Re: new to group

[Guest guest]

Hi -- Welcome. I just joined recently also, and everyone is incredibly

friendly. I think we're in a similar boat -- I live down in Arlington

VA, am 54, never smoked, and was just diagnosed. I'm not sure yet

whether the doctor I have is familiar enough with this (he's on

vacation at the moment but I'll see him next week) and if not, I may go

to s Hopkins to get a more comprehensive evaluation.

Those of you talking about not worrying about the washing -- I had to

laugh. Our washer has been broken for over 2 weeks. I just found out

today that the order for the missing part got " lost " somehow, and MAYBE

they'll get it by the end of the week. I was doing OK letting things

slide until my boys came home from two months at camp with all their

dirty stuff. They HAVE been doing their own laundry, but this was a

bit much, and they don't drive yet. So this weekend I dragged out to

friends and the laundromat, infection or no infection! (For the

interest of those of you " down under, " the washing machine is Fisher &

Paykel -- is that NZ?)

Again, thanks to everyone for your advice!

Vicki

---

In bronchiectasis , " compqueen2001 " <compqueen2001@y...>

wrote:

> Hi I have just joined this group so I might learn more about

> bronchiectasis. I was recently diagnosed and I am hoping to find

> answers to questions I have about a disease I had never heard of. I

am

> from a small town about 40 miles from Phila Pa.I am 59 years old and

> have never smoked in my life. I have been around people who smoke but

> my doctor said that wasn't the cause. I am hoping to learn how to

deal

> with this and meet people that have the same ailment.

[Guest guest]

Hello to you too--ask questions --we have your age and where you live --a

name to go with it would be good as well--just whatever you like to be

called--I'm Del and am 56 --live in Qld Australia and have had bronch since

1971--have learned a lot more about it since it is now causing me a lot more

problem s --cheers Del

New to group

> Hi I have just joined this group so I might learn more about

> bronchiectasis. I was recently diagnosed and I am hoping to find

> answers to questions I have about a disease I had never heard of. I am

> from a small town about 40 miles from Phila Pa.I am 59 years old and

> have never smoked in my life. I have been around people who smoke but

> my doctor said that wasn't the cause. I am hoping to learn how to deal

> with this and meet people that have the same ailment.

>

>

>

>

>

>

>

[Guest guest]

Hi and welcome! My husband had many many many MRIs and no one ever noticed the

tethered cord. I think that it is so rare that most doctors don't know what to

look for. It was right there on all my husbands films--they just missed it.

New to group

I just joined your group as I am trying to learn about TCS. My son,

age 27, who has an arachnoid cyst in his brain, was told in December

that his most recent MRI of the lumbar region shows arachnoiditis.

His lower back pain, extreme pain, started about three months after a

CT Myelogram. His doctor " thought " this was the cause of the

arachnoiditis. We just saw this NS last week, and now he feels he

might have a tethered cord. My question to you folks who know and have

much more experience than I certainly do, is wouldn't a tethered cord

have shown up on an MRI he had in September of 2004 or even on the CT

myelogram in March of 2005? The first we have heard of this is after

the December 2005 lumbar MRI. Can a tethered cord be confused with

arachnoiditis? I am really at a loss here. The NS said the

de-tethering would help his back pain, but now I read about multiple

de-tetherings. I guess I am confused about the change in DX. Any

help or info that you could provide would really be appreciated.

Thanks for letting me join.

Not Medical Advice. We Are Not Doctors.

Need help with the list? Email

kathy@...,michelle@..., rick@...

[Guest guest]

I can see that but these were read all by the same NS. So it seems

odd to me. N

>

> Hi and welcome! My husband had many many many MRIs and no one ever

noticed the tethered cord. I think that it is so rare that most

doctors don't know what to look for. It was right there on all my

husbands films--they just missed it.

> New to group

>

>

> I just joined your group as I am trying to learn about TCS. My son,

> age 27, who has an arachnoid cyst in his brain, was told in December

> that his most recent MRI of the lumbar region shows arachnoiditis.

