Re: New Member - just diagnosed

[Guest guest]

Thank you.

I have had a high psa, above a five up to an eight for years. I am 59

years old. I have had two biopsys in the last three years that were

negative. But, last week my psa went to a 48..in two

tests. I have no symptons and the rectal exam shows everything normal.

But, my doctor says I should expect cancer. The biopsy is scheduled

for Dec 4. I am reading everything. I hope for an infection.

However, the urine test was negative.

Has anyone heard of a similar finding and it was not cancer?

Jim

>

> Welcome to the following person who has joined the ProstateCancerSupport

> group:

>

> Email address: horselover87540 jpleary@...

>

>

>

> Comment from user:

>

> Doctor says I have prostate Cancer

>

>

>

> Sorry to hear of your diagnosis but welcome to the club you never

wanted to

> join.

>

>

>

> You might find it useful to visit YANA - You Are Not Alone Now

> www.yananow.net <http://www.yananow.net/> a site set up for newly

diagnosed

> people which gives some basic information in plain language with

links to

> more complex sites. The second section of the site is where we

invite men to

> tell their stories and how they arrived at their decisions regarding

> treatment. Many people have mailed me to say how useful they have found

> this, especially because most of the men are happy to respond to

specific

> questions. The section of the site can be found by clicking the link

> labelled Experiences or going to

http://www.yananow.net/Experiences.html

>

>

>

> But in any event, please post some details of your diagnosis - PSAs

leading

> up to the diagnosis, Gleason Score, Staging and any questions you might

> have. Just remember - there are no dumb questions. We all started

off where

> you are now, but we've collectively learned a lot over the years.

>

>

>

>

>

>

>

> All the best

>

>

>

> Terry Herbert

>

> in Melbourne Australia

>

> Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No

treatment. June

> '04: TURP. Aug '06 PSA 27.4

>

> My site is at www.prostatecancerwatchfulwaiting.co.za

>

> It is a tragedy of the world that no one knows what he doesn't know,

and the

> less a man knows, the more sure he is that he knows everything. Joyce

> Carey

>

[Guest guest]

Hi Jim,

Sorry to hear of your concerns. Over the

years I have seen many reports of high PSA results where prostate cancer is not

identified. The highest I have seen was a PSA of over 300 (reported by a doctor

in Australia)

which was reduced to normal levels after treatment. Prostatitis and bladder

infections are usually to blame for these events and both are notoriously

difficult to diagnose and to treat.

Of course high levels of PSA are often associated

with prostate cancer and you are quite right to investigate the issue further. Let

us know how your biopsy goes – we’ll all be hoping that you have a third

negative biopsy.

All the best

Terry Herbert

in Melbourne Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason

3+3=6: No treatment. June '04: TURP. Aug '06 PSA 27.4

My site is at www.prostatecancerwatchfulwaiting.co.za

It is a tragedy of the world that no one

knows what he doesn’t know, and the less a man knows, the more sure he is

that he knows everything. Joyce Carey

From: ProstateCancerSupport

[mailto:ProstateCancerSupport ]

On Behalf Of horselover87540

Sent: 12 November 2006 01:02 PM

To: ProstateCancerSupport

Subject: Re: New Member - just diagnosed

Thank you.

I have had a high psa, above a five up to an eight for years. I am 59

years old. I have had two biopsys in the last three years that were

negative. But, last week my psa went to a 48..in two

tests. I have no symptons and the rectal exam shows everything normal.

But, my doctor says I should expect cancer. The biopsy is scheduled

for Dec 4. I am reading everything. I hope for an infection.

However, the urine test was negative.

Has anyone heard of a similar finding and it was not cancer?

Jim

>

> Welcome to the following person who has joined the ProstateCancerSupport

> group:

>

> Email address: horselover87540 jpleary@...

>

>

>

> Comment from user:

>

> Doctor says I have prostate Cancer

>

>

>

> Sorry to hear of your diagnosis but welcome to the club you never

wanted to

> join.

