Re: 7 months postop and still leaking [post-surg...

September 8, 2006

Ann, you should butt out of your criticism of Buck! That is one of the problems with mixed company on these lists is men do not discuss their true feelings because they are afraid they might offend the ladies.DickAnn Meili wrote: Buck, can you tone it down just a little? There are ladies on this list. Your colorful descriptions of your sexual escapades and over-abundant penis really are not necessary. --- sflthrmuscleaol

wrote: > In a message dated 9/7/2006 1:50:51 PM Pacific > Daylight Time, > rastadok writes: > Buck - > Don't give up yet. If you've made ANY progress > over the past month or > so, hang in there, do your Kegel's, and wait until > about 12 months. It's a > pain in the ass (actually the dick and groin) - I > know, but MOST guys after RRP > can regain pretty fair continence by 12 months or so > (many or most, much > earlier). You'll probably always have to completely > empty your bladder for sex, > unless you and your partner are into water sports! > (TRY to smile! ). Meanwhile > do check with your uro - you can have scarring and > other outlet obstruction > even without a prostate. You probably know all > this, as I think you said you're > a nurse. Good luck. Been there personally with the > 12 month continence > problems - I've only had a handful of patients > require artificial sphincter - > almost thought I'd need one, but thankfully at > almost 12 months something magic > seemed to happen. > - jdnmd > Thanks guy for your email. I am going to wait a full > year although I have > seen a surgeon to discuss the bladder sphyincter > surgery. I am in the 5% of post > op patients who get scarring where the anastomosis > of the urethra to the > bladder is made . Statistacally, those 5% who go > into retention and have to be > opened with a cystoscopy or cathetor have permanent > incontinence of some sort. I > had retention, had emergency cysto and now have the > leakage again, even at > night. Prior to the retention, I was continent of > urine at night for over 3

weeks. > But I have hope and amputting in my time to see what > happens. Thank god my > partner loves watersports, but its not great for the > unplanned cocksucking I > enjoyed prior to this all happening. Most guys flip > if while they are blowing you > you squirt piss in there mouth. > Buck > __________________________________________________

September 9, 2006

Here is a decision from the list owner

I have been a bit concerned about the street language of just one or two people on the list.

I think we have to bear in mind the sensibilities of all people on a general list and point people to lists more open to cruder descriptions. Most people can get the same message over to the group whilst using more acceptable words. It is not the message it is the way it is said.

My answer is to moderate people who don't fulfill the kindness rule.

Best wishes

Hambleton

Selby

Yorkshire

England

Re: Re: 7 months postop and still leaking [post-surg...

Ann, you should butt out of your criticism of Buck! That is one of the problems with mixed company on these lists is men do not discuss their true feelings because they are afraid they might offend the ladies.DickAnn Meili <AnnInBolivia> wrote:

Buck, can you tone it down just a little? There areladies on this list. Your colorful descriptions ofyour sexual escapades and over-abundant penis reallyare not necessary.--- sflthrmuscleaol wrote:> In a message dated 9/7/2006 1:50:51 PM Pacific> Daylight Time, > rastadok writes:> Buck -> Don't give up yet. If you've made ANY progress> over the past month or > so, hang in there, do your Kegel's, and wait until> about 12 months. It's a > pain in the ass (actually the dick and groin) - I> know, but MOST guys after RRP > can regain pretty fair continence by 12 months or so> (many or most, much > earlier). You'll probably always have to completely> empty your bladder for sex, > unless you and your partner are into water sports! > (TRY to smile! ). Meanwhile > do check with your uro - you can have scarring and> other outlet obstruction > even without a prostate. You probably know all> this, as I think you said you're > a nurse. Good luck. Been there personally with the> 12 month continence > problems - I've only had a handful of patients> require artificial sphincter - > almost thought I'd need one, but thankfully at> almost 12 months something magic > seemed to happen.> - jdnmd> Thanks guy for your email. I am going to wait a full> year although I have > seen a surgeon to discuss the bladder sphyincter> surgery. I am in the 5% of post > op patients who get scarring where the anastomosis> of the urethra to the > bladder is made . Statistacally, those 5% who go> into retention and have to be > opened with a cystoscopy or cathetor have permanent> incontinence of some sort. I > had retention, had emergency cysto and now have the> leakage again, even at > night. Prior to the retention, I was continent of> urine at night for over 3 weeks.> But I have hope and amputting in my time to see what> happens. Thank god my > partner loves watersports, but its not great for the> unplanned cocksucking I > enjoyed prior to this all happening. Most guys flip> if while they are blowing you > you squirt piss in there mouth.> Buck> __________________________________________________

September 9, 2006

A good balance as usual.

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of MetcalfSent: Saturday, September 09, 2006 6:42 AMTo: ProstateCancerSupport Subject: Re: Re: 7 months postop and still leaking [post-surg...

Here is a decision from the list owner

I have been a bit concerned about the street language of just one or two people on the list.

I think we have to bear in mind the sensibilities of all people on a general list and point people to lists more open to cruder descriptions. Most people can get the same message over to the group whilst using more acceptable words. It is not the message it is the way it is said.