> His lower back pain, extreme pain, started about three months after a

> CT Myelogram. His doctor " thought " this was the cause of the

> arachnoiditis. We just saw this NS last week, and now he feels he

> might have a tethered cord. My question to you folks who know and have

> much more experience than I certainly do, is wouldn't a tethered cord

> have shown up on an MRI he had in September of 2004 or even on the CT

> myelogram in March of 2005? The first we have heard of this is after

> the December 2005 lumbar MRI. Can a tethered cord be confused with

> arachnoiditis? I am really at a loss here. The NS said the

> de-tethering would help his back pain, but now I read about multiple

> de-tetherings. I guess I am confused about the change in DX. Any

> help or info that you could provide would really be appreciated.

> Thanks for letting me join.

>

>

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email kathy@...,michelle@..., rick@...

>

>

>

>

[Guest guest]

Some people here had very good things to say about Dr. Wehby, that would be

relatively close to you. I wouldn't opt out of surgery b/c of fear of worsening,

I think you need some more information, hopefully a doctor that can help you.

Dr. C. Wehby

9155 South West Road South,

Portland, Oregon (OR)

Pediatr

Neurosurg.<javascript:AL_get(this,%20'jour',%20'Pediatr%20Neurosurg.');> 2004

Mar-Apr;40(2):51-7; discussion

58.<http://www.ncbi.nlm.nih.gov/entrez/utils/lofref.fcgi?itool=AbstractPlus-def & \

PrId=3030 & uid=15292632 & db=pubmed & url=http://content.karger.com/produktedb/produk\

te.asp?typ=fulltext & file=PNE2004040002051>

Links<javascript:PopUpMenu2_Set(Menu15292632);>

Comment in:

Pediatr Neurosurg. 2005 Jan-Feb;41(1):58; author reply

59-60.<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Retrieve & dopt\

=AbstractPlus & list_uids=15886517 & itool=pubmed_docsum>

Occult tight filum terminale syndrome: results of surgical untethering.

a.. Wehby

MC<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22Wehby+MC%22%5BAuthor%5D>,

b.. O'Hollaren

PS<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22O%27Hollaren+PS%22%5BAuthor%5D>,

c.. Abtin

K<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubme\

d_AbstractPlus & term=%22Abtin+K%22%5BAuthor%5D>,

d.. Hume

JL<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22Hume+JL%22%5BAuthor%5D>,

e.. s

BJ<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22s+BJ%22%5BAuthor%5D>.

Divisions of Pediatric Neurosurgery and Pediatric Urology, Emanuel Children's

Hospital, Portland, Oreg., USA. monicawehby@...

The entity of an occult tight filum terminale syndrome, characterized by

clinical findings consistent with a tethered cord syndrome, but with the conus

ending in a normal position, has been recognized recently. The indications for

sectioning the filum terminale in this situation are not well characterized and

are controversial. We report a retrospective review of a consecutive series of

60 children (ages 3-18 years) with a diagnosis of occult tight filum terminale

syndrome who underwent section of the filum and were followed for more than 6

months (mean 13.9 months). The criteria for surgical intervention were (1) spina

bifida occulta, (2) progressive bladder instability unresponsive to conservative

measures, (3) urological/nephrological evaluation to confirm or rule out

nonneurogenic etiology, and (4) two or more of the following: (a) bowel

involvement (fecal incontinence or chronic constipation), ( lower extremity

weakness, © gait changes, (d) reflex/tone abnormalities, (e) sensory

disturbances, (f) back/leg pain, (g) orthopedic abnormalities/limb length

discrepancy, (h) scoliosis/lordosis, (i) recurrent urinary tract infections, (j)

abnormal voiding cystourethrogram/ultrasound, (k) syringomyelia, and (l)

neurocutaneous stigmata. Postoperatively, urinary incontinence/retention showed

complete resolution in 52%, marked improvement (>95% resolution) in 35%,

moderate improvement (>75%) in 6%, minimal improvement (> 50%) in 6%, and no

improvement (<50%) in 2%. Fecal incontinence completely resolved in 56%,

improved in 41%, and was unchanged in 3%. Weakness, sensory abnormalities, and

pain improved or resolved in all patients.

