Re: Gas Caps cutting food

January 17, 2005

LOL as I read your last post the food cutting was going thru my mind. My son is

younge enough he still needs help cutting his food. Today just me and him were

out and as luck would have it, I could not cut his food. ACK, what a dilema, I

finally told him to just go ahead and pick it up and bite it, LOL....

I started being very careful what I try to eat around my mom and siblings, not

becuz they were sad, but becuz they got nasty at me and asked me how I could ask

my husband to do that? I never bothered to tell them some of the other things I

have to ask my husband or kids to do for me....my family thinks, I guess that I

do it for show or something? I went somewhere with my sister and she let the

door close after she went in before I could get in. Turned out the door was too

heavy for me to get open. I stood at that door a few minutes..hoping maybe she

would come back and let me in? She never did, and finally I went back to the

car got in and sat and waited for her. grrrr. My family has zero patience and

tolerance for people who are not totally able on their own. The sad part of

that is since my husband is so ill, it can be a major problem, and with the 2

disabled kids, I can on occasion find myself in a real jam, but my family is not

who I can call for help.

This illness really has complicated my life enormously. Often my husband can't

do lots of those little things I might need help with. And yes, it gets hard

and very scary sometimes. And I do get mad and angry and sad and depressed and

all kinds of emotions. It has been me doing the physical care for them for so

many years and now when I cannot do things, it gets to be a real mess.

Another hard thing is when my sons teacher needs classroom help or a field trip

chaperone, she knows I am home, and she will call and want me to do things and

sometimes I can't, cuz of the RA. One time she swore I had volunteered to

chaperone a trip to wrigley field - ride the bus, climb the bleachers and watch

the kids. I know for a fact I did not volunteer cuz I cannot climb bleachers

and I use a scooter for such events and the scooter does not fit on the school

bus. The teacher told me if I did not chaperone, the kids could not go cuz all

the other parents have jobs. she said I signed up for this trip. I tried to

explain to her that I know better than to sign up to volunteer for that type

thing....cuz I would need my scooter. SHe countered me saying no, you do not

use the scooter for parent teacher conferences, so you are pulling my leg. UG,

my sons heart was broken, cuz yes they cancelled the field trip for lack of

chaperones.....and the teacher told him I had volunteered and backed out. I

tried to explain to the teacher that I have RA, and she said aw look, I have

arthritis, too, but your kids come first. <sigh> People do not understand and

not everyone is supportive. It stinks sometimes.

- In , " Vikki Wingfield " <VWAvon@c...> wrote:

> I totally agree with you. My husband and I recently went out for a steak

dinner with my mom and dad. My hands were really bad that day, so there was no

way I could cut the steak. I had to ask my husband to do it for me. As he was

cutting up my food, I saw the stricken looks on my mom and dad's faces. So I

did the only thing I could do - I asked my husband if he would like to feed me

too! My lame attempt at a joke was enough to lighten the mood and get things

back to normal.

>

> When things get bad, you might as well laugh...

>

> Vikki

> Re: [ ] Gas Caps

>

> hi vikki... so many little things that other people take for granit... we

have to keep our great since of humor... so we can get thru each and every

day... my family knows now when i had them something, they open it.. not a word

is said... ha ha ha..

> later, rae

>

January 17, 2005