Re: concerned grandmother of 9week old infant boy

[Guest guest]

In a message dated 4/12/2006 10:57:01 AM Eastern Standard Time,

adriennelynn1@... writes:

I notice it mostly when I'm holding him asleep in my arms. I don't notice

that he does this while sleeping in a prone position in the crib. I've never

noticed another baby extend his neck backward like he does.

My eldest child used to do this also. I think it had something to do with

the position she was in while still in the womb... She would wiggle out flat,

and push her head back extended into the crook of your arm... It was pretty

weird looking, but she was comfortable!

That said, with the dimple, you say it is actually IN the butt crack, and

you have to spread the cheeks to see it? If so, it should be a harmless

pilonidal dimple... If it is ABOVE the butt cheeks, then I'd get it checked out

further... If there are any other anomalies - especially midline ones like

kidney issues, heart anomalies, spine anomalies, anorectal or urogenital

anomalies

- then I'd get it checked out no matter what, as these kinds of issues can

often occur in groups, since the structures develop at the same time and a

problem with one can mean problems in other areas...

Also, you need to monitor the dimple either way as he gets older, to make

sure it is kept clean, and that as he reaches adolescence, he doesn't get any

infections in it from ingrown hairs...

Here is some info about the pilonidal dimples... I've also sent you pics of

dimples separately... Congrats on the grandson!

_http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm_

(http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm)

Connie

Mom to Sara 14, Nicky 7 (GI issues, megacolon), and 5

(CRS/VACTERLS incl. tethered spinal cord (repaired 9/00) perineal fistula

imperforate anus (repaired 5/00), single kidney, PDA (closed on its own),

malformed pelvis and hemisacrum, long segment lumbosacral levoscoliosis with

hemivertebrae, extra left rib, genital anomalies with hypospadius (repairs

9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with clubfoot (repaired

5/01),

tibial torsion and 4.5cm length discrepancy - wears AFO and 3.5cm lift, SUA,

GI reflux, DGE/gastroparesis, mild swallowing dysphagia, eating issues and the

most beautiful smile ever) _conni60640@..._ (mailto:conni60640@...)

Our website _http://members.tripod.com/conni60640-ivil/_

(http://members.tripod.com/conni60640-ivil/)

TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_

(http://health.groups.yahoo.com/group/LMC-TCS/)

Congenital scoliosis support group

_http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

(http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

S. Jersey

[Guest guest]

Adrienne,

CONGRATULATIONS GRANDMA!! Babies are such a joy, aren't they? They can make

us worry too, though. The position you describe sounds like the position my

newborn likes to be too.. She doesn't have TSC..

The dimple would be a concern, but having other family members have it makes

it less of a concern, but still a concern.. I would recommend talking to the

pediatrician and demanding an MRI.. A MRI is no radiation.. It's all

magnetic Resonance.. So it won't be bad for the baby.. You said he's a

conent baby.. If you hurry and get the MRI done now, you might be able to do

it without sedation.. AND it's better to know sooner then later if the baby

has TSC just because the baby will have a TON of growth spurts to go

through.

I have to be honest.. My cousins child, and a friend's child all had the

same " dimple " that my daughter had (no hairy patch).. and they were 100%

okay.. So that may be the case for this baby.. BUT it's better to be safe

then sorry.. A MRI won't hurt him.. It will be tougher on mom cause she'll

have to starve him a little bit, and then feed him just before the test so

he sleeps through the test.

Best of luck!

JenNY

>

> Hi all,

> I'm a new member and have read through about a month's worth of posts so

> far. I've hesistated to write, but I think I might as well just jump in with

> a couple questions. My nine-week-old grandson was born with a dimple near

> the top of the crack in his bottom (sorry I don't know physical term). No

> hair is protruding, no lump or anything else present at the site of the

> dimple that would suggest a problem. However, I've noticed that he likes to

> arch his head backward when I'm holding him asleep in the crook of my

> arm. His head extends in a relaxed state over my arm in an arch that has

> his ears coming way far beyond his shoulders. He seems perfectly content to

> sleep that way. He likes to be on his tummy too, with his back

> arched. There doesn't appear to be an anxiousness associated with it. He

> does hold his head forward and touch his chin to his chest, and will sit up

> with back support with his head erect. I feel that he prefers the tummy

> position when awake, and/or

> propped up on my shoulder. He doesn't arch in an anxious or fretful way;