PMID: 15292632 [PubMed - indexed for MEDLINE]

new to group

Hi! My name is magon and I live in WA state not DC. I am 20 years old and have

a 19month old daughter. I just moved to WA from AZ. I have a tethered cord that

I just found out about aproximately 7 months ago. Since then I have been trying

to find out as much info as I can because my ability to function the way I used

to is quickly going away. The surgeons tell me that it is really likely that

with a third detethering I will wake up unable to move at all from waste down

and will stay that way. They dont want to do the surgery untill I am okay with

that. So, I have opted out of surgery for the moment. However I have been trying

to find a surgeon that is qualified for the job since I might as well have the

surgery. I can barely move most of the time anyway and I cant hardly take a

shower anymore with out feeling as if I will collapse after just 5 minutes. I am

joining this list in hopes that it will provide extra support and friendships

that will make a world of difference

since I have maybe 5 friends with SB and all of them are through a different

list that I just joined a month ago. So, that is it for my first post. I just

wanted to give you all a quick insight as to who I am and what I am talking

about in future posts. Oh one more thing, I have SBO but its

lypomyelomeningocele not the regular SBO. I also have a group for those of you

that are LMC's as well or family or friends of an LMCer. Its a small group right

now with not much flow but its getting there. If you guys want to know anything

else about me please feel free to ask.

~~Magon~~

For every day that the sun sets, it rises again on the next.

__________________________________________________

[Guest guest]

Magon Lance said the following on 8/1/2006 5:24 AM:

> ...I have a tethered cord that I just found out about aproximately 7 months

ago. Since then I have been trying to find out as much info as I can because my

ability to function the way I used to is quickly going away. The surgeons tell

me that it is really likely that with a third detethering I will wake up unable

to move at all from waste down and will stay that way...

Hi Magon,

Please clarify to help me understand. You found out you have tethered

cord 7 months ago and have since had two detethering surgeries? Or 7

months ago you found out you were tethered for the third time?

You have SBO, do you know why you retethered? Scar tissue? incomplete

previous detethering? Did you ask the nsg 'why' you might not be able to

move from the waist down? My opinion of why would be because the nsg

thinks he/she would have to totally sever some nerves rather than remove

the tissue around the nerves. Maybe that nsg is not skilled enough? Do

you have MRI and other films to get more opinions?

When you lived in AZ, did you ever go to BNI? I had one of my surgeries

there with very good results.

Rick

[Guest guest]

Dr Wehby is a ped nsg. My kids see her. She occasionaly in the past

has treated adults but has narrowed to only peds lately.

Welcome Magon. We are near Portland OR

Charnel

>

> Some people here had very good things to say about Dr. Wehby, that

would be relatively close to you. I wouldn't opt out of surgery b/c of

fear of worsening, I think you need some more information, hopefully a

doctor that can help you.

>

> Dr. C. Wehby

> 9155 South West Road South,

> Portland, Oregon (OR)

>

> Pediatr

Neurosurg.<javascript:AL_get(this,%20'jour',%20'Pediatr%20Neurosurg.');>

2004 Mar-Apr;40(2):51-7; discussion

58.<http://www.ncbi.nlm.nih.gov/entrez/utils/lofref.fcgi?itool=AbstractPlus-def & \

PrId=3030 & uid=15292632 & db=pubmed & url=http://content.karger.com/produktedb/produk\

te.asp?typ=fulltext & file=PNE2004040002051>

Links<javascript:PopUpMenu2_Set(Menu15292632);>

> Comment in:

> Pediatr Neurosurg. 2005 Jan-Feb;41(1):58; author reply

59-60.<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Retrieve & dopt\

=AbstractPlus & list_uids=15886517 & itool=pubmed_docsum>

> Occult tight filum terminale syndrome: results of surgical untethering.

