Guest guest Posted May 28, 1999 Report Share Posted May 28, 1999 After 9 years of total misery - my doctor got interested in VV and took an interest in my PAIN! From being totally disinterested he has become an absolute gem and is willing to prescribe anything I can suggest as a possibility for relief. I am using Estrace 2-3 times a day and in general that cuts the pain in about 1/2. My pain is centered around the clitoris, over the pubic bone and in the low pelvic area. Sitting is still uncomfortable but nothing like it was when I used to stop my car on the edge of the freeway and sit and cry. I was using Elavil for a while but found that it didn't do me any good. I was however only using 75mg per day. Possible a higher dose would have helped. Am presently on 40 mg of Prozac ( courtesy of my doctor )since my HMO won't pay for Prozac but will pay for Paxil, Elavil etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 HI Joan; Yes, you are one of the people I felt I would miss......glad you are here to. Fire away with the questions anytime...if I don't understand them, I will ask Ron. THe other lists was too much "bathroom talk"; what I mean to say was too much digression from topic and repetitive posts. n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Hi , Welcome. My name is Darlene/41 diagnosed in 95. My daughter will be going to college this Friday!!!!! I've been on/off reading the posts and I need to get my computer up and running. My hubby installed a new computer and I'm THRILLED to say the least. It is lightning fast. Darlene Kickin Cane Covers www.canecovers.org I have my Websight email under AOL KickinCaneCovers@..., my hubby does not want any part of AOL. A computer specialist looked at our computer and AOL was invading and putting so much crap in my computer and would lock me up etc etc etc...so I am switiching to Comcast, I have already switched one of the groups I subscribe to to this but still need to get on AOL (On old computer upstairs) to see what I can do. --------- Re: saturday newspaperTo: serenasmum@.... Hello to all you wonderful people. This is thefirst time I've posted so I'll tell you I'm 's mother, proudly! Eleven years ago I had optic neuritis in one eye. Itresolved itself without any med and so far has not happened again. Iwas DX with MS 4 years ago at age 57. Since that time I've been on aweekly interferon injection. I use a cane and sometimes a rolling walker that offers the option to sit. Last year I followed the Swankdiet pretty closely. This year I'm more relaxed about it, but do tryand keep it in mind most of the time.Have many of you tried this diet?At this time I'm trying to learn who you all are and what'shappening. I can tell what a caring and supportive group this is andI'm grateful to be a member. Much Love - .>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2005 Report Share Posted December 4, 2005 Welcome, Beth, and congratulations on all that you have achieved! n, 68, dx wMS at 19, and still here! Intro Hi - I'm new and thought I'd post my intro:I'm 38 yo and in Mid-Missouri. I was diagnosed around 1990.Hmmm... What do people usually ask?*walk with a cane outdoors (pride cometh before a fall!)*work full time (plus)*in a successful lovely relationship for 3 years*take avonex, ritalin (for fatigue), and wellbutrin*ongoing symptoms/effects of MS are numbness in hands and feet, urinary incontinence, awful fatigue, forgetfulness/confusion (I am known to say - "stop, can you please start over, I'll get my notebook"I was very overweight previously and have lost 80 pounds about 3 years ago and am going for my final weight loss now through diet and exercise. How I hate to diet but love to exercise. Strength training (weights) saved me! I feel so much better now and can do things because I have some muscles to back me up. It seems to fight fatigue (as well as the weight loss). I have had mild and severe exacerbations and ongoing pesky symptoms. I use the quote, "I'd rather die on my feet than live on my knees." because I'm really stubborn about approaching life in an assertive and positive manner and being real. It irritates people once in a while but I will try to be more sensitive! I need to cry too sometimes. - Beth No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.362 / Virus Database: 267.13.11/191 - Release Date: 12/2/2005 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.1.362 / Virus Database: 267.13.11/191 - Release Date: 12/2/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Jackie wrote; Naturally my goal is to become more active and find a new job! welcome. Where your problems with; " degenerative arthritis of the cervical and lumbar spine, degenerative disc disease of the lumbar spine (multiple disc bulges in c-spine as well, " caused by the car accident? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Gail wrote: > Whre your problems caused by the car accident? ------------ Hi Gail, The MRI was done about 4 months after the accident. I have been told that the degenerative arthritis process must have started before the accident to show up on the MRI. I'm not sure about the disc bulge's. However, the amount of crunching (not cracking or popping, it was crunching) that occurred in my spine (followed by electric-shock feelings) in the first three months must have left some damage behind. At that point though, the doctors were brushing me off and I had just PT and meds and was told nothing was wrong with me. At least I know if I ever have those problems again, I have my spine doctor. Thanks for writing, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 hi jackie, welcome to the group. this is a wonderful group and someone is always here for you. i also have back an neck problems and as the say " i feel your pain " hopefully soon you will have some relief. again welcome, connie >phoenix_rising76 wrote: I have been dealing with headaches, neck pain, arm pain & tingling, and low back pain following an auto accident in July '05. Jackie --------------------------------- Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Thanks for the reply > > > Mike, It's OK, belive me. No need to apologize to anyone for taking Vicodin. They are a derivitive of a drug that has been used to treat pain for over 100 years. They still use it because it works. > > > > There is a whole stigma of drug use by folks who are not in pain of any kind and that is the abuse part that we all suffer with a little bit because we are on the ligitimate side of use. > > > > Maintain your self esteeem, your outlook and your life. It is necessary for you and you cannot be the man you want to be if you are not at least reasonably comfortable. I took Vicodin for a long time and have unfortunately elevated to Opana, a stronger medicine. I have no qualms about taking it. I am sitting here writing this to you being very uncomfortable with right hip pain spikes. Its just our life. You have found a sympathetic place. Take Care, and manage your pain. dk > > > > > > > To: Hugs-N-Pain > From: sincityq@... > Date: Mon, 3 Aug 2009 15:35:59 +0000 > Subject: Intro > > > > > > Hello, > > I am a new member here. My name is Mike and I currently live in East > Central, Alabama. I am also a chronic pain sufferer. > > It all began with a work accident back in 1996. A kid operating a > forklift dropped some steel shelving on me. That was the end of my > working life and the beginning of the one I live now. > > About a year after the accident, I was awarded a disability claim. > Following that, my marriage of 14 years ended. > > In 1999, I met a woman on the web... we were both coming out of failed > marriages and both desperately seeking someone to hold on to. We have > been together ever since. > > Today, I am now well over age 50 and on a maintenance prescription for > Vicodin. It is not a perfect solution but it does allow me to function > at a nominal level. What that means is that I can join my partner in > going to the store or out to a movie. Unfortunately, she has some deeply > seated, preconceived notions about pain and pain killers that does not > really allow for a lot of understanding. Basically, pain killers are > evil and I am silly for taking them. > > Pain is an unseen and completely misundertood affliction. People with > ailments that manifest outwardly, have far less problems in dealing with > social stigmas and stereotyping. But pain is often hidden within the > sufferer... and even our closest family and friends have a dificult time > understanding what it is like to wake up in pain, live through each and > every single day with pain and then, take pain to bed with us. > > Sometimes, it would just be nice to hear someone say that it's okay... > and that they understand. > > Sorry to bend your ears > > Mike > > > > > > > > > > _________________________________________________________________ > Express your personality in color! Preview and select themes for Hotmail®. > http://www.windowslive-hotmail.com/LearnMore/personalize.aspx?ocid=PID23391::T:W\ LMTAGL:ON:WL:en-US:WM_HYGN_express:082009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Thanks. I may ask her to come and join... if and when the opportunity arises. Right now, it's just good to find someplace where people understand what you're saying Mike > > > > > > > Hello, > > > > I am a new member here. My name is Mike and I currently live in East > > Central, Alabama. I am also a chronic pain sufferer. > > > > It all began with a work accident back in 1996. A kid operating a > > forklift dropped some steel shelving on me. That was the end of my > > working life and the beginning of the one I live now. > > > > About a year after the accident, I was awarded a disability claim. > > Following that, my marriage of 14 years ended. > > > > In 1999, I met a woman on the web... we were both coming out of failed > > marriages and both desperately seeking someone to