Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , i don't know what UIP is....but you seem happy with Dr's. news so I'm happy too. All this stuff is still over my head. God did bless you, didn't he? Sher News Update well......I don't really even know where to begin.My brain is on overload right now.The new pulmonologist called me today with results. After re-reviewing the biopsy slides, the new ct scan, the new xrays, the new bloodwork, and the new PFT numbers.......i am now being diagnosed with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is still PF no matter what kind of initials they give it.i will have 4 more weeks on the actimmune before being taken off of it. I will remain on 40 mg per day of prednisone for 90 days passed my last actimmune injection. then gradually reduced.....per this pulm.the kicker is....he wants me to search for another pulm because he is going to be retiring in the next 6 months.......gee! what's a girl to do!anyhow! the good news.....my ct scan looked better than the last one that i had. honeycombing had minimized? i've never heard of honeycombing decreasing but if they say so......and my function level is back up to 53% which is more than it was the very first time i ever had a PFT.my question now is.....how do they know it's the prednisone and not the actimmune helping to attribute to these findings....and how can they really justify removing the actimmune? is it the actimmune that's working? or is the prednisone? which came first the chicken or the egg??jaime PF 10-05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , You are waaaaaay too curious. That is precisely why you are going to have a good chance of living a long, long time. You are smart and you want answers. Good for you. Spunk is a good thing! Hugs, Joyce PF 1997 >> well......I don't really even know where to begin.> > My brain is on overload right now.> > The new pulmonologist called me today with results. After re-> reviewing the biopsy slides, the new ct scan, the new xrays, the new > bloodwork, and the new PFT numbers.......i am now being diagnosed > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is still > PF no matter what kind of initials they give it.> > i will have 4 more weeks on the actimmune before being taken off of > it. I will remain on 40 mg per day of prednisone for 90 days passed > my last actimmune injection. then gradually reduced.....per this > pulm.> > the kicker is....he wants me to search for another pulm because he > is going to be retiring in the next 6 months.......gee! what's a > girl to do!> > anyhow! the good news.....my ct scan looked better than the last one > that i had. honeycombing had minimized? i've never heard of > honeycombing decreasing but if they say so......and my function > level is back up to 53% which is more than it was the very first > time i ever had a PFT.> > my question now is.....how do they know it's the prednisone and not > the actimmune helping to attribute to these findings....and how can > they really justify removing the actimmune? is it the actimmune > that's working? or is the prednisone? which came first the chicken > or the egg??> > jaime PF 10-05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , I am back. What did he say about the Eosinophilic granuloma? Hugs, Joyce PF 1997 > >> > , i don't know what UIP is....but you seem happy with Dr's. > news so I'm happy too. All this stuff is still over my head.> > God did bless you, didn't he? Sher> > News Update> > > > > > well......I don't really even know where to begin.> > > > My brain is on overload right now.> > > > The new pulmonologist called me today with results. After re-> > reviewing the biopsy slides, the new ct scan, the new xrays, the > new > > bloodwork, and the new PFT numbers.......i am now being > diagnosed > > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is > still > > PF no matter what kind of initials they give it.> > > > i will have 4 more weeks on the actimmune before being taken off > of > > it. I will remain on 40 mg per day of prednisone for 90 days > passed > > my last actimmune injection. then gradually reduced.....per this > > pulm.> > > > the kicker is....he wants me to search for another pulm because > he > > is going to be retiring in the next 6 months.......gee! what's a > > girl to do!> > > > anyhow! the good news.....my ct scan looked better than the last > one > > that i had. honeycombing had minimized? i've never heard of > > honeycombing decreasing but if they say so......and my function > > level is back up to 53% which is more than it was the very first > > time i ever had a PFT.> > > > my question now is.....how do they know it's the prednisone and > not > > the actimmune helping to attribute to these findings....and how > can > > they really justify removing the actimmune? is it the actimmune > > that's working? or is the prednisone? which came first the > chicken > > or the egg??