> a.. Wehby

MC<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22Wehby+MC%22%5BAuthor%5D>,

> b.. O'Hollaren

PS<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22O%27Hollaren+PS%22%5BAuthor%5D>,

> c.. Abtin

K<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubme\

d_AbstractPlus & term=%22Abtin+K%22%5BAuthor%5D>,

> d.. Hume

JL<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22Hume+JL%22%5BAuthor%5D>,

> e.. s

BJ<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Search & itool=pubm\

ed_AbstractPlus & term=%22s+BJ%22%5BAuthor%5D>.

> Divisions of Pediatric Neurosurgery and Pediatric Urology, Emanuel

Children's Hospital, Portland, Oreg., USA. monicawehby@...

>

> The entity of an occult tight filum terminale syndrome,

characterized by clinical findings consistent with a tethered cord

syndrome, but with the conus ending in a normal position, has been

recognized recently. The indications for sectioning the filum

terminale in this situation are not well characterized and are

controversial. We report a retrospective review of a consecutive

series of 60 children (ages 3-18 years) with a diagnosis of occult

tight filum terminale syndrome who underwent section of the filum and

were followed for more than 6 months (mean 13.9 months). The criteria

for surgical intervention were (1) spina bifida occulta, (2)

progressive bladder instability unresponsive to conservative measures,

(3) urological/nephrological evaluation to confirm or rule out

nonneurogenic etiology, and (4) two or more of the following: (a)

bowel involvement (fecal incontinence or chronic constipation), (

lower extremity weakness, © gait changes, (d) reflex/tone

abnormalities, (e) sensory disturbances, (f) back/leg pain, (g)

orthopedic abnormalities/limb length discrepancy, (h)

scoliosis/lordosis, (i) recurrent urinary tract infections, (j)

abnormal voiding cystourethrogram/ultrasound, (k) syringomyelia, and

(l) neurocutaneous stigmata. Postoperatively, urinary

incontinence/retention showed complete resolution in 52%, marked

improvement (>95% resolution) in 35%, moderate improvement (>75%) in

6%, minimal improvement (> 50%) in 6%, and no improvement (<50%) in

2%. Fecal incontinence completely resolved in 56%, improved in 41%,

and was unchanged in 3%. Weakness, sensory abnormalities, and pain

improved or resolved in all patients.

>

> PMID: 15292632 [PubMed - indexed for MEDLINE]

>

>

>

> new to group

>

>

> Hi! My name is magon and I live in WA state not DC. I am 20 years

old and have a 19month old daughter. I just moved to WA from AZ. I

have a tethered cord that I just found out about aproximately 7 months

ago. Since then I have been trying to find out as much info as I can

because my ability to function the way I used to is quickly going

away. The surgeons tell me that it is really likely that with a third

detethering I will wake up unable to move at all from waste down and

will stay that way. They dont want to do the surgery untill I am okay

with that. So, I have opted out of surgery for the moment. However I

have been trying to find a surgeon that is qualified for the job since

I might as well have the surgery. I can barely move most of the time

anyway and I cant hardly take a shower anymore with out feeling as if

I will collapse after just 5 minutes. I am joining this list in hopes

that it will provide extra support and friendships that will make a

world of difference

> since I have maybe 5 friends with SB and all of them are through a

different list that I just joined a month ago. So, that is it for my

first post. I just wanted to give you all a quick insight as to who I

am and what I am talking about in future posts. Oh one more thing, I

have SBO but its lypomyelomeningocele not the regular SBO. I also have

a group for those of you that are LMC's as well or family or friends

of an LMCer. Its a small group right now with not much flow but its

getting there. If you guys want to know anything else about me please

feel free to ask.

>

> ~~Magon~~

>

> For every day that the sun sets, it rises again on the next.

>

> __________________________________________________

>

[Guest guest]

,

Wow, you could read your story like my own.

When I was 21 I was in a bad car accident (the car was totaled) with my

friend on our way to work. But we were all very lucky -- not nearly as bad

as your daughter (we all stayed in the car). Both of us had back injuries.

Mine just never went away. When I was in the ER, they came in (after the

pain meds) and said, " You never told us you had spina bifida when we asked

you about medical history. " I said I didn't know I had it. They told me

that if I hadn't had a problem with it by that point, not to worry about it.

