Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 > > Comment from user: > My husband is 59 We've seen drs and the best they say is he has a 78% > chance of living 1 yr 40% chance the 2nd year. I'm 45, we have 2 kids > and I'm totally destroyed mentally by this. > > New member please let us know the stats that your hubby has. Have you got Gleason score, PSA level and if he has mets (secondaries) > > I know of someone who was told he had weeks to live and he lasted 11 years > > > Hi , I don't have the numbers except all the biopsys came back 40 across the board. They've done CT scan, bone scan and MRI. He's going today for a bone density. For sure he has " a spot " on his spine, not threatening the cord as yet. Also possible rib involvement. He may have broken his ribs during a fall last winter and hopefully that's what they see. Right now the oncologist ordered him on the hormone therapy (pill), starting the shot soon. He also mentioned a " chemotherapy pill " The dr. said it is the worst kind of cancer to have, I think he said something like T10. The urologist called it an " agressive cancer " I apologize for not knowing the correct terms. We're new at this disease and still pretty upset about the whole thing. Thanks, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Donna, I know how scared you both are, my husband was diagnosed with a gleason score of 6s and one 7, PSA score 28, up four points in three months, positive biopsy in 9 of 12 samples, 60 to 100% involved. They first said we can do hormone therapy and radation, then No we cannot do radation because the bone scan has multiple sites that are 'hot " . Now we can only do hormone therapy. The urologist and radation oncologist said no need for more test, with scores like this and a positive bone scan we don't need them, we know!! Well I inisted we find another doctor for a second opinion, knowing how my hubby is a tough guy, very high tolerance for pain, we own a farm and work cattle, he frequently gets kicked, broken ribs, knocked down, and just generally over the years been roughed up a lot. Plus a gun shot wound to a knee, arithitis, ect. The second Dr. done more test, has determined that he does not have bone cancer, not in the lymph nodes, and now they are doing radation therapy in addition to hormone therapy . Today he will have his 10th treatment out of 42. If you have not, seek a second or third opinion. Not that a second or third Dr. can make it go away, but perhaps they are not doing all the test that they should be doing. It does seem they are doing more than my husbands first Dr.s did. Good luck and God Bless. They told me my husband would be difficult to live with and I am really seeing that now, after three months of hormone therapy and 2 weeks of radation. Don't know if others have experienced this or not, the diagnosis is hard to deal with then this makes it double the burden. Warmly, Dianne K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Hi Donna, The doctor who said he had a year to live should be reported to Medical Board. NO ONE can say exactly how long one has to live. There are several treatments which can let your husband live for quite a while. It appears that he has been started on one of the better therapies. Prostate cancer thrives on testosterone. So if the testosterone is suppressed, the PSA should go down. There are some cancers in which the cells learn to live without the testosterone. In that case, there are several chemotherapies which can be used. Most therapies and treatments have some side effects, but for most men they are tolerable. NEVER EVER GIVE UP HOPE. I wish you all the bestAubrey Pilgrim, DC (Ret.)Author of A Revolutionary Approach to Prostate Cancer-Read the original book for free at: www.prostatepointers.org/prostate/lay/apilgrimRead the new edition for free at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision bryan.metcalf@...> wrote:>> Comment from user:> My husband is 59 We've seen drs and the best they say is he has a 78%> chance of living 1 yr 40% chance the 2nd year. I'm 45, we have 2 kids> and I'm totally destroyed mentally by this. > > New member please let us know the stats that your hubby has. Have you got Gleason score, PSA level and if he has mets (secondaries)> > I know of someone who was told he had weeks to live and he lasted 11 years> > >Hi , I don't have the numbers except all the biopsys came back 40 across the board. They've done CT scan, bone scan and MRI. He's going today for a bone density. For sure he has "a spot" on his spine, not threatening the cord as yet. Also possible rib involvement. He may have broken his ribs during a fall last winter and hopefully that's what they see. Right now the oncologist ordered him on the hormone therapy (pill), starting the shot soon. He also mentioned a "chemotherapy pill" The dr. said it is the worst kind of cancer to have, I think he said something like T10. The urologist called it an "agressive cancer"I apologize for not knowing the correct terms. We're new at this disease and still pretty upset about the whole thing. Thanks, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi Donna I have had my Prostate removed and underwent radiation in 1999. Since then my cancer has returned. It is at .49.I heard a lot of doom and gloom from some of medical professionals, that since I had under gone radiation already there is very little they could do for me. I have since learned that such is not the case, and things are looking better. Sex in the classic sense of the word is no longer a option, however my wife and I have discovered there is more to intimacy than we see in the movies. In many ways our relationship is better. I would stay positive like you are doing and realize that every situation is unique. I continue to hope, pray, and believe in the best. Bruce Lundeen Re: New member blurb Thanks.. We were thinking the same thing. The dr. pulled out something that looked like a calculator, punched in numbers and told us that. I think that was incredible! That it all boiled down to punching the numbers in. I guess averages are important to some people. My husband wants to live, no matter what the treatment. As for me, I'll love him forever, whether or not he has hair or manhood.Thanks everyone for being here. It's wonderful to be able to find other people who are in the same boat or that have "been there and done that". Donna> >> > Comment from user:> > My husband is 59 We've seen drs and the best they say is he has a > 78%> > chance of living 1 yr 40% chance the 2nd year. I'm 45, we have 2 > kids> > and I'm totally destroyed mentally by this. > > > > New member please let us know the stats that your hubby has. Have > you got Gleason score, PSA level and if he has mets (secondaries)> > > > I know of someone who was told he had weeks to live and he lasted > 11 years> > > > > >> Hi , I don't have the numbers except all the biopsys came back > 40 across the board. They've done CT scan, bone scan and MRI. He's > going today for a bone density. For sure he has "a spot" on his > spine, not threatening the cord as yet. Also possible rib > involvement. He may have broken his ribs during a fall last winter > and hopefully that's what they see. > > Right now the oncologist ordered him on the hormone therapy (pill), > starting the shot soon. He also mentioned a "chemotherapy pill" The > dr. said it is the worst kind of cancer to have, I think he said > something like T10. The urologist called it an "agressive cancer"> > I apologize for not knowing the correct terms. We're new at this > disease and still pretty upset about the whole thing. Thanks, Donna> Quote Link to comment Share on other sites More sharing options...
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