>

>

>

> You might find it useful to visit YANA -

You Are Not Alone Now

> www.yananow.net <http://www.yananow.net/>

a site set up for newly

diagnosed

> people which gives some basic information in plain language with

links to

> more complex sites. The second section of the site is where we

invite men to

> tell their stories and how they arrived at their decisions regarding

> treatment. Many people have mailed me to say how useful they have found

> this, especially because most of the men are happy to respond to

specific

> questions. The section of the site can be found by clicking the link

> labelled Experiences or going to

http://www.yananow.net/Experiences.html

>

>

>

> But in any event, please post some details of your diagnosis - PSAs

leading

> up to the diagnosis, Gleason Score, Staging and any questions you might

> have. Just remember - there are no dumb questions. We all started

off where

> you are now, but we've collectively learned a lot over the years.

>

>

>

>

>

>

>

> All the best

>

>

>

> Terry Herbert

>

> in Melbourne Australia

>

> Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No

treatment. June

> '04: TURP. Aug '06 PSA 27.4

>

> My site is at www.prostatecancerwatchfulwaiting.co.za

>

> It is a tragedy of the world that no one knows what he doesn't know,

and the

> less a man knows, the more sure he is that he knows everything. Joyce

> Carey

>

[Guest guest]

Terry:

However, during this time I had two negative biopsys. Also my brother

recently discovered he had Prostatitis. It was not found in his

urine sample. But instead with a prostate massage and milking of his

penis.

My last biopsy was nearly two years ago and it was negative.

How fast would a caner have grown in a year and a half?

Is this why my doctor says it would be in a very early state even

though my psa is 47.

Jim

> >

> > Welcome to the following person who has joined the

ProstateCancerSupport

> > group:

> >

> > Email address: horselover87540 jpleary@

> >

> >

> >

> > Comment from user:

> >

> > Doctor says I have prostate Cancer

> >

> >

> >

> > Sorry to hear of your diagnosis but welcome to the club you never

> wanted to

> > join.

> >

> >

> >

> > You might find it useful to visit YANA - You Are Not Alone Now

> > www.yananow.net <http://www.yananow. <http://www.yananow.net/> net/> a

> site set up for newly

> diagnosed

> > people which gives some basic information in plain language with

> links to

> > more complex sites. The second section of the site is where we

> invite men to

> > tell their stories and how they arrived at their decisions regarding

> > treatment. Many people have mailed me to say how useful they have

found

> > this, especially because most of the men are happy to respond to

> specific

> > questions. The section of the site can be found by clicking the link

> > labelled Experiences or going to

> http://www.yananow. <http://www.yananow.net/Experiences.html>

> net/Experiences.html

> >

> >

> >

> > But in any event, please post some details of your diagnosis - PSAs

> leading

> > up to the diagnosis, Gleason Score, Staging and any questions you

might

> > have. Just remember - there are no dumb questions. We all started

> off where

> > you are now, but we've collectively learned a lot over the years.

> >

> >

> >

> >

> >

> >

> >

> > All the best

> >

> >

> >

> > Terry Herbert

> >

> > in Melbourne Australia

> >

> > Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No

> treatment. June

> > '04: TURP. Aug '06 PSA 27.4

> >

> > My site is at www.prostatecancerwatchfulwaiting.co.za

> >

> > It is a tragedy of the world that no one knows what he doesn't know,

> and the

> > less a man knows, the more sure he is that he knows everything. Joyce

> > Carey

> >

>

[Guest guest]

Jim,

The one thing that we all have to bear in

mind about prostate cancer is that there are no rules – as long time

survivor, Aubrey Pilgrim says – that is the ONLY rule.

So, with that in mind, I can tell you that

the general view in the prostate cancer business is that generally speaking a

tumour would be growing for around 10 years (some say maybe 20 years) before it

got big enough to be identified and another 10 years (or longer) before it

caused any real problems. That is because, generally speaking PCa is what is

termed an indolent disease and very slow growing. But having said that let me

quickly add before I get whacked by some other member of the list, there are

some variants of the disease that grow very much quicker than that and can

certainly prove to be fatal in a relatively short time. These two types of PCa are

often referred to as “tigers” and “pussycats” and

although at extremes it is possible to distinguish between them, it is not

always possible.

Against that background, it seems likely,

from your personal experience that even if a biopsy were to find some adenocarcinoma

cells that you would NOT have a tiger by the tail. It is possible - there are

no rules - but it seems improbable. I say that because from your initial post

you said that your PSA had varied over the years – that behaviour is

typically associated with infection of the bladder or prostate rather than PCa.

