction. My rheumatologist monitors my response to the drug

> between infusions. My biggest problem with it has been getting the

> infusion started. I have small deep veins. It has helped my hands and

> shoulders tremendously but my ankles and the various joints in my feet

> are still pretty miserable. I have been flaring the past few days- I

> think weather related. Hope that helps.

> >

> > Hugs, )in MIch.)

> > -------------- Original message ----------------------

> > From: " inwestcliffe " <inwestcliffe@y...>

> > >

> > >

> > > Oh boy it's been a difficult couple of weeks for me. The predisone

> > > burst worked while I was at 10 mg but now back to 5 and flaring again.

> > > The good news is I go for rhemicade infusion today (rhemy bumped it up

> > > a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

>

>

> > > some relief! Has anyone here flared on rhemicade and then gotten back

> > > on track or is this another worn out med. I've been on it a year with

> > > very good results till now.

> > > janc

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I have been on Remicade since fall of 2003. My infusions are every 8 weeks - and

my labs but not always my feet and ankles have shown a great improvement. There

are other TNFs that also work well. Tess's comments on Humira are well stated.

My doctor and I have discussed humira as an alternate if the vein situation

continues to be a problem.

Hugs,

-------------- Original message ----------------------

From: " inwestcliffe " <inwestcliffe@...>

>

>

> Thanks that's good to hear. How long have you been on it and

> often do you take it?

> Janc

>

> > Remicade is good stuff. You can flare on anything- IMHO- but it

> certainly lessens the flares. I have not heard of anyone " outgrowing "

> the drug- lesser effect. I do know,unfortunately, that not having an

> allergic reaction to the drug does not assure you will never have an

> allergic reaction. My rheumatologist monitors my response to the drug

> between infusions. My biggest problem with it has been getting the

> infusion started. I have small deep veins. It has helped my hands and

> shoulders tremendously but my ankles and the various joints in my feet

> are still pretty miserable. I have been flaring the past few days- I

> think weather related. Hope that helps.

> >

> > Hugs, )in MIch.)

> > -------------- Original message ----------------------

> > From: " inwestcliffe " <inwestcliffe@y...>

> > >

> > >

> > > Oh boy it's been a difficult couple of weeks for me. The predisone

> > > burst worked while I was at 10 mg but now back to 5 and flaring again.

> > > The good news is I go for rhemicade infusion today (rhemy bumped it up

> > > a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

>

>

> > > some relief! Has anyone here flared on rhemicade and then gotten back

> > > on track or is this another worn out med. I've been on it a year with

> > > very good results till now.

> > > janc

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I misspoke myself - I have been on since fall of 2002.

-------------- Original message ----------------------

From: " inwestcliffe " <inwestcliffe@...>

>

>

> Thanks that's good to hear. How long have you been on it and

> often do you take it?

> Janc

>

> > Remicade is good stuff. You can flare on anything- IMHO- but it

> certainly lessens the flares. I have not heard of anyone " outgrowing "

> the drug- lesser effect. I do know,unfortunately, that not having an

> allergic reaction to the drug does not assure you will never have an

> allergic reaction. My rheumatologist monitors my response to the drug

> between infusions. My biggest problem with it has been getting the

> infusion started. I have small deep veins. It has helped my hands and

> shoulders tremendously but my ankles and the various joints in my feet

> are still pretty miserable. I have been flaring the past few days- I

> think weather related. Hope that helps.

> >

> > Hugs, )in MIch.)

> > -------------- Original message ----------------------

> > From: " inwestcliffe " <inwestcliffe@y...>

> > >

> > >

> > > Oh boy it's been a difficult couple of weeks for me. The predisone

> > > burst worked while I was at 10 mg but now back to 5 and flaring again.

> > > The good news is I go for rhemicade infusion today (rhemy bumped it up

> > > a week and increased the dose to 5 Mg? from 3) I sure hope it gives me

>

>

> > > some relief! Has anyone here flared on rhemicade and then gotten back

> > > on track or is this another worn out med. I've been on it a year with

> > > very good results till now.

> > > janc

> > >

> > >

> > >

> > >

> > >

> > >

> > >