> > > > jaime PF 10-05> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , I'm sorry, I know we were all hoping it would be a more treatable form of lung disease and not just another name for fibrosis. I wonder why they are removing the actimmune? I mean I'm only on the prednisone so it's safe to assume that the improvement I'm showing is due to that but when you're on more than one drug, how do they know what's causing what? Hmmm? You are still in my thoughts and prayers all the time. Love you! Beth IPF 06/06Draw close. Hold hands. Life is short. God is good. News Update well......I don't really even know where to begin.My brain is on overload right now.The new pulmonologist called me today with results. After re-reviewing the biopsy slides, the new ct scan, the new xrays, the new bloodwork, and the new PFT numbers..... ..i am now being diagnosed with a confirmed diagnosis of UIP. whooooooooooopeeeee e PF is still PF no matter what kind of initials they give it.i will have 4 more weeks on the actimmune before being taken off of it. I will remain on 40 mg per day of prednisone for 90 days passed my last actimmune injection. then gradually reduced..... per this pulm.the kicker is....he wants me to search for another pulm because he is going to be retiring in the next 6 months...... .gee! what's a girl to do!anyhow! the good news.....my ct scan looked better than the last one that i had. honeycombing had minimized? i've never heard of honeycombing decreasing but if they say so......and my function level is back up to 53% which is more than it was the very first time i ever had a PFT.my question now is.....how do they know it's the prednisone and not the actimmune helping to attribute to these findings.... and how can they really justify removing the actimmune? is it the actimmune that's working? or is the prednisone? which came first the chicken or the egg??jaime PF 10-05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 what does uip stand for? if it's still a form of pf then what is good about the news? sorry if i'm dense here. Sher News Update> > > well......I don't really even know where to begin.> > My brain is on overload right now.> > The new pulmonologist called me today with results. After re-> reviewing the biopsy slides, the new ct scan, the new xrays, the new > bloodwork, and the new PFT numbers.......i am now being diagnosed > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is still > PF no matter what kind of initials they give it.> > i will have 4 more weeks on the actimmune before being taken off of > it. I will remain on 40 mg per day of prednisone for 90 days passed > my last actimmune injection. then gradually reduced.....per this > pulm.> > the kicker is....he wants me to search for another pulm because he > is going to be retiring in the next 6 months.......gee! what's a > girl to do!> > anyhow! the good news.....my ct scan looked better than the last one > that i had. honeycombing had minimized? i've never heard of > honeycombing decreasing but if they say so......and my function > level is back up to 53% which is more than it was the very first > time i ever had a PFT.> > my question now is.....how do they know it's the prednisone and not > the actimmune helping to attribute to these findings....and how can > they really justify removing the actimmune? is it the actimmune > that's working? or is the prednisone? which came first the chicken > or the egg??> > jaime PF 10-05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 hi sher, i believe jaime was being sarcastic with the woohoo News Update> > > well......I don't really even know where to begin.> > My brain is on overload right now.> > The new pulmonologist called me today with results. After re-> reviewing the biopsy slides, the new ct scan, the new xrays, the new > bloodwork, and the new PFT numbers.......i am now being diagnosed > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is still > PF no matter what kind of initials they give it.> > i will have 4 more weeks on the actimmune before being taken off of > it. I will remain on 40 mg per day of prednisone for 90 days passed > my last actimmune injection. then gradually reduced.....per this > pulm.> > the kicker is....he wants me to search for another pulm because he > is going to be retiring in the next 6 months.......gee! what's a > girl to do!> > anyhow! the good news.....my ct scan looked better than the last one > that i had. honeycombing had minimized? i've never heard of > honeycombing decreasing but if they say so......and my function > level is back up to 53% which is more than it was the very first > time i ever had a PFT.> > my question now is.....how do they know it's the prednisone and not > the actimmune helping to attribute to these findings....and how can > they really justify removing the actimmune? is it the actimmune > that's working? or is the prednisone? which came first the chicken > or the egg??> > jaime PF 10-05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 Anne, Sher says.... News Update> > > well......I don't really even know where to begin.> > My brain is on overload right now.> > The new pulmonologist called me today with results. After re-> reviewing the biopsy slides, the new ct scan, the new xrays, the new > bloodwork, and the new PFT numbers.......i am now being diagnosed > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is still > PF no matter what kind of initials they give it.> > i will have 4 more weeks on the actimmune before being taken off of > it. I will remain on 40 mg per day of prednisone for 90 days passed > my last actimmune injection. then gradually reduced.....per this > pulm.> > the kicker is....he wants me to search for another pulm because he > is going to be retiring in the next 6 months.......gee! what's a > girl to do!> > anyhow! the good news.....my ct scan looked better than the last one > that i had. honeycombing had minimized? i've never heard of > honeycombing decreasing but if they say so......and my function > level is back up to 53% which is more than it was the very first > time i ever had a PFT.> > my question now is.....how do they know it's the prednisone and not > the actimmune helping to attribute to these findings....and how can > they really justify removing the actimmune? is it the actimmune > that's working? or is the prednisone? which came first the chicken > or the egg??