hold on to. We have > > been together ever since. > > > > Today, I am now well over age 50 and on a maintenance prescription for > > Vicodin. It is not a perfect solution but it does allow me to function > > at a nominal level. What that means is that I can join my partner in > > going to the store or out to a movie. Unfortunately, she has some deeply > > seated, preconceived notions about pain and pain killers that does not > > really allow for a lot of understanding. Basically, pain killers are > > evil and I am silly for taking them. > > > > Pain is an unseen and completely misundertood affliction. People with > > ailments that manifest outwardly, have far less problems in dealing with > > social stigmas and stereotyping. But pain is often hidden within the > > sufferer... and even our closest family and friends have a dificult time > > understanding what it is like to wake up in pain, live through each and > > every single day with pain and then, take pain to bed with us. > > > > Sometimes, it would just be nice to hear someone say that it's okay... > > and that they understand. > > > > Sorry to bend your ears > > > > Mike > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Alanna, Thank you for the kind words. Just reading the replies so far to my intro has been a great relief Mike > > Mike, > Welcome to the group. My husband is also not very understanding @ my pain and my need for medications. Unfortunately people can only feel THEIR OWN pain. It is so hard for them to understand how bad it is or how hard it is just to get through the day. I get up most days thinking that I just can't do this one more day. > I wish I knew how to get through to them, but it does help a little to vent. > I am on WAY stronger medications than Vicodin and I need them to function at all. Be grateful that that's all you need. There is so much ignorance and prejudice against people who need narcotics. Is it really that much different than insulin? > I hope you find what you need here. > Hugs, > Alanna > Sent from my Verizon Wireless BlackBerry > > Intro > > > Hello, > > I am a new member here. My name is Mike and I currently live in East > Central, Alabama. I am also a chronic pain sufferer. > > It all began with a work accident back in 1996. A kid operating a > forklift dropped some steel shelving on me. That was the end of my > working life and the beginning of the one I live now. > > About a year after the accident, I was awarded a disability claim. > Following that, my marriage of 14 years ended. > > In 1999, I met a woman on the web... we were both coming out of failed > marriages and both desperately seeking someone to hold on to. We have > been together ever since. > > Today, I am now well over age 50 and on a maintenance prescription for > Vicodin. It is not a perfect solution but it does allow me to function > at a nominal level. What that means is that I can join my partner in > going to the store or out to a movie. Unfortunately, she has some deeply > seated, preconceived notions about pain and pain killers that does not > really allow for a lot of understanding. Basically, pain killers are > evil and I am silly for taking them. > > Pain is an unseen and completely misundertood affliction. People with > ailments that manifest outwardly, have far less problems in dealing with > social stigmas and stereotyping. But pain is often hidden within the > sufferer... and even our closest family and friends have a dificult time > understanding what it is like to wake up in pain, live through each and > every single day with pain and then, take pain to bed with us. > > Sometimes, it would just be nice to hear someone say that it's okay... > and that they understand. > > Sorry to bend your ears > > Mike > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 How can pain meds be evil? If it weren't for the stuff from the poppy, I'd be cripple. I'd say they were a God send. They prevent the worst spasm from hell from occuring for me by blocking the signal at the neuro level.  They keep my bood pressure out of the red zone and keep me from having a stroke...the pain also causes my heart to beat irregular and the long acting Morhpine has stopped that from happening. I feel blessed they are there for us. I'm sure that plant was put there for a reason.  I think you must be thinking of problems surrounding addiction and goodies like that. Please know that addiction does not just happen...it is not inevitable.  I used to treat addictics and they weren't evil nor are the drugs.  It's a serious disease. Addiction can be to anything. Drugs are just a small part of it. We just don't pay too much attention to the others stuff people get hooked on but they cause the same degree of problems.  Tolerance is not addiction so don't confuse the two. I'm afraid the media has been responsible for most of the misunderstanding of opiates. The opiates via the poppy have proven to be the safest most affective of all pain management drugs.  