My answer is to moderate people who don't fulfill the kindness rule.

Best wishes

Hambleton

Selby

Yorkshire

England

September 9, 2006

Thanks for the clarification of " street language " , I

personally am not offended but others could be. I

just thought it was unnecessary to use colorful

descriptions. This list has provided wives, daughters

and granddaughters with valuable information. The

circumference of ones penis is not all that valuable

to everyone.

--- Metcalf wrote:

> Here is a decision from the list owner

>

> I have been a bit concerned about the street

> language of just one or two people on the list.

>

> I think we have to bear in mind the sensibilities of

> all people on a general list and point people to

> lists more open to cruder descriptions. Most people

> can get the same message over to the group whilst

> using more acceptable words. It is not the message

> it is the way it is said.

>

> My answer is to moderate people who don't fulfill

> the kindness rule.

>

> Best wishes

>

> Hambleton

> Selby

> Yorkshire

> England

>

> Re: Re: 7 months

> postop and still leaking [post-surg...

>

> Ann, you should butt out of your criticism of

> Buck! That is one of the problems with mixed

> company on these lists is men do not discuss their

> true feelings because they are afraid they might

> offend the ladies.

>

> Dick

>

> Ann Meili wrote:

>

> Buck, can you tone it down just a little? There

> are

> ladies on this list. Your colorful descriptions

> of

> your sexual escapades and over-abundant penis

> really

> are not necessary.

>

> --- sflthrmuscle@... wrote:

>

> > In a message dated 9/7/2006 1:50:51 PM Pacific

> > Daylight Time,

> > rastadok@... writes:

> > Buck -

> > Don't give up yet. If you've made ANY progress

> > over the past month or

> > so, hang in there, do your Kegel's, and wait

> until

> > about 12 months. It's a

> > pain in the ass (actually the dick and groin)

> - I

> > know, but MOST guys after RRP

> > can regain pretty fair continence by 12 months

> or so

> > (many or most, much

> > earlier). You'll probably always have to

> completely

> > empty your bladder for sex,

> > unless you and your partner are into water

> sports!

> > (TRY to smile! ). Meanwhile

> > do check with your uro - you can have scarring

> and

> > other outlet obstruction

> > even without a prostate. You probably know all

> > this, as I think you said you're

> > a nurse. Good luck. Been there personally with

> the

> > 12 month continence

> > problems - I've only had a handful of patients

> > require artificial sphincter -

> > almost thought I'd need one, but thankfully at

> > almost 12 months something magic

> > seemed to happen.

> > - jdnmd

> > Thanks guy for your email. I am going to wait

> a full

> > year although I have

> > seen a surgeon to discuss the bladder

> sphyincter

> > surgery. I am in the 5% of post

> > op patients who get scarring where the

> anastomosis

> > of the urethra to the

> > bladder is made . Statistacally, those 5% who

> go

> > into retention and have to be

> > opened with a cystoscopy or cathetor have

> permanent

> > incontinence of some sort. I

> > had retention, had emergency cysto and now

> have the

> > leakage again, even at

> > night. Prior to the retention, I was continent

> of

> > urine at night for over 3 weeks.

> > But I have hope and amputting in my time to

> see what

> > happens. Thank god my

> > partner loves watersports, but its not great

> for the

> > unplanned cocksucking I

> > enjoyed prior to this all happening. Most guys

> flip

> > if while they are blowing you

> > you squirt piss in there mouth.

> > Buck

> >

>

> __________________________________________________

>

September 10, 2006

Thanks for the clarification of "street language", Ipersonally am not offended but others could be. Ijust thought it was unnecessary to use colorfuldescriptions. This list has provided wives, daughtersand granddaughters with valuable information. Thecircumference of ones penis is not all that valuableto everyone.

Considering that 43-50% of men have penile shrinkage post op and it IS a BIG problem, discussing penile size both circumference and length shortening is in order. Most men are embarrassed to tell there physicians that this has happened to them. And most of the emails I have received regarding this matter were from the wives and girlfriends of men, not the men themselves. For more information, go to Google and type in "penile Shrinkage Post Prostatectomy" in the search engine and you will see this isnt a "little" problem.

Once again, I apologize if I offended anyone, its seldom anyone can make light of this situation and on ocassion, laugh.

Buck

September 10, 2006

I agree, leave buck alone. This is a man's list since women can't get

prostate cancer without a prostate. Be kind is all I ask.

---

Jim Manley's Photoshop Elements Page

http://www.geocities.com/jim_p_manley/index.html

http://web.mac.com/jamespmanley

http://www.myspace.com/james_paul_manley

I have been diagnosised with advanced prostate

Cancer (Gleason rating of 9) and I am convinced

that the Lord Jesus Christ (GOD) will heal me as

a testimony to his love. 2 Chronicles 20

> Ann, you should butt out of your criticism of Buck! That is one of

> the problems with mixed company on these lists is men do not

> discuss their true feelings because they are afraid they might

> offend the ladies.

September 10, 2006

Sadly PCa hits our wives and partners as hard as it hits the patients.