> > jaime PF 10-05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 good question joyce! i didn't even think to ask about that! DUH! way too worried about the other....it totally slipped my mind. Major Brain FART! jaime > > > > > > , i don't know what UIP is....but you seem happy with Dr's. > > news so I'm happy too. All this stuff is still over my head. > > > God did bless you, didn't he? Sher > > > News Update > > > > > > > > > well......I don't really even know where to begin. > > > > > > My brain is on overload right now. > > > > > > The new pulmonologist called me today with results. After re- > > > reviewing the biopsy slides, the new ct scan, the new xrays, the > > new > > > bloodwork, and the new PFT numbers.......i am now being > > diagnosed > > > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is > > still > > > PF no matter what kind of initials they give it. > > > > > > i will have 4 more weeks on the actimmune before being taken off > > of > > > it. I will remain on 40 mg per day of prednisone for 90 days > > passed > > > my last actimmune injection. then gradually reduced.....per this > > > pulm. > > > > > > the kicker is....he wants me to search for another pulm because > > he > > > is going to be retiring in the next 6 months.......gee! what's a > > > girl to do! > > > > > > anyhow! the good news.....my ct scan looked better than the last > > one > > > that i had. honeycombing had minimized? i've never heard of > > > honeycombing decreasing but if they say so......and my function > > > level is back up to 53% which is more than it was the very first > > > time i ever had a PFT. > > > > > > my question now is.....how do they know it's the prednisone and > > not > > > the actimmune helping to attribute to these findings....and how > > can > > > they really justify removing the actimmune? is it the actimmune > > > that's working? or is the prednisone? which came first the > > chicken > > > or the egg?? > > > > > > jaime PF 10-05 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 usual interstitial pneumonitis....idiopathic pulmonary fibrosis in a nut shell..... i said i had news....i didn't say it was good. YUCK! jaime > > > > , i don't know what UIP is....but you seem happy with Dr's. > news so I'm happy too. All this stuff is still over my head. > > God did bless you, didn't he? Sher > > News Update > > > > > > well......I don't really even know where to begin. > > > > My brain is on overload right now. > > > > The new pulmonologist called me today with results. After re- > > reviewing the biopsy slides, the new ct scan, the new xrays, the > new > > bloodwork, and the new PFT numbers.......i am now being > diagnosed > > with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is > still > > PF no matter what kind of initials they give it. > > > > i will have 4 more weeks on the actimmune before being taken off > of > > it. I will remain on 40 mg per day of prednisone for 90 days > passed > > my last actimmune injection. then gradually reduced.....per this > > pulm. > > > > the kicker is....he wants me to search for another pulm because > he > > is going to be retiring in the next 6 months.......gee! what's a > > girl to do! > > > > anyhow! the good news.....my ct scan looked better than the last > one > > that i had. honeycombing had minimized? i've never heard of > > honeycombing decreasing but if they say so......and my function > > level is back up to 53% which is more than it was the very first > > time i ever had a PFT. > > > > my question now is.....how do they know it's the prednisone and > not > > the actimmune helping to attribute to these findings....and how > can > > they really justify removing the actimmune? is it the actimmune > > that's working? or is the prednisone? which came first the > chicken > > or the egg?? > > > > jaime PF 10-05 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , I will talk to you tomorrow..Still KNOW God has a plan for you. Talk to Him.. Love and Prayers, Peggy 9/04 ipf well......I don't really even know where to begin. My brain is on overload right now. The new pulmonologist called me today with results. After re- reviewing the biopsy slides, the new ct scan, the new xrays, the new bloodwork, and the new PFT numbers.......i am now being diagnosed with a confirmed diagnosis of UIP. whooooooooooopeeeeee PF is still PF no matter what kind of initials they give it. i will have 4 more weeks on the actimmune before being taken off of it. I will remain on 40 mg per day of prednisone for 90 days passed my last actimmune injection. then gradually reduced.....per this pulm. the kicker is....he wants me to search for another pulm because he is going to be retiring in the next 6 months.......gee! what's a girl to do! anyhow! the good news.....my ct scan looked better than the last one that i had. honeycombing had minimized? i've never heard of honeycombing decreasing but if they say so......and my function level is back up to 53% which is more than it was the very first time i ever had a PFT. my question now is.....how do they know it's the prednisone and not the actimmune helping to attribute to these findings....and how can they really justify removing the actimmune? is it the actimmune that's working? or is the prednisone? which came first the chicken or the egg?? jaime PF 10-05 Quote Link to comment Share on other sites More sharing options...
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