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Re: Had Enough!

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Liz,

I too have a strange rash on my butt. My wife ask me if someone bit me. It

looks almost like a bite mark. I have had it now for about 2 months. Butt, it

doesn't itch. Sorry for pun.

Larry

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Liz,

I'm not a nurse but I am the ever inquizative one. Fortunately Phil's doctors

have very good patience in answering my questions and infact seem to be more

than willing. Even though Phil is the smarter of the two of us I seem to want

to know more about what is happening or it's that he'd rather I sort it out and

then tell him don't know if he thinks that if he doesn't think about it then it

will go away. I'm not sure.

Peg

Rnurse987@... wrote:

> Dan, the rash probably was liver associated as his enzymes were at an all

> time high at that point (GGT 910), however he had not yet been diagnosed and

> the physician we were dealing with at that time did not like the ever

> inquisitive wife/nurse asking too many questions, so I never got a

> satisfactory answer about anything from him. Needless to say we cut ties

> with him ASAP. Some doctors don't like to feel that the patient is

> questioning their omnipotence, if you know what I mean. Liz

>

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Peg, it is the same in our situation, in that my husband does not ask alot

of questions, and I sometimes think he almost leaves it up to me to gather

all the information we need, think of the questions to ask etc., but I think

he feels that me being a nurse it is natural for me to take the role of

communicator with the physician. Our current hepatologist is great and very

receptive to my questions and suggestions regarding his plan of care for my

husband, so we are very pleased with him. Liz

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Peg, a degree in common sense is, in my opinion, just as important as any in

higher education. I know a few very intelligent and highly educated people

who are incredibly inept at figuring out things that require only simple

common sense. So consider yourself a master! Seriously though, I think you

and I, and others in the role of caregiver, are able to help those we love a

great deal by carrying whatever end of the burden they can't at one time or

another. In our relationship, I am the case manager, so to speak. Thanks

for your input, it helps to hear from other spouses of PSC'ers. Liz

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