Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Its up to the doctor, I have PCa mets to the nodes. They took the node and left the gland. the entire left lobe was infected. I hope you read my post about my friend Steves dad Larry. psa 1200+ and a very bad case of bone mets. He had his first HT and his psa dropped like a rock. All the swelling in his spine is gone and he's talking golf again. You just never know. Best wishes dcjatkins@... wrote: The Dr. has not given any prognosis but from what I have read, 5 years for him would be lucky but not likely. The Dr, told my mom that the cancer is also in his lymph nodes and so the did not remove them or biopsy them since the know they have cancer there as well. Shouldn't they have removed them? You all seem like a very carring group and am glad I am able to join you all. Thanks., daughter to Dave Have a nice Day! Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 , I am left wondering why they removed your dads prostate in the first place because if his Gleason score is correct it would seem his disease was systemic in the first place. Unless it was just to debulk the tumour. His doctor is the expert I suppose so he must have his reasons, but if it were me I would be asking that question. I would have thought hormone treatment up front would have been the answer from the off. Never give up hope though. A couple of our support group members were given 12 months to live about 5 or 6 years ago and they are still with us. They have had great success with high dose COQ-10 and of course a good PCa diet. Remember! everyone is different in this crazy world of prostate cancer. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 , See link below for Life Extension Foundations take on COQ-10. Also Dr Howenstines site on COQ-10. If you live near a Cosco outlet you can get COQ-10 a lot cheaper. Click here: Le Magazine, October 2005 - Report: Coenzyme Q10 New Applications For Cancer Therapy http://www.newswithviews.com/Howenstine/james2.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 , THe Dr. said the prostate was very large and the cancer was outside the prostate as well. My Dad had been seeing a urologist for a while about a related problem and he never looked in PCa as a cause. Anyway, the VA doctors did a review of my Dad's PSA's andd biopsied and wenbt from there. What is COQ-10? , daughter to Dave >From: coolerking5@... >Date: Mon Mar 06 03:20:20 CST 2006 >To: ProstateCancerSupport >Subject: Re: new member intro >, > >I am left wondering why they removed your dads prostate in the first place because if his Gleason score is correct it would seem his disease was systemic in the first place. Unless it was just to debulk the tumour. His doctor is the expert I suppose so he must have his reasons, but if it were me I would be asking that question. I would have thought hormone treatment up front would have been the answer from the off. > >Never give up hope though. A couple of our support group members were given 12 months to live about 5 or 6 years ago and they are still with us. They have had great success with high dose COQ-10 and of course a good PCa diet. Remember! everyone is different in this crazy world of prostate cancer. > > >Regards > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Hi Jeanne. There are viable treatments for your husband based on what the tests show. Do not get depressed. I am on Hormone therapy after recurrence and it is working My last PSA result was "undetectable" There is hope. 2482 "il faut d'abord durer" Hemingway New member Intro Hi, folks, I've just joined and haven't yet had a chance to read previous messages. My husband, age 59, had prostate surgery in January, 1999, followed by radiation therapy. His PSA tests had been very very low...until now. After a recent physical for new life insurance, he was denied due to high PSA score. He went to his GP doctor with this information, and was referred to the Specialist, who retested, with the same result. Another referral to the Cancer clinic where he had originally had the radiation, and they have now recommended an injection of some type of radiation liquid, followed by CAT scans looking for the cancer. We are both devastated by this...as I'm sure everyone is when they are facing it. Until the tests are completed, we have no idea of prognosis, or treatment options...our strategy is to prepare for the worst, but pray for the best... So, we've joined this list looking for information...any ideas, suggestions, advice will be greatly appreciated! Thanks... Bruce & Jeanne Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Hi Jeanne gave you some very good advice. And you have a logical stragedy, prayers are sometimes answered. I'll pray for you tonight. Very best of luckJeanne Lundeen wrote: . Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Thank you so much for your words of encouragement, . The doctor told him in the original visit that Hormone therapy was a possiblity depending on the results, but that he could only take it for 5-6 years...and after that ????....well...that sounded pretty grim... We're trying to stay positive until we know more... Thanks again! Jeanne > > Hi Jeanne. > > There are viable treatments for your husband based on what the tests show. Do not get depressed. I am on Hormone therapy after recurrence and it is working > My last PSA result was " undetectable " There is hope. > > > 2482 > " il faut d'abord durer " Hemingway > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 THanks, Sam...you are very kind.... Jeanne > . > > > > > > > > > > > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Is anyone in there early 40'S WITH THIS ? I cant be that rare. I have been to yanow website and looked under the topic or category of age. 43 psa 25.7 gleason 8 and untreated to this point. SOMEONE MY AGE PLEASE SHARE YOUR EXPERIENCE ! PLEASE ! --- Jeanne wrote: > Thank you so much for your words of encouragement, > . The doctor > told him in the original visit that Hormone therapy > was a possiblity > depending on the results, but that he could only > take it for 5-6 > years...and after that ????....well...that sounded > pretty grim... > > We're trying to stay positive until we know more... > > Thanks again! > > Jeanne > > > > > > > > Hi Jeanne. > > > > There are viable treatments for your husband based > on what the > tests show. Do not get depressed. I am on Hormone > therapy after > recurrence and it is working > > My last PSA result was " undetectable " There is > hope. > > > > > > 2482 > > " il faut d'abord durer " Hemingway > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 jeanne good luck w everything. I was just recently given my news about the cancer..so i am new to this.take care and keep the faith...joe --- Jeanne wrote: > THanks, Sam...you are very kind.... > > Jeanne > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Talk is cheap. Use Yahoo! Messenger to make > PC-to-Phone calls. > Great rates starting at 1¢/min. > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Jeanne wrote: <The doctor <told him in the original visit that Hormone therapy was a <possiblity <depending on the results, but that he could only take it <for 5-6 years <snip> The doctor was incorrect. We have men on this list that have been on ADT (Androgen Deprivation Therapy) for 10 years or more. I intend to stay on it until it loses it's efficiency (as indicated by rising PSA) and then choose from several different protocols for the next battle and maybe by then something new will come along. This is still the first quarter. The game is far from over. Odds are something else will take me before the PCa does. Remember what Carlin observed. " Death is caused by swallowing small amounts of saliva over an extended period of time. " :-) 2482 " il faut d'abord durer " Hemingway Re: New member Intro > Thank you so much for your words of encouragement, . The doctor > told him in the original visit that Hormone therapy was a possiblity > depending on the results, but that he could only take it for 5-6 > years...and after that ????....well...that sounded pretty grim... > > We're trying to stay positive until we know more... > > Thanks again! > > Jeanne > > > > >> >> Hi Jeanne. >> >> There are viable treatments for your husband based on what the > tests show. Do not get depressed. I am on Hormone therapy after > recurrence and it is working >> My last PSA result was " undetectable " There is hope. >> >> >> 2482 >> " il faut d'abord durer " Hemingway >> >> > > > > > > > > There are just two rules for this group > 1 No Spam > 2 Be kind to others > > Try to delete old material that is no longer applying when clicking reply > Try to change the title if the content requires it > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 - It appears to be fairly rare in this group. You might also try the Yahoo Group called (I believe) prostatecancerunder40. I lurked there for awhile when I first started looking at these groups even though I'm 47. It's worth a try. Mick Hicks wrote: Is anyone in there early 40'S WITH THIS ? I cant be that rare. I have been to yanow website and looked under the topic or category of age. 43 psa 25.7 gleason 8 and untreated to this point. SOMEONE MY AGE PLEASE SHARE YOUR EXPERIENCE ! PLEASE ! --- Jeanne <jlundeenmsn> wrote: > Thank you so much for your words of encouragement, > . The doctor > told him in the original visit that Hormone therapy > was a possiblity > depending on the results, but that he could only > take it for 5-6 > years...and after that ????....well...that sounded > pretty grim... > > We're trying to stay positive until we know more... > > Thanks again! > > Jeanne > > > > > > > > Hi Jeanne. > > > > There are viable treatments for your husband based > on what the > tests show. Do not get depressed. I am on Hormone > therapy after > recurrence and it is working > > My last PSA result was "undetectable" There is > hope. > > > > > > 2482 > > "il faut d'abord durer" Hemingway > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Hi Jeanne, is right. There are many fine examples of men who have managed to control the disease with what is termed ADT (Androgen Deprivation Therapy) for many years. If you have the time and the interest to read a truly inspiring story, have a look at Ric Mastens tale starting at http://www.ric-masten.net/PCaOdyssey/01pc1999.html He was diagnosed with metastasized disease – the cancer had spread to the bone – in 1999. He is still very much with us and in fact has resuscitated his career as a Poet, traveling across the US recently from his California base for readings in New York. I must say that one thing that really annoys me is to read of anyone estimating life expectancy. Given the vagaries of the disease that