Re: Latest doctor's appointment and some answers

[Guest guest]

Hi Althea,

I'm glad that you got a new RA doc, and he knows what he's doing.

The news wasn't too good, sorry for that. I hope the orthopedic can

help you relieve some of the pain and numbness you are feeling.

I have been emailing you, not sure why your not receiving it, so I

wanted to let you know that I'm here if you don't get my email. I

will sure keep you in my prayers, hugs T

--- In , " blueroses11 " <bluerose11@e...>

wrote:

>

> Hello all!

> I saw my new RA doctor yesterday and got some answers to many of my

> questions. Some I didn't want but at least I understand a little

> more what is going on.

>

> I have been in tremendous pain for about a month and didn't know

> what was going on. I have had both my arms continually feel as

> though they were dead and that the blood had been cut off from them

> for hours. This wakes me at night and keeps me from talking on the

> phone(which may be a good thing). It was and is very painful

though.

>

> To top this off my hands, wrists, feet and ankles just ached. I

> broke my foot - stress fractures. I can't sit or lay in a

> comfortable postion.

>

> I take Remicade and MTX, plus am on Lortab and Skellaxin(for the

> muscle and pain). I take Foltx to restore my immune system which

> the MTX destroys.

>

> Well, the new RA doctor says my RA is full - blown again and we

have

> increased the MTX to 20 mg and if no help it will be increased to

> 25mg. My Remicade appointments have been increased to one every 6

> weeks instead of 8 so maybe I won't feel absolutely horrible for

> those 2 weeks.

>

> Now for the news I really didn't want to hear! My neck which has

> been operated on twice due to the effects of RA...well I have

severe

> arthritis on every vertebrae now and bone spurs growing on 3,4,5,6

> and 7. He doesn't recommend anymore surgery but is sending me to

> another orthopedic surgeon who may be able to do some nerve work.

> My understanding is that they would cut some of the nerves so that

I

> don't feel the pain in my arms.

>

> I am not sure how this works but will let you know as soon as I

> know. If you would pray for some remission for me with my RA, I

> would be highly appreciative.

>

> For those asking the question about dosage of MTX, I started out at

> 20mg was reduced to 8 mg and am now back up to 20 mg. I started

> with just MTX and had Remicade added about 4 months later.

>

> God bless,

> Althea

>

> PS IF I don't post to much, please know that I am thinking of all

of

> you. I am able to read your posts but it hurts quite a bit to type

> so I answer emails from those who send them to me directly and then

> I am wiped out. I save most of my energy for my addiction to

> quilting and learning about God. I guess I should have said him

> first as he is how I begin and end my day; for those who don't have

> God in their life I can only say find him. I wouldn't be here at

> all if he wasn't here with me helping me each day.

[Guest guest]

Hi Althea,

I'm glad that you got a new RA doc, and he knows what he's doing.

The news wasn't too good, sorry for that. I hope the orthopedic can

help you relieve some of the pain and numbness you are feeling.

I have been emailing you, not sure why your not receiving it, so I

wanted to let you know that I'm here if you don't get my email. I

will sure keep you in my prayers, hugs T

>

> Hello all!

> I saw my new RA doctor yesterday and got some answers to many of my

> questions. Some I didn't want but at least I understand a little

> more what is going on.

>

> I have been in tremendous pain for about a month and didn't know

> what was going on. I have had both my arms continually feel as

> though they were dead and that the blood had been cut off from them

> for hours. This wakes me at night and keeps me from talking on the

> phone(which may be a good thing). It was and is very painful

though.

>

> To top this off my hands, wrists, feet and ankles just ached. I

> broke my foot - stress fractures. I can't sit or lay in a

> comfortable postion.

>

> I take Remicade and MTX, plus am on Lortab and Skellaxin(for the

> muscle and pain). I take Foltx to restore my immune system which

> the MTX destroys.

>

> Well, the new RA doctor says my RA is full - blown again and we

have

> increased the MTX to 20 mg and if no help it will be increased to

> 25mg. My Remicade appointments have been increased to one every 6

> weeks instead of 8 so maybe I won't feel absolutely horrible for

> those 2 weeks.

>

> Now for the news I really didn't want to hear! My neck which has

> been operated on twice due to the effects of RA...well I have

severe

> arthritis on every vertebrae now and bone spurs growing on 3,4,5,6

> and 7. He doesn't recommend anymore surgery but is sending me to

> another orthopedic surgeon who may be able to do some nerve work.

> My understanding is that they would cut some of the nerves so that

I

> don't feel the pain in my arms.

>

> I am not sure how this works but will let you know as soon as I

> know. If you would pray for some remission for me with my RA, I

> would be highly appreciative.

>

> For those asking the question about dosage of MTX, I started out at

> 20mg was reduced to 8 mg and am now back up to 20 mg. I started

> with just MTX and had Remicade added about 4 months later.

>

> God bless,

> Althea

>

> PS IF I don't post to much, please know that I am thinking of all

of

> you. I am able to read your posts but it hurts quite a bit to type

> so I answer emails from those who send them to me directly and then

> I am wiped out. I save most of my energy for my addiction to

> quilting and learning about God. I guess I should have said him

> first as he is how I begin and end my day; for those who don't have

> God in their life I can only say find him. I wouldn't be here at

> all if he wasn't here with me helping me each day.

