Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 > Hi Judi, It was really lovely to get your message and apologies for not replying sooner. The steroids wore off a little faster than i thought they would (mind you, i did wizz around doing things at about 100 miles an hour whilst on them, couldn't help myself!!) Your family sounds great, four children under five must be hard work but worth it, no wonder you love to play with them. Would you mind if i asked you about your Dercum's disease, i have never heard of that. Any disease that involved long-term pain is so awful. Have you always suffered with this? I've had the RA for around eight years but right now am only being treated with anti-inflammatories and pain killers due to the chemo. Can you be treated with meds or not? Sorry for so many questions! I just love " Are you being served? " (I'm free!!) and no matter how many times you watch it you laugh your socks off everytime. I never really watched " As time goes by " but mentioned this to my Mum and she loved it. Do you have the BBC? " Keeping Up Appearances " is classic TV and poor .....!!! What a tolerant man!! Her poor neighbour (what is she called?) always spilling the tea in a plastic cup!!! Anyway, thank you again for your message and i hope we will carry on chatting. Take care, love and best wishes Clare xxxx > Hello Clare, > > I'm Judi, 58 YO wife and grandmother, living in Indiana. I think I > started the posts about " Keeping up Appearances " as my husband and I > love watching that, and also " As Time Goes By " (He is Sooooo Lionel!) > and " Are You Being Served. " > > How long will you be on chemo for the lymphoma? I'll keep you in my > prayers for that and your other health problems. > > I don't have RA, but something just as painful, Dercum's disease. > It's rare, especially here in the US. > > I know what you mean about playing with the kids--we have a grown > daughter who has 2-year old triplets and a 4 1/2 year old son. Even > if I know I'm going to pay for it the next day, I still like getting > down and playing with them. They rarely see their other grandmother, > so I want them to have happy memories of me. > > Enjoy your hot cocoa, > > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 Hi Clare, You asked about Dercum's disease. As I said, it's rare, but possibly not as rare as it appears. Those of us with the disease think that many people are diagnosed with fibromyalgia when they actually have Dercum's. Many of the symptoms are the same, with the exception that we have hundreds of very painful lipomas everywhere (they can even grow in or on organs.) They infiltrate muscle tissue and make movement difficult. The only ones in the world doing any research at all on it is a group in England, who have included it in their research on all tumors. I take Diclofenac (Voltaren) and Ultram for pain & inflammation. I used to take Topamax for the nerve pain, but when I was on chemo last year (as a trial to see if it would shrink the tumors--it didn't) I stopped taking the Topamax and never started it again. is Hyacinth's klutzy neighbor (who only spills coffee at Hyacinth's house!) yes, we have BBC, and like quite a few of the programs there. I lived in England for a short while about 35 years ago while I worked for Abbott Laboratories; I stayed with a family who lived near the plant in Kent. I hope the chemo is 100% effective for you, and that the time passes quickly and without ill effects. Blessings, Judi Quote Link to comment Share on other sites More sharing options...
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