Re: Got O2??

[Guest guest]

BTW from Sher...I had problems at first filling my tank. For those of you who have this home fill or get it....be sure the concentrator is on for 5 min or so before filling.

, you no doubt already know this. Hugs to all. Sher ipf 5-06

Re: Got O2??Diane, Liquid oxygen and the Helios is great....if it works. I would be getting ready to leave for a wedding or church...and SORRY CHARLIE, I AM FROZEN. After they told me that I could have one or the other...I had to choose tanks for mobility. For me, it is the best therapy just being able to get out of the house. I got the chest length cannula so that the connection doesn't get caught on things so easily. The one that I have has a swivel connector right at chest level which keeps it from knotting up in the floor. You can even use a swivel at the other end. You can get swivels with two female ends or one ! male, one female, etc....there are several. The one I use right now is Swivel Connector #1225 and Nasal Cannula #1606 from Salter Labs. I am only 5' 2" and the tubing with 4 or 7 ft. lengths put the connector right at the floor. It gets hung under doors, furniture and everything. This of course gets hung onto door handles, etc. but is soooo much better for me. I have Apria and believe me I have fought the fight. I now have an e-mail dialogue with the manager and all my requests go through him. He is very nice. Apria is taking over the market. The more they monopolyze t! he market, the less service they provide. And yes, it is all about money, like insurance and docs! Another tip. I put the concentrator in the living room ....on carpet...less noise. We rarely use the living room. I run the tubing behind the couch and it is not in the middle of th! e floor. I do get wound up on toy trucks, etc. One day I had several little toy soldiers riding around on my tubing. Grandkids leave toys everywhere and they get onto the tubing. And yes, I some days I have temper tantrums from having my head jerked back when I am in a hurry or when some big foot steps on the line. But, oh to breathe, it is all worth it! I know the tubing and dogs are a nuisance. So are babies. Have these three 3 year olds. All three were crawling at the same time. They all liked to chew on the tubing. For a long while I couldn't get far....and certainly not quickly!! Now, they like to pull it to torment me! They get in trouble with thier parents but I just make a game of it. I don't know how you have made it with that liquid stuff this long. Wish it worked! . Wouldn't you think that since they can put people out into space dangling around on a tube, they could provide a simple oxygen device that would be lightweight and workable. Dreaming, I suppose. Whew, chatty this morning. Too much coffee already! It is only 5:45. Been up since 4. Hugs for the day... Joyce PF 1997 >> I want to get that printed on a Tshirt.....anyway. ...I have toughed it out with this liquid oxygen delivery system for 2 years now and I think I'm done. When it works, it's great.....but it's very finicky....freezes very easily and then the portable doesn't work.....if the portable gets really low cause I wasn't watching it, it will proba! bly freeze....they say just wait 10 minutes and it will thaw out....WRONG! This morning, I got a new tank of liquid.....my portable was really full, so I didn't need to refill it until after lunch.....while I was filling it...the oxygen sounded different and it was taking forever to fill my portable. It never really filled the portable to the top.....but it should've worked....the demand didn't work at all.....I tried this many many times....no go....then, I thought....OK, just use the continuous and call the company and see what they can do.....so I called them and they are delivering a new tank tomorrow morning. I was doing a few thing! s getti> ng ready for dinner....and I started to feel awful.....found out that nothing was coming out of the nasal cannula..... no continuous, no demand....nothing. So, I got the long tubing and a humidity bottle and am using the oxygen right from the tank. That was about 5 hours ago....I'm so wound up because it made me remember how hard it was to function with all that tubing on the floor.....getting caught on a chair leg....a dog sleeping on it....me tripping over it....UGH!!! ! It's also hot and humid here and I want it to be FALL!! Nice, dry, cool weather..... I fantasize about it!!!!!> Today went by fast....I had to run some errands..... took my wheelchair into Lowes....it was fun going up and down every isle.....was very hard to pay for my stuff, tho....I used my debit card....the stupid thing was bolted to the counter..... on the cashiers side of the counter..... I said :they don't give any thought to someone in a wheelchair, do they?" I got my chair up as close as I could and scribbled my name. > Today is Jack's 6th birthday.... .so he got 2 new balls to play with and he's got a big smile on his face and that little tail has been wagging since I brought them home. I was going to give him a bath...but decided that wasn't something HE would like for his special day....so, if I can get my oxygen straightened out, I'll do it tomorrow. > Maybe I can call the home care company and see what other devices they have.....if they don't, I guess I'll have to find another company. I have personal experience with Apria when I was working as a home care nurse....I thought they were a terrible company with no compassion for anyone or anything, except their insurance checks. I hate to think about changing my system, but maybe a different one will be much better. > Thanks for letting me howl at you all for awhile. > Love, Diane> > --> Diane Quinlan > dianequinlan@ ...>

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[Guest guest]

Donna,

That is why they supply either one, I suppose. I still wish we had a small device....oh, about the size of a watch battery! Is that asking too much. HA! HA!

Hugs, Joyce PF 1997

> >> > > > Sher,> > > > Helios is the little 4 pound cannister portable that you can wear on> > your belt or carry, etc. You fill it on the liquid 'Mama Ship'. The> > larger one is called Marathon.>