Re: Has anyone been stable or stabilized from surgery?

[Guest guest]

I'm sure it has been. Almost positive. I know there are some people on the

Spina Bifida Lists that I am on who are not nearly affected by Tethered Cord

as much as some of us are. I went 9 1/2 Years before Detetherings, that's

pretty close to a Decade. My Symptoms started only a few Months before I had

the Surgery. Actually I could say I went longer then that between without

Symptoms, because I didn't have any Symptoms before my first Detethering.

I personally do not believe that figure is too accurate.......but that's all

I am going to say there, it's just my Opinion.

Me

Nebraska, USA

mymocha@...

> Just wondering if surgery has truly been the complete answer to

> deterioration from TCS. So far I have rarely heard from anyone who

> has had stable symptoms for more than three years. Has anyone truly

> experienced long-term stability and by that I mean over a decade of

> stabilized symptoms from having a single surgery from TCS?

>

> Also I keep hearing from surgeons that symptomatic retethering

> occurs 5-15% of the time. I always assumed that this figure meant

> that 5-15% of the people who have a single surgery retether.

> However, it seems that most of the people n this group have

> retethered and that some have retethered over four times. How can

> this figure be legitimate?

[Guest guest]

Just because there are only about 250 on this List now, doesn't mean

everybody else, or even the majority who isn't on the List that has Tethered

Cord hasn't had a problem with it. There could be plenty of other reasons

why they haven't joined.

Me

Nebraska, USA

mymocha@...

>I guess that makes sense, there are 240 members on this group and

> individual neurosurgeons handle up to 40 cases a month. I guess

> that supports the idea that an overwelming majority has been

> successful

>

[Guest guest]

I went 9 1/2 Years between my first and second Detethering.

I don't think anybody is trying to purposely scare anybody. We are just

being honest, and telling what's what in regards to our own situation.

Me

Nebraska, USA

mymocha@...

>

> I would like to say that I went the first time 13 years....and hope to do

> so

> again...so lets try to inform and help one another...not scare the living

> day

> lights out of us all...having the problems is bad enough...without poring

> salt

> on the wounds so to speak...

[Guest guest]

hmmmm.. I am only 6 months postop but doing great. This was my first

detethering and am hoping my only.