Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 -- Hi Brande, here I know Im not writing much latley but I do read my dailey. Your message here sounds like what I have going on in my neck or just at the top between my shoulder blades. I call it my syrinx pain. But it is more like a burning or tingling type deal but at the same time it sort of feels like muscle. Dont mistake what Im saying Im really not sure if it is caused by the syrinx but I know that is where my syrinx is and it is the only thing I can think that causes it. It sometimes comes and stays for days and then mysteriously goes away. I usually get caught off gaurd by it like waking up with it or it happens when Im at this machine to long. Ice seems to help mine and just getting my neck in the right position. I do plan on talking further to my nsg about it but recently we are trying to deal with my bad hips so one thing at a time. Sorry to here this is bothering you. Hope every thing else in your life is going well. And it never hurts to ask even if you think it isnt a big deal. Chris - In tetheredspinalcord , " Brande " <mymocha@c...> wrote: > I am wondering if anybody has experienced sudden Back " Pain " as a Symptom? > > The reason I say Symptom, and not figuring it is just a Backache or totally unrelated is because it is soo different. I'll try and explain. > > First off, I am not one to get a Backache, even though I've had/have my good share of Back problems. I mean, sure, I've had Aches in my Back from time to time, but nothing really to write Home about. > > I'm not one to say a whole lot if I am in discomfort, either. But this, I did. > > I also am not likely to " pay for it " if I over did it the Day before or something to that effect. If it's going to bother me, it's going to bother me right on the spot. > > I was just sitting(gee, do I do anything else? lol) tonight watching TV, when all of a sudden this Back " Pain " rose up over my upper Back. Just out of plain nowhere. It has made an attempt to go into my Arms, but it doesn't get too far, and it is just in splotches, best way to explain it. And it doesn't go too far down. It's burning, yet, it did then turn to some what like a muscle ache. I am still able to move, it doesn't seem to be impairing me. It's just in my upper Back. When it started, it was moving, you could feel it spread, now it is pretty much stable. > > It's not the type of burning Pain where when you touch it it feels like you've been burnt. I can still touch it and it feels normal, yet it feels like it could turn to that. > > Now, like I said, I am not one to complain, but this time I did say something. I called my Mom up to ask her if my Back was red. Thinking I may have reacted to something, but yet, I'm pretty sure that I didn't, can't explain it, but it just doesn't feel like a Reaction. She said it is not red. But did put some soothing Lotion on it, just in case...................it hasn't changed. > > Why I put " Pain " like this is because it is not really Pain, yet it really isn't an Ache. It's both. The Burning part is Pain, and the Muscle part is Ache. > > I don't appear to have any other new things pop up, recently, or at the same time this happened. > > I'm not in Dire Straits by any means, but this is just totally off the wall and is baffling me. > > Any thoughts? Do Syrinxes start this way? > > Thanks. > > Brande > mymocha@c... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Thanks for the Response. It is between my Shoulder Blades, I would say. Not in my Neck. It has gone into my Arms, which I thought was gone today, but it has come back some, not any worse then it was last Night. I don't experience any Tingling that I can tell. I understand what you mean. To my knowledge, I do not have a Syrinx, but that is only based on the last time I had an MRI which was in 1996. I know very well that one could form, though, especially since I have both Tethered Cord and Chiari. But I'm not jumping to any conclusions saying that I now must have a Syrinx. I would say that it wouldn't be too far fetched to say that I am pretty confident that this could be related to Tethered Cord and/or Chiari, directly or indirectly. The way it was acting last night, I was wondering what I could put on it, because it seemed that if I put Cold on it, it would bother the Muscle aspect of it, and make me stiff becuase I was cold, and if I put Hot on it, it would bother the burning aspect of it. I haven't put anything on it. I don't seem to have the muscle aspect of it today. Thanks again. Good luck with your Hip. Me Nebraska, USA mymocha@... Your message here sounds like what I have going on in my > neck or just at the top between my shoulder blades. I call it my > syrinx pain. But it is more like a burning or tingling type deal but > at the same time it sort of feels like muscle. Dont mistake what Im > saying Im really not sure if it is caused by the syrinx but I know > that is where my syrinx is and it is the only thing I can think that > causes it. It sometimes comes and stays for days and then > mysteriously goes away. I usually get caught off gaurd by it like > waking up with it or it happens when Im at this machine to long. Ice > seems to help mine and just getting my neck in the right position. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Brande, I don't know much about syrinx pain, but I do know several family members (one cousin at 20 weeks pregnant) whose gall bladders brought on sudden burning " climbing " red hot pain that went into the arm......what is your diet like? Are you better today?????? Mom to Marlee 18 mos. Lipomyelomeningocele, TSC AFO's, and the longest eyelashes I have ever seen! Also Mom to Macy 4 (fatty filum)..the future's first female president and 10 a good student, cheerleader and the best helper in the world! : 0 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Thanks for the Reply. I'm sure it is possible, anything really is. But I don't know........it's not " that " bad. I've had worse in my Legs and Feet. I didn't have it this Morning, and it went away again this Evening for awhile. Right now, it is back, but not as noticable, and it isn't in my Arms. I haven't had any problems with any types of Foods. Thanks again. How are the Girls? Me Nebraska, USA mymocha@... > > I don't know much about syrinx pain, but I do know several family members (one cousin at 20 weeks pregnant) whose gall bladders brought on sudden burning " climbing " red hot pain that went into the arm......what is your diet like? > > Are you better today?????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Hope you are feeling better by now... The girls are great...thanks for asking. Marlee has urodynamics the 12th...we had to reschedule...my neighbor (and friend of 20 yrs) had a baby and a week later went into seizures..she was in ICU for two weeks and I had her week old baby and 5 year old! Everything went on hold the whole time...we are finally returning to normal! Mom to Marlee 18 mos. Lipomyelomeningocele, TSC AFO's, and the longest eyelashes I have ever seen! Also Mom to Macy 4 (fatty filum)..the future's first female president and 10 a good student, cheerleader and the best helper in the world! : 0 ) Re: Sudden Back " Pain " ? Thanks for the Reply. I'm sure it is possible, anything really is. But I don't know........it's not " that " bad. I've had worse in my Legs and Feet. I didn't have it this Morning, and it went away again this Evening for awhile. Right now, it is back, but not as noticable, and it isn't in my Arms. I haven't had any problems with any types of Foods. Thanks again. How are the Girls? Me Nebraska, USA mymocha@... > > I don't know much about syrinx pain, but I do know several family members (one cousin at 20 weeks pregnant) whose gall bladders brought on sudden burning " climbing " red hot pain that went into the arm......what is your diet like? > > Are you better today?????? Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@..., rick@... ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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