As a former nurse who has worked cardiac care, I don't know how many people we would have lost were it not for Morphine. That drug saves lives...over and over. They work in such a way as the change pain perception, control spasms, and in the case of heart attacks....it stops the fear so the pateint can cool it and let the heart rest...  In my case, because it does control the spasm (The Beast) from hell, I feel I can live on. I was wondering how many more of those I had in me before we discovered the nerve blocking action of codiene.  If someone is making you feel evil because you need the drug, tell 'em to shove it. They are ignorant.  Here's some helpful reading. Drugs are not evil. How we use them is what's important. I used to give my addicts something new to chew on...I told them you cannot abuse drugs...they don't care. They are just drugs that they don't really think about it. But...you can abuse yourself with them. That helped change some of the way they thought...of how they were causing harm to selves...they liked that way of seeing it. It's how we do this.   http://lalaleigha.wordpress.com/2009/03/14/opiates-and-pain/  http://ezinearticles.com/?Addiction-Vs-Tolerance & id=792622  http://www.needle.co.nz/fastpage/fpengine.php/templateid/30  Don't let anyone or media ignorance get you on the thinking of anything we need to do for ourselves as evil.    Lotacats “I love cats because I enjoy my home; and little by little, they become its visible soul.†Twitter_follow me http://twitter.com/LotacatsFunPix Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix.com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05.deviantart.com/ Subject: Intro To: Hugs-N-Pain Date: Monday, August 3, 2009, 8:35 AM  Hello, I am a new member here. My name is Mike and I currently live in East Central, Alabama. I am also a chronic pain sufferer. It all began with a work accident back in 1996. A kid operating a forklift dropped some steel shelving on me. That was the end of my working life and the beginning of the one I live now. About a year after the accident, I was awarded a disability claim. Following that, my marriage of 14 years ended. In 1999, I met a woman on the web... we were both coming out of failed marriages and both desperately seeking someone to hold on to. We have been together ever since. Today, I am now well over age 50 and on a maintenance prescription for Vicodin. It is not a perfect solution but it does allow me to function at a nominal level. What that means is that I can join my partner in going to the store or out to a movie. Unfortunately, she has some deeply seated, preconceived notions about pain and pain killers that does not really allow for a lot of understanding. Basically, pain killers are evil and I am silly for taking them. Pain is an unseen and completely misundertood affliction. People with ailments that manifest outwardly, have far less problems in dealing with social stigmas and stereotyping. But pain is often hidden within the sufferer... and even our closest family and friends have a dificult time understanding what it is like to wake up in pain, live through each and every single day with pain and then, take pain to bed with us. Sometimes, it would just be nice to hear someone say that it's okay... and that they understand. Sorry to bend your ears Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 I know my parents believe all of that sort of stuff. Anytime the Dr upps my pain meds my parents start on this me being addicted to pain meds deal. They have also been very good at accusing pain patients of getting a " high " when they take their medications. They prove it on the basis that if a normal person used morphine they would be feeling really " High " so we must be getting that same feeling every time we take the medication.. So I have been asked all the time if there is anything I can do since I am high all the time. ________________________________ To: Hugs-N-Pain Sent: Tuesday, August 4, 2009 12:13:00 PM Subject: Re: Intro  How can pain meds be evil? If it weren't for the stuff from the poppy, I'd be cripple. I'd say they were a God send. They prevent the worst spasm from hell from occuring for me by blocking the signal at the neuro level.  They keep my bood pressure out of the red zone and keep me from having a stroke...the pain also causes my heart to beat irregular and the long acting Morhpine has stopped that from happening. I feel blessed they are there for us. I'm sure that plant was put there for a reason.  I think you must be thinking of problems surrounding addiction and goodies like that. Please know that addiction does not just happen...it is not inevitable.  I used to treat addictics and they weren't evil nor are the drugs.  It's a serious disease. Addiction can be to anything. Drugs are just a small part of it. We just don't pay too much attention to the others stuff people get hooked on but they cause the same degree of problems.  