Does a tethered cord cause this ...

[Guest guest]

Remember I'm still virginal to all this LOL ..... my cord is tethered at

the base and my lower back and hip/leg bones are killing me. Could

tethered cord cause hip and bone pain ? I know it is the cause of that

low back labour pain I have, but is it causing my hip and leg bone pain

too ? Any tips for a sleeping position ? Since my Chiari decompression

sleeping on my back is out of question.Seems all I do is toss and turn

trying to get comfortable, am I fighting a losing battle ?

[Guest guest]

My legs hurt all the time. For me, it's nerve pain.

Sometimes when walking, my hips hurt too. Sleeping is

a nightmare (no pun intended). I haven't found a good

way to sleep. Back sleeping is horrible for me, as my

ears seem to get " full " and I get sick to my stomach.

You speak of back labor. If you have more children,

you should consider a c-section. I had my first three

children the regular way, and lost function after

every birth. With the fourth, I had a c-section, and

I haven't lost anymore function! It was nice not to

find some new issue 6 months after the baby was born.

--- blessedwithmojo wrote:

> Remember I'm still virginal to all this LOL ..... my

> cord is tethered at

> the base and my lower back and hip/leg bones are

> killing me. Could

> tethered cord cause hip and bone pain ? I know it is

> the cause of that

> low back labour pain I have, but is it causing my

> hip and leg bone pain

> too ? Any tips for a sleeping position ? Since my

> Chiari decompression

> sleeping on my back is out of question.Seems all I

> do is toss and turn

> trying to get comfortable, am I fighting a losing

> battle ?

>

>

>

>

__________________________________________________

[Guest guest]

I have constant pain in my hips. Detethering has not improved this

much for me. I did not expect it to because of the connective tissue

disorder that I have called EDS. However it is the splinter versus

the tree falling on top of me. At least this way I can walk. There

are exercises that will help deal with whatever sacral nerve damage

that is left after detethering. The best place for them is in PT. I

was told detethering is to stop progression of symptoms. Any

regression of symptoms is just gravy. In my oppinion at this point I

am swimming in it. I am enjoying being able to walk to my car and go

over a block without too much help.

Charnel

>

> Remember I'm still virginal to all this LOL ..... my cord is tethered at

> the base and my lower back and hip/leg bones are killing me. Could

> tethered cord cause hip and bone pain ? I know it is the cause of that

> low back labour pain I have, but is it causing my hip and leg bone pain

> too ? Any tips for a sleeping position ? Since my Chiari decompression

> sleeping on my back is out of question.Seems all I do is toss and turn

> trying to get comfortable, am I fighting a losing battle ?

>

[Guest guest]

Isn't it funny how you can look back and say " oh that's why that happened! " I

lost complete bladder function after my first child was born and everyone said

it was from the birth...then about a week later it returned to " normal "

Re: Does a tethered cord cause this ...

My legs hurt all the time. For me, it's nerve pain.

Sometimes when walking, my hips hurt too. Sleeping is

a nightmare (no pun intended). I haven't found a good

way to sleep. Back sleeping is horrible for me, as my

ears seem to get " full " and I get sick to my stomach.

You speak of back labor. If you have more children,

you should consider a c-section. I had my first three

children the regular way, and lost function after

every birth. With the fourth, I had a c-section, and

I haven't lost anymore function! It was nice not to

find some new issue 6 months after the baby was born.

--- blessedwithmojo wrote:

> Remember I'm still virginal to all this LOL ..... my

> cord is tethered at

> the base and my lower back and hip/leg bones are

> killing me. Could

> tethered cord cause hip and bone pain ? I know it is

> the cause of that

> low back labour pain I have, but is it causing my

> hip and leg bone pain

> too ? Any tips for a sleeping position ? Since my

> Chiari decompression

> sleeping on my back is out of question.Seems all I

> do is toss and turn

> trying to get comfortable, am I fighting a losing

> battle ?

>

>

>

>

__________________________________________________

[Guest guest]

It is really interesting how it never occurred to any

of my doctors that perhaps pushing out a baby could

possibly strain my spinal cord. They were all asked,

and they all said " Oh no, that's just fine. " So I

went with natural vaginal birth and I lost my bladder,

I lost feeling in many parts of my lower body, and I

really am not a thrilled person to know that it all

could have been avoided had the docs known more 21

years ago.

