Hello everyone

[Guest guest]

Hi Keliz,

Sorry to hear you've had a time of it, but it sounds like you gotten some things

done anyway. Go easy on yourself, don't over do. I know we don't know how to

conform to that order very well, lol at least I do. What anxiety med did the doc

put you on? My dogs wake me up all the time too. No one else in the house, just

me! They know I won't yell at them for needing to go outside and my love for

them is unconditional. I'm mom, what can I say. lol I bet your dogs feel the

same way.

I hope your pain isn't so bad right now and you have great days ahead of you.

Hugs,

~Tommie

Hello Everyone

I have been offline for awhile due to pain issues. The new anti-anxiety

med is making me feel drugged. Then my dogs woke me up at the crack of

dawn wanting out. So today I feel tired. I finished all my cookies and

just have about a week to clean the house before Jeff's parents come

for Xmas.

Welcome to all the newbies, you will like this forum everyone here is

soo sweet and kind.

I wish everyone pain free days and the sun on your faces..

keliz

[Guest guest]

In a message dated 7/16/2007 1:45:41 P.M. Eastern Daylight Time,

CRN724@... writes:

I am required to get him to occupational

therapy and school and anything else. I also have to get my other

kids to the places they need to go. It's so hard and so frustrating.

I used to be able to jump out of bed and do anything I needed to do.

Now it takes me about two hours to get out of bed. God forbid I have

anything scheduled early in the morning!

could adhesions be a possibility? were your kids c sections? ... does your

child have a IEP they would be required to transport if u are ill.. any

surgery's at all?

Rose

************************************** Get a sneak peak of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Hi..

17 years ago I had a pain that would travel..strangest

pain you ever felt. Very difficult to describe. It

would center itself under the right shoulder blade and

raise hell for the next 24 hours, knocking me out of

commission for the next three days.

I had all the tests...gallbladder first suspicion..and

then kidney because of the " traveling " ..all clean. I

was then diagnosed with a " spasm " . I was

surprised...it felt three feet deep. The pain too odd

to be able to properly describe. I went a total of 9

years with this monster and ended up on full

disablity.

I was told they don't use pain meds for chronic pain

people. I never even asked. Just wanted it to stop.

So I was loaded down with antispasm meds...to the

point of being a very limp, relaxed person...but no

dent in the " spasm " . It went on as before...I started

loosing the will to live and that is soooo not me.

Finally someone used some Tylenol 3's. Magic bullet!

I mean that literally. It made what was happening

stop. Not masking pain...just stopped like pulling a

plug.

I was able to get my old doctor back by getting on the

disability and using the insurance with medicare. He

kept using the T3's after we settled on a number per

month that may work out. Yes!! I got included my

care! God..I missed him.

I can control it now and have a degree of my life

back. Turns out the opiates do have nerve signal

scrambeling abilities. Closed the nerve gateway.

It's helping with the fibro and myaofacial pain

syndrome and the lower back where L3 and L4 caved in

on the nerves due to Osteoarthritis. My doc and I

think it may be arising from Myofacial Pain. I read

one article where opiates helped the myofacial " spasm "

where other methods didn't work. Fianlly...something

that made sense. Those type of spasms are very

deep...and Myofacial spasms can exist with

Fibromyalgia. Problem is it's invisible. Were you

checked for " Trigger Points " . Trigger points go with

myofacial pain syndrom and tender points with

fibromyalgia. Maybe a trigger point is going nuts.

This kind of thing doesn't show on xray or mri's

except the osteoarthritis. It was always invisible.

My doctor understand what happens so we maintain it.

I don't know if something like this is happening to

you but who knows. Being anti pain meds like my

clinic docs were you may not know if something like

that would help it or not. You should have a choice.

I can keep it from happeing because if I continue with

a low opiate dose (with some timeout for tolerance

lowering)...the gateway stays closed. When I found out

" The Beast " could be controlled...I could commit

again. Like planning stuff like Thanksgiving or

something like that. Before I couldn't. I just have

to deal with other crap but the t3's do help me a lot.

I hope they find what's going on with you. I never

expected all this invisible stuff. I feel some

bitterness because of 9 years with that " Beast " .

Three years were my fault but the other years doctors

fault who didn't believe in narcotic use. I don't

advocate them if not needed but if needed...teach the

patient how to use them and monitor. Check out the

trigger points. They do strange things.

