Re: Just Curious\Rae

[Guest guest]

I haven't been able to really enjoy life here as visitors do ... isn't that

always the way? For awhile, I'd make time to go to the beach after work and

walk ... La Jolla Shores is my favorite ... then sometimes on Saturday mornings

early (the fire fighters jog then, too!) Once I started moving further and

further away to be able to afford my changing family size (got smaller then

bigger then smaller again) and my bad financing habits, I stopped going to the

beach. I'm hoping to start again one of these days.

I'm not sure which mall you're talking about ... we have four that are open and

two that are closed that have great stores (I know there's more but these are

the ones nearest San Diego proper). Fashion Valley just underwent a huge revamp

and is now quite nice to window shop in. The one downtown, Horton Plaza, is

usually busy and I don't get down there much. With our new ballpark, I'm

downtown more than before ... but usually stick to the area near the park.

Thanks for the invite! I've put it in my 'friends' file.

Pattie

Rae Sandberg <Raes_Yorkies@...> wrote:

oh and pattie... i took a cab way out to this really well known quilt shop

because i love quilting... and then iwalked way down to this really well known

place to eat.. i think it was and irish place... can't remember the name of the

place...rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA

for many years. She's in her mid-forties now and works full time. She and I

have talked a lot lately about RA since it seemed for awhile that I might have

some sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has

gone through studies and helped test medicines. She took dance classes during

some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it

but is having problems. I know there are other RX she's taking as well but

don't remember them all. We talked specifically about the prednisone because

she is rail thin! Everyone I've ever known who's been on that toxic agent is

rounded.

Pam has two Siberian Huskies and a husband with his own health problems and

she takes care of all of them. I know she's been in some serious pain at times

but she never lets it stop her. I know not everyone can be like her and she

gives me encouragement to keep going even when I'm hurting most (like now when

it's been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

I haven't been able to really enjoy life here as visitors do ... isn't that

always the way? For awhile, I'd make time to go to the beach after work and

walk ... La Jolla Shores is my favorite ... then sometimes on Saturday mornings

early (the fire fighters jog then, too!) Once I started moving further and

further away to be able to afford my changing family size (got smaller then

bigger then smaller again) and my bad financing habits, I stopped going to the

beach. I'm hoping to start again one of these days.

I'm not sure which mall you're talking about ... we have four that are open and

two that are closed that have great stores (I know there's more but these are

the ones nearest San Diego proper). Fashion Valley just underwent a huge revamp

and is now quite nice to window shop in. The one downtown, Horton Plaza, is

usually busy and I don't get down there much. With our new ballpark, I'm

downtown more than before ... but usually stick to the area near the park.

Thanks for the invite! I've put it in my 'friends' file.

Pattie

Rae Sandberg <Raes_Yorkies@...> wrote:

oh and pattie... i took a cab way out to this really well known quilt shop

because i love quilting... and then iwalked way down to this really well known

place to eat.. i think it was and irish place... can't remember the name of the

place...rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA

for many years. She's in her mid-forties now and works full time. She and I

have talked a lot lately about RA since it seemed for awhile that I might have

some sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who has

gone through studies and helped test medicines. She took dance classes during

some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it

but is having problems. I know there are other RX she's taking as well but

don't remember them all. We talked specifically about the prednisone because

she is rail thin! Everyone I've ever known who's been on that toxic agent is

rounded.

Pam has two Siberian Huskies and a husband with his own health problems and

she takes care of all of them. I know she's been in some serious pain at times

but she never lets it stop her. I know not everyone can be like her and she

gives me encouragement to keep going even when I'm hurting most (like now when

it's been raining non-stop for three days here in SUNNY southern Calif). She is

truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

yes, pattie... that is it, horton plaza downtown... it was very busy and the

first day i walked down there i went in on one side and then came out on

another... and was sort of lost.. haha ha... i saw this noce looking lady and

asked her if she would guide me back to the hotel, she was a da for the city of

san diego... she and i walked and talked... and then she pointed me in the right

direction... and i made it back...)

well, i amd feeling pretty good today except for my knee...

rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA

for many years. She's in her mid-forties now and works full time. She and I

have talked a lot lately about RA since it seemed for awhile that I might have

some sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who

has gone through studies and helped test medicines. She took dance classes

during some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it

but is having problems. I know there are other RX she's taking as well but

don't remember them all. We talked specifically about the prednisone because

she is rail thin! Everyone I've ever known who's been on that toxic agent is

rounded.

Pam has two Siberian Huskies and a husband with his own health problems

and she takes care of all of them. I know she's been in some serious pain at

times but she never lets it stop her. I know not everyone can be like her and

she gives me encouragement to keep going even when I'm hurting most (like now

when it's been raining non-stop for three days here in SUNNY southern Calif).

She is truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?

[Guest guest]

yes, pattie... that is it, horton plaza downtown... it was very busy and the

first day i walked down there i went in on one side and then came out on

another... and was sort of lost.. haha ha... i saw this noce looking lady and

asked her if she would guide me back to the hotel, she was a da for the city of

san diego... she and i walked and talked... and then she pointed me in the right

direction... and i made it back...)

well, i amd feeling pretty good today except for my knee...

rae

Re: [ ] Just Curious

I thought I'd share a little about my friend, Pam, at work who has had RA

for many years. She's in her mid-forties now and works full time. She and I

have talked a lot lately about RA since it seemed for awhile that I might have

some sort of autoimmune disease of my own ... but so far, the doctor has found

nothing to indicate that. My pain goes on and I will be seeing a physical

therapist next.

Pam is on Remicade now and loves it. She is a very determined lady who

has gone through studies and helped test medicines. She took dance classes

during some of her worst periods of the disease. She refuses to use handicapped

parking spaces and walks constantly. She has deformities in her fingers and

wrists and she walks a little bend over at the waist but she never lets that get

her down. She once told me that when she didn't move for several minutes, her

joints would freeze up so she is in constant movement at work.

She's on 3 mg pred, trying to reduce it to 2 mg in an effort to get off it

but is having problems. I know there are other RX she's taking as well but

don't remember them all. We talked specifically about the prednisone because

she is rail thin! Everyone I've ever known who's been on that toxic agent is

rounded.

Pam has two Siberian Huskies and a husband with his own health problems

and she takes care of all of them. I know she's been in some serious pain at

times but she never lets it stop her. I know not everyone can be like her and

she gives me encouragement to keep going even when I'm hurting most (like now

when it's been raining non-stop for three days here in SUNNY southern Calif).

She is truly an inspiration.

Loving hugs,

Pattie

ltlmisscrankypants <ltlmisscrankypants@...> wrote:

Hi again...

Seeing as I am new to all of this, I was wondering how many of you are

able to work full-time. Prior to be diagnosed and taking ill in December,

I worked 40-50 hours a week. Now that I am off sick, I spend most of

my day resting or slowly trying to get the easy stuff done around the

house. I am booked off work by my Rheumatologist until at least June,

but don't know if I can return to the same job due to the physical

demands.

Is it possible to find a balance of meds that allows people with severe

RA to lead a " normal " life? Can I support my family again by one day

being able to hold down a job? How debilitating is this?