--- The McPhersons's

wrote:

> Isn't it funny how you can look back and say " oh

> that's why that happened! " I lost complete bladder

> function after my first child was born and everyone

> said it was from the birth...then about a week later

> it returned to " normal "

> Re: Does a tethered cord cause this

> ...

>

>

> My legs hurt all the time. For me, it's nerve

> pain.

> Sometimes when walking, my hips hurt too.

> Sleeping is

> a nightmare (no pun intended). I haven't found a

> good

> way to sleep. Back sleeping is horrible for me,

> as my

> ears seem to get " full " and I get sick to my

> stomach.

>

>

> You speak of back labor. If you have more

> children,

> you should consider a c-section. I had my first

> three

> children the regular way, and lost function after

> every birth. With the fourth, I had a c-section,

> and

> I haven't lost anymore function! It was nice not

> to

> find some new issue 6 months after the baby was

> born.

>

>

>

> --- blessedwithmojo

> wrote:

>

> > Remember I'm still virginal to all this LOL

> ..... my

> > cord is tethered at

> > the base and my lower back and hip/leg bones are

> > killing me. Could

> > tethered cord cause hip and bone pain ? I know

> it is

> > the cause of that

> > low back labour pain I have, but is it causing

> my

> > hip and leg bone pain

> > too ? Any tips for a sleeping position ? Since

> my

> > Chiari decompression

> > sleeping on my back is out of question.Seems all

> I

> > do is toss and turn

> > trying to get comfortable, am I fighting a

> losing

> > battle ?

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

I dont have a tethered cord, and yet, my bladder function decreased

after my first daughter's birth. I am fine, but when I am full it is

hard to do jumping jacks. All manageable ofcourse, but still a long

labor and vaginal birth is a big strain on a body.

I delivered my second baby 6 months ago (the one with tsc) by

c-section. Since it was a planned non emergency c-section it was a

breeze. My body did not have all that strain. If I were to do it

again, I would choose a planned c-section any time.

Abby.

> >

> > > Remember I'm still virginal to all this LOL

> > ..... my

> > > cord is tethered at

> > > the base and my lower back and hip/leg bones are

> > > killing me. Could

> > > tethered cord cause hip and bone pain ? I know

> > it is

> > > the cause of that

> > > low back labour pain I have, but is it causing

> > my

> > > hip and leg bone pain

> > > too ? Any tips for a sleeping position ? Since

> > my

> > > Chiari decompression

> > > sleeping on my back is out of question.Seems all

> > I

> > > do is toss and turn

> > > trying to get comfortable, am I fighting a

> > losing

> > > battle ?

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

It sounds more likely muscular/pelvic floor issues then neurologic (I.e.stress

incontinence)

Re: Does a tethered cord cause this ...

I dont have a tethered cord, and yet, my bladder function decreased

after my first daughter's birth. I am fine, but when I am full it is

hard to do jumping jacks. All manageable ofcourse, but still a long

labor and vaginal birth is a big strain on a body.

I delivered my second baby 6 months ago (the one with tsc) by

c-section. Since it was a planned non emergency c-section it was a

breeze. My body did not have all that strain. If I were to do it

again, I would choose a planned c-section any time.

Abby.

> >

> > > Remember I'm still virginal to all this LOL

> > ..... my

> > > cord is tethered at

> > > the base and my lower back and hip/leg bones are

> > > killing me. Could

> > > tethered cord cause hip and bone pain ? I know

> > it is

> > > the cause of that

> > > low back labour pain I have, but is it causing

> > my

> > > hip and leg bone pain

> > > too ? Any tips for a sleeping position ? Since

> > my

> > > Chiari decompression

> > > sleeping on my back is out of question.Seems all

> > I

> > > do is toss and turn

> > > trying to get comfortable, am I fighting a

> > losing

> > > battle ?

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

With my first pregnancy I went to hospital with contractions about 30

seconds apart - they were not impressed lol. In my defense I told them I

was waiting for the PAIN that I heard I was suppose to get !I finally

had it in the last 20 minutes, same with my second child - tethered cord

and chiari related ? Nerves damaged maybe so I didn't feel much ?