*¬*.¸¸.·´¨`»*«´¨`·.¸¸.*¬*

On the internet, no one knows you're a cat.

~*~StrykerMom~*~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

--- crn111591 wrote:

> Hi. My name is Chelle and I am a 43 year old with

> chronic abdominal

> pain. I've been through multitudes of tests and

> they can't find

> anything wrong. I even had my gall bladder removed,

> but the pain came

> back worse. My gastroenterologist is pretty much

> throwing up his

> hands because he doesn't know what to do for me. At

> this point, he

> doesn't think the problem is digestive, but the pain

> is centered in my

> stomach, so I don't know what to think.

>

> My quality of life has gone downhill very fast. I

> am unable to do a

> lot of things I would like to do because I never

> know how I am going

> to be feeling from day to day. They won't give me

> narcotics because I

> don't have an " official " diagnosis. I am on

> ultracet and bentyl. The

> ultracet would help if I could take more of it, but

> they only will let

> me have 8 pills a day. Sometimes I have to take

> more because it hurts

> so much.

>

> I find myself watching the television and thinking

> " I'll bet her

> stomach doesn't hurt, I'll bet his stomach doesn't

> hurt. " That's got

> to be counterproductive! LOL I have three children

> and the youngest

> who is 8 has autism so I am required to get him to

> occupational

> therapy and school and anything else. I also have

> to get my other

> kids to the places they need to go. It's so hard

> and so frustrating.

> I used to be able to jump out of bed and do

> anything I needed to do.

> Now it takes me about two hours to get out of bed.

> God forbid I have

> anything scheduled early in the morning!

>

> I find myself getting very depressed and frustrated

> by the pain. I've

> lived with fibromyalgia since I was a teenager, but

> I never had the

> trouble doing things when I was dealing with that

> like the trouble I

> have now. They're going to send me to a pain clinic

> in August and I'm

> currently getting acupuncture treatments, which I

> think are actually

> helping. I had lost all hope of ever feeling

> better, but the last two

> weeks with the acupuncture treatment have been a

> little bit better.

> My mother says that western medicine has failed me

> so I might as well

> try Eastern medicine. I wasn't too thrilled about

> the needles but

> they really don't hurt, thank God.

>

> Someone said something about laws regarding

> dispensing narcotics to

> pain patients. Does anyone know any more about

> this? I do much

> better on narcotics than the ultracet but I can't

> get the doctor to

> give me more.

>

> That's my story. I hope all of you are having a

> pain free day today.

>

> Chelle

>

>

Lotacats >^.^<

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/2715248

Myspace

http://www.myspace.com/lotacats

________________________________________________________________________________\

____

8:00? 8:25? 8:40? Find a flick in no time

with the Yahoo! Search movie showtime shortcut.

http://tools.search.yahoo.com/shortcuts/#news

[Guest guest]

>

>

My kids were all vaginal deliveries. I had laparoscopic surgery years

ago which did find a few adhesions but that's not something they've

tested for. Which kind of doctor would I go to?

Since it's summer, I have in private occupational therapy, so I

have to drive him. During the school year, he can get the special

education bus, but it comes much earlier than the regular bus and he

has a hard time getting up in time, so I've been driving my two

youngest kids to school in the morning. I'm not looking forward to

going back to that schedule in the fall

The only surgery I've had is to have my gall bladder removed. I keep

wondering if something went wrong with the surgery since the pain got

worse after I had it. I'm not sure where to turn now for help. I

wish I could get the doctor I'm seeing to understand how much pain I'm

in. I hate waking up in the morning! Another day of either forcing

myself to go out or laying on the couch. My life sucks lately.

(Excuse my french)

Thanks for the suggestions.

Chelle

>

>

>

> could adhesions be a possibility? were your kids c sections? ...

does your

> child have a IEP they would be required to transport if u are ill..

any

> surgery's at all?

>

> Rose

>

>

>

> ************************************** Get a sneak peak of the

all-new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

>

[Guest guest]

Hi Chelle...I hear you about the chronic abdominal pain...Has been quite

a journey for me...about 5 years worth or more....also had my gall

bladder removed...Gastro's brilliant response was, " I hope it

helps " ...Gastro had nothing else to offer me in his bag of tricks except

Zelnorm...that was about 2 1/2 years ago...when I read the side effects

could be rectal hemmoraging, I thought, NO WAY...and guess what??