> he's a very happy and content baby. When propping him on my shoulder, I

> don't notice the arching. He holds his head up easily. I notice it mostly

> when I'm holding him asleep in my arms. I don't notice that he does this

> while sleeping in a prone position in the crib. I've never noticed another

> baby extend his neck backward like he does. I've wondered if it could be

> something simpler, like an effort to shorten the length of the spinal cord

> due to tension, or because of the dimple, something more serious, like

> tethered spinal cord. At what point could I suspect TSC?

>

> Maybe I'm just a nervous grandmother, but before I'd ever say anything

> to my daughter, I thought maybe I could find some help here. I've looked at

> quite a few websites regarding tethered cords. Most discuss severe symptoms

> my grandson does not have and none mention the neck arching (that's what I

> call it for lack of a better term.)

>

> My 21-year-old son has the same kind of dimple also. His grandfather

> has one too. No problems that I know of except that my son does have a mild

> to moderate scoliosis that develped in his teens.

>

> Thank you, in advance for any information that could help me rule out

> tethered cord, or wether to seek medical advice.

>

> Adrienne

>

>

> ---------------------------------

> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great

> rates starting at 1¢/min.

>

>

[Guest guest]

Thank you for such a quick response to my post. I'm going to

consider what you said, but I'm still afraid to tell my daughter at

this point, I think. If there was more evidence to suspect TSC, then I

might not be so hesitant. For instance, I've read about babies' feet

developing abnormalites. At what point would that start happening? Or

what have other moms noticed about their babies that concerned them or

pointed to TSC? On the other hand, I know that some people don't have

symptoms until they get older. I'm in a hard place at the moment, I

think. On the basis of a dimple, would most of the group have an MRI

done? Thank you for your comments and encouragement. I sure am

enjoying my sweet little grandson.

Adrienne

[Guest guest]

Adrienne,

I can understand your hesitation, as it is a hard position.. but if there IS

a problem, the sooner the better.. I would casually bring it up to her that

you were reading online about the dimple, and it could be....TSC, but that

her brother has it as well.. so it's probably nothing, but we should be safe

then sorry.. Or something.. just tell her it's probably nothing at all, but

you really just want to be certain. You don't have to tell her about

surgery and all that, but just say if there is a problem, we can get him

help now so it won't turn into anything later.. or something like that.

My daughters feet weren't knock-out noticeable until she was learning to

walk.. BUT.. if I look back at her photos I can now see it.. In pictures

where she was sitting up.. like age 6mos plus.

There are so many different " signatures " but some have nothing at all.. Mine

had the dimple plus a hemangioma.. Some don't.. (many don't).. But a dimple

alone is enough to just want to make sure it's nothing. We hope it is

nothing in your case.

>

> Thank you for such a quick response to my post. I'm going to

> consider what you said, but I'm still afraid to tell my daughter at

> this point, I think. If there was more evidence to suspect TSC, then I

> might not be so hesitant. For instance, I've read about babies' feet

> developing abnormalites. At what point would that start happening? Or

> what have other moms noticed about their babies that concerned them or

> pointed to TSC? On the other hand, I know that some people don't have

> symptoms until they get older. I'm in a hard place at the moment, I

> think. On the basis of a dimple, would most of the group have an MRI

> done? Thank you for your comments and encouragement. I sure am

> enjoying my sweet little grandson.

>

> Adrienne

>

>

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email kathy@...,

> michelle@..., rick@...

>

[Guest guest]

Thanks again. Your suggestions are good for bringing up the subject,

and I will try to discuss it with her soon. The info. you've given is

really helpful.

Adrienne

[Guest guest]

Hi Connie and Adrienne

I agree with you about the position of the dimple, but I think any type of

unusual sign anywhere along the midline should at least be checked out.