Tolerance is not addiction so don't confuse the two. I'm afraid the media has been responsible for most of the misunderstanding of opiates. The opiates via the poppy have proven to be the safest most affective of all pain management drugs.  As a former nurse who has worked cardiac care, I don't know how many people we would have lost were it not for Morphine. That drug saves lives...over and over. They work in such a way as the change pain perception, control spasms, and in the case of heart attacks....it stops the fear so the pateint can cool it and let the heart rest...  In my case, because it does control the spasm (The Beast) from hell, I feel I can live on. I was wondering how many more of those I had in me before we discovered the nerve blocking action of codiene.  If someone is making you feel evil because you need the drug, tell 'em to shove it. They are ignorant.  Here's some helpful reading. Drugs are not evil. How we use them is what's important. I used to give my addicts something new to chew on...I told them you cannot abuse drugs...they don't care. They are just drugs that they don't really think about it. But...you can abuse yourself with them. That helped change some of the way they thought...of how they were causing harm to selves...they liked that way of seeing it. It's how we do this.   http://lalaleigha. wordpress. com/2009/ 03/14/opiates- and-pain/  http://ezinearticles.com/?Addiction-Vs-Tolerance & id=792622  http://www.needle. co.nz/fastpage/ fpengine. php/templateid/ 30  Don't let anyone or media ignorance get you on the thinking of anything we need to do for ourselves as evil.    Lotacats “I love cats because I enjoy my home; and little by little, they become its visible soul.†Twitter_follow me http://twitter. com/LotacatsFunP ix Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix. com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05. deviantart. com/ From: redoubtsouth <sincityqgmail (DOT) com> Subject: Intro To: Hugs-N-Pain@ yahoogroups. com Date: Monday, August 3, 2009, 8:35 AM  Hello, I am a new member here. My name is Mike and I currently live in East Central, Alabama. I am also a chronic pain sufferer. It all began with a work accident back in 1996. A kid operating a forklift dropped some steel shelving on me. That was the end of my working life and the beginning of the one I live now. About a year after the accident, I was awarded a disability claim. Following that, my marriage of 14 years ended. In 1999, I met a woman on the web... we were both coming out of failed marriages and both desperately seeking someone to hold on to. We have been together ever since. Today, I am now well over age 50 and on a maintenance prescription for Vicodin. It is not a perfect solution but it does allow me to function at a nominal level. What that means is that I can join my partner in going to the store or out to a movie. Unfortunately, she has some deeply seated, preconceived notions about pain and pain killers that does not really allow for a lot of understanding. Basically, pain killers are evil and I am silly for taking them. Pain is an unseen and completely misundertood affliction. People with ailments that manifest outwardly, have far less problems in dealing with social stigmas and stereotyping. But pain is often hidden within the sufferer... and even our closest family and friends have a dificult time understanding what it is like to wake up in pain, live through each and every single day with pain and then, take pain to bed with us. Sometimes, it would just be nice to hear someone say that it's okay... and that they understand. Sorry to bend your ears Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 > > Wow can I ever relate, welcome by the way. thank you. > I think it has more to do with them thinking when they were hurt they worked through the pain and everything was fine after and think by us not doing that(because we cannot) we just are not trying enough. yeah, I agree. It's the old " Pull yourself up by your bootstraps " mentality. > Someone needs to invent some sort of machine or device that allows those around us to experience a moment of our day so they can understand. That's what I always say! Plus,_I'd_ like to get a shot at being in a strong, pain-free body for a while. I love the beds in sick bay on Star Trek, because they have a pain meter. " Jim, he's in excruciating pain! Only his Vulcan mindpower is keeping him alive! " Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 My body developed a pain meter that surprised me...took me to urgent care where I was diagnosed with under treated pain. (How often does that happen?) Anyway....my heart will start throwing PVC's...lots of them and the blood pressure goes into the danger zone. Lotacats “I love cats because I enjoy my home; and little by little, they become its visible soul.