Between second and third child I had cervix removed due to CIN 3 ( OOPs

they forgot to tell me not to get pregnant) and number three was more

then enough pain !!

All 3 were natural. I did not know about the tethered cord or chiari.

With hind site being what it is tho, all the symptoms and signs were

clearly there.

> >

> > > Remember I'm still virginal to all this LOL

> > ..... my

> > > cord is tethered at

> > > the base and my lower back and hip/leg bones are

> > > killing me. Could

> > > tethered cord cause hip and bone pain ? I know

> > it is

> > > the cause of that

> > > low back labour pain I have, but is it causing

> > my

> > > hip and leg bone pain

> > > too ? Any tips for a sleeping position ? Since

> > my

> > > Chiari decompression

> > > sleeping on my back is out of question.Seems all

> > I

> > > do is toss and turn

> > > trying to get comfortable, am I fighting a

> > losing

> > > battle ?

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

That's interesting. I had easy deliveries too. I had lots of leg/hip/back pain

while pregnant, I didn't know it was tsc pain. My ankle wasn't working for a

while too.

A

Re: Does a tethered cord cause this ...

With my first pregnancy I went to hospital with contractions about 30

seconds apart - they were not impressed lol. In my defense I told them I

was waiting for the PAIN that I heard I was suppose to get !I finally

had it in the last 20 minutes, same with my second child - tethered cord

and chiari related ? Nerves damaged maybe so I didn't feel much ?

Between second and third child I had cervix removed due to CIN 3 ( OOPs

they forgot to tell me not to get pregnant) and number three was more

then enough pain !!

All 3 were natural. I did not know about the tethered cord or chiari.

With hind site being what it is tho, all the symptoms and signs were

clearly there.

> >

> > > Remember I'm still virginal to all this LOL

> > ..... my

> > > cord is tethered at

> > > the base and my lower back and hip/leg bones are

> > > killing me. Could

> > > tethered cord cause hip and bone pain ? I know

> > it is

> > > the cause of that

> > > low back labour pain I have, but is it causing

> > my

> > > hip and leg bone pain

> > > too ? Any tips for a sleeping position ? Since

> > my

> > > Chiari decompression

> > > sleeping on my back is out of question.Seems all

> > I

> > > do is toss and turn

> > > trying to get comfortable, am I fighting a

> > losing

> > > battle ?

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Did the bladder function get better with time, or is

it as bad as it was after the baby? Most women have

some incontinence after child birth because the

muscles that control the entire area get so weakened.

Kegels are supposed to help that. They didn't help me

and I didn't know why, and here, it turned out that

the nerve that controls those muscles was too damaged

for the muscles to really strengthen the way they

should have. Lovely stuff.

Jumping jacks with a full bladder. I wonder how many

people would give that a shot and see what happens?

Non-TCS people here that I work with. Those are the

people I'm going to ask!

--- subub_98 wrote:

> I dont have a tethered cord, and yet, my bladder

> function decreased

> after my first daughter's birth. I am fine, but when

> I am full it is

> hard to do jumping jacks. All manageable ofcourse,

> but still a long

> labor and vaginal birth is a big strain on a body.

>

> I delivered my second baby 6 months ago (the one

> with tsc) by

> c-section. Since it was a planned non emergency

> c-section it was a

> breeze. My body did not have all that strain. If I

> were to do it

> again, I would choose a planned c-section any time.

>

> Abby.

>

__________________________________________________

[Guest guest]

There are a lot of women whom I've heard speak of easy

labors and deliveries. I don't know that it would be

TCS related for you or not. I didn't have easy

deliveries with the three I had vaginally. Well, they

weren't horrible, either, but I certainly felt enough

pain with all of them.

--- A Gosp wrote:

> That's interesting. I had easy deliveries too. I had

> lots of leg/hip/back pain while pregnant, I didn't

> know it was tsc pain. My ankle wasn't working for a

> while too.

> A

> Re: Does a tethered cord cause this

> ...

>

>

>

> With my first pregnancy I went to hospital with

> contractions about 30

> seconds apart - they were not impressed lol. In my

> defense I told them I

> was waiting for the PAIN that I heard I was

> suppose to get !I finally

> had it in the last 20 minutes, same with my second

> child - tethered cord

> and chiari related ? Nerves damaged maybe so I

> didn't feel much ?