[Guest guest]

althea... i am so sorry to hear of fyour horrible pain... i know just exactly

how you are feeling.. i have 2 bulding discs in my neck and sometimes i get is

so bad, pain in my right arm and hand and neck... you can't lay down, hurts to

stay up and nothing takes that nerve pain away! and i did not even have RA,

yet... well that we knew of..)

oh and by the way, i love to quilt, too.. i just finished a red and white with

mary englebriet on the back and her cherries on the front piecing the squares

together... oh it turned out really cute... is ure hope this new grandbaby on

the way is a girl...)

later, rae

[ ] Latest doctor's appointment and some answers

Hello all!

I saw my new RA doctor yesterday and got some answers to many of my

questions. Some I didn't want but at least I understand a little

more what is going on.

I have been in tremendous pain for about a month and didn't know

what was going on. I have had both my arms continually feel as

though they were dead and that the blood had been cut off from them

for hours. This wakes me at night and keeps me from talking on the

phone(which may be a good thing). It was and is very painful though.

To top this off my hands, wrists, feet and ankles just ached. I

broke my foot - stress fractures. I can't sit or lay in a

comfortable postion.

I take Remicade and MTX, plus am on Lortab and Skellaxin(for the

muscle and pain). I take Foltx to restore my immune system which

the MTX destroys.

Well, the new RA doctor says my RA is full - blown again and we have

increased the MTX to 20 mg and if no help it will be increased to

25mg. My Remicade appointments have been increased to one every 6

weeks instead of 8 so maybe I won't feel absolutely horrible for

those 2 weeks.

Now for the news I really didn't want to hear! My neck which has

been operated on twice due to the effects of RA...well I have severe

arthritis on every vertebrae now and bone spurs growing on 3,4,5,6

and 7. He doesn't recommend anymore surgery but is sending me to

another orthopedic surgeon who may be able to do some nerve work.

My understanding is that they would cut some of the nerves so that I

don't feel the pain in my arms.

I am not sure how this works but will let you know as soon as I

know. If you would pray for some remission for me with my RA, I

would be highly appreciative.

For those asking the question about dosage of MTX, I started out at

20mg was reduced to 8 mg and am now back up to 20 mg. I started

with just MTX and had Remicade added about 4 months later.

God bless,

Althea

PS IF I don't post to much, please know that I am thinking of all of

you. I am able to read your posts but it hurts quite a bit to type

so I answer emails from those who send them to me directly and then

I am wiped out. I save most of my energy for my addiction to

quilting and learning about God. I guess I should have said him

first as he is how I begin and end my day; for those who don't have

God in their life I can only say find him. I wouldn't be here at

all if he wasn't here with me helping me each day.

[Guest guest]

althea... i am so sorry to hear of fyour horrible pain... i know just exactly

how you are feeling.. i have 2 bulding discs in my neck and sometimes i get is

so bad, pain in my right arm and hand and neck... you can't lay down, hurts to

stay up and nothing takes that nerve pain away! and i did not even have RA,

yet... well that we knew of..)

oh and by the way, i love to quilt, too.. i just finished a red and white with

mary englebriet on the back and her cherries on the front piecing the squares

together... oh it turned out really cute... is ure hope this new grandbaby on

the way is a girl...)

later, rae

[ ] Latest doctor's appointment and some answers

Hello all!

I saw my new RA doctor yesterday and got some answers to many of my

questions. Some I didn't want but at least I understand a little

more what is going on.

I have been in tremendous pain for about a month and didn't know

what was going on. I have had both my arms continually feel as

though they were dead and that the blood had been cut off from them

for hours. This wakes me at night and keeps me from talking on the

phone(which may be a good thing). It was and is very painful though.

To top this off my hands, wrists, feet and ankles just ached. I

broke my foot - stress fractures. I can't sit or lay in a

comfortable postion.

I take Remicade and MTX, plus am on Lortab and Skellaxin(for the

muscle and pain). I take Foltx to restore my immune system which

the MTX destroys.

Well, the new RA doctor says my RA is full - blown again and we have

increased the MTX to 20 mg and if no help it will be increased to

25mg. My Remicade appointments have been increased to one every 6

weeks instead of 8 so maybe I won't feel absolutely horrible for

those 2 weeks.

Now for the news I really didn't want to hear! My neck which has

been operated on twice due to the effects of RA...well I have severe

arthritis on every vertebrae now and bone spurs growing on 3,4,5,6

and 7. He doesn't recommend anymore surgery but is sending me to

another orthopedic surgeon who may be able to do some nerve work.

My understanding is that they would cut some of the nerves so that I

don't feel the pain in my arms.

I am not sure how this works but will let you know as soon as I

know. If you would pray for some remission for me with my RA, I

would be highly appreciative.

For those asking the question about dosage of MTX, I started out at

20mg was reduced to 8 mg and am now back up to 20 mg. I started

with just MTX and had Remicade added about 4 months later.

God bless,

Althea

PS IF I don't post to much, please know that I am thinking of all of

you. I am able to read your posts but it hurts quite a bit to type

so I answer emails from those who send them to me directly and then

I am wiped out. I save most of my energy for my addiction to

quilting and learning about God. I guess I should have said him

first as he is how I begin and end my day; for those who don't have

God in their life I can only say find him. I wouldn't be here at

all if he wasn't here with me helping me each day.