Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Meniowl wrote: << Yes, that would be yours truly. I made the tapes for Toni and I haven't heard a peep from her in ages. >> And what a kindness you performed, Meni! Does anyone have Toni's e-mail address? I do not. I am concerned about her. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 Mark, Losing weight is a difficult thing, but you seem to have a handle on it. Has your doctor referred you to a transplant center? I know that the docs will give you time lines, and it is important to listen to your medical team. But, I am nine years out from biopsy and diagnosis...I had a prognosis of 2-4 years. God is in control and you must rest your heart and mind on that. Keep touching down with us. You can help us as much as we can help you. May God be with you in your upcoming medical treatment and life decisions. Hugs, Joyce 1997>> I went to the doctor on Friday for the the first time in three months.He > told me I have about 2 years left unless I get a transplant.I have lost > about 40 lbs., and need to lose 20 lbs.more before I am elegible for the > transplant list.I should be able to lose the weight since I dont have to go > back to the doc for 3months.I hoped to avoid a transplant for a lot of > reasons, but I dont have a choice if I want to hang around for awhile.I love > the group.It is good to hear other peoples experiences or just talk.Well God > bless you all and well talk later. Mark> > > > Mark L.Odegard> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 I am so anixious for MAtt to get to BJH...I know it is no magical kingdom but at least I think they will offer more options and ideas we have so far...they do seem very caring and interested in helping....KAtG-- In Breathe-Support , " Joyce " wrote: > > > KAtG, > > I was evaluated at -Jewish a month ago. We were so impressed with > everyone there. They were very professional and very well-trained. I > was turned down because I have so many other medical problems. However, > we learned so much and that will help my doctors here. It is an > excellent facility. > > Hugs, > > Joyce PF 1997 > > > > > How did he determine that you had 2 years left????-There is so many > > aspects of this disease I do not understand...Our pulmo will not cast > > any idea of how long my husband has left to live... > > Hopefully, we will get to -Jewish in St. Louis next month to see > > there doctors there...The local pulmos can just do so much... > > Good luck on the weight lose, you have done great!!!!...KAtG > > > > > > I went to the doctor on Friday for the the first time in three > > months.He > > > told me I have about 2 years left unless I get a transplant.I have > lost > > > about 40 lbs., and need to lose 20 lbs.more before I am elegible for > > the > > > transplant list.I should be able to lose the weight since I dont > > have to go > > > back to the doc for 3months.I hoped to avoid a transplant for a lot > of > > > reasons, but I dont have a choice if I want to hang around for > > awhile.I love > > > the group.It is good to hear other peoples experiences or just > > talk.Well God > > > bless you all and well talk later. Mark > > > > > > > > > > > > Mark L.Odegard > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 KAtG, Did you get my e-mail that I sent about -Jewish? Joyce PF 1997> > >> > > How did he determine that you had 2 years left????-There is so many> > > aspects of this disease I do not understand...Our pulmo will not cast> > > any idea of how long my husband has left to live...> > > Hopefully, we will get to -Jewish in St. Louis next month to see> > > there doctors there...The local pulmos can just do so much...> > > Good luck on the weight lose, you have done great!!!!...KAtG> > > >> > > > I went to the doctor on Friday for the the first time in three> > > months.He> > > > told me I have about 2 years left unless I get a transplant.I have> > lost> > > > about 40 lbs., and need to lose 20 lbs.more before I am elegible for> > > the> > > > transplant list.I should be able to lose the weight since I dont> > > have to go> > > > back to the doc for 3months.I hoped to avoid a transplant for a lot> > of> > > > reasons, but I dont have a choice if I want to hang around for> > > awhile.I love> > > > the group.It is good to hear other peoples experiences or just> > > talk.Well God> > > > bless you all and well talk later. Mark> > > >> > > >> > > >> > > > Mark L.Odegard> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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