Another drug that was taken off the market...Long story short...after

much of MY OWN research, I decided to go totally wheat and gluten free

and cut out most sugar...(I was tested and discovered I had a wheat and

gluten sensitivity)... also I went totally organic...I eat nothing with

preservatives in it and drink only spring water and rooibos tea....It

took about 6 months but it has helped better than any thing else..I am

on my 3rd year....it's the only thing that cured my chronic constipation

(sorry)..the ONLY thing!!! None of their drugs did a thing for me but

create unwanted side effects....just thought I'd tell you my

story....good luck to you....

[Guest guest]

Hi ,

I've been seeing an acupuncture doctor and she has all kinds of diet

recommendations. I'm sure I have some food allergies or at least

sensitivities. The gastro hasn't talked about testing for them. Did

you have any testing done?

They're wanting to schedule a test for overgrowth of bacteria in my

small intestine. I guess it's a fairly new test and if it's positive

they can give me certain antibiotics which work for some people with

IBS and other digestive illnesses. I'm willing to try anything at

this point. I now have an appointment at the UVA teaching hospital

August 31st (what a LONG time???)

I know I should change my diet and am to the point where I would do

anything to get rid of this pain. BUT (there's always a but, right?)

I have some sensory issues with food and a lot of the things they say

will help, I just can't eat. We've never eaten a healthy diet since I

got married. It sounds like a really bad excuse and I should at least

try it. I just can't stand the thought of giving up certain things

when they're the only things I like to eat. Of course, if they're

causing pain, I should be willing to do it, shouldn't I? I think I'm

going to ask the gastro doc to test me for food allergies next.

So now I've got the acupuncture, the breath test, the pain clinic, and

the referral to UVA. Hopefully between all of those things, something

will show up. Pain for nine months CAN'T be nothing and I hate not

having a diagnosis. Does anyone else have a doctor telling them

there's nothing wrong with them? I think he thinks I just want the

strong drugs. My psychiatrist told me yesterday that men have a much

easier time getting the right drugs than women do. Doctors just don't

listen to women or believe them. That really pisses me off.

Chelle

>

> Hi Chelle...I hear you about the chronic abdominal pain...Has been quite

> a journey for me...about 5 years worth or more....also had my gall

> bladder removed...Gastro's brilliant response was, " I hope it

> helps " ...Gastro had nothing else to offer me in his bag of tricks except

> Zelnorm...that was about 2 1/2 years ago...when I read the side effects

> could be rectal hemmoraging, I thought, NO WAY...and guess what??

> Another drug that was taken off the market...Long story short...after

> much of MY OWN research, I decided to go totally wheat and gluten free

> and cut out most sugar...(I was tested and discovered I had a wheat and

> gluten sensitivity)... also I went totally organic...I eat nothing with

> preservatives in it and drink only spring water and rooibos tea....It

> took about 6 months but it has helped better than any thing else..I am

> on my 3rd year....it's the only thing that cured my chronic constipation

> (sorry)..the ONLY thing!!! None of their drugs did a thing for me but

> create unwanted side effects....just thought I'd tell you my

> story....good luck to you....

>

>

>

>

[Guest guest]

Hi! My name is Venus and I wanted to introduce myself breifly to

everyone. I'm a 26 year old mom in San Francisco. I'm married and

have a 9 year old son. The reason I would like to be a part of your

group is because I suffer from RSD, migraines, TMJ, and anxiety. I

got hurt at my job at a shoe store in March 2001 and developed the

RSD from that. I did go back to work on & off until 2005. I also

developed severe anxiety around the same time as the RSD. My

migraines started in summer 2003 and my jaw locked shut in July

2006, and is doing better now but still hurts daily. I could barely

eat for 6 months becase of it.

It's been a tough road and I'm currently battling the SSDI system. I

applied in September 2006 and am still waiting for my first

decision. I also applied in 2001 but was denied & did not pursue it

then, because I didnt think I'd be so sick.

Its so hard being so sick so young too. I even went back to school

in 2002-2003 but I cant use any of it because of my health issues.

I've been with a great pain management specialist since October

2006. Before him, I saw 16 doctors for my RSD, 4 for migraines, 2

for anxiety and 2 for TMJ.

Anyway, I hope I can contribute & support others and have some

people to help me out too when I need it. I'm good at searching for

info and would love to help anyone who needs info on doctors in my

area (San Francisco) or other services, or try to searh other areas

as well.

Take care everyone!

-Venus