That is why we encourage ladies on to this group. Also many men fight shy of investigating PCa and it falls on those who care round about them to go on to the groups to find out about the disease.

B

Re: Re: 7 months postop and still leaking [post-surg...

I agree, leave buck alone. This is a man's list since women can't get prostate cancer without a prostate. Be kind is all I ask.---Jim Manley's Photoshop Elements Pagehttp://www.geocities.com/jim_p_manley/index.htmlhttp://web.mac.com/jamespmanleyhttp://www.myspace.com/james_paul_manley

..

September 10, 2006

That is true, however, I don't feel curtailing the men from

describing their medical problems is beneficial to them. The whole

idea here is sharing experiences. Right?

---

Jim Manley's Photoshop Elements Page

http://www.geocities.com/jim_p_manley/index.html

http://web.mac.com/jamespmanley

http://www.myspace.com/james_paul_manley

I have been diagnosised with advanced prostate

Cancer (Gleason rating of 9) and I am convinced

that the Lord Jesus Christ (GOD) will heal me as

a testimony to his love. 2 Chronicles 20

> Sadly PCa hits our wives and partners as hard as it hits the

> patients.

> That is why we encourage ladies on to this group. Also many men

> fight shy of investigating PCa and it falls on those who care round

> about them to go on to the groups to find out about the disease.

September 11, 2006

Thank you Aubry for the link to the book. I am newly diagnosed and

still in the research phase of this frustrating disease. It seems I

have to struggle with the doctors to get basic complete information

or unbiased opinions. I do not know if this has been the experience

of others or if the initial doctors with which I am dealing are not

informed enough on prostate cancer. What seems to me very basic

information. For example, they took 10 samples in the biopsy. When I

asked how many showed cancer and where the locations were, they did

not know. That to me seems to be basic common sense needed

information. It goes on and on, but I digress. You mentioned HIFU as

a potential up and coming treatment. Everything I have read this

seems to be a cutting edge treatment with much success that I could

get almost anywhere in the world except the United States. I

understand they are entering phase III studies. Assuming everything

goes well, what is a typical time frame until something becomes

approved from a phase 3 study to availability. I have a Gleason of

3+3=6 and a PSA of 5.1. An active monitoring is certainly still an

option for me but I also realize I the active monitoring is not

denial and the day will come that active monitoring will become

active treatment.

Thanks

>

> Hi Buck, and All,

>

> If you had been treated with brachytherapy, you would not have

> the penile shrinkage problem nor a problem with incontinence.

> For years, women who had breast cancer had a radical

> mastectomy. But it was found that a simple lumpectomy was

> often good enough. Brachytherapy may be equivalent in some

> respects to a lumpectomy. Some men even may still have an

> ejaculate after therapy, even though it would be diminished in

> volume. Some men are even able to father children after

> therapy.

>

> But there are many men and urologists who still insist that the

> radical prostatectomy is the gold standard. I have been severely

> castigated for even mentioning the other alternatives. One of the

> alternatives that may be even better than brachytherapy is the

> High Intensity Focused Ultrasound (HIFU). It will be approved

> one of these days. It is being used in other countries with what

> seems to be good success.

>

> I wish you all the best

>

> Aubrey Pilgrim, DC (Ret.) Author of

> A Revolutionary Approach to Prostate Cancer-Read the original

book

> for FREE at:

_http://www.prostatepointers.org/prostate/lay/apilgrim/_

> (http://www.prostatepointers.org/prostate/lay/apilgrim/)

> Read new edition for FREE at

> _http://www.cancer.prostate-help.org/capilgr.htm_

(http://www.cancer.prostate-help.org/capilgr.htm)

> Dr. E. Crawford is co-author of the revision

>

> In a message dated 9/11/2006 1:03:50 P.M. Eastern Daylight Time,

> sflthrmuscle@... writes:

>

> In a message dated 9/10/2006 2:26:59 PM Pacific Daylight Time,

> bryan.metcalf@In a message dated

>

> Buck

>

> There is no doubt about the importance of this subject (penile

shrinkage)

> and making men aware of it but ......let me tell you a joke.

>

> A man went to prison and he heard other prisoners shouting out

numbers. Each

> time a number was shouted out the prisoners fell about laughing.

He asked

> his cellmate what was going on. The cellmate said that each

number referred to

> a joke and as the wardens didn't allow chit chat they couldn't

tell the full

> joke. Not wishing to be out of the clan the new prisoner shouted

out one of

> the numbers and there was no laughter. Worried he again asked his

cellmate

> what he had done wrong - his cellmate said you'll have to

practise saying the

> jokes the laugh depends on how you say them.

>

> Really please talk about the issues, the means of helping it and

the fact

> that there was success, without going into graphics that might be

seen as

> superfluous and too much detail. ie be subtle

>

> B

>

> ,

> First of all, I sent an apology to AnninBolivia. I also want to

point out

> that if people, especially women, who dont have prostates, nor

know what it is

> like to be de-flowered with this surgery, dont want to hear about

penile

> shrinkage,erectile disfunction, inpotence,dribbling urine and the

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Re: 7 months postop and still leaking [post-surg...

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