Mine is literally about 1/4 inch above the butt crack and when I stand up

it is not noticeable. The pediatrician only noticed it on the morning after

I was born when they were doing the usual post-natal checks, but of course

in the 1960s TCS was relatively unknown and I was left alone and nothing

was ever explained to my parents. Guess what happened - the result of

thickened filum at L5/S2 - deformed feet and ankles etc etc that goes with

TCS and my feet were showing deformation by the time I was 18 months. I had

no other signs like hemangiomae or hair tufts, and it took another 32 years

for anyone to really tell me what I have/had

Adrienne, don't let your grandson slip through the gaps in the medical

system like I did. Even just getting it checked out now may resolve what is

going on and then you can stop worrying about it and get on with enjoying

him

Keep us updated

Regards

Nina

Bristol, UK

--

>

> In a message dated 4/12/2006 10:57:01 AM Eastern Standard Time,

> adriennelynn1@... writes:

>

> I notice it mostly when I'm holding him asleep in my arms. I don't

> notice that he does this while sleeping in a prone position in the

> crib. I've never noticed another baby extend his neck backward like he

> does.

>

>

> My eldest child used to do this also. I think it had something to do

> with the position she was in while still in the womb... She would wiggle

> out flat, and push her head back extended into the crook of your arm...

> It was pretty weird looking, but she was comfortable!

>

> That said, with the dimple, you say it is actually IN the butt crack, and

> you have to spread the cheeks to see it? If so, it should be a harmless

> pilonidal dimple... If it is ABOVE the butt cheeks, then I'd get it

> checked out further... If there are any other anomalies - especially

> midline ones like kidney issues, heart anomalies, spine anomalies,

> anorectal or urogenital anomalies - then I'd get it checked out no

> matter what, as these kinds of issues can often occur in groups, since

> the structures develop at the same time and a problem with one can mean

> problems in other areas...

>

> Also, you need to monitor the dimple either way as he gets older, to make

> sure it is kept clean, and that as he reaches adolescence, he doesn't

> get any infections in it from ingrown hairs...

>

> Here is some info about the pilonidal dimples... I've also sent you

> pics of dimples separately... Congrats on the grandson!

>

> _http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm_

> (http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm)

>

> Connie

> Mom to Sara 14, Nicky 7 (GI issues, megacolon), and 5

> (CRS/VACTERLS incl. tethered spinal cord (repaired 9/00) perineal

> fistula imperforate anus (repaired 5/00), single kidney, PDA (closed on

> its own), malformed pelvis and hemisacrum, long segment lumbosacral

> levoscoliosis with hemivertebrae, extra left rib, genital anomalies

> with hypospadius (repairs 9/00,11/00, 5/01,12/01,12/03), hypoplastic

> left leg with clubfoot (repaired 5/01), tibial torsion and 4.5cm length

> discrepancy - wears AFO and 3.5cm lift, SUA, GI reflux,

> DGE/gastroparesis, mild swallowing dysphagia, eating issues and the most

> beautiful smile ever) _conni60640@..._ (mailto:conni60640@...)

>

> Our website _http://members.tripod.com/conni60640-ivil/_

> (http://members.tripod.com/conni60640-ivil/)

>

> TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_

> (http://health.groups.yahoo.com/group/LMC-TCS/)

>

> Congenital scoliosis support group

> _http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

> (http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

>

> S. Jersey

>

>

>

[Guest guest]

Thank you Nina,

Your suggestions and comments have been so helpful and greatly

appreciated. I agree that it's better to be pro-actice and deal with

things early on if there is a problem. My grandson's dimple is midway

between the top of his crack and the anus. It was noticed at birth,

but no advice or comments were given. Just, " Oh, he has a dimple. " It

didn't worry me at first, because my older son has the exact same

kind of dimple. It was his tendancy to extend his neck backwards when

lying in my arms that caught my attention.

When you say that he should be checked out, do you also mean an MRI

scan should be done?

Adrienne

In tetheredspinalcord , " AB Bunton, Electrical &

Electronic Engineering " wrote:

>

> Hi Connie and Adrienne

>

> I agree with you about the position of the dimple, but I think any

type of

> unusual sign anywhere along the midline should at least be checked

out.