†Twitter_follow me http://twitter.com/LotacatsFunPix Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix.com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05.deviantart.com/ Subject: Re: intro To: Hugs-N-Pain Date: Sunday, September 27, 2009, 12:28 PM  > > Wow can I ever relate, welcome by the way. thank you. > I think it has more to do with them thinking when they were hurt they worked through the pain and everything was fine after and think by us not doing that(because we cannot) we just are not trying enough. yeah, I agree. It's the old " Pull yourself up by your bootstraps " mentality.. > Someone needs to invent some sort of machine or device that allows those around us to experience a moment of our day so they can understand. That's what I always say! Plus,_I'd_ like to get a shot at being in a strong, pain-free body for a while. I love the beds in sick bay on Star Trek, because they have a pain meter. " Jim, he's in excruciating pain! Only his Vulcan mindpower is keeping him alive! " Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 - Hello, I also just joined this group and am glad that I did. I am sorry to hear that you have had so much trouble with sciatica...I've had both kidney stones and sciatica, and generally can tolerate the stones better than the nerve pain. Sorry to hear of your fall...I hope that you soon get out of the flare stage and feel better soon. Thanks for sharing your story and introducing yourself! Jen -- In Hugs-N-Pain , " fiestacranberry " wrote: > > Hello all, > Just thought I'd do a quick intro. I just joined. I have sciatica with > chronic pain. Sometimes not too bad, other times I can't do anything. > Right now, it's bad. I can't sit, can't bend, can't walk very far. > This is my second episode. The first was in 2007, and took about 8 > months to resolve, after receiving 3 epidural cortisone shots. I was OK > for all of 2008. Then in Jan., I had to take a long plane flight, and > ever since Feb., I've been having a flare. I had 3 more shots, but I > fell down the steps in July and undid the good they did. I also > sprained my ankle REALLY bad. Ever since the fall, the back has been > very painful. I just started physical therapy > > I get so tired of being in pain all the time. I get tired of hearing > myself say that. I start to think, " Is this my life now? " > > I guess I joined because only other people who are in the same situation > really understand. I get tired of being such a " drag " around the > healthy folks. Ok, that's it for now > > L. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 hi rosalyn i know how you feel donnie Subject: Re: intro To: Hugs-N-Pain Date: Sunday, September 27, 2009, 3:34 PM  Wow can I ever relate, welcome by the way. " Maybe they fear it could happen to them I don't know. " I think it has more to do with them thinking when they were hurt they worked through the pain and everything was fine after and think by us not doing that(because we cannot) we just are not trying enough. " No one takes my pain seriously and I truly feel like the world would be a better place w/o me. " First let me tell you how much I understand your feelings here. I think too often my kids don't really appreciate, since no real help around the home happens, how hard it is to do simple tasks. Or just how deeply I hurt all the time. But no matter how much I feel down about it I have learned, through the personal experience of losing two friends and my ex all within months of each other to suicide, that they would not be better off without me. They just don't get it. But then I think you know that part already. Someone needs to invent some sort of machine or device that allows those around us to experience a moment of our day so they can understand.  " Sorry to be such a downer, but this is truly the only place I can tell it like it is. "  I don't think you're a downer at all, your saying what most of us feel too much of the time. Hugs lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Naw...you're not a downer.  Good grief.  We all want them to feel this but they'd have to hurt a long long time to get it. The pain changes over time.  It's like it soaks into the body and soul and becomes so much a part of us and we know there's no light at the end of the tunnel.  Like I told my doctor.  For him to relate he'd have to hurt for a long time to feel the change in the pain.  It's not like anything we use to suffer that was temporary.  Suffering from the fatigue of fighting it day and night.  It's like I feel so tired I can hardly care sometimes. Lotacats “I love cats because I enjoy my home; and little by little, they become its visible soul.