The doc I went to for followup told me that I had a herniated disc -- even

though they never did a MRI. He too said that the SB occulta was nothing to

worry about. Eventually they did a epidural steroid injection (ESI) and I

was fine. They said that it may take 1 ESI or a series. When I got relief,

they said that it could last a week, month, year or forever.

3 yrs later, the same pain returned. I figured it was the herniated disc

from the job I had -- that i had somehow irritated it. I went to my

neurologist (for another condition) to get him to hook me up with another

ESI and send me on my way. He said he wanted to get a MRI " just to be sure "

there was nothing going on with the SBO, but he was pretty sure it would

turn out to be nothing and I " d have the ESI. I got my MRI and found TCS and

diastematomyelia. Off to the neurosurgeon I went. Everyone was surprised

that I never had an inklig of pain or problem growing up. They were all

surprised I was walking with the diastematomyelia. Never had a problem till

the 82 year old smashed my friends brand new car. He told me that if I

didn't have surgery that I could lose function, lose the ability to walk,

become incontinent to b & b, or even paralyzed (how prophetic!). He scared me

and I did the surgery. Never should have done it, but with the info I had

at the time, it was the best decision I could make.

I retethered 4 mos later. Surgery #2 was 1 1/2 yrs later. Surgery #3 was 5

mos after that. Surgery #3 left me a T12 paraplegic. Nothing was done

wrong during my surgeries. If you see my latest MRI, there is no reason for

my paralysis. The surgeon was shocked. He even said everything looked

great before closing. My case is extreme.

The decision to have surgery is definitely a personal one. Don't listen to

a doc that says that you cannot retether as an adult b/c they are not

growing anymore. That is a bunch of horse hockey. I understand that you

don't want to see your daughter in pain anymore and want to return her to

her pre-accident state. Sometimes surgery seems like the quickest solution

to that. I think that if pain is her only symptom (no neuro deficits) you

should managed the pain medically - not surgically. That is just my

opinion. Someone once told me that if you were able to grow to and adult

before having problems with TSC, then your body has kind of adapted to to

the cord being stretched. And that if pain is the only symptom, surgery will

likely not fix it, b/c the nerve roots and spinal cord have spent their life

in that position and have made their adjustments to be like that (otherwise

there would have been pain or symptoms when growing). And when you go in

and untether an adult, it kind of throws the spinal cord and the attached

nerves into a frenzy. Just b/c you put them into the " normal " position

where they should have been when you were born, it is not what is " normal "

for your body. For some reason, I thought it was Kathy that told me this

(Kathy?).

Just b/c she is 5' 9 " doesn't mean her cord is stretched any tighter than

someone who is 5'4 " . Her cord was the proper length for her body. Its not

like she was given a spinal cord for a 5'4 " person and she grew to 5;9 " . It

can be tethered very tightly, but height is not a factor in how tightly

someone is tethered. She grew to that height without a problem. The trauma

of the accident brought on the symptoms (as with me). There was a study

that said that people who have asymptomatic TCS (regardless of the cause),

can become symptomatic from a trauma that would be relatively minor to

someone without TCS -- a fall down a stair or two, minor rear-end collision,

those kinds of things. So even though your daughter was involved in a major

accident that brought on symptoms, she may have become symptomatic from

something as minor as a rear-end collision.

Is this the first MRI of her brain? Has she had migraines her entire life?

It is possible that they are not migraines but chiari malformation instead.

Or it could be a CM just caused by virtue of the TCS being pulled so tight.

Have to wait on the MRI to see.

I can remember how overwhelming everything was when I first found out. The

only really good hospital I know of in TX is MD , but typically

pediatric neurosurgoens are the best. I think MD is an adult

facility. Check the SBAA (www.sbaa.org) and MSCIC (

http://www.mscisdisseminationcenter.org) websites to see what facilities

are available in TX and the SW (just because it says spinal cord injury -

SCI - the facilities take care of SCD also).

Having surgery is a tough decision to make. But each person has to decide

their own personal " breaking point, " if you will. Thats not something you

as mom can decide. Its something that, as long as a surgeon has said

surgery is an option, she has to decide when enough is enough and she wants

to take her chances with surgery. For some people is waiting until the pain

gets to a certain point. For others it is a certain amount of neurological

losses that are acceptable and then they aren't willing to lose any more.