we all share, NO ONE (pardon the raised voice) can say that you will live five or six years, or that the treatment will only be effective for that time. If I may refer you to another wonderful piece of writing about this issue, at http://tinyurl.com/6nwg7 It is a piece by Jay Gould and although it is not about prostate cancer, because he was diagnosed in 1982 with abdominal mesothelioma, a rare and very deadly form of cancer associated with exposure to asbestos he beat the cancer for 20 years, finally passing on May 20, 2002, from an unconnected problem. He not only gave all of us a valuable lesson in beating the odds, the piece also gave me an understanding of some of the issues about how important it is to establish the range of survival rather than median or average survival rates. All the best Terry Herbert in Melbourne Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June '04: TURP. Mar '06 PSA 17.40 fPSA 23% My site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Jeanne Sent: 09 June 2006 04:23 AM To: ProstateCancerSupport Subject: Re: New member Intro Thank you so much for your words of encouragement, . The doctor told him in the original visit that Hormone therapy was a possiblity depending on the results, but that he could only take it for 5-6 years...and after that ????....well...that sounded pretty grim... We're trying to stay positive until we know more... Thanks again! Jeanne > > Hi Jeanne. > > There are viable treatments for your husband based on what the tests show. Do not get depressed. I am on Hormone therapy after recurrence and it is working > My last PSA result was " undetectable " There is hope. > > > 2482 > " il faut d'abord durer " Hemingway > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Thanks, Joe...You take care also!! Jeanne Re: Re: New member Intro jeanne good luck w everything. I was just recentlygiven my news about the cancer..so i am new tothis.take care and keep the faith...joe--- Jeanne <jlundeenmsn> wrote:> THanks, Sam...you are very kind....> > Jeanne> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > Talk is cheap. Use Yahoo! Messenger to make> PC-to-Phone calls. > Great rates starting at 1¢/min.> >> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Thanks, Terry...this is good information!! Jeanne RE: Re: New member Intro Hi Jeanne, is right. There are many fine examples of men who have managed to control the disease with what is termed ADT (Androgen Deprivation Therapy) for many years. If you have the time and the interest to read a truly inspiring story, have a look at Ric Mastens tale starting at http://www.ric-masten.net/PCaOdyssey/01pc1999.html He was diagnosed with metastasized disease – the cancer had spread to the bone – in 1999. He is still very much with us and in fact has resuscitated his career as a Poet, traveling across the US recently from his California base for readings in New York. I must say that one thing that really annoys me is to read of anyone estimating life expectancy. Given the vagaries of the disease that we all share, NO ONE (pardon the raised voice) can say that you will live five or six years, or that the treatment will only be effective for that time. If I may refer you to another wonderful piece of writing about this issue, at http://tinyurl.com/6nwg7 It is a piece by Jay Gould and although it is not about prostate cancer, because he was diagnosed in 1982 with abdominal mesothelioma, a rare and very deadly form of cancer associated with exposure to asbestos he beat the cancer for 20 years, finally passing on May 20, 2002, from an unconnected problem. He not only gave all of us a valuable lesson in beating the odds, the piece also gave me an understanding of some of the issues about how important it is to establish the range of survival rather than median or average survival rates. All the best Terry Herbert in Melbourne Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June '04: TURP. Mar '06 PSA 17.40 fPSA 23% My site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of JeanneSent: 09 June 2006 04:23 AMTo: ProstateCancerSupport Subject: Re: New member Intro Thank you so much for your words of encouragement, . The doctor told him in the original visit that Hormone therapy was a possiblity depending on the results, but that he could only take it for 5-6 years...and after that ????....well...that sounded pretty grim...We're trying to stay positive until we know more...Thanks again!Jeanne>> Hi Jeanne.> > There are viable treatments for your husband based on what the tests show. Do not get depressed. I am on Hormone therapy after recurrence and it is working > My last PSA result was "undetectable" There is hope. > > > 2482> "il faut d'abord durer" Hemingway> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2006 Report Share Posted September 9, 2006 > > Hello all.My name is Terri Hi Terri, my name is /NY, I've added the/NY for some weird reason that I can't think of right now,ha,ha,ha. As yes, I figured they'd be a lot of men, and possibly some women named in this group. Well, anyway, welcome, I wish you nor I had to be here, but you couldn't find a greater group of people in any group of people in pain including my last group. Everyone seems very helpful in getting answer's to what ails you. I've been a member for less than a week myself. Again, welcome, /NY Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.