†Twitter_follow me http://twitter.com/LotacatsFunPix Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix.com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05.deviantart.com/ From: paganfemme <rosalyn.forrester@ gmail.com> Subject: Re: intro To: Hugs-N-Pain@ yahoogroups. com Date: Sunday, September 27, 2009, 3:34 PM  Wow can I ever relate, welcome by the way. " Maybe they fear it could happen to them I don't know. " I think it has more to do with them thinking when they were hurt they worked through the pain and everything was fine after and think by us not doing that(because we cannot) we just are not trying enough. " No one takes my pain seriously and I truly feel like the world would be a better place w/o me. " First let me tell you how much I understand your feelings here. I think too often my kids don't really appreciate, since no real help around the home happens, how hard it is to do simple tasks. Or just how deeply I hurt all the time. But no matter how much I feel down about it I have learned, through the personal experience of losing two friends and my ex all within months of each other to suicide, that they would not be better off without me. They just don't get it. But then I think you know that part already. Someone needs to invent some sort of machine or device that allows those around us to experience a moment of our day so they can understand.  " Sorry to be such a downer, but this is truly the only place I can tell it like it is. "  I don't think you're a downer at all, your saying what most of us feel too much of the time. Hugs lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 hi brandi, welcome to the group. it will take about 3 wks before you adjust to the elavil so give it a bit more time. that is actually an an antidepressant so ought to help with your depression. you mentioned having bad discs in your lumbar - that can cause weakness in your legs which you also mentioned. due to narrowing of spaces between discs. may need a neuro consult about that? have you had an MRI yet for the discs? x-rays dont tell whole story need to see soft tissue as well. good luck with that. don't know but as far as panic attacks go, you maybe need to see a psych doc about. i have suffered from Panic Disorder for a few years and get a " pam " med to help with my attacks, just a thought for ya to think about. Or see a MH therapist to help learn coping mechanisms for the attacks. A lot of what they teach is similar to yoga breathing and stuff, so maybe you can try a yoga class at the Y or something instead if you want. Anyways welcome to the group and best of luck on your conditions. If you are in so much pain maybe ought to try and at least get some vicodins or something to help you with it. chris in IN > > Hi all! I'm a newbie here. Just wanted to introduce myself to y'all. I'm > from Alabama (if you didn't already know I'm from the South by my use > of y'all LOL) I am a mom of 2 and nurse; married to my hubby for 2 years > now. AND MY BODY SUCKS! > I've dealt with pain for about 15 years now. Started w/ fatigue and leg > pains. Started going to a chiro at 18. No one could tell me what was wrong > with me. At 18 I was diagnosed with Erythema Nodosum...with no reason as to > why it was happening. Years went by and I seem to always get worse. ALWAYS > had HORRIBLE periods...HORRIBLE pain. Fast forward to last year. Had a > hysterectomy in June (took 1 ovary and left the other...was done having > children). Thought that would cure my pain....well it made it worse. After that I > was diagnosed with fibromyalgia (also have bulging disks as L3-5). Friday > before last, one of the MD's I work for talked me into going to a pelvic pain > specialist. He got me in this past Tuesday. At the visit I learned I had > pelvic congestion, IBS, IC, vestibulitis, pelvic floor dysfunction and > possibly an inguinal hernia that will require surgery in the future. > He has placed me on a cocktail of Elmiron, Elavil, and Vistaril along with > an anti-spasmotic for my bladder and some compounded vag suppositories for > pelvic pain. So far the Elavil is making me feel HORRIBLE! I've only been > on it for 5 days so hopefully the side effects will go away soon. Haven't > even started the Vistaril yet. My Vit D was also low, so I'm on supplements > too > Another issue is that I have anxiety to meds (self diagnosed medication > phobe!) Anytime I have to take something that can make me sleepy or out of > it...I will break out into a full blown panic attack. I'm trying to work on > that though. > I don't know anyone who is going through this, but myself. I feel really > alone and depressed b/c I feel like crap most days. My husband doesn't seem > to understand what I'm going through. He seems to think I'm making all this > up. > Sorry for the vent....hope to get to know y'all soon. HUGS > > Bran > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Yes I have. I have had 4 pain blocks in the past. Now I'm doing disk decompression therapy which has helped me so much! In a message dated 4/22/2010 9:51:46 A.M. Central Daylight Time, cvaughn919@... writes: .. may need a neuro consult about that? have you had an MRI yet for the discs? Quote Link to comment Share on other sites More sharing options...
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