Where a high PSA is prostate cancer related it tends to increase exponentially and

it would be very unusual to drop back . Some doctors will not order a biopsy

until they have observed the PSA numbers over a period to see if there is the

constant rise. Another point is that (again generally speaking) a PSA of 47

ng/ml if caused by PCa would tend to be associated with a tumour that could be

felt on DRE (Digital Rectal Examination), yet as I understand it, your DRE was

negative. This is, naturally, not always so and there have been reported cases

of negative DRE and high grade tumour, but they are rare.

I’m not sure where you are located

or what your health plan might cover, but perhaps you might consider what is

probably a better way to go than having another ‘blind’ biopsy. That

would mean getting to a centre that uses what is termed colour Doppler to

identify any areas within the gland that are suspicious for PCa. If there are

any of these areas, the biopsy needles are guided to them. This process is

generally regarded as a much better diagnostic tool but unfortunately is not

widely practiced. Two of the better known practitioners are Duke Bahn in Ventura California and

Fred Lee at Rochester.

All the best

Terry Herbert

in Melbourne Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason

3+3=6: No treatment. June '04: TURP. Aug '06 PSA 27.4

My site is at www.prostatecancerwatchfulwaiting.co.za

It is a tragedy of the world that no one

knows what he doesn’t know, and the less a man knows, the more sure he is

that he knows everything. Joyce Carey

From: ProstateCancerSupport

[mailto:ProstateCancerSupport ]

On Behalf Of horselover87540

Sent: 13 November 2006 03:19 AM

To: ProstateCancerSupport

Subject: Re: New Member - just diagnosed

Terry:

However, during this time I had two negative biopsys. Also my brother

recently discovered he had Prostatitis. It was not found in his

urine sample. But instead with a prostate massage and milking of his

penis.

My last biopsy was nearly two years ago and it was negative.

How fast would a caner have grown in a year and a half?

Is this why my doctor says it would be in a very early state even

though my psa is 47.

Jim

> >

> > Welcome to the following person who has joined the

ProstateCancerSupport

> > group:

> >

> > Email address: horselover87540 jpleary@

> >

> >

> >

> > Comment from user:

> >

> > Doctor says I have prostate Cancer

> >

> >

> >

> > Sorry to hear of your diagnosis but welcome to the club you never

> wanted to

> > join.

> >

> >

> >

> > You might find it useful to visit YANA

- You Are Not Alone Now

> > www.yananow.net <http://www.yananow.

<http://www.yananow.net/>

net/> a

> site set up for newly

> diagnosed

> > people which gives some basic information in plain language with

> links to

> > more complex sites. The second section of the site is where we

> invite men to

> > tell their stories and how they arrived at their decisions regarding

> > treatment. Many people have mailed me to say how useful they have

found

> > this, especially because most of the men are happy to respond to

> specific

> > questions. The section of the site can be found by clicking the link

> > labelled Experiences or going to

> http://www.yananow. <http://www.yananow.net/Experiences.html>

> net/Experiences.html

> >

> >

> >

> > But in any event, please post some details of your diagnosis - PSAs

> leading

> > up to the diagnosis, Gleason Score, Staging and any questions you

might

> > have. Just remember - there are no dumb questions. We all started

> off where

> > you are now, but we've collectively learned a lot over the years.

> >

> >

> >

> >

> >

> >

> >

> > All the best

> >

> >

> >

> > Terry Herbert

> >

> > in Melbourne Australia

> >

> > Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No

> treatment. June

> > '04: TURP. Aug '06 PSA 27.4

> >

> > My site is at www.prostatecancerwatchfulwaiting.co.za

> >

> > It is a tragedy of the world that no one knows what he doesn't know,

> and the

> > less a man knows, the more sure he is that he knows everything. Joyce

> > Carey

> >

>

[Guest guest]

Thank you for emailing me but I will be away until December 10, 2006. I will have no access to email during my abscence. If this is an emergency please email Kamal McCray at Kmccray@....

[Guest guest]

Thank you for emailing me but I will be away until December 10, 2006. I will have no access to email during my abscence. If this is an emergency please email Kamal McCray at Kmccray@....

[Guest guest]

Thank you for emailing me but I will be away until December 10, 2006. I will have no access to email during my abscence. If this is an emergency please email Kamal McCray at Kmccray@....

[Guest guest]

Thank you for emailing me but I will be away until December 10, 2006. I will have no access to email during my abscence. If this is an emergency please email Kamal McCray at Kmccray@....