Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 All my doctors have told me that I have to get off Prednesone, so I'm trying again. It seems that I drop from my normal 10 mg to 9 mg, and I can't get past the pain that I suffer. It's a small decrease, but it whips me every time. Today I'm hurting from my hair to toenails. Does anyone have a trick or advice for me, or do I just suffer through it? I'm looking at possible meds my Rheumy will prescribe for me after talking to his nurse and having a list he gave me of the meds. Why would he prescribe the sulfasalazine for my RA, and not Crohn's, which I don't have? The other meds on his list are Plaquenil and azathioprine. Which of the 3 is better or are they all basically the same? Ken, I've had this mess for 15 years and remember having almost the same dragging, boring time you're talking about. For a long while, I moved the bed into the living room. That way I didn't have to walk much at all. One thing I did to help me was to get a motorcycle, a Honda Gold Wing. When I needed fresh air, I'd jump on it. Well, I kinda crawled to it, actually. It has cruise control and reverse, so it's not much of a problem to operate, and the fresh air and beautiful surroundings make you forget about your problems for a while. It worked for me because it was a distraction that helped. Now, after turning the bike into a trike so it won't fall over, I'm into building my race car and things like that. You've got to do something, even if it's just playing games on your new computer. That's another thing I do. I build my own computers, write programs for them, and do other work on them. Dennis Quote Link to comment Share on other sites More sharing options...
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