>

> Mine is literally about 1/4 inch above the butt crack and when I

stand up

> it is not noticeable. The pediatrician only noticed it on the

morning after

> I was born when they were doing the usual post-natal checks, but of

course

> in the 1960s TCS was relatively unknown and I was left alone and

nothing

> was ever explained to my parents. Guess what happened - the result

of

> thickened filum at L5/S2 - deformed feet and ankles etc etc that

goes with

> TCS and my feet were showing deformation by the time I was 18

months. I had

> no other signs like hemangiomae or hair tufts, and it took another

32 years

> for anyone to really tell me what I have/had

>

> Adrienne, don't let your grandson slip through the gaps in the

medical

> system like I did. Even just getting it checked out now may resolve

what is

> going on and then you can stop worrying about it and get on with

enjoying

> him

>

> Keep us updated

>

> Regards

>

> Nina

> Bristol, UK

>

>

>

>

>

[Guest guest]

The pictures are really helpful. Yes, the dimple is in the butt

crack. My grandson has been checked out by a chiropractor as to his

spine, and he says his spine is in great shape. As to any other

problems (heart, kidneys, etc.), there are none that we know of.

Thank you for your insights too about the neck extension issue.

I so appreciate everyone who has taken the time to respond. You all

are a very supportive group.

Adrienne

>

>

> In a message dated 4/12/2006 10:57:01 AM Eastern Standard Time,

> adriennelynn1@... writes:

>

> I notice it mostly when I'm holding him asleep in my arms. I

don't notice

> that he does this while sleeping in a prone position in the crib.

I've never

> noticed another baby extend his neck backward like he does.

>

>

> My eldest child used to do this also. I think it had something to

do with

> the position she was in while still in the womb... She would wiggle

out flat,

> and push her head back extended into the crook of your arm... It

was pretty

> weird looking, but she was comfortable!

>

> That said, with the dimple, you say it is actually IN the butt

crack, and

> you have to spread the cheeks to see it? If so, it should be a

harmless

> pilonidal dimple... If it is ABOVE the butt cheeks, then I'd get it

checked out

> further... If there are any other anomalies - especially midline

ones like

> kidney issues, heart anomalies, spine anomalies, anorectal or

urogenital anomalies

> - then I'd get it checked out no matter what, as these kinds of

issues can

> often occur in groups, since the structures develop at the same

time and a

> problem with one can mean problems in other areas...

>

> Also, you need to monitor the dimple either way as he gets older,

to make

> sure it is kept clean, and that as he reaches adolescence, he

doesn't get any

> infections in it from ingrown hairs...

>

> Here is some info about the pilonidal dimples... I've also sent

you pics of

> dimples separately... Congrats on the grandson!

>

> _http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm_

> (http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm)

>

> Connie

> Mom to Sara 14, Nicky 7 (GI issues, megacolon), and 5

> (CRS/VACTERLS incl. tethered spinal cord (repaired 9/00) perineal

fistula

> imperforate anus (repaired 5/00), single kidney, PDA (closed on

its own),

> malformed pelvis and hemisacrum, long segment lumbosacral

levoscoliosis with

> hemivertebrae, extra left rib, genital anomalies with hypospadius

(repairs

> 9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with clubfoot

(repaired 5/01),

> tibial torsion and 4.5cm length discrepancy - wears AFO and 3.5cm

lift, SUA,

> GI reflux, DGE/gastroparesis, mild swallowing dysphagia, eating

issues and the

> most beautiful smile ever) _conni60640@..._

(mailto:conni60640@...)

>

> Our website _http://members.tripod.com/conni60640-ivil/_

> (http://members.tripod.com/conni60640-ivil/)

>

> TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_

> (http://health.groups.yahoo.com/group/LMC-TCS/)

>

> Congenital scoliosis support group

> _http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

>

(http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

>

> S. Jersey

>

>

>

[Guest guest]

Hi, thanks for this

Personally ( and I am not a doctor) an MRI would be helpful. Sacral dimples

may look innocent on the outside, but in the context of tethered cord

syndrome may conceal a low lying cord, tethered by the thickened filum

terminale, which lies within the dura and spinal bones, but can be as much

of a problem as a lipoma or split cord tether

Have a look at my website and the resources on there. It may be helpful.