Everyone has to draw their own line in the sand. Just hold her hand, love

her, support her. Be there to help her on the bad days and go out and

celebrate on the good ones. Don't push her to treatment or not to.

I really feel for you and your family. It sounds like you have really been

through a lot. If there is anything I can do to help, feel free to ask me

on or off list. I hope this was helpful & I wish you the best.

Jenn

>

> Hello,

>

> My daughter was in a car accident 2001 and was ejected from the

> vehicle. She has been through several surguries from the accident.

> She has been in chronic pain since. Upon received a third MRI on

> her lower back we were told she has tsc! Wow what a shock so many

> thing add up though! She was born with a severe dimple in her lower

> spine in which the physician told me " be blessed she doesn't have

> spindal bifida this is Gods way of closing the spine. " Three test

> came back while I was pregnant with her she had spinal bifada or

> downs syndrome. I had a amnio while pregnant with her to rule out

> this it all came back negative. She remained for the most part in

> life no symtoms until the accident. We are new at all this...just

> wanting any advice or opinion. We live in Houston, Texas. I want

> to see my daughter out of pain and functioning in life she is only

> 20 years old. ANY advice would be helpful. We went to a

> neurosurgeon on Friday. She has another MRI on brain for migraines

> and neck on Monday. We lost our son who was sixteen year old

> through all this so life has been unbearable at times. I am not

> sure what I would do with out her. I hate seeing her like this. We

> have been through three neurosurgeon opinions. It seems like many

> just want to give pills and mdicate the situation. Her cord is

> stretched to the fullest she is 5'9 " it is amazing she grew that

> tall. Don't mean to ramble but I am at a loss. HELP.

>

>

>

>

[Guest guest]

Dear .

I know all of our hearts go out to you. I would not proceed with surgery if

the only symptom is pain no matter how painful it is. That is just my

opinion having put our daughter when she was 14, 15 and 16 through surgeries

when

her initial symptom was pain and due to the subsequent scar tissue she now

has numbness and weakness along with the pain. I think most NSG would not

suggest surgery for an adult for pain alone and I would love to have done it

differently. Having said that, I cannot imagine seeing my child in severe pain

constantly and understand your so wanting anything to make it better.

Hugs from a Mom to a Mom

Randee

In a message dated 10/28/2007 11:43:04 P.M. Eastern Daylight Time,

twerring@... writes:

Hello,

My daughter was in a car accident 2001 and was ejected from the

vehicle. She has been through several surguries from the accident.

She has been in chronic pain since. Upon received a third MRI on

her lower back we were told she has tsc! Wow what a shock so many

thing add up though! She was born with a severe dimple in her lower

spine in which the physician told me " be blessed she doesn't have

spindal bifida this is Gods way of closing the spine. " Three test

came back while I was pregnant with her she had spinal bifada or

downs syndrome. I had a amnio while pregnant with her to rule out

this it all came back negative. She remained for the most part in

life no symtoms until the accident. We are new at all this...just

wanting any advice or opinion. We live in Houston, Texas. I want

to see my daughter out of pain and functioning in life she is only

20 years old. ANY advice would be helpful. We went to a

neurosurgeon on Friday. She has another MRI on brain for migraines

and neck on Monday. We lost our son who was sixteen year old

through all this so life has been unbearable at times. I am not

sure what I would do with out her. I hate seeing her like this. We

have been through three neurosurgeon opinions. It seems like many

just want to give pills and mdicate the situation. Her cord is

stretched to the fullest she is 5'9 " it is amazing she grew that

tall. Don't mean to ramble but I am at a loss. HELP.

************************************** See what's new at http://www.aol.com

[Guest guest]

Thank you for your input. We go to the doctor again on Wednesday. We had a EMG

today and another MRI Wednesday a.m. It seems this is all we do lately. I have

read all experiences you all communicate and it seems there is no really clear

fix. I appreciate all input as I am at a loss.

Thank you for your help.

__________________________________________________