>

> Between second and third child I had cervix

> removed due to CIN 3 ( OOPs

> they forgot to tell me not to get pregnant) and

> number three was more

> then enough pain !!

>

> All 3 were natural. I did not know about the

> tethered cord or chiari.

> With hind site being what it is tho, all the

> symptoms and signs were

> clearly there.

>

>

>

>

>

> > >

> > > > Remember I'm still virginal to all this LOL

> > > ..... my

> > > > cord is tethered at

> > > > the base and my lower back and hip/leg bones

> are

> > > > killing me. Could

> > > > tethered cord cause hip and bone pain ? I

> know

> > > it is

> > > > the cause of that

> > > > low back labour pain I have, but is it

> causing

> > > my

> > > > hip and leg bone pain

> > > > too ? Any tips for a sleeping position ?

> Since

> > > my

> > > > Chiari decompression

> > > > sleeping on my back is out of question.Seems

> all

> > > I

> > > > do is toss and turn

> > > > trying to get comfortable, am I fighting a

> > > losing

> > > > battle ?

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

It is definitely better than soon after the baby, but not as good as

before the baby. Well, the jumping jacks thing is because I used to

pride on having such control...during long car trips I would be the

only one not wanting to stop to go to the bathroom because I dont like

dirty bathrooms outside. So this was a surprise. Minor adjustments

like always using the restroom before going to the aerobics class

fixed that problem. Wish all problems were that simple.

Abby.

>

> > I dont have a tethered cord, and yet, my bladder

> > function decreased

> > after my first daughter's birth. I am fine, but when

> > I am full it is

> > hard to do jumping jacks. All manageable ofcourse,

> > but still a long

> > labor and vaginal birth is a big strain on a body.

> >

> > I delivered my second baby 6 months ago (the one

> > with tsc) by

> > c-section. Since it was a planned non emergency

> > c-section it was a

> > breeze. My body did not have all that strain. If I

> > were to do it

> > again, I would choose a planned c-section any time.

> >

> > Abby.

> >

>

>

> __________________________________________________

>

[Guest guest]

When I had both of my kids, I was unaware of my TCS...all the symptoms were

there but no one put them all together. When I had epidurals, they would only

work on the right side of my body since the lipoma was blocking the left. Scary

now that I think about the epidurals since my cord wasn't in the " normal " spot!

Re: Does a tethered cord cause this

> ...

>

>

>

> With my first pregnancy I went to hospital with

> contractions about 30

> seconds apart - they were not impressed lol. In my

> defense I told them I

> was waiting for the PAIN that I heard I was

> suppose to get !I finally

> had it in the last 20 minutes, same with my second

> child - tethered cord

> and chiari related ? Nerves damaged maybe so I

> didn't feel much ?

>

> Between second and third child I had cervix

> removed due to CIN 3 ( OOPs

> they forgot to tell me not to get pregnant) and

> number three was more

> then enough pain !!

>

> All 3 were natural. I did not know about the

> tethered cord or chiari.

> With hind site being what it is tho, all the

> symptoms and signs were

> clearly there.

>

>

>

>

>

> > >

> > > > Remember I'm still virginal to all this LOL

> > > ..... my

> > > > cord is tethered at

> > > > the base and my lower back and hip/leg bones

> are

> > > > killing me. Could

> > > > tethered cord cause hip and bone pain ? I

> know

> > > it is

> > > > the cause of that

> > > > low back labour pain I have, but is it

> causing

> > > my

> > > > hip and leg bone pain

> > > > too ? Any tips for a sleeping position ?

> Since

> > > my

> > > > Chiari decompression

> > > > sleeping on my back is out of question.Seems

> all

> > > I

> > > > do is toss and turn

> > > > trying to get comfortable, am I fighting a

> > > losing

> > > > battle ?

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

Same experience about unidentified TCS. First delivery in the 1969 they started

losing us after 30 some painful hours so they pushed hard on my stomach forcing

my son out. Damage didn't help my incontinence problems. Three years later

with the delivery of my daughter there was no pain at all-I could have dropped

her while walking if water hadn't broken.

Pat