Re: ON THE WAR PATH (from nan in Mich)

[Guest guest]

Dear Faith,

I hear you sister!!! My Rhuematologist told me " all your tests are normal " Now

weeks before this she says, " I can almost say you have Sjogrens and RA because

of all your past tests " .

My Ear, nose and throat doctor did the biopsy on my lip for the Sjogren's and he

said beyond a doubt that he had read so many of these clinical reports that I

had a positive Sjogren's test!

Last week, I saw my Rhuemy and she says, " Your tests are all normal, but your

RA level is elavated and I really can't find anything wrong with you. " I asked

her about my severe memory loss........... This is what she says. " that can be

the Sjogren's " WHA???????? YOU JUST SAID YOU CAN FIND NOTHING WRONG WITH

ME!!!!!!!!!!!!! Faith I understand your frustrations. I am so depressed I

stopped taking my meds for everything and I have woken a painful and broken down

worman. I don't want to go through another 10 years of this!!! They could care

less what these diseases do to my body, Why should I????

Nan in Michigan

fmt2002@... wrote:

After spending most of my days in bed for the last month and a half, I thought I

was finally near some answers as my Rheumy appointment was tommorrow. Just got a

call from UCDAVIS and they CANCELLED the appointment..offered FEB

25!!!!!!!!!!!!!!! And to think My original appointment was on an URGENT

basis... ( took 3-4 weeks to get)

I AM BEYOND CRAZY at the moment.... and they wonder why people go postal.

I asked them to refer me to another doctor outside of the UCDAVIS MED SYSTEM. I

am waiting to hear what happens with that request.

Our health system is a mess.

JUST NEEDED TO VENT..will let you all know what happens.

Faith

[Guest guest]

Dear Faith,

I hear you sister!!! My Rhuematologist told me " all your tests are normal " Now

weeks before this she says, " I can almost say you have Sjogrens and RA because

of all your past tests " .

My Ear, nose and throat doctor did the biopsy on my lip for the Sjogren's and he

said beyond a doubt that he had read so many of these clinical reports that I

had a positive Sjogren's test!

Last week, I saw my Rhuemy and she says, " Your tests are all normal, but your

RA level is elavated and I really can't find anything wrong with you. " I asked

her about my severe memory loss........... This is what she says. " that can be

the Sjogren's " WHA???????? YOU JUST SAID YOU CAN FIND NOTHING WRONG WITH

ME!!!!!!!!!!!!! Faith I understand your frustrations. I am so depressed I

stopped taking my meds for everything and I have woken a painful and broken down

worman. I don't want to go through another 10 years of this!!! They could care

less what these diseases do to my body, Why should I????

Nan in Michigan

fmt2002@... wrote:

After spending most of my days in bed for the last month and a half, I thought I

was finally near some answers as my Rheumy appointment was tommorrow. Just got a

call from UCDAVIS and they CANCELLED the appointment..offered FEB

25!!!!!!!!!!!!!!! And to think My original appointment was on an URGENT

basis... ( took 3-4 weeks to get)

I AM BEYOND CRAZY at the moment.... and they wonder why people go postal.

I asked them to refer me to another doctor outside of the UCDAVIS MED SYSTEM. I

am waiting to hear what happens with that request.

Our health system is a mess.

JUST NEEDED TO VENT..will let you all know what happens.

Faith

[Guest guest]

Nan,.....I would not stop the meds just yet. I would find a new

rheumatologist. You need to find one that cares about you, and they

are around. I know this is very discouraging news, but don't let it

get you down. You know your body, and it's not suppose to be in pain

all the time. Please, get another opinion. Keeping you in my

prayers, Tawny

> After spending most of my days in bed for the last month and a

half, I thought I was finally near some answers as my Rheumy

appointment was tommorrow. Just got a call from UCDAVIS and they

CANCELLED the appointment..offered FEB 25!!!!!!!!!!!!!!! And to

think My original appointment was on an URGENT basis... ( took 3-4

weeks to get)

>

> I AM BEYOND CRAZY at the moment.... and they wonder why people go

postal.

>

> I asked them to refer me to another doctor outside of the UCDAVIS

MED SYSTEM. I am waiting to hear what happens with that request.

>

> Our health system is a mess.

>

> JUST NEEDED TO VENT..will let you all know what happens.

>

> Faith

>

>

[Guest guest]

Nan,.....I would not stop the meds just yet. I would find a new

rheumatologist. You need to find one that cares about you, and they

are around. I know this is very discouraging news, but don't let it

get you down. You know your body, and it's not suppose to be in pain

all the time. Please, get another opinion. Keeping you in my

prayers, Tawny

> After spending most of my days in bed for the last month and a

half, I thought I was finally near some answers as my Rheumy

appointment was tommorrow. Just got a call from UCDAVIS and they

CANCELLED the appointment..offered FEB 25!!!!!!!!!!!!!!! And to

think My original appointment was on an URGENT basis... ( took 3-4

weeks to get)

>

> I AM BEYOND CRAZY at the moment.... and they wonder why people go

postal.

>

> I asked them to refer me to another doctor outside of the UCDAVIS

MED SYSTEM. I am waiting to hear what happens with that request.

>

> Our health system is a mess.

>

> JUST NEEDED TO VENT..will let you all know what happens.

>

> Faith

>

>