Let me know if you have any questions

best wishes

Nina

<http://www.btinternet.com/~tetheredcordresources/>

--On 12 April 2006 23:09 +0000 adriennelynn1

wrote:

> Thank you Nina,

> Your suggestions and comments have been so helpful and greatly

> appreciated. I agree that it's better to be pro-actice and deal with

> things early on if there is a problem. My grandson's dimple is midway

> between the top of his crack and the anus. It was noticed at birth,

> but no advice or comments were given. Just, " Oh, he has a dimple. " It

> didn't worry me at first, because my older son has the exact same

> kind of dimple. It was his tendancy to extend his neck backwards when

> lying in my arms that caught my attention.

>

> When you say that he should be checked out, do you also mean an MRI

> scan should be done?

>

> Adrienne

>

>

> In tetheredspinalcord , " AB Bunton, Electrical &

> Electronic Engineering " wrote:

>>

>> Hi Connie and Adrienne

>>

>> I agree with you about the position of the dimple, but I think any

> type of

>> unusual sign anywhere along the midline should at least be checked

> out.

>>

>> Mine is literally about 1/4 inch above the butt crack and when I

> stand up

>> it is not noticeable. The pediatrician only noticed it on the

> morning after

>> I was born when they were doing the usual post-natal checks, but of

> course

>> in the 1960s TCS was relatively unknown and I was left alone and

> nothing

>> was ever explained to my parents. Guess what happened - the result

> of

>> thickened filum at L5/S2 - deformed feet and ankles etc etc that

> goes with

>> TCS and my feet were showing deformation by the time I was 18

> months. I had

>> no other signs like hemangiomae or hair tufts, and it took another

> 32 years

>> for anyone to really tell me what I have/had

>>

>> Adrienne, don't let your grandson slip through the gaps in the

> medical

>> system like I did. Even just getting it checked out now may resolve

> what is

>> going on and then you can stop worrying about it and get on with

> enjoying

>> him

>>

>> Keep us updated

>>

>> Regards

>>

>> Nina

>> Bristol, UK

>>

>>

>>

>>

>>

>

>

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

> kathy@...,michelle@..., rick@...

>

[Guest guest]

Personally, if you are concerned and if he does have

some Signs, I wouldn't take the word of a Chiropractor,

if I were you. They do do good for some people,

but I wouldn't use them to Diagnosis.

Me

Nebraska, USA

mymocha@...

My grandson has been checked out by a chiropractor as to his

> spine, and he says his spine is in great shape. As to any other

> problems (heart, kidneys, etc.), there are none that we know of.

[Guest guest]

> >

> >

> > In a message dated 4/12/2006 10:57:01 AM Eastern Standard Time,

> > adriennelynn1@ writes:

> >

> > I notice it mostly when I'm holding him asleep in my arms. I

> don't notice

> > that he does this while sleeping in a prone position in the

crib.

> I've never

> > noticed another baby extend his neck backward like he does.

> >

> >

> > My eldest child used to do this also. I think it had something

to

> do with

> > the position she was in while still in the womb... She would

wiggle

> out flat,

> > and push her head back extended into the crook of your arm...

It

> was pretty

> > weird looking, but she was comfortable!

> >

> > That said, with the dimple, you say it is actually IN the butt

> crack, and

> > you have to spread the cheeks to see it? If so, it should be a

> harmless

> > pilonidal dimple... If it is ABOVE the butt cheeks, then I'd get

it

> checked out

> > further... If there are any other anomalies - especially midline

> ones like

> > kidney issues, heart anomalies, spine anomalies, anorectal or

> urogenital anomalies

> > - then I'd get it checked out no matter what, as these kinds of

> issues can

> > often occur in groups, since the structures develop at the same

> time and a

> > problem with one can mean problems in other areas...

> >

> > Also, you need to monitor the dimple either way as he gets

older,

> to make

> > sure it is kept clean, and that as he reaches adolescence, he

> doesn't get any

> > infections in it from ingrown hairs...

> >

> > Here is some info about the pilonidal dimples... I've also

sent

> you pics of

> > dimples separately... Congrats on the grandson!

> >

> > _http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm_

> > (http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm)

> >

> > Connie

> > Mom to Sara 14, Nicky 7 (GI issues, megacolon), and 5

> > (CRS/VACTERLS incl. tethered spinal cord (repaired 9/00)

perineal

> fistula

> > imperforate anus (repaired 5/00), single kidney, PDA (closed on

> its own),

> > malformed pelvis and hemisacrum, long segment lumbosacral

> levoscoliosis with

> > hemivertebrae, extra left rib, genital anomalies with

hypospadius

> (repairs

> > 9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with

clubfoot

> (repaired 5/01),

> > tibial torsion and 4.5cm length discrepancy - wears AFO and

3.5cm

> lift, SUA,

> > GI reflux, DGE/gastroparesis, mild swallowing dysphagia, eating

> issues and the

> > most beautiful smile ever) _conni60640@_

> (mailto:conni60640@)

> >

> > Our website _http://members.tripod.com/conni60640-ivil/_

> > (http://members.tripod.com/conni60640-ivil/)

> >

> > TC support group _http://health.groups.yahoo.com/group/LMC-

TCS/_

> > (http://health.groups.yahoo.com/group/LMC-TCS/)

> >

> > Congenital scoliosis support group

> >

_http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

> >

>

(http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

> >

> > S. Jersey

> >

> >

> >

[Guest guest]

Hey all,

I have been out of the loop for a while but wanted to reply to this

message.... The old " if the dimple is in the gluteal rease (butt

crack) it is not tethered cord " has been replaced with a newer

oppinion on whether or not it " might " be tethered cord. The info that

I have from the tethered cord researchers at Duke U. is that if it

points superiorly (toward the head) it should be checked. If it is

inferior (toward the feet) it most likkely is not TSC and if it is

anterior (toward the front of the body) the child should be watched

for S/S of TSC for further eval.

Charnel

PS My childrens and my dimples are all anterior and we all have had to

be detethered (please forgive my spelling)

> >

> >

> > In a message dated 4/12/2006 10:57:01 AM Eastern Standard Time,

> > adriennelynn1@ writes:

> >

> > I notice it mostly when I'm holding him asleep in my arms. I

> don't notice

> > that he does this while sleeping in a prone position in the crib.

> I've never

> > noticed another baby extend his neck backward like he does.

> >

> >

> > My eldest child used to do this also. I think it had something to

> do with

> > the position she was in while still in the womb... She would wiggle

> out flat,

> > and push her head back extended into the crook of your arm... It

> was pretty

> > weird looking, but she was comfortable!

> >

> > That said, with the dimple, you say it is actually IN the butt

> crack, and

> > you have to spread the cheeks to see it? If so, it should be a

> harmless

> > pilonidal dimple... If it is ABOVE the butt cheeks, then I'd get it

> checked out

> > further... If there are any other anomalies - especially midline

> ones like

> > kidney issues, heart anomalies, spine anomalies, anorectal or

> urogenital anomalies

> > - then I'd get it checked out no matter what, as these kinds of

> issues can

> > often occur in groups, since the structures develop at the same

> time and a

> > problem with one can mean problems in other areas...

> >

> > Also, you need to monitor the dimple either way as he gets older,

> to make

> > sure it is kept clean, and that as he reaches adolescence, he

> doesn't get any

> > infections in it from ingrown hairs...

> >

> > Here is some info about the pilonidal dimples... I've also sent

> you pics of

> > dimples separately... Congrats on the grandson!

> >

> > _http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm_

> > (http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm)

> >

> > Connie

> > Mom to Sara 14, Nicky 7 (GI issues, megacolon), and 5

> > (CRS/VACTERLS incl. tethered spinal cord (repaired 9/00) perineal

> fistula

> > imperforate anus (repaired 5/00), single kidney, PDA (closed on

> its own),

> > malformed pelvis and hemisacrum, long segment lumbosacral

> levoscoliosis with

> > hemivertebrae, extra left rib, genital anomalies with hypospadius

> (repairs

> > 9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with clubfoot

> (repaired 5/01),

> > tibial torsion and 4.5cm length discrepancy - wears AFO and 3.5cm

> lift, SUA,

> > GI reflux, DGE/gastroparesis, mild swallowing dysphagia, eating

> issues and the

> > most beautiful smile ever) _conni60640@_

> (mailto:conni60640@)

> >

> > Our website _http://members.tripod.com/conni60640-ivil/_

> > (http://members.tripod.com/conni60640-ivil/)

> >

> > TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_

> > (http://health.groups.yahoo.com/group/LMC-TCS/)

> >

> > Congenital scoliosis support group

> > _http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

> >

> (http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

> >

> > S. Jersey

> >

> >

> >

[Guest guest]

Thank you for your helpful comments. I'm just now catching up on

reading posts. My grandson is now 3mo. old. I spoke with my

daughter about my concerns and she and I both looked at his dimple

again. Since birth, his cheeks have filled out and now, the end or

base of the dimple can be clearly seen. It looks more like a dimple

in the chin would, let's say...like the film star Kirk . I

was so surprised to see that the appearance of the dimple had

changed. At birth, you couldn't see the base of it. Also, it doesn't

appear to be pointing in any direction, although at birth it pointed

towards his feet. My daughter, who had both her children at home

with a lay mid-wife, with no complications, is of a wait and see kind

of attitude. So, that's the update, for now. He seems to be growing

normally, and I'm happy that I at least know what kinds of things to

look for in the future- if there are problems, and that my daugher

does as well. Thanks to all who've posted helpful comments and

suggestions.

Adrienne

> > >

> > >

> > > In a message dated 4/12/2006 10:57:01 AM Eastern Standard

Time,

> > > adriennelynn1@ writes:

> > >

> > > I notice it mostly when I'm holding him asleep in my arms. I

> > don't notice

> > > that he does this while sleeping in a prone position in the

crib.

> > I've never

> > > noticed another baby extend his neck backward like he does.

> > >

> > >

> > > My eldest child used to do this also. I think it had something

to

> > do with

> > > the position she was in while still in the womb... She would

wiggle

> > out flat,

> > > and push her head back extended into the crook of your arm...

It

> > was pretty

> > > weird looking, but she was comfortable!

> > >

> > > That said, with the dimple, you say it is actually IN the butt

> > crack, and

> > > you have to spread the cheeks to see it? If so, it should be a

> > harmless

> > > pilonidal dimple... If it is ABOVE the butt cheeks, then I'd

get it

> > checked out

> > > further... If there are any other anomalies - especially

midline

> > ones like

> > > kidney issues, heart anomalies, spine anomalies, anorectal or

> > urogenital anomalies

> > > - then I'd get it checked out no matter what, as these kinds of

> > issues can

> > > often occur in groups, since the structures develop at the same

> > time and a

> > > problem with one can mean problems in other areas...

> > >

> > > Also, you need to monitor the dimple either way as he gets

older,

> > to make

> > > sure it is kept clean, and that as he reaches adolescence, he

> > doesn't get any

> > > infections in it from ingrown hairs...

> > >

> > > Here is some info about the pilonidal dimples... I've also

sent

> > you pics of

> > > dimples separately... Congrats on the grandson!

> > >

> > > _http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm_

> > > (http://www.nlm.nih.gov/medlineplus/ency/article/003253.htm)

> > >

> > > Connie

> > > Mom to Sara 14, Nicky 7 (GI issues, megacolon), and 5

> > > (CRS/VACTERLS incl. tethered spinal cord (repaired 9/00)

perineal

> > fistula

> > > imperforate anus (repaired 5/00), single kidney, PDA (closed

on

> > its own),

> > > malformed pelvis and hemisacrum, long segment lumbosacral

> > levoscoliosis with

> > > hemivertebrae, extra left rib, genital anomalies with

hypospadius

> > (repairs

> > > 9/00,11/00, 5/01,12/01,12/03), hypoplastic left leg with

clubfoot

> > (repaired 5/01),

> > > tibial torsion and 4.5cm length discrepancy - wears AFO and

3.5cm

> > lift, SUA,

> > > GI reflux, DGE/gastroparesis, mild swallowing dysphagia,

eating

> > issues and the

> > > most beautiful smile ever) _conni60640@_

> > (mailto:conni60640@)

> > >

> > > Our website _http://members.tripod.com/conni60640-ivil/_

> > > (http://members.tripod.com/conni60640-ivil/)

> > >

> > > TC support group _http://health.groups.yahoo.com/group/LMC-

TCS/_

> > > (http://health.groups.yahoo.com/group/LMC-TCS/)

> > >

> > > Congenital scoliosis support group

> > >

_http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

> > >

> >

(http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

> > >

> > > S